Join The Myositis Association online for our VIRTUAL 2021 International Annual Patient Conference, “The Power of US!”. 

Tentative Agenda

** This agenda is based on Eastern Time**

Wednesday, September 8, 2021

6:30pm – 8:00 pm

Pre-Event – Cookies, Cocktails and Convo: A reception for Support Group Leaders

Thursday, September 9, 2021

6:00 pm – 8:00 pm

Pre-Event – Annual Patient Conference Kickoff – The Power of US!
(TMA Reunion – catch up with old friends, meet new people, explore a new virtual environment)

Friday, September 10, 2021

11:00 am

Exhibit Hall Opens

12:00 pm – 1:00 pm

Opening Session: The Power of US!

  • Chrissy M. Thornton, The Myositis Association
  • Kimberly Hildebrand, MFT of Kimberly Hildebrand, LLC

1:00 pm – 2:00 pm

Breakout Sessions

  • COVID-19 and Myositis Updates
    • Latika Gupta MD, DM , Sanjay Gandhi Postgraduate Institute of Medical Sciences
    • Rohit Aggarwal MD, MS, University of Pittsburgh
  • Parenting with Myositis
    • Kaniah Gunter, TMA Community Ambassador
  • Staying Connected to the Myositis Community
    • Jim Mathews, R. Ph., MSA, TMA Board of Directors
  • Complementary Therapy – The Yoga Lifestyle
    • Steffany Moonaz, PhD, Maryland University of Integrative Health

2:00 pm – 2:30 pm

Exhibit Hall Break

2:30 pm – 3:30 pm

Breakout Sessions

  • Myositis 101
    • Julie Paik, MD,MHS, Johns Hopkins Myositis Center
  • Benefits of Good Nutrition and Diet
    • Livleen Gill, MBA, RDN, LDN, FAND
  • Understanding Benefits Eligibility (SSDI, Medicare, Medicaid)
    • Matthew Baxter, Social Security Administration
  • Navigating the Long-Term Effects of Myositis
    • Conrad (Chris) Weihl, MD, PhD, Washington University

3:30 pm – 4:00 pm

Exhibit Hall Break

4:00 pm – 4:30 pm

Feel Good Friday Breakout Sessions

  • Hand Therapy
    • Malin Regardt, PhD, OT, Karolinska University Hospital
  • Laughter Yoga
    • Kevin Cotter, National Alliance On Mental Illness, Volunteer

4:30 pm – 5:00 pm

Feel Good Friday Breakout Sessions

  • Blood Flow Restrictions
    • Brett Burton, PT, DPT, SCS, ATC, CSCS, One Harmonic Motion
  • Virtual Travel Excursion
    • Shevelle Montgomery, The Myositis Association

6:30 pm – 8:00 pm

Bingo After Dark

8:00 pm

First Day Concludes

Saturday, September 11, 2021

10:30 am

Exhibit Hall Opens

11:00 am – 11:30 am

Opening Remarks and Welcome

11:30 am – 1:30 pm

TMA’s Medical Advisory Board

  • Medical Advisory Board Town Hall: Inclusion Body Myositis
    • Thomas Lloyd, MD, PhD, Johns Hopkins Myositis Center (Moderator)
    • Namita Goyal, MD, FAAN, University of California, Irvine
    • Conrad (Chris) Weihl, MD, PhD, Washington University
    • Tahseen Mozaffar, MD, FAAN, FANA, University of California, Irvine
    • Tae Hwan Chung, MD, Johns Hopkins POTS Clinic Program
    • Lindsay Alfano, PT, DPT, PCS, Nationwide Children’s Hospital
  • Medical Advisory Board Town Hall: Dermatomyositis/Interstitial Lung Disease/AntiSynthetase Syndrome
    • Rohit Aggarwal MD, MS, University of Pittsburgh (Moderator)
    • Sonye Danoff, MD, PhD, Johns Hopkins University School of Medicine
    • Victoria Werth, MD, University of Pennsylvania
    • Marianne de Visser, MD, Em. Prof., Academic Medical Center
    • Cheilonda Johnson, MD, MHS, University of Pennsylvania
  • Medical Advisory Board Town Hall: Polymyositis/Necrotizing Myopathy
    • Jens Schmidt, MD, University Medical Center Gottingen (Moderator)
    • Wael Jarjour, MD, FACP, FACR, Ohio State University
    • Erik Ensrud, MD, University of Kansas Health System
    • Olivier Benveniste, MD, Hospital Pitie-Salpetriere
    • Adam Schiffenbauer, MD, National Institute of Health
    • Malin Regardt, PhD, OT, Karolinska University Hospital

1:30 pm – 2:30 pm

TMA’s Got Talent

2:30 pm – 3:30 pm

Breakout Sessions

  • Working While Chronically Ill
    • Hannah Olson, Chronically Capable
  • Practicing Radical Acceptance
    • Paula Knox, LPC, Affinity Counseling
  • Hints and Hacks for Everyday Living: A Show & Tell
    • Rachel Bromley, The Myositis Association
  • Advancing Health Equity: A Community Conversation
    • Chrissy Thornton, The Myositis Association
    • Jennifer Jacquet, MT-BC

3:30 pm – 4:30 pm

Breakout Sessions

  • DM/PM/ILD – Clinical Update
    • Iazsmin Bauer-Ventura, MD, MSc, University of Chicago Medicine
  • Self-Care for the Care Partner
    • C. Grace Whiting, JD, National Alliance On Caregiving
  • Juvenile Myositis – Transitioning to Adult Care
    • Annie Schmidt, MPH, Got Transition/National Alliance to Advance Adolescent Health
  • Home Modification on Any Budget
    • Chrissy M. Thornton, The Myositis Association
    • Rachel Bromley, The Myositis Association
    • Shevelle Montgomery, The Myositis Association

4:30 pm – 5:00 pm

Exhibit Hall Break

5:00 pm

Second Day Concludes

Sunday, September 12, 2021

10:00 am

Welcome, Exhibit Hall Opens

10:30 am – 11:30 am

Breakout Sessions

  • TMA’s Women of Color – Promoting Awareness Through Encouragement, Education and Empowerment
    • Iazsmin Bauer-Ventura, MD, MSc, University of Chicago Medicine
    • Holly Jones, TMA Community Ambassadors
    • Kaniah Gunter, TMA Community Ambassadors
    • Linda Iferika, TMA Community Ambassadors
  • Creating Collaboration: Managing Your Healthcare Team
    • Namita Goyal, MD, FAAN, University of California, Irvine
  • IBM Clinical Update
    • Tahseen Mozaffar, MD, FAAN, FANA, University of California, Irvine

11:30 am – 12:30 pm

Breakout Sessions

  • Living Your Best Life – Refocusing Your Energy
    • Elisa Glass, TMA Community Ambassador
  • Complimentary Therapy – Medical Marijuana
    • Marc Matoza, Marijuana Med Today
  • T-Cell Infiltration and Inclusion Body Myositis
    • Anthony Amato, MD, Brigham and Women’s Hospital, Harvard Medical School
  • Living Trust and Estate Planning
    • Martin Shenkman, CPA, MBA, PFS, AEP, JD, Shenkman, PC

12:30 pm – 1:30 pm

Breakout Sessions

  • Signs and Symptoms of Dysphagia
    • Apoorva Ramaswamy, MD, National Foundation On Swallowing Disorders
  • The Ins and Outs of Clinical Trials
    • Rabih Dahdouh, MS, Northwestern University
  • Embracing Intimacy
    • Joanne Bagshaw, PhD, LCPC of Joanne Bagshaw and Associates
  • Emotional Challenges of Living with Myositis and Strategies for Coping
    • Suzan Fischbein, LCSW, Hospital For Special Surgery

1:30 pm – 2:30 pm

Meet the TMA Board of Directors

2:30 pm – 3:00 pm

Closing Session

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