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DTSTART;TZID=America/Los_Angeles:20290414T100000
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DTSTAMP:20260310T185355Z
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UID:10003268-1870855200-1870862400@www.myositis.org
SUMMARY:TMA Southern California Myositis Quarterly Support Group Meeting
DESCRIPTION:You don’t have to navigate myositis alone. \nRegister Here \nWhether you’re living with IBM\, DM\, PM\, IMNM\, Overlap Myositis\, or supporting someone who is — the TMA Southern California Quarterly Group is your community. Join us every January\, April\, July\, and October from 10:00 AM – 12:00 PM Pacific for a space where your experiences are understood\, your questions are welcomed\, and your journey is shared. \nCare partners are not just welcome — they’re an essential part of our community too. \nLife with myositis comes with real challenges\, but connection makes them easier to face. Come for the information\, stay for the people who truly get it. We’d love to see you there. \nABOUT THE LEADERS\n \nNancy Harber (left) and Rhonda Rogers currently co-lead the TMA Southern California group\, which celebrated its 30th anniversary in 2025! That year\, the two friends were both awarded The Marianne Moyer Myositis Leader Award. This award was presented for the first time in 2024\, and recognizes TMA volunteers who lead the way in our myositis community by helping others. \nNancy has volunteered for more than three decades\, since TMA was originally MAA (The Myositis Association of America)! For many years\, she cared for her husband Charlie who had IBM. Nancy generously continued to volunteer after his passing. She is a registered nurse – retired as Director\, Nursing Services\, San Diego Blood Bank and Adjunct Faculty\, Health Care Administration\, National University. Additionally\, she is a TMA Outlook magazine contributor. Her quiet\, steady presence has been a stable force for so many over the years. \nRhonda is a well-known and beloved advocate in the myositis community. Living with IBM\, she is known as the Myositis Warrior\, and 0ften raises awareness by wearing her Myositis Warrior cape out and about\, including San Diego Comicon! She administers the popular Myositis Warrior Facebook public group\, with an upbeat and humorous focus on often unbelievable myositis journeys. Rhonda is passionate about not only fostering visibility for this rare disease\, but also shining a light for others. In addition to co-leading TMA Southern California\, Rhonda also is the leader for TMA Flying Solo Affinity Group for those with myositis who do not have a live-in care partner.
URL:https://www.myositis.org/event/tma-southern-california-myositis-support-group-2/2029-04-14/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/12/3.10.26-Southern-California-1.jpg
ORGANIZER;CN="Rhonda Rogers":MAILTO:Rogers@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20290414T120000
DTEND;TZID=America/Denver:20290414T133000
DTSTAMP:20260409T132410Z
CREATED:20260409T132410Z
LAST-MODIFIED:20260409T132410Z
UID:10003391-1870862400-1870867800@www.myositis.org
SUMMARY:TMA Colorado Myositis Support Group Meeting
DESCRIPTION:This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect\, be understood\, and feel less alone — whether you’re seeking support\, offering encouragement\, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being for most participants. Just as powerful\, many people who support others report improvements in their own mental and emotional health. \nEvery voice matters. Sharing experiences\, listening\, and learning from one another strengthens the myositis community and reminds us that none of us has to navigate this journey alone. \nCome for support. Come for connection. Come for community. \nRegister Here \nAbout the Leader \n \nMeet Jim Milani\, a TMA member who was moved by the efforts of the late Marianne Moyer and the TMA Southwest Florida’s success in organizing a Myositis Symposium for Physical and Occupational Therapists for  Myositis Awareness Month. He called Rachel Bromley\, TMA’s Senior Manager of Patient Education\, Support and Advocacy to offer to organize one in his home state of Colorado. Rachel was ecstatic\, as Marianne’s vision had always been for this event to branch out to other TMA groups! One catch though – TMA Colorado had been dormant for quite some time. So she swung for the fences and said “How about reactivating the Colorado group at the same time? You can connect more PTs and OTs that way\, find a few volunteers to possibly help your efforts\, and provide and receive support for myositis along the way!” \nJim replied with one word “SURE!” And so this journey began. \nFor the past 20 years\, Jim has been a Physical Therapist and is Board Certified as a Geriatric Specialist. After several years of misdiagnoses\, he was correctly diagnosed with IBM in late 2023. Despite this\, Jim continues to pursue his love for activity and sports. He is passionate about sharing his personal and professional “fitness forward” philosophy\, helping people understand how to modify and adapt exercises to their functional level. Jim resides in Colorado with his wife\, Laura. He is a proud father of six adult children and has two grandchildren. Jim says his family and faith help him get through each day. While there is much about IBM that he cannot control\, he focuses on what he can: his attitude and effort. #justkeepswimming
URL:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting-2-2/2029-04-14/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Jim Milani":MAILTO:Milani@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMpde2pqjsrGNfydYipCNiyzhwXceHDv1jH
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290414T120000
DTEND;TZID=America/New_York:20290414T133000
DTSTAMP:20260410T170928Z
CREATED:20260410T170900Z
LAST-MODIFIED:20260410T170928Z
UID:10002277-1870862400-1870867800@www.myositis.org
SUMMARY:TMA Military Veterans with Myositis Affinity Group Meeting
DESCRIPTION:Founded in 2022\, the TMA Military Veterans with Myositis Affinity Group is a dedicated space for veterans living with myositis to find support\, share experiences\, and engage in advocacy efforts. This group is particularly focused on working towards making Inclusion Body Myositis (IBM) a presumptive condition within the VA\, and provides invaluable resources for navigating disability claims and appeals. \nEvery month\, veterans from all branches of service come together to discuss the unique challenges of living with myositis and to support each other in their journeys. Care partners are also warmly welcomed to participate. Whether you’re seeking help with your claim\, want to get involved in advocacy\, or simply need a place to connect with others who truly understand\, this group is here to support you. For all myositis diagnoses. \nRegister Here \nVisit www.myositis.org/TMAVeterans to learn more!
URL:https://www.myositis.org/event/tma-military-veterans-with-myositis-affinity-group-meeting-2/2029-04-14/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/12/Screenshot-2026-04-10-130534.png
LOCATION:https://us02web.zoom.us/meeting/register/tZItceiurjkuHtKWAxCsms6EtTZ65P-m4NiZ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20290414T130000
DTEND;TZID=America/Chicago:20290414T150000
DTSTAMP:20260427T181157Z
CREATED:20260410T193203Z
LAST-MODIFIED:20260427T181157Z
UID:10001850-1870866000-1870873200@www.myositis.org
SUMMARY:TMA Nebraska Myositis Support Group Meeting (Hybrid)
DESCRIPTION:TMA Nebraska Myositis Support Group meets quarterly in-person and virtually on the second Saturday from 1-3 pm CT (January\, April\, July\, October) at Zion Lutheran Church\, 14205 Ida St\, Omaha\, NE 68142. \nTo connect virtually\, register here!
URL:https://www.myositis.org/event/tma-nebraska-myositis-support-group-meeting-in-person-10-2/2029-04-14/
LOCATION:Zion Lutheran Church\, 14205 Ida St\, Omaha\, 68142\, United States
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Nebraska.jpg
ORGANIZER;CN="Laura Deardoff":MAILTO:Deardoff@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290417T120000
DTEND;TZID=America/New_York:20290417T133000
DTSTAMP:20260601T155911Z
CREATED:20260601T155911Z
LAST-MODIFIED:20260601T155911Z
UID:10003479-1871121600-1871127000@www.myositis.org
SUMMARY:TMA WomenWithIBM Affinity Group Meeting
DESCRIPTION:Created in 2020\, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. \nRegister here.
URL:https://www.myositis.org/event/tma-womenwithibm-affinity-group/2029-04-17/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/06/Women-with-IBM-Instagram-Post-1.png
ORGANIZER;CN="Nancy Marx Erickson":MAILTO:WomenwithIBM@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuduyvqz4pEtIqImIBaRa8ourzIqJaF0A2
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290419T173000
DTEND;TZID=America/New_York:20290419T190000
DTSTAMP:20260610T215708Z
CREATED:20260609T191656Z
LAST-MODIFIED:20260610T215708Z
UID:10003522-1871314200-1871319600@www.myositis.org
SUMMARY:TMA Adelante! Un grupo de apoyo sobre miositis para hispanohablantes
DESCRIPTION:Registrese\n\n \n\nÚnete a TMA Adelante! – Una Comunidad de Habla Hispana Avanzando Juntos \n¡Adelante! es el primer grupo de afinidad de TMA diseñado para personas de habla hispana que viven con miositis y sus cuidadores. Fundado bajo la creencia de que\, a pesar de los desafíos de la enfermedad crónica\, todos podemos seguir avanzando\, este grupo ofrece un espacio de apoyo para hispanohablantes de todo el mundo para conectarse\, compartir experiencias y encontrar fortaleza en la comunidad. \nYa sea que busques orientación\, apoyo o simplemente un lugar para conectarte con otros que entienden tu camino\, TMA Adelante! está aquí para ayudarte. Las reuniones se realizan cada dos meses\, brindando una oportunidad constante para interactuar con otros que comparten el mismo idioma y experiencia. \n¿Cuándo?El tercer jueves de cada dos meses a las:5:00 PM ET | 4:00 PM CT | 3:00 PM MT | 2:00 PM PT \nÚnete a nosotros y sé parte de esta red dinámica y solidaria mientras avanzamos juntos. Esperamos darte la bienvenida a TMA Adelante! Grupo de Afinidad. \n\n \n 
URL:https://www.myositis.org/event/tma-adelante-un-grupo-de-apoyo-sobre-miositis-para-hispanohablantes-20-2-2/2029-04-19/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/06/Adelante-New-Time-June-2026.png
ORGANIZER;CN="Veronica Fatura":MAILTO:Fatura@myositis.org
LOCATION:https://www.myositis.org/event/tma-adelante-un-grupo-de-apoyo-sobre-miositis-para-hispanohablantes-20-2-2/2029-04-19/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20290419T183000
DTEND;TZID=America/Chicago:20290419T200000
DTSTAMP:20251229T003130Z
CREATED:20251229T003130Z
LAST-MODIFIED:20251229T003130Z
UID:10002693-1871317800-1871323200@www.myositis.org
SUMMARY:TMA Missouri and Illinois Myositis Support Group Meeting
DESCRIPTION:The TMA Missouri & Illinois Myositis Support Group is a welcoming space for individuals living with myositis. Meeting every month on the third Thursday at 6:30 PM CT\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nRegister Here \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nSecure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-missouri-and-illinois-myositis-support-group-meeting/2029-04-19/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="David Volk":MAILTO:Volk@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqdu6prjMvG9bNPn3hYm193xtHoyRYT2nI
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290419T190000
DTEND;TZID=America/New_York:20290419T203000
DTSTAMP:20260213T144653Z
CREATED:20250605T143754Z
LAST-MODIFIED:20260213T144653Z
UID:10003073-1871319600-1871325000@www.myositis.org
SUMMARY:TMA Upstate New York Myositis Support Group Meeting
DESCRIPTION:All are welcome. Register today! \nIt’s not unusual to feel isolated and alone with a disease that no one has ever heard of and doesn’t understand. Being part of a myositis support group is an important way to share these feelings with people who know exactly what you’re going through. Research shows that this sort of social connection can also improve both physical and mental well-being. Even if you are currently in a good place managing your myositis\, consider joining. You can be an inspiration and source of strength for others! \n\n\n\n\n\n\n  \n\n\n\n\n\n 
URL:https://www.myositis.org/event/tma-upstate-new-york-myositis-support-group-meeting-3/2029-04-19/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/04/TMA-Upstate-New-York.png
ORGANIZER;CN="Peter Winkelstein":MAILTO:Winkelstein@myositis.org
LOCATION:https://www.myositis.org/event/tma-upstate-new-york-myositis-support-group-meeting-3/2029-04-19/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20290420T170000
DTEND;TZID=America/Los_Angeles:20290420T183000
DTSTAMP:20260713T172806Z
CREATED:20260713T172126Z
LAST-MODIFIED:20260713T172806Z
UID:10001608-1871398800-1871404200@www.myositis.org
SUMMARY:TMA Hawai'i\, Northern California\, Oregon & Washington IBM Support Group Meeting
DESCRIPTION:Register here! \n\n \nJoin the TMA Hawai’i\, Northern California\, Oregon & Washington IBM Support Group: Connect\, Learn\, and Find Support\n\nThis group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Hawai’i\, Northern California\, Oregon & Washington\, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT\, this group offers a supportive space to connect with others who understand the unique challenges of living with IBM. \nWhether you’re newly diagnosed or have been living with IBM for some time\, this group is here to help reduce feelings of isolation\, provide valuable resources\, and foster a sense of belonging. Join us to share experiences\, learn about available support services\, and build connections with others in your community who are navigating the same journey. \nWhen?Third Friday of every month at:5:00 PM PT \nAll are welcome to attend—no matter where you are on your myositis journey. This group is a chance to decrease loneliness\, access important resources\, and find strength in the support of others who truly understand what you’re going through. \n\n \n\n 
URL:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31-2/2029-04-20/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/07/HI-NORCAL-OR-WA.png
ORGANIZER;CN="Malati Shinazy":MAILTO:Shinazy@myositis.org
LOCATION:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31-2/2029-04-20/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20290421
DTEND;VALUE=DATE:20290422
DTSTAMP:20251228T234741Z
CREATED:20251228T234741Z
LAST-MODIFIED:20251228T234741Z
UID:10002549-1871424000-1871510399@www.myositis.org
SUMMARY:TMA Maryland\, Delaware\, District of Columbia\, Northern Virginia Myositis Support Group Meeting
DESCRIPTION:The TMA MD\, DE\, DC\, and Northern Virginia Myositis Support Group is a welcoming space for individuals living with myositis in the Maryland\, Delaware\, District of Columbia\, and Northern Virginia regions. Meeting every two months on the third Saturday at 1:00 PM ET\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nWhen?\nThird Saturday of every other month at:\n1:00 PM ET \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-maryland-delaware-district-of-columbia-northern-virginia-myositis-support-group-meeting/2029-04-21/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Angela Hopp":MAILTO:Hopp@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqdeiqqTIsGdz4dsX2WHPMKJ3-dNr-G4BA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290422T170000
DTEND;TZID=America/New_York:20290422T183000
DTSTAMP:20260109T001953Z
CREATED:20251228T210016Z
LAST-MODIFIED:20260109T001953Z
UID:10002968-1871571600-1871577000@www.myositis.org
SUMMARY:TMA Rainbow Affinity Group Meeting
DESCRIPTION:TMA is proud to host the Rainbow Affinity Group\, a vital support community designed specifically for LGBTQIA+ individuals living with myositis. Founded in 2022\, this group offers a unique space to connect with others who share both a myositis diagnosis and a commitment to fostering inclusivity and respect within healthcare and beyond. \nRegister Here \nIn each monthly meeting\, you’ll find solidarity\, understanding\, and valuable resources\, all while creating connections within the broader LGBTQIA+ community. Our mission is to ensure that every LGBTQIA+ myositis patient is supported in an environment that is not only affirmative but also empowering. \nWhen?\nFourth Sunday of each month at:\n5pm ET | 4pm CT | 3pm MT | 2pm PT \nWhether you’re looking for guidance on navigating healthcare\, seeking a sense of community\, or simply wanting to connect with others who understand\, TMA’s Rainbow Affinity Group is here for you. Join us and become part of a supportive\, inclusive network where you can truly thrive.
URL:https://www.myositis.org/event/tma-rainbow-affinity-group-meeting/2029-04-22/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Barbara Shaw":MAILTO:Shaw@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuc-ugqT0uH9eg4G3WjxGOC2jccy7kV4wj
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290424T190000
DTEND;TZID=America/New_York:20290424T203000
DTSTAMP:20251228T203259Z
CREATED:20251228T203259Z
LAST-MODIFIED:20251228T203259Z
UID:10002217-1871751600-1871757000@www.myositis.org
SUMMARY:TMA Men Managing Myositis Affinity Group Meeting
DESCRIPTION:The TMA Men Managing Myositis Affinity Group is a supportive space for men with any form of myositis to connect\, share experiences\, and find solidarity. Founded in 2022 and led by Eric Rocheleau\, this group offers a unique opportunity to engage in meaningful discussions about the challenges specific to men living with myositis. Each month\, the group meets in breakout rooms tailored to different diagnoses\, allowing for focused conversations and peer support. \nRegister Here
URL:https://www.myositis.org/event/tma-men-managing-myositis-affinity-group-meeting/2029-04-24/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Eric Rocheleau":MAILTO:Rocheleau@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZUrf-6hqDMjEtW5ZdBV4gM4DI7ELYDARp2y
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290426T180000
DTEND;TZID=America/New_York:20290426T190000
DTSTAMP:20251228T194546Z
CREATED:20251228T194546Z
LAST-MODIFIED:20251228T194546Z
UID:10002157-1871920800-1871924400@www.myositis.org
SUMMARY:TMA Virginia\, West Virginia\, Northeast North Carolina Myositis Support Group Meeting
DESCRIPTION:This group meets monthly on the fourth Thursday at 6:00 PM ET. For all myositis diagnoses. \nRegister here \nWhy Attend a TMA Support Group \nTMA support groups are a place to connect\, be understood\, and feel less alone — whether you’re seeking support\, offering encouragement\, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being for most participants. Just as powerful\, many people who support others report improvements in their own mental and emotional health. \nEvery voice matters. Sharing experiences\, listening\, and learning from one another strengthens the myositis community and reminds us that none of us has to navigate this journey alone. \nCome for support. Come for connection. Come for community.
URL:https://www.myositis.org/event/tma-virginia-west-virginia-northeast-north-carolina-myositis-support-group-meeting/2029-04-26/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Kaniah Gunter":MAILTO:Gunter@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMkcu-rrz8tH9ILBN0VXGWdBWpTTWWdgRyF
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20290428T100000
DTEND;TZID=America/Chicago:20290428T113000
DTSTAMP:20260523T153959Z
CREATED:20260523T153934Z
LAST-MODIFIED:20260523T153959Z
UID:10001488-1872064800-1872070200@www.myositis.org
SUMMARY:TMA Northeast Texas Myositis Support Group Meeting
DESCRIPTION:Register Here \nAttend TMA Northeast Texas Myositis Support Group: Support for Those Living with Myositis and their Care Partners \nLiving with myositis is easier with friends. TMA’s support and affinity groups offer a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. These sessions are never recorded and camera is optional.  \nWhen?Fourth Saturday of each month (no meeting in December) at:10:00 AM – 11:30 AM CT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others like you! \n\nMessage from the Leader | Mike Fortner \n\n\n\n\n\n\n\n\n\n\n\n\n\n \nRegister Here \n\n\n\n\n\nConnect with TMA!         \n\n\n\n\n\n 
URL:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4-2/2029-04-28/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas.jpg
ORGANIZER;CN="Melissa Rumpf":MAILTO:Rumpf@myositis.org
LOCATION:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4-2/2029-04-28/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290428T103000
DTEND;TZID=America/New_York:20290428T113000
DTSTAMP:20250821T191502Z
CREATED:20250725T165340Z
LAST-MODIFIED:20250821T191502Z
UID:10001429-1872066600-1872070200@www.myositis.org
SUMMARY:TMA Georgia Myositis Support Group Meeting
DESCRIPTION:👉 Register here \nTMA Georgia Myositis Support Group meets every fourth Saturday from 10:30–11:30 AM ET\, except December. \nPeer-led support groups matter at every stage of the journey. Even if you’re currently thriving\, your presence and story can bring hope and reassurance to others who may be facing challenges. At TMA\, we pride ourselves on inspiring hope while walking alongside one another with understanding and compassion. Support groups are also a wonderful place to exchange local resources\, practical tips\, and connections that make daily life a little easier. \n\nMeet Your Co-Leaders \n\nTerri Lockhart\, MD – A retired\, Board-Certified Internal Medicine physician with over 30 years of clinical and administrative experience. Diagnosed with inclusion body myositis in 2020\, she brings a unique perspective as both clinician and patient\, and is passionate about sharing knowledge with others.\nCynthia Marks\, EdD – A former school administrator of 23 years and a Doctor of Education graduate from National Louis University. Cynthia is the primary care partner to her husband Ricky\, who was diagnosed with inclusion body myositis in 2016. She looks forward to supporting other care partners in understanding their roles while also prioritizing self-care.\n\nWe’re deeply grateful to Dr. Lockhart and Dr. Marks for stepping up to serve fellow community members in Georgia with their time\, care\, and leadership. Dr. Lockhart will be the primary contact person for the group\, feel free to reach out to her directly at Lockhart@myositis.org.
URL:https://www.myositis.org/event/tma-georgia-myositis-support-group/2029-04-28/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/07/TMA-Georgia-220-x-220.png
ORGANIZER;CN="Terri Lockhart":MAILTO:Lockhart@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/7M00c-iHRHOrHP6z96d5fQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290428T130000
DTEND;TZID=America/New_York:20290428T150000
DTSTAMP:20260811T231109Z
CREATED:20260811T231109Z
LAST-MODIFIED:20260811T231109Z
UID:10003619-1872075600-1872082800@www.myositis.org
SUMMARY:TMA Maryland\, Delaware\, District of Columbia\, Northern Virginia Myositis Support Group Meeting
DESCRIPTION:The TMA MD\, DE\, DC\, and Northern Virginia Myositis Support Group is a welcoming space for individuals living with myositis in the Maryland\, Delaware\, District of Columbia\, and Northern Virginia regions. Meeting every two months on the third Saturday at 1:00 PM ET\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-maryland-delaware-district-of-columbia-northern-virginia-myositis-support-group-meeting-2/2029-04-28/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Angela Hopp":MAILTO:Hopp@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqdeiqqTIsGdz4dsX2WHPMKJ3-dNr-G4BA
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20290501
DTEND;VALUE=DATE:20290601
DTSTAMP:20260222T162237Z
CREATED:20260219T182521Z
LAST-MODIFIED:20260222T162237Z
UID:10003169-1872288000-1874966399@www.myositis.org
SUMMARY:Myositis Awareness Month 2026
DESCRIPTION:May is Myositis Awareness Month! It’s a time for the myositis community to raise our collective voices and let the world know what this rare disease is all about. It’s TMA’s mission to support those who live with myositis and their care partners by bringing awareness\, sharing resources and education\, sharing strategies for advocacy\, and building a stronger and more connected myositis community. \nTMA’s special programming is centered on Diagnosis Days for learning and connecting by sub-type of myositis\, plus incredible community-wide events. Plus! Powerful resources to help you tell your story\, support each other\, and expand the public’s understanding of myositis. In doing so\, you can shorten the wait between symptoms and diagnosis. Ultimately\, your efforts will speed up the search for better treatments and a cure. \nWith your help\, we can educate your community…and the world! \nLearn more and donate here.
URL:https://www.myositis.org/event/myositis-awareness-month-2026/2029-05-01/
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-19-132352.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://www.myositis.org/about-myositis/myositis-awareness-month/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290502T200000
DTEND;TZID=America/New_York:20290502T213000
DTSTAMP:20260310T185113Z
CREATED:20250605T143731Z
LAST-MODIFIED:20260310T185113Z
UID:10001371-1872446400-1872451800@www.myositis.org
SUMMARY:TMA Flying Solo Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner \nThe TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone\, are married but your spouse is unable to provide care\, or even find yourself as the caregiver for your spouse\, this group is here to offer understanding and support. \nLiving with myositis can be particularly challenging without a live-in care partner\, but Flying Solo offers a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. \nWhen?\nFirst Wednesday of each month at:\n8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others who “fly solo” like you! \nRegister Here \n\n \nAbout the Leader | Rhonda Rogers \nRhonda Rogers\, diagnosed with Inclusion Body Myositis (IBM)\, is a passionate myositis advocate\, also known as “Myositis Warrior”\, who brings connection\, humor\, and heart to everything she does. She co-leads TMA’s Southern California Support Group and facilitates the TMA Flying Solo Affinity Group for people living with myositis who do not have a live-in care partner. Rhonda also administers the popular Myositis Warrior Facebook public group\, known for its upbeat\, candid\, and often humorous take on the unbelievable realities of life with myositis. Whether leading community groups or raising awareness in her signature Myositis Warrior cape at events like Comic-Con\, Rhonda inspires others to meet life with resilience and a smile. \nIn recognition of her outstanding leadership and support for the myositis community\, Rhonda received the Marianne Moyer Myositis Leader Award at MyoCon 2025\, along with her TMA Southern California co-leader\, Nancy Harber. This award honors TMA volunteers who lead the way by helping others and making a lasting impact.
URL:https://www.myositis.org/event/tma-flying-solo-affinity-group-meeting-23/2029-05-02/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/flyingsolo-169.jpg
ORGANIZER;CN="Rhonda Rogers":MAILTO:Rogers@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqc-GsrTksGt3aRRRGipKTWPzy7-n18ME4#/registration
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290503T183000
DTEND;TZID=America/New_York:20290503T203000
DTSTAMP:20260105T181121Z
CREATED:20251228T235730Z
LAST-MODIFIED:20260105T181121Z
UID:10001548-1872527400-1872534600@www.myositis.org
SUMMARY:TMA Women Of Color Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy \nFounded in 2019 by Holly Jones and Kaniah Gunter\, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement\, Education\, and Empowerment—our mission is to unite and empower women of color affected by myositis and to advocate for their health and well-being. By providing education\, support\, resources\, and the backing of TMA’s expertise\, we are determined to reduce the disparity gap in myositis outcomes for people of color. As we foster a community of strength\, resiliency\, and inspiration; together\, we will break barriers\, challenge inequalities\, and create a future where every woman\, caregiver\, and loved one affected by myositis\, regardless of their race\, can thrive. \nEach month\, WOC come together for impactful workshops and support meetings\, empowering participants to take what they’ve learned and share awareness about myositis within their communities. Whether you’re looking for guidance\, solidarity\, or the opportunity to advocate for others\, this group offers a space for connection\, education\, and positive change. \nWhen?\nFirst Thursday of each month at:\n6:30pm ET | 5:30pm CT | 4:30pm MT | 3:30pm PT \nJoin us and become part of a movement to raise awareness\, educate others\, and empower women of color to take charge of their myositis journey. Visit our group page for more information. \nRegister Here \n\n       \nAbout the Leaders | Holly Jones & Kaniah Gunter \nIn 2003\, at the age of 19 years old Holly Jones was diagnosed with Polymyositis with Interstitial Lung Disease at a CPK level over 20\,000. In 2014\, her lung disease progressed causing her to develop Pulmonary Hypertension that required her to be on oxygen daily. After six years of being in clinical remission\, the Pulmonary Hypertension progressed into Congestive Heart Failure in October 2020. Living with diseases that attack her muscles\, lungs\, and heart; it has not stopped Holly from accomplishing her life goals. A social media entrepreneur\, Holly also serves on TMA’s Board of Directors\, as well as co-leader for TMA’s Women of Color Affinity Group\, and Support Group Leader for the Houston\, Tx regional support group.  Holly lives in Porter\, TX with her husband and children. \nKaniah Gunter\, a Nutrition Health Coach owner of Unique Guidance Nutritional Health Coaching\, LLC\, was diagnosed with dermatomyositis with NXP-2 positive (anti-MJ) and scleroderma in 2007. Kaniah graduated from The Institute for Integrative Nutrition\, one of the largest nutrition schools in the world. \nRecently she completed her certification as a Community Health Worker. She is a strong advocate for the myositis community. At TMA\, she is a regional support group leader for TMA Virginia\, West Virginia and Northwest Carolina as well as co-leader for TMA’s Women of Color affinity group. She has shared her story in many healthcare publications and social media. She serves as an inspiration for others as she demonstrates healing begins within mind\, body and spirit. Kaniah and her two beautiful children live in Norfolk\, Virginia.
URL:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17-2/2029-05-03/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/12/Updated-WOC-Graphic.png
LOCATION:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17-2/2029-05-03/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290505T113000
DTEND;TZID=America/New_York:20290505T150000
DTSTAMP:20260820T174322Z
CREATED:20260820T174257Z
LAST-MODIFIED:20260820T174322Z
UID:10003647-1872675000-1872687600@www.myositis.org
SUMMARY:TMA Southwest Florida Myositis Meeting (HYBRID)
DESCRIPTION:This group welcomes all Florida residents (and snowbirds) with myositis and their care partners to attend. This group meets four times a year in hybrid format (in-person and on zoom) every three months on the first Saturday from 11:30 AM-3 PM ET. \nRegister Here \nTMA support groups are a place to connect\, be understood\, and feel less alone — whether you’re seeking support\, offering encouragement\, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being for most participants. Just as powerful\, many people who support others report improvements in their own mental and emotional health. \nEvery voice matters. Sharing experiences\, listening\, and learning from one another strengthens the myositis community and reminds us that none of us has to navigate this journey alone. \nCome for support. Come for connection. Come for community.
URL:https://www.myositis.org/event/tma-southwest-florida-myositis-meeting-hybrid-3/2029-05-05/
LOCATION:Stonewood Grill & Tavern – North Sarasota\, 5415 University Pkwy\, Sarasota\, 34201\, United States
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Donna DeFant":MAILTO:DeFant@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290505T130000
DTEND;TZID=America/New_York:20290505T143000
DTSTAMP:20250801T204659Z
CREATED:20250605T143744Z
LAST-MODIFIED:20250801T204659Z
UID:10001792-1872680400-1872685800@www.myositis.org
SUMMARY:TMA Care Partner Affinity Group Meeting
DESCRIPTION:Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families.\nJoin the TMA Care Partner Affinity Group: A Space Just for You \nBeing a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress\, anxiety\, or the weight of daily caregiving tasks\, it’s easy to feel overwhelmed and burnt out. That’s why the TMA Care Partner Affinity Group\, founded in 2022\, provides a supportive environment specifically for those who care for someone living with myositis. \nThis group meets in its own dedicated breakout room within TMA’s Worldwide Support Group Meeting on the first Saturday of each month. It’s a safe space where you\, the care partner\, are the focus—not the patient. Here\, you can connect with others who understand your unique challenges\, share coping strategies\, and discuss how to navigate the complex healthcare system. Whether it’s accessing resources like home health aides\, meal delivery\, or transportation assistance—or finding the right words to communicate with your loved one or healthcare team—this group is here to help you through it all. \nTo learn more about accessing breakout rooms\, see ACCESSING ZOOM BREAKOUT ROOMS \nWhen?\nFirst Saturday of every month at:\n1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT \nThe emotional demands of caregiving are real\, and sometimes\, you just need a place to express frustrations\, share victories\, and lean on others who truly understand. The TMA Care Partner Affinity Group is here to provide the support\, resources\, and community you need to continue on your journey. Join us and find the strength to take care of yourself\, too. \nRegister Here \n 
URL:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2029-05-05/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/webp:https://www.myositis.org/wp-content/uploads/2025/06/Care-Partner.webp
ORGANIZER;CN="Rachel Bromley":MAILTO:Rachel@myositis.org
LOCATION:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2029-05-05/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290505T130000
DTEND;TZID=America/New_York:20290505T143000
DTSTAMP:20260413T162341Z
CREATED:20250801T201217Z
LAST-MODIFIED:20260413T162341Z
UID:10001731-1872680400-1872685800@www.myositis.org
SUMMARY:TMA Worldwide Myositis Support by Diagnosis
DESCRIPTION:TMA’s Worldwide Myositis Support by Diagnosis Group is open to all\, especially those without an active support group in their local area. Formally known as Nationwide\, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis\, and the TMA Care Partner Affinity Group meets in its own room. TMA Worldwide meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT.  \nRegister here
URL:https://www.myositis.org/event/tma-worldwide-myositis-support-by-diagnosis/2029-05-05/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/08/New-Worldwide-2.png
ORGANIZER;CN="Dave Volk":MAILTO:Volk@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMuc-mtqTktHNH_sskpoHflne4zPRAkfS9y
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Phoenix:20290505T130000
DTEND;TZID=America/Phoenix:20290505T150000
DTSTAMP:20250805T195330Z
CREATED:20250805T194445Z
LAST-MODIFIED:20250805T195330Z
UID:10001870-1872680400-1872687600@www.myositis.org
SUMMARY:TMA Arizona & Nevada Myositis Support Group Meeting
DESCRIPTION:Register here. \nJoin us for connection\, support\, and shared experiences with others living with myositis in Arizona and Nevada. This welcoming group meets quarterly—on the first Saturday of February\, May\, August\, and November—via Zoom. Whether you’re newly diagnosed or have been living with myositis for years\, you’re invited to be part of a caring community that understands.
URL:https://www.myositis.org/event/tma-arizona-nevada-myositis-support-group-meeting/2029-05-05/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/08/Nebraska-1.jpg
ORGANIZER;CN="Linda Thomas":MAILTO:Thomas@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZEvce2rqjsjGtWAVyB3D7S3ph9M8SsEzma4
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290507T183000
DTEND;TZID=America/New_York:20290507T200000
DTSTAMP:20251228T211316Z
CREATED:20251228T211316Z
LAST-MODIFIED:20251228T211316Z
UID:10002378-1872873000-1872878400@www.myositis.org
SUMMARY:TMA New Jersey Support Group Meeting
DESCRIPTION:This group for all myositis diagnoses meets every other month on the first Monday at 6:30 PM ET | 5:30 PM CT | 4:30 PM MT | 3:30 PM PT. Register here. \nTMA support groups are a place to connect\, be understood\, and feel less alone — whether you’re seeking support\, offering encouragement\, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being for most participants. Just as powerful\, many people who support others report improvements in their own mental and emotional health. \nEvery voice matters. Sharing experiences\, listening\, and learning from one another strengthens the myositis community and reminds us that none of us has to navigate this journey alone. \nCome for support. Come for connection. Come for community. \n 
URL:https://www.myositis.org/event/tma-new-jersey-support-group-meeting/2029-05-07/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Colleen Layton":MAILTO:Layton@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMlceivqz8pEtMGZujZNPuwTKALAAmw3pSr
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Athens:20290507T190000
DTEND;TZID=Europe/Athens:20290507T203000
DTSTAMP:20251229T000714Z
CREATED:20251229T000714Z
LAST-MODIFIED:20251229T000714Z
UID:10002604-1872874800-1872880200@www.myositis.org
SUMMARY:Ομάδα Στήριξης Μυοσίτιδας TMA Greece
DESCRIPTION:Γνωρίστε άλλους σαν εσάς\, μάθετε\, μοιραστείτε και συνδεθείτε! Συναντιόμαστε κάθε μήνα την πρώτη Δευτέρα. Εγγραφείτε εδώ
URL:https://www.myositis.org/event/%ce%bf%ce%bc%ce%ac%ce%b4%ce%b1-%cf%83%cf%84%ce%ae%cf%81%ce%b9%ce%be%ce%b7%cf%82-%ce%bc%cf%85%ce%bf%cf%83%ce%af%cf%84%ce%b9%ce%b4%ce%b1%cf%82-tma-greece/2029-05-07/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Maria Dourida":MAILTO:Dourida@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/fBivzMouRQyswoJWjr6tmg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290508T160000
DTEND;TZID=America/New_York:20290508T180000
DTSTAMP:20251228T231147Z
CREATED:20251105T195356Z
LAST-MODIFIED:20251228T231147Z
UID:10001951-1872950400-1872957600@www.myositis.org
SUMMARY:Hospital of Special Surgery (HSS) New York City Myositis Support Group
DESCRIPTION:The HSS Myositis Support Group is open to people living with myositis\, their families\, and friends. \nIf this is your first time attending the HSS group meeting\, please be sure to contact the group coordinator before the meeting date in order to receive the join link. \nPLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: \nSuzan Fischbein\, LCSW \nSr. Social Work Coordinator II \nemail: fischbeins@hss.edu \nSPONSORED BY \nDepartment of Social Work Programs and The Division of Rheumatology at Hospital for Special Surgery | 535 East 70th Street New York\, NY 10021
URL:https://www.myositis.org/event/hospital-of-special-surgery-hss-new-york-city-myositis-support-group/2029-05-08/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Suzan Fischbein":MAILTO:FischbeinS@HSS.edu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Lagos:20290508T190000
DTEND;TZID=Africa/Lagos:20290508T203000
DTSTAMP:20251228T230743Z
CREATED:20251228T230743Z
LAST-MODIFIED:20251228T230743Z
UID:10002448-1872961200-1872966600@www.myositis.org
SUMMARY:TMA Africa Myositis Support Group Meeting
DESCRIPTION:This group meets monthly on the second Tuesday and is a virtual support network dedicated to individuals living with myositis in Africa and beyond. Founded in 2024 with the help of the TMA Women of Color Affinity Group\, this monthly meeting is designed to provide support\, share resources\, and create meaningful connections among English-speaking members worldwide. \nRegister Here \nWhether you’re newly diagnosed or managing myositis\, the TMA Africa Myositis Support Group offers a safe space to connect with others who truly understand the challenges of living with this rare condition. By sharing experiences and learning from each other\, we can work together to raise awareness\, provide encouragement\, and empower individuals across the continent and around the world.
URL:https://www.myositis.org/event/tma-africa-myositis-support-group-meeting/2029-05-08/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Cynthia Ikediashi":MAILTO:Ikediashi@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZAvd-Chrj0oG9Fs7P7ZNXjq80N1mvnPiA_E
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20290512T120000
DTEND;TZID=America/Denver:20290512T133000
DTSTAMP:20260409T132410Z
CREATED:20260409T132410Z
LAST-MODIFIED:20260409T132410Z
UID:10003392-1873281600-1873287000@www.myositis.org
SUMMARY:TMA Colorado Myositis Support Group Meeting
DESCRIPTION:This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect\, be understood\, and feel less alone — whether you’re seeking support\, offering encouragement\, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being for most participants. Just as powerful\, many people who support others report improvements in their own mental and emotional health. \nEvery voice matters. Sharing experiences\, listening\, and learning from one another strengthens the myositis community and reminds us that none of us has to navigate this journey alone. \nCome for support. Come for connection. Come for community. \nRegister Here \nAbout the Leader \n \nMeet Jim Milani\, a TMA member who was moved by the efforts of the late Marianne Moyer and the TMA Southwest Florida’s success in organizing a Myositis Symposium for Physical and Occupational Therapists for  Myositis Awareness Month. He called Rachel Bromley\, TMA’s Senior Manager of Patient Education\, Support and Advocacy to offer to organize one in his home state of Colorado. Rachel was ecstatic\, as Marianne’s vision had always been for this event to branch out to other TMA groups! One catch though – TMA Colorado had been dormant for quite some time. So she swung for the fences and said “How about reactivating the Colorado group at the same time? You can connect more PTs and OTs that way\, find a few volunteers to possibly help your efforts\, and provide and receive support for myositis along the way!” \nJim replied with one word “SURE!” And so this journey began. \nFor the past 20 years\, Jim has been a Physical Therapist and is Board Certified as a Geriatric Specialist. After several years of misdiagnoses\, he was correctly diagnosed with IBM in late 2023. Despite this\, Jim continues to pursue his love for activity and sports. He is passionate about sharing his personal and professional “fitness forward” philosophy\, helping people understand how to modify and adapt exercises to their functional level. Jim resides in Colorado with his wife\, Laura. He is a proud father of six adult children and has two grandchildren. Jim says his family and faith help him get through each day. While there is much about IBM that he cannot control\, he focuses on what he can: his attitude and effort. #justkeepswimming
URL:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting-2-2/2029-05-12/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Jim Milani":MAILTO:Milani@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMpde2pqjsrGNfydYipCNiyzhwXceHDv1jH
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290512T120000
DTEND;TZID=America/New_York:20290512T133000
DTSTAMP:20260410T170928Z
CREATED:20260410T170900Z
LAST-MODIFIED:20260410T170928Z
UID:10002278-1873281600-1873287000@www.myositis.org
SUMMARY:TMA Military Veterans with Myositis Affinity Group Meeting
DESCRIPTION:Founded in 2022\, the TMA Military Veterans with Myositis Affinity Group is a dedicated space for veterans living with myositis to find support\, share experiences\, and engage in advocacy efforts. This group is particularly focused on working towards making Inclusion Body Myositis (IBM) a presumptive condition within the VA\, and provides invaluable resources for navigating disability claims and appeals. \nEvery month\, veterans from all branches of service come together to discuss the unique challenges of living with myositis and to support each other in their journeys. Care partners are also warmly welcomed to participate. Whether you’re seeking help with your claim\, want to get involved in advocacy\, or simply need a place to connect with others who truly understand\, this group is here to support you. For all myositis diagnoses. \nRegister Here \nVisit www.myositis.org/TMAVeterans to learn more!
URL:https://www.myositis.org/event/tma-military-veterans-with-myositis-affinity-group-meeting-2/2029-05-12/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/12/Screenshot-2026-04-10-130534.png
LOCATION:https://us02web.zoom.us/meeting/register/tZItceiurjkuHtKWAxCsms6EtTZ65P-m4NiZ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20290513T150000
DTEND;TZID=America/Chicago:20290513T160000
DTSTAMP:20260709T222550Z
CREATED:20260107T035656Z
LAST-MODIFIED:20260709T222550Z
UID:10002910-1873378800-1873382400@www.myositis.org
SUMMARY:TMA Tennessee Myositis Support Group Meeting
DESCRIPTION:Living with myositis in Tennessee? You don’t have to navigate it alone. TMA’s Tennessee Support Group brings together patients\, caregivers\, and families who understand exactly what you’re going through — because they’re going through it too. Come share your story\, ask questions\, learn from others’ experiences\, and build real connections with people close to home. Whether you’re newly diagnosed or years into your journey\, there’s a seat for you at the table. We’d love to see you there! \nTMA Tennessee meets on the second Sunday of each month at 3:00 PM CT | 4:00 PM ET. Email leader Sharon Hinton at Hinton@myositis.org. \nRegister here. \nAbout the Leader \n \nSharon Hinton has been living with dermatomyositis for about five years. She grew up in the mountains of east Tennessee\, went to school in middle Tennessee\, and after 25 years in Texas\, now lives in West Tennessee. \nShe has retired from her work as a nurse educator and international speaker. She now works from home for PepTalk Productions LLC as a writer and mentor encouraging others to write and share their stories. She says that leading the TMA Tennessee myositis support group online provides a way for her to give back and help others to discover how to live with the challenges a chronic illness presents.
URL:https://www.myositis.org/event/tma-tennessee-myositis-support-group-meeting-2-2/2029-05-13/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/01/Tennessee.png
ORGANIZER;CN="Sharon Hinton":MAILTO:Hinton@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/hf7d579LRD2BQRXNhVrVDA
END:VEVENT
END:VCALENDAR