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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250908T120000
DTEND;TZID=America/New_York:20250908T120000
DTSTAMP:20250819T164930Z
CREATED:20250808T190505Z
LAST-MODIFIED:20250819T164930Z
UID:10001878-1757332800-1757332800@www.myositis.org
SUMMARY:Ask the Expert featuring Astia Allenzara\, MD\, MCSR
DESCRIPTION:Register Here \n💬 Your questions\, answered by a myositis expert! \nAsk the Expert with Dr. Astia AllenzaraJoin us on Monday\, September 8 at 12:00 PM ET / 6:00 PM CEST for a special Ask the Expert session featuring Astia Allenzara\, MD\, MSCR\, an internist and rheumatologist at UNC Chapel Hill. Dr. Allenzara’s work focuses on improving care for people living with rare autoimmune diseases\, including myositis\, and advancing equitable access to treatment. \nAbout Ask the Expert:TMA’s Ask the Expert webinar series gives myositis patients and care partners direct access to world-renowned clinicians\, researchers\, and other specialists. Each session offers the latest information on myositis diagnosis\, treatment\, and day-to-day management\, followed by a Q&A where you can submit your questions in advance.
URL:https://www.myositis.org/event/ask-the-expert-featuring-astia-allenzara-md-mcsr/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/08/ATE-SEPT-2025.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_3QHq1saUTgeahqX0tTG4iQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250906T130000
DTEND;TZID=America/New_York:20250906T143000
DTSTAMP:20260413T162341Z
CREATED:20250801T201217Z
LAST-MODIFIED:20260413T162341Z
UID:10001688-1757163600-1757169000@www.myositis.org
SUMMARY:TMA Worldwide Myositis Support by Diagnosis
DESCRIPTION:TMA’s Worldwide Myositis Support by Diagnosis Group is open to all\, especially those without an active support group in their local area. Formally known as Nationwide\, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis\, and the TMA Care Partner Affinity Group meets in its own room. TMA Worldwide meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT.  \nRegister here
URL:https://www.myositis.org/event/tma-worldwide-myositis-support-by-diagnosis/2025-09-06/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/08/New-Worldwide-2.png
ORGANIZER;CN="Dave Volk":MAILTO:Volk@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMuc-mtqTktHNH_sskpoHflne4zPRAkfS9y
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250906T130000
DTEND;TZID=America/New_York:20250906T143000
DTSTAMP:20250801T204659Z
CREATED:20250605T143744Z
LAST-MODIFIED:20250801T204659Z
UID:10001748-1757163600-1757169000@www.myositis.org
SUMMARY:TMA Care Partner Affinity Group Meeting
DESCRIPTION:Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families.\nJoin the TMA Care Partner Affinity Group: A Space Just for You \nBeing a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress\, anxiety\, or the weight of daily caregiving tasks\, it’s easy to feel overwhelmed and burnt out. That’s why the TMA Care Partner Affinity Group\, founded in 2022\, provides a supportive environment specifically for those who care for someone living with myositis. \nThis group meets in its own dedicated breakout room within TMA’s Worldwide Support Group Meeting on the first Saturday of each month. It’s a safe space where you\, the care partner\, are the focus—not the patient. Here\, you can connect with others who understand your unique challenges\, share coping strategies\, and discuss how to navigate the complex healthcare system. Whether it’s accessing resources like home health aides\, meal delivery\, or transportation assistance—or finding the right words to communicate with your loved one or healthcare team—this group is here to help you through it all. \nTo learn more about accessing breakout rooms\, see ACCESSING ZOOM BREAKOUT ROOMS \nWhen?\nFirst Saturday of every month at:\n1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT \nThe emotional demands of caregiving are real\, and sometimes\, you just need a place to express frustrations\, share victories\, and lean on others who truly understand. The TMA Care Partner Affinity Group is here to provide the support\, resources\, and community you need to continue on your journey. Join us and find the strength to take care of yourself\, too. \nRegister Here \n 
URL:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2025-09-06/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/webp:https://www.myositis.org/wp-content/uploads/2025/06/Care-Partner.webp
ORGANIZER;CN="Rachel Bromley":MAILTO:Rachel@myositis.org
LOCATION:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2025-09-06/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250905T130000
DTEND;TZID=America/New_York:20250905T140000
DTSTAMP:20250826T143022Z
CREATED:20250826T143022Z
LAST-MODIFIED:20250826T143022Z
UID:10001888-1757077200-1757080800@www.myositis.org
SUMMARY:Cook Along with White House Chef Tom
DESCRIPTION:Come together with your myositis family for a fun culinary experience! You can join in from any home kitchen as we make two delicious\, anti-inflammatory\, and dysphagia-friendly recipes: Golden Turmeric Carrot & Coconut Velouté and Chai-Spiced Almond Milk Panna Cotta. You can cook along or just watch! \nSpecial guest TMA Board Treasurer Chip Galloway will kick things off with a show-and-tell of adaptive kitchen gadgets that make cooking easier. And who knows—we might even convince Chef Tom to share a few behind-the-scenes stories from his time in The White House! \n Download your ingredient shopping list here! \n Join Cook Along on Sept. 5 at 1:00 PM ET
URL:https://www.myositis.org/event/cook-along-with-white-house-chef-tom/
CATEGORIES:Conferences & Summits
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/08/Cook-Along-with-White-House-Chef-Tom.jpg
LOCATION:https://us02web.zoom.us/j/86194138565
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250905T110000
DTEND;TZID=America/New_York:20250905T120000
DTSTAMP:20250826T140421Z
CREATED:20250826T140155Z
LAST-MODIFIED:20250826T140421Z
UID:10001887-1757070000-1757073600@www.myositis.org
SUMMARY:Stronger with Support: The Role of Protein in Muscle Disease
DESCRIPTION:Getting the right amount and type of protein can help preserve muscle\, improve energy\, and support overall well-being for those with myositis. \nIn this session\, you’ll learn: \n\nWhy protein matters for people with muscle disease\nHow much protein you really need\nThe best sources of protein for strength and healing\nSimple ways to add more protein into your daily meals\n\n\nPresented by: Julie Sanfilippo\, RDN\, Diabetes Prevention Program Health Coach\, Elmhurst Memorial Healthcare \n Join Stronger with Support: The Role of Protein on Sept. 5 at 11:00 AM ET
URL:https://www.myositis.org/event/stronger-with-support-the-role-of-protein-in-muscle-disease/
CATEGORIES:Conferences & Summits
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/08/The-Role-of-Protein-in-Muscle-Disease.jpg
LOCATION:https://us02web.zoom.us/j/81174051352
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250904T183000
DTEND;TZID=America/New_York:20250904T203000
DTSTAMP:20250904T194239Z
CREATED:20250605T143743Z
LAST-MODIFIED:20250904T194239Z
UID:10001504-1757010600-1757017800@www.myositis.org
SUMMARY:TMA Women Of Color Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy \nFounded in 2019 by Holly Jones and Kaniah Gunter\, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement\, Education\, and Empowerment—our mission is to unite and empower women of color affected by myositis and to advocate for their health and well-being. By providing education\, support\, resources\, and the backing of TMA’s expertise\, we are determined to reduce the disparity gap in myositis outcomes for people of color. As we foster a community of strength\, resiliency\, and inspiration; together\, we will break barriers\, challenge inequalities\, and create a future where every woman\, caregiver\, and loved one affected by myositis\, regardless of their race\, can thrive. \nEach month\, WOC come together for impactful workshops and support meetings\, empowering participants to take what they’ve learned and share awareness about myositis within their communities. Whether you’re looking for guidance\, solidarity\, or the opportunity to advocate for others\, this group offers a space for connection\, education\, and positive change. \nWhen?\nFirst Thursday of each month at:\n6:30pm ET | 5:30pm CT | 4:30pm MT | 3:30pm PT \nJoin us and become part of a movement to raise awareness\, educate others\, and empower women of color to take charge of their myositis journey. Visit our group page for more information. \nRegister Here \n\n       \nAbout the Leaders | Holly Jones & Kaniah Gunter \nIn 2003\, at the age of 19 years old Holly Jones was diagnosed with Polymyositis with Interstitial Lung Disease at a CPK level over 20\,000. In 2014\, her lung disease progressed causing her to develop Pulmonary Hypertension that required her to be on oxygen daily. After six years of being in clinical remission\, the Pulmonary Hypertension progressed into Congestive Heart Failure in October 2020. Living with diseases that attack her muscles\, lungs\, and heart; it has not stopped Holly from accomplishing her life goals. A social media entrepreneur\, Holly also serves on TMA’s Board of Directors\, as well as co-leader for TMA’s Women of Color Affinity Group\, and Support Group Leader for the Houston\, Tx regional support group.  Holly lives in Porter\, TX with her husband and children. \nKaniah Gunter\, a Nutrition Health Coach owner of Unique Guidance Nutritional Health Coaching\, LLC\, was diagnosed with dermatomyositis with NXP-2 positive (anti-MJ) and scleroderma in 2007. Kaniah graduated from The Institute for Integrative Nutrition\, one of the largest nutrition schools in the world. \nRecently she completed her certification as a Community Health Worker. She is a strong advocate for the myositis community. At TMA\, she is a regional support group leader for TMA Virginia\, West Virginia and Northwest Carolina as well as co-leader for TMA’s Women of Color affinity group. She has shared her story in many healthcare publications and social media. She serves as an inspiration for others as she demonstrates healing begins within mind\, body and spirit. Kaniah and her two beautiful children live in Norfolk\, Virginia.
URL:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17/2025-09-04/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/TMA-WOCAG-WEBSITE-BANNER.jpg
LOCATION:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17/2025-09-04/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250903T200000
DTEND;TZID=America/New_York:20250903T213000
DTSTAMP:20260310T185113Z
CREATED:20250605T143731Z
LAST-MODIFIED:20260310T185113Z
UID:10001327-1756929600-1756935000@www.myositis.org
SUMMARY:TMA Flying Solo Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner \nThe TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone\, are married but your spouse is unable to provide care\, or even find yourself as the caregiver for your spouse\, this group is here to offer understanding and support. \nLiving with myositis can be particularly challenging without a live-in care partner\, but Flying Solo offers a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. \nWhen?\nFirst Wednesday of each month at:\n8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others who “fly solo” like you! \nRegister Here \n\n \nAbout the Leader | Rhonda Rogers \nRhonda Rogers\, diagnosed with Inclusion Body Myositis (IBM)\, is a passionate myositis advocate\, also known as “Myositis Warrior”\, who brings connection\, humor\, and heart to everything she does. She co-leads TMA’s Southern California Support Group and facilitates the TMA Flying Solo Affinity Group for people living with myositis who do not have a live-in care partner. Rhonda also administers the popular Myositis Warrior Facebook public group\, known for its upbeat\, candid\, and often humorous take on the unbelievable realities of life with myositis. Whether leading community groups or raising awareness in her signature Myositis Warrior cape at events like Comic-Con\, Rhonda inspires others to meet life with resilience and a smile. \nIn recognition of her outstanding leadership and support for the myositis community\, Rhonda received the Marianne Moyer Myositis Leader Award at MyoCon 2025\, along with her TMA Southern California co-leader\, Nancy Harber. This award honors TMA volunteers who lead the way by helping others and making a lasting impact.
URL:https://www.myositis.org/event/tma-flying-solo-affinity-group-meeting-23/2025-09-03/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/flyingsolo-169.jpg
ORGANIZER;CN="Rhonda Rogers":MAILTO:Rogers@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqc-GsrTksGt3aRRRGipKTWPzy7-n18ME4#/registration
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250901T183000
DTEND;TZID=America/New_York:20250901T200000
DTSTAMP:20250605T195326Z
CREATED:20250605T143723Z
LAST-MODIFIED:20250605T195326Z
UID:10001121-1756751400-1756756800@www.myositis.org
SUMMARY:TMA New Jersey Myositis Support Group Meeting
DESCRIPTION:Register Here \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nJoin the TMA New Jersey Myositis Support Group: Connect\, Learn\, and Find Support \nThe TMA New Jersey Myositis Support Group provides a welcoming and supportive environment for individuals living with myositis. Meeting every other month at 6:30 PM ET\, this group offers a chance to connect with others who understand the challenges of living with conditions like Inclusion Body Myositis (IBM)\, Polymyositis (PM)\, Dermatomyositis (DM)\, Necrotizing Myopathy (NM)\, and more. Whether you’re newly diagnosed or have been managing myositis for years\, this group is a great place to share experiences\, learn from others\, and access helpful resources. \nThe support group is a place to reduce feelings of isolation\, find strength through shared experiences\, and gain insights into managing daily challenges. Together\, we can build a community that understands and supports each other. \nWhen?\nThe third Monday of every other month at:\n6:30 PM ET \nWhere?\nTMA New Jersey Myositis Support Group (virtual meeting details provided upon registration) \n\n\nAbout the Leader: Colleen Layton\nYou may have seen Colleen Layton on TMA webinars or at our International Annual Patient Conference. A retired nurse who was diagnosed with necrotizing myopathy ten years ago\, Colleen has been a dedicated volunteer for many years. Despite the challenges of her disease\, she remains deeply involved in her passion for horse racing and is excited to share how she has adapted this hobby to her illness. \nColleen and her husband John have two sons and live in New Jersey. With her extensive background in healthcare and personal experience with myositis\, Colleen brings both knowledge and compassion to her leadership of the New Jersey Myositis Support Group. She is thrilled to serve those living with myositis in her community and help others navigate their own journeys with strength and resilience. \nThank you\, Colleen\, for your ongoing commitment to supporting others living with myositis! \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n  \n 
URL:https://www.myositis.org/event/tma-new-jersey-myositis-support-group-meeting-9/
LOCATION:https://www.myositis.org/event/tma-new-jersey-myositis-support-group-meeting-9/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250828T180000
DTEND;TZID=America/New_York:20250828T190000
DTSTAMP:20250605T195159Z
CREATED:20250605T143727Z
LAST-MODIFIED:20250605T195159Z
UID:10001134-1756404000-1756407600@www.myositis.org
SUMMARY:TMA VA\, WV\, NC Northeast Myositis Support Group Meeting
DESCRIPTION:Join the TMA VA\, WV\, NC Northeast Myositis Support Group: Connect\, Share\, and Find Strength \nIt’s not unusual to feel isolated and alone with a disease that many people have never heard of or truly understand. Being part of a myositis support group is an important way to share these feelings with others who truly know what you’re going through. Research shows that social connection can not only reduce feelings of isolation but also improve both physical and mental well-being. \nThe TMA VA\, WV\, NC Northeast Myositis Support Group meets on the fourth Thursday of each month at 6:00 PM ET\, offering a space for individuals living with myositis to connect\, share their experiences\, and find support. Whether you’re newly diagnosed or have been managing myositis for years\, this group provides a supportive community where you can learn from others\, gain helpful resources\, and offer encouragement. \nEven if you’re currently managing your myositis well\, consider joining. You can be an inspiration and a source of strength for others who are still navigating the challenges of living with myositis. This group is a reminder that you are not alone. \nWhen?Fourth Thursday of every month at:6:00 PM ET \nWhere?Virtual meeting details provided upon registration \nJoin us to connect\, learn\, and empower yourself and others on the myositis journey. We look forward to welcoming you! \n\nRegister Here
URL:https://www.myositis.org/event/tma-va-wv-nc-northeast-myositis-support-group-meeting-27/
LOCATION:https://www.myositis.org/event/tma-va-wv-nc-northeast-myositis-support-group-meeting-27/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250827T180000
DTEND;TZID=America/New_York:20250827T190000
DTSTAMP:20250825T175557Z
CREATED:20250825T175449Z
LAST-MODIFIED:20250825T175557Z
UID:10001884-1756317600-1756321200@www.myositis.org
SUMMARY:Media Pitching 101: The Who/What/Where/When/Why of Landing TV\, Radio & Print Interviews
DESCRIPTION:Want to raise awareness for myositis or share your story with a wider audience? \nThis session will walk you through the basics of media pitching—from identifying the right outlets and contacts to crafting compelling pitches that grab attention. You’ll learn what journalists look for in a story\, how to shape your message for different audiences\, and practical tips for following up to maximize your chances of getting covered. \nPresented by: Lindsay Guentzel\, award-winning journalist and producer\, storyteller\, advocate; Leader\, TMA Minnesota Support Group \nJoin Media Pitching 101 on Aug. 27 at 6 PM ET
URL:https://www.myositis.org/event/media-pitching-101-the-who-what-where-when-why-of-landing-tv-radio-print-interviews/
CATEGORIES:Conferences & Summits
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/08/Media-Pitching-101.jpg
LOCATION:https://us02web.zoom.us/j/86039940195
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250827T120000
DTEND;TZID=America/New_York:20250827T133000
DTSTAMP:20250825T174413Z
CREATED:20250825T174413Z
LAST-MODIFIED:20250825T174413Z
UID:10001883-1756296000-1756301400@www.myositis.org
SUMMARY:Conference Orientation and Getting Acquainted
DESCRIPTION:Never attended a TMA conference before or just want to connect with TMA staff\, special guests and fellow attendees beforehand? \nPlease join this orientation session that will help you get the most out of your MyoCon experience! \nThis 30-minute session will be followed by an hour-long opportunity to get to know fellow conference attendees in breakout rooms by diagnosis. Breakout rooms will last for an hour and are available for IBM\, DM\, IMNM\, ASyS\, PM\, and Care Partners. \nJoin Orientation & Getting Acquainted on Aug 27 at 12 PM ET
URL:https://www.myositis.org/event/conference-orientation-and-getting-acquainted/
CATEGORIES:Conferences & Summits
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/08/Virtual-Conference-Orientation-Getting-Acquainted.jpg
LOCATION:https://us02web.zoom.us/j/87614892578
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250823T110000
DTEND;TZID=America/Chicago:20250823T133000
DTSTAMP:20250605T195107Z
CREATED:20250605T143728Z
LAST-MODIFIED:20250605T195107Z
UID:10001141-1755946800-1755955800@www.myositis.org
SUMMARY:TMA Wisconsin Myositis Support Group Meeting
DESCRIPTION:It’s not unusual to feel isolated and alone with a disease that no one has ever heard of and doesn’t understand. Being part of a myositis support group is an important way to share these feelings with people who know exactly what you’re going through. Research shows that this sort of social connection can also improve both physical and mental well-being. Even if you are currently in a good place managing your myositis\, consider joining. You can be an inspiration and source of strength for others! TMA Wisconsin meets on the last Saturday of every month starting in February of each year. \nPlease register here
URL:https://www.myositis.org/event/tma-wisconsin-myositis-support-group-meeting-16/
LOCATION:https://www.myositis.org/event/tma-wisconsin-myositis-support-group-meeting-16/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250823T110000
DTEND;TZID=America/New_York:20250823T130000
DTSTAMP:20250805T214513Z
CREATED:20250805T214403Z
LAST-MODIFIED:20250805T214513Z
UID:10001876-1755946800-1755954000@www.myositis.org
SUMMARY:TMA Michigan IBM Support Group Meeting (in-person)
DESCRIPTION:You’re invited to connect with others living with Inclusion Body Myositis at our in-person TMA Michigan IBM Support Group meeting. Whether you’re newly diagnosed\, a long-time member\, a caregiver\, or simply interested in learning more—all are welcome. Come for support\, conversation\, and community.
URL:https://www.myositis.org/event/tma-michigan-ibm-support-group-meeting-in-person/
LOCATION:Grandville Public Library\, 4055 Maple Street SW\, Grandville\, MI\, 49418\, United States
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Deb Grutter":MAILTO:Grutter@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250823T103000
DTEND;TZID=America/New_York:20250823T113000
DTSTAMP:20250821T191502Z
CREATED:20250725T165340Z
LAST-MODIFIED:20250821T191502Z
UID:10001386-1755945000-1755948600@www.myositis.org
SUMMARY:TMA Georgia Myositis Support Group Meeting
DESCRIPTION:👉 Register here \nTMA Georgia Myositis Support Group meets every fourth Saturday from 10:30–11:30 AM ET\, except December. \nPeer-led support groups matter at every stage of the journey. Even if you’re currently thriving\, your presence and story can bring hope and reassurance to others who may be facing challenges. At TMA\, we pride ourselves on inspiring hope while walking alongside one another with understanding and compassion. Support groups are also a wonderful place to exchange local resources\, practical tips\, and connections that make daily life a little easier. \n\nMeet Your Co-Leaders \n\nTerri Lockhart\, MD – A retired\, Board-Certified Internal Medicine physician with over 30 years of clinical and administrative experience. Diagnosed with inclusion body myositis in 2020\, she brings a unique perspective as both clinician and patient\, and is passionate about sharing knowledge with others.\nCynthia Marks\, EdD – A former school administrator of 23 years and a Doctor of Education graduate from National Louis University. Cynthia is the primary care partner to her husband Ricky\, who was diagnosed with inclusion body myositis in 2016. She looks forward to supporting other care partners in understanding their roles while also prioritizing self-care.\n\nWe’re deeply grateful to Dr. Lockhart and Dr. Marks for stepping up to serve fellow community members in Georgia with their time\, care\, and leadership. Dr. Lockhart will be the primary contact person for the group\, feel free to reach out to her directly at Lockhart@myositis.org.
URL:https://www.myositis.org/event/tma-georgia-myositis-support-group/2025-08-23/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/07/TMA-Georgia-220-x-220.png
ORGANIZER;CN="Terri Lockhart":MAILTO:Lockhart@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/7M00c-iHRHOrHP6z96d5fQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250823T100000
DTEND;TZID=America/Chicago:20250823T113000
DTSTAMP:20250725T234234Z
CREATED:20250605T143746Z
LAST-MODIFIED:20250725T234234Z
UID:10001445-1755943200-1755948600@www.myositis.org
SUMMARY:TMA Northeast Texas Myositis Support Group Meeting
DESCRIPTION:Register Here \nAttend TMA Northeast Texas Myositis Support Group: Support for Those Living with Myositis and their Care Partners \nLiving with myositis is easier with friends. TMA’s support and affinity groups offer a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. These sessions are never recorded and camera is optional.  \nWhen?Fourth Saturday of each month (no meeting in December) at:10:00 AM – 11:30 AM CT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others like you! \n\nMessage from the Leader | Melissa Rumpf \n\n\n\n\n\n \nHello\, my name is Melissa Rumpf and I was diagnosed with IBM in 2017.  I feel very fortunate to have found TMA early in my diagnosis as they have been instrumental in helping me navigate this disease.   \n\n\n\nI have attended three (3) in-person TMA International Patient Conferences and many zoom conferences and meetings throughout the years (can’t wait for Dallas this year)!  Meeting other myositis patients and being able to share information\, our struggles and our positives with each other has been life changing for me.  I have learned so much from TMA and others weathering the ups and downs of myositis.  \n\n\n\nPrior to medically retiring in 2019\, I was a Communications Supervisor with the Las Vegas Police Department where I spent 28 years helping others.  So being part of TMA and helping others is a strong passion of mine.   \n\n\n\nMy husband is my “Rock” who helps keep me going.  We exercise 3 times weekly to keep my mobility.  My passion is traveling so we take vacations as often as we can – it keeps me going mentally and physically! \n\n\n\n“The question isn’t who is going to let me; it’s who is going to stop me”.  We all must keep up the fight! \n\n\n\nI’m looking forward to meeting you at our TMA Northeast Texas meetings! \n\n\n\nSincerely\, Melissa \nRegister Here \n\n\n\n\n\nConnect with TMA!         \n\n\n\n\n\n 
URL:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4/2025-08-23/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas.jpg
ORGANIZER;CN="Melissa Rumpf":MAILTO:Rumpf@myositis.org
LOCATION:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4/2025-08-23/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250819T120000
DTEND;TZID=America/New_York:20250819T130000
DTSTAMP:20250819T022413Z
CREATED:20250801T003944Z
LAST-MODIFIED:20250819T022413Z
UID:10001686-1755604800-1755608400@www.myositis.org
SUMMARY:TMA Ask the Expert: Cell Therapy Edition
DESCRIPTION:TMA’s Ask the Expert webinar series gives members of the myositis community direct access to leading experts in the field. Each session features a trusted medical professional who answers your questions about specific types of myositis\, treatment options\, research developments\, and disease management. August’s Ask the Expert webinar features Iazsmin Bauer Ventura\, MD\, a clinician and researcher specializing in neuromuscular disorders and regenerative medicine. In addition to her academic and clinical expertise\, Dr. Ventura is currently leading CAR-T clinical trials at the University of Chicago. Her work is helping to pave the way for new\, innovative treatment options for those living with myositis. Joining her is Satyajit Kosuri\, MD\, a medical oncologist specializing in hematology. Join us on Tuesday\, August 19 at 12:00 PM ET for an in-depth conversation on cell therapy for myositis\, including current clinical trials\, therapeutic potential\, and what patients should know about emerging treatments. Don’t miss this opportunity to ask your questions and learn from two experts at the forefront of innovative care. \nSponsored by TMA Corporate Advisory Council member Bristol Myers Squibb. \nRegister Here \n 
URL:https://www.myositis.org/event/tma-ask-the-expert-cell-therapy-edition/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/07/Ventura-Aug-2025-2.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_QWdjl8iQSNWt4GcC3XALkw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250816T130000
DTEND;TZID=America/New_York:20250816T143000
DTSTAMP:20250723T163406Z
CREATED:20250605T143718Z
LAST-MODIFIED:20250723T163406Z
UID:10001094-1755349200-1755354600@www.myositis.org
SUMMARY:TMA MD\, DE\, DC\, and Northern Virginia Myositis Support Group Meeting
DESCRIPTION:Register Here \nJoin the TMA MD\, DE\, DC\, and Northern Virginia Myositis Support Group: A Community for Myositis Warriors \nThe TMA MD\, DE\, DC\, and Northern Virginia Myositis Support Group is a welcoming space for individuals living with myositis in the Maryland\, Delaware\, District of Columbia\, and Northern Virginia regions. Meeting every two months on the third Saturday at 1:00 PM ET\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nWhen?\nThird Saturday of every other month at:\n1:00 PM ET \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-md-de-dc-and-northern-virginia-myositis-support-group-meeting-5/
LOCATION:https://www.myositis.org/event/tma-md-de-dc-and-northern-virginia-myositis-support-group-meeting-5/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250815T170000
DTEND;TZID=America/Los_Angeles:20250815T183000
DTSTAMP:20250731T182943Z
CREATED:20250605T143747Z
LAST-MODIFIED:20250731T182943Z
UID:10001564-1755277200-1755282600@www.myositis.org
SUMMARY:TMA Northern California\, Oregon & Washington IBM Support Group Meeting
DESCRIPTION:Register here! \n\n \nJoin the TMA Northern California\, Oregon & Washington IBM Support Group: Connect\, Learn\, and Find Support\n\nThis group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Northern California\, Oregon & Washington\, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT\, this group offers a supportive space to connect with others who understand the unique challenges of living with IBM. \nWhether you’re newly diagnosed or have been living with IBM for some time\, this group is here to help reduce feelings of isolation\, provide valuable resources\, and foster a sense of belonging. Join us to share experiences\, learn about available support services\, and build connections with others in your community who are navigating the same journey. \nWhen?Third Friday of every month at:5:00 PM PT \nAll are welcome to attend—no matter where you are on your myositis journey. This group is a chance to decrease loneliness\, access important resources\, and find strength in the support of others who truly understand what you’re going through. \n\n \n\n 
URL:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2025-08-15/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas-1.jpg
ORGANIZER;CN="Malati Shinazy":MAILTO:Shinazy@myositis.org
LOCATION:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2025-08-15/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250815T113000
DTEND;TZID=America/Chicago:20250815T130000
DTSTAMP:20250731T163250Z
CREATED:20250605T143720Z
LAST-MODIFIED:20250731T163250Z
UID:10001104-1755257400-1755262800@www.myositis.org
SUMMARY:TMA Kansas & Western Missouri Myositis Support Group Meeting
DESCRIPTION:Register Here \n \nJoin the TMA Kansas & Western Missouri Myositis Support Group: A Community for Myositis Warriors \nThe TMA Kansas & Western Missouri Myositis Support Group is a welcoming space for individuals living with myositis. Meeting 3-4 times per year\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-kansas-western-missouri-myositis-support-group-meeting-3/
CATEGORIES:Support or Affinity Group Meeting
LOCATION:https://www.myositis.org/event/tma-kansas-western-missouri-myositis-support-group-meeting-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250813T120000
DTEND;TZID=America/New_York:20250813T130000
DTSTAMP:20250801T003322Z
CREATED:20250801T003127Z
LAST-MODIFIED:20250801T003322Z
UID:10001685-1755086400-1755090000@www.myositis.org
SUMMARY:TMA Empowerment Clinic: From Diagnosis to Determined: Grace\, Grit\, and Getting Back Up
DESCRIPTION:Join TEDx speaker and founder of The disABLED Company™\, Alicia Polak\, for a powerful and uplifting Empowerment Clinic as she shares her personal journey with Inclusion Body Myositis. Through relatable stories\, moments of levity\, and lessons in self-advocacy\, Alicia will explore how a mindset rooted in being Able\, Authentic\, and Adaptive can transform the experience of chronic illness. This session is a celebration of resilience\, community\, and the power of choosing hope. \nTMA’s Empowerment Clinic Series\nThe Empowerment Clinic is a signature education and wellness series from The Myositis Association\, designed to improve the quality of life for people living with myositis and those who care for them.  \nRegister Here
URL:https://www.myositis.org/event/tma-empowerment-clinic-from-diagnosis-to-determined-grace-grit-and-getting-back-up/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/07/ALicia-Poloak-2.jpg
LOCATION:https://us02web.zoom.us/webinar/register/WN_9LcV-QgbSEGyLioJ75tX8Q
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250811T120000
DTEND;TZID=America/New_York:20250811T140000
DTSTAMP:20250805T181544Z
CREATED:20250805T181223Z
LAST-MODIFIED:20250805T181544Z
UID:10001836-1754913600-1754920800@www.myositis.org
SUMMARY:TMA Minnesota Support Group Meeting (special hybrid event)
DESCRIPTION:We’ll eat and socialize from noon until 1pm and then at 1pm\, we will move into the private community room area where we will be able to welcome in anyone who wants to join us virtually on Zoom. \nLunds and Byerly’s has a wide variety of lunch options\, including a soup and salad bar\, hot food items and ready-made sandwiches. There’s also a coffee shop if you prefer just a beverage. \nThis will be a Dutch treat gathering—everyone covers their own meal. \nTo recap\, from 12pm to 1pm we’ll have lunch and then from 1pm to 2pm we’ll open up the meeting for anyone who would like to join us virtually. \nIf you will be joining us in-person\, I would really appreciate it if you would shoot me an email at Guentzel@myositis.org to let me know! \nRegister for Zoom here \nAny questions\, please let me know! \nThanks! \nLindsay \nP.S. I hope to see some of you at MyoCon in Dallas next month! John and I just booked our flights and our hotel last night! Here’s more information on the event!
URL:https://www.myositis.org/event/tma-minnesota-support-group-meeting-special-hybrid-event/
LOCATION:Lunds and Byerly’s\, 7171 France Ave S\, Edina\, MN\, 55435\, United States
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Lindsay Guentzel":MAILTO:Guentzel@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250809T120000
DTEND;TZID=America/New_York:20250809T140000
DTSTAMP:20250806T143303Z
CREATED:20250605T143724Z
LAST-MODIFIED:20250806T143303Z
UID:10001125-1754740800-1754748000@www.myositis.org
SUMMARY:TMA North & South Carolina Myositis Support Group Meeting (HYBRID)
DESCRIPTION:Register Here \nJoin the TMA North & South Carolina Myositis Support Group: Connect\, Learn\, and Find Support \nThe TMA North & South Carolina Myositis Support Group offers a hybrid meeting format\, combining both in-person and virtual options\, for individuals living with myositis in the Carolinas. Meeting every three months on the second Saturday at 12:00 PM ET\, this group provides a supportive environment to connect with others\, share experiences\, and access valuable resources. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help reduce isolation\, foster a sense of community\, and offer guidance for navigating the challenges of living with autoimmune diseases like Inclusion Body Myositis (IBM)\, Polymyositis (PM)\, Dermatomyositis (DM)\, Necrotizing Myopathy (NM)\, and more. \nWhen?\nEvery three months on the second Saturday at 12:00 PM ET \nWhere?\nIn-person: Lake Wylie Lutheran Church\n2906 Highway 160 W\, Fort Mill\, SC 29708\nVirtual: Meeting details provided upon registration \nJoin us to connect with others\, gain support\, and empower yourself in your myositis journey. We look forward to seeing you there!
URL:https://www.myositis.org/event/tma-north-south-carolina-myositis-support-group-meeting-hybrid-3/
LOCATION:Lake Wylie Lutheran Church\, 2906 Highway 160 W\, Fort Mill\, SC\, 29708\, United States
CATEGORIES:Support or Affinity Group Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250809T120000
DTEND;TZID=America/Denver:20250809T133000
DTSTAMP:20250605T194111Z
CREATED:20250605T143706Z
LAST-MODIFIED:20250605T194111Z
UID:10001044-1754740800-1754746200@www.myositis.org
SUMMARY:TMA Colorado Myositis Support Group Meeting
DESCRIPTION:TMA Colorado Myositis Support Group has reactivated and meets on the second Saturday of each month at noon Mountain Time! \nMeet Jim Milani\, a TMA member who was moved by the efforts of the late Marianne Moyer and the TMA Southwest Florida’s success in organizing a Myositis Symposium for Physical and Occupational Therapists for  Myositis Awareness Month. He called Rachel Bromley\, TMA’s Senior Manager of Patient Education\, Support and Advocacy to offer to organize one in his home state of Colorado. Rachel was ecstatic\, as Marianne’s vision had always been for this event to branch out to other TMA groups! One catch though – TMA Colorado had been dormant for quite some time. So she swung for the fences and said “How about reactivating the Colorado group at the same time? You can connect more PTs and OTs that way\, find a few volunteers to possibly help your efforts\, and provide and receive support for myositis along the way!” \nJim replied with one word “SURE!” And so this journey began. \nFor the past 20 years\, Jim has been a Physical Therapist and is Board Certified as a Geriatric Specialist. After several years of misdiagnoses\, he was correctly diagnosed with IBM in late 2023. Despite this\, Jim continues to pursue his love for activity and sports. He is passionate about sharing his personal and professional “fitness forward” philosophy\, helping people understand how to modify and adapt exercises to their functional level. Jim resides in Colorado with his wife\, Laura. He is a proud father of six adult children and has two grandchildren. Jim says his family and faith help him get through each day. While there is much about IBM that he cannot control\, he focuses on what he can: his attitude and effort. #justkeepswimming \nAnyone can join his meetings\, Colorado resident or not. The first meeting will be October 12 at noon MT and you can register here! \n 
URL:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting-11/
LOCATION:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting-11/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250807T183000
DTEND;TZID=America/New_York:20250807T203000
DTSTAMP:20250904T194239Z
CREATED:20250605T143743Z
LAST-MODIFIED:20250904T194239Z
UID:10001503-1754591400-1754598600@www.myositis.org
SUMMARY:TMA Women Of Color Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy \nFounded in 2019 by Holly Jones and Kaniah Gunter\, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement\, Education\, and Empowerment—our mission is to unite and empower women of color affected by myositis and to advocate for their health and well-being. By providing education\, support\, resources\, and the backing of TMA’s expertise\, we are determined to reduce the disparity gap in myositis outcomes for people of color. As we foster a community of strength\, resiliency\, and inspiration; together\, we will break barriers\, challenge inequalities\, and create a future where every woman\, caregiver\, and loved one affected by myositis\, regardless of their race\, can thrive. \nEach month\, WOC come together for impactful workshops and support meetings\, empowering participants to take what they’ve learned and share awareness about myositis within their communities. Whether you’re looking for guidance\, solidarity\, or the opportunity to advocate for others\, this group offers a space for connection\, education\, and positive change. \nWhen?\nFirst Thursday of each month at:\n6:30pm ET | 5:30pm CT | 4:30pm MT | 3:30pm PT \nJoin us and become part of a movement to raise awareness\, educate others\, and empower women of color to take charge of their myositis journey. Visit our group page for more information. \nRegister Here \n\n       \nAbout the Leaders | Holly Jones & Kaniah Gunter \nIn 2003\, at the age of 19 years old Holly Jones was diagnosed with Polymyositis with Interstitial Lung Disease at a CPK level over 20\,000. In 2014\, her lung disease progressed causing her to develop Pulmonary Hypertension that required her to be on oxygen daily. After six years of being in clinical remission\, the Pulmonary Hypertension progressed into Congestive Heart Failure in October 2020. Living with diseases that attack her muscles\, lungs\, and heart; it has not stopped Holly from accomplishing her life goals. A social media entrepreneur\, Holly also serves on TMA’s Board of Directors\, as well as co-leader for TMA’s Women of Color Affinity Group\, and Support Group Leader for the Houston\, Tx regional support group.  Holly lives in Porter\, TX with her husband and children. \nKaniah Gunter\, a Nutrition Health Coach owner of Unique Guidance Nutritional Health Coaching\, LLC\, was diagnosed with dermatomyositis with NXP-2 positive (anti-MJ) and scleroderma in 2007. Kaniah graduated from The Institute for Integrative Nutrition\, one of the largest nutrition schools in the world. \nRecently she completed her certification as a Community Health Worker. She is a strong advocate for the myositis community. At TMA\, she is a regional support group leader for TMA Virginia\, West Virginia and Northwest Carolina as well as co-leader for TMA’s Women of Color affinity group. She has shared her story in many healthcare publications and social media. She serves as an inspiration for others as she demonstrates healing begins within mind\, body and spirit. Kaniah and her two beautiful children live in Norfolk\, Virginia.
URL:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17/2025-08-07/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/TMA-WOCAG-WEBSITE-BANNER.jpg
LOCATION:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17/2025-08-07/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250807T120000
DTEND;TZID=America/New_York:20250807T130000
DTSTAMP:20250801T004522Z
CREATED:20250801T001757Z
LAST-MODIFIED:20250801T004522Z
UID:10001684-1754568000-1754571600@www.myositis.org
SUMMARY:TMA Myositis Research Insights Webinar featuring Dr. Julio Huapaya
DESCRIPTION:Join us for an insightful session with Julio Huapaya\, MD\, a critical care and pulmonary specialist affiliated with Johns Hopkins Medicine and the NIH Clinical Center. \nDr. Huapaya’s talk will dive into his cutting-edge research on myositis-associated interstitial lung disease (M‑ILD)\, focusing on: \n\nLongitudinal clinical features and outcomes in patients with anti‑synthetase syndrome autoantibodies\, based on Johns Hopkins’ long-term cohort studies \n\n\nAn overview of his contribution to managing lung involvement in myositis using azathioprine and mycophenolate mofetil to preserve lung function and reduce steroid dependence in M‑ILD patients\n\n\n\nHis recent work on autoantibody measurement with advanced testing methods\, funded by a two‑year $100K fellowship under the Myositis Association and Johns Hopkins ILD program \n\n\nBroader perspectives from his 2021 co-authored chapter\, “Myositis‑Associated Interstitial Lung Disease” in the Encyclopedia of Respiratory Medicine \n\nRegister Here
URL:https://www.myositis.org/event/tma-myositis-research-insights-webinar-featuring-dr-julio-huapaya/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/07/Huapaya-August-2025-1.jpg
LOCATION:https://us02web.zoom.us/webinar/register/WN_3K-z_z49R4qHSmulgmNPlw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250806T200000
DTEND;TZID=America/New_York:20250806T213000
DTSTAMP:20260310T185113Z
CREATED:20250605T143731Z
LAST-MODIFIED:20260310T185113Z
UID:10001326-1754510400-1754515800@www.myositis.org
SUMMARY:TMA Flying Solo Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner \nThe TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone\, are married but your spouse is unable to provide care\, or even find yourself as the caregiver for your spouse\, this group is here to offer understanding and support. \nLiving with myositis can be particularly challenging without a live-in care partner\, but Flying Solo offers a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. \nWhen?\nFirst Wednesday of each month at:\n8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others who “fly solo” like you! \nRegister Here \n\n \nAbout the Leader | Rhonda Rogers \nRhonda Rogers\, diagnosed with Inclusion Body Myositis (IBM)\, is a passionate myositis advocate\, also known as “Myositis Warrior”\, who brings connection\, humor\, and heart to everything she does. She co-leads TMA’s Southern California Support Group and facilitates the TMA Flying Solo Affinity Group for people living with myositis who do not have a live-in care partner. Rhonda also administers the popular Myositis Warrior Facebook public group\, known for its upbeat\, candid\, and often humorous take on the unbelievable realities of life with myositis. Whether leading community groups or raising awareness in her signature Myositis Warrior cape at events like Comic-Con\, Rhonda inspires others to meet life with resilience and a smile. \nIn recognition of her outstanding leadership and support for the myositis community\, Rhonda received the Marianne Moyer Myositis Leader Award at MyoCon 2025\, along with her TMA Southern California co-leader\, Nancy Harber. This award honors TMA volunteers who lead the way by helping others and making a lasting impact.
URL:https://www.myositis.org/event/tma-flying-solo-affinity-group-meeting-23/2025-08-06/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/flyingsolo-169.jpg
ORGANIZER;CN="Rhonda Rogers":MAILTO:Rogers@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqc-GsrTksGt3aRRRGipKTWPzy7-n18ME4#/registration
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250804T183000
DTEND;TZID=America/Los_Angeles:20250804T200000
DTSTAMP:20250605T193820Z
CREATED:20250605T143717Z
LAST-MODIFIED:20250605T193820Z
UID:10001088-1754332200-1754337600@www.myositis.org
SUMMARY:TMA Northern California Autoimmune Myositis Support Group Meeting
DESCRIPTION:Register here \nJoin the TMA Northern California Myositis Support Group: A Community for Those Living with Auto-Immune Myositis \nThe TMA Northern California Myositis Support Group is a vital resource for individuals living with autoimmune types of myositis\, including Antisynthetase Syndrome (ASyS)\, Dermatomyositis (DM)\, Interstitial Lung Disease (ILD)\, Juvenile Myositis (JM\, JDM)\, Melanoma Differentiation-Associated Gene 5 (MDA5)\, Necrotizing Myopathy (NM\, NAM\, IMNM)\, and Polymyositis (PM). This group meets every two months on the first Monday at 6:30 PM PT\, although meeting dates/times may occasionally shift based on leader availability. \nResearch shows that support groups can play a crucial role in managing chronic illnesses by reducing isolation\, providing emotional support\, and sharing important resources. This group offers a safe space to connect with others facing similar challenges\, share experiences\, and gain valuable insights into living with myositis. Whether you’re newly diagnosed or have been living with myositis for years\, you’ll find a compassionate community that understands your unique journey. \nWhen?\nFirst Monday of every other month at:\n6:30 PM PT (meeting times may change depending on leader availability) \nIf you’re living with one of the autoimmune forms of myositis\, this is a great opportunity to learn\, share\, and connect with others in Northern California. Don’t miss out on the power of community and peer support—join us and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-northern-california-autoimmune-myositis-support-group-meeting-3/
LOCATION:https://www.myositis.org/event/tma-northern-california-autoimmune-myositis-support-group-meeting-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250802T130000
DTEND;TZID=America/New_York:20250802T143000
DTSTAMP:20260413T162341Z
CREATED:20250801T201217Z
LAST-MODIFIED:20260413T162341Z
UID:10001687-1754139600-1754145000@www.myositis.org
SUMMARY:TMA Worldwide Myositis Support by Diagnosis
DESCRIPTION:TMA’s Worldwide Myositis Support by Diagnosis Group is open to all\, especially those without an active support group in their local area. Formally known as Nationwide\, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis\, and the TMA Care Partner Affinity Group meets in its own room. TMA Worldwide meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT.  \nRegister here
URL:https://www.myositis.org/event/tma-worldwide-myositis-support-by-diagnosis/2025-08-02/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/08/New-Worldwide-2.png
ORGANIZER;CN="Dave Volk":MAILTO:Volk@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMuc-mtqTktHNH_sskpoHflne4zPRAkfS9y
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250802T130000
DTEND;TZID=America/New_York:20250802T143000
DTSTAMP:20250801T204659Z
CREATED:20250605T143744Z
LAST-MODIFIED:20250801T204659Z
UID:10001747-1754139600-1754145000@www.myositis.org
SUMMARY:TMA Care Partner Affinity Group Meeting
DESCRIPTION:Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families.\nJoin the TMA Care Partner Affinity Group: A Space Just for You \nBeing a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress\, anxiety\, or the weight of daily caregiving tasks\, it’s easy to feel overwhelmed and burnt out. That’s why the TMA Care Partner Affinity Group\, founded in 2022\, provides a supportive environment specifically for those who care for someone living with myositis. \nThis group meets in its own dedicated breakout room within TMA’s Worldwide Support Group Meeting on the first Saturday of each month. It’s a safe space where you\, the care partner\, are the focus—not the patient. Here\, you can connect with others who understand your unique challenges\, share coping strategies\, and discuss how to navigate the complex healthcare system. Whether it’s accessing resources like home health aides\, meal delivery\, or transportation assistance—or finding the right words to communicate with your loved one or healthcare team—this group is here to help you through it all. \nTo learn more about accessing breakout rooms\, see ACCESSING ZOOM BREAKOUT ROOMS \nWhen?\nFirst Saturday of every month at:\n1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT \nThe emotional demands of caregiving are real\, and sometimes\, you just need a place to express frustrations\, share victories\, and lean on others who truly understand. The TMA Care Partner Affinity Group is here to provide the support\, resources\, and community you need to continue on your journey. Join us and find the strength to take care of yourself\, too. \nRegister Here \n 
URL:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2025-08-02/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/webp:https://www.myositis.org/wp-content/uploads/2025/06/Care-Partner.webp
ORGANIZER;CN="Rachel Bromley":MAILTO:Rachel@myositis.org
LOCATION:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2025-08-02/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250802T110000
DTEND;TZID=America/New_York:20250802T153000
DTSTAMP:20250605T193457Z
CREATED:20250605T143736Z
LAST-MODIFIED:20250605T193457Z
UID:10001176-1754132400-1754148600@www.myositis.org
SUMMARY:TMA Southwest Florida Myositis Support Group Meeting (ZOOM ONLY)
DESCRIPTION:REGISTER HERE FOR ZOOM \nOur third quarter meeting is Saturday\, August 2\, 2025 starting at 11 a.m. and ending around 3:15. All members\, their friends and families are welcome to attend. \nThis meeting will be ZOOM ONLY. No in-person meeting this quarter.
URL:https://www.myositis.org/event/tma-southwest-florida-myositis-support-group-meeting-zoom-only/
LOCATION:https://www.myositis.org/event/tma-southwest-florida-myositis-support-group-meeting-zoom-only/
END:VEVENT
END:VCALENDAR