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BEGIN:VEVENT
DTSTART;VALUE=DATE:20290301
DTEND;VALUE=DATE:20290302
DTSTAMP:20260305T152231Z
CREATED:20260305T152007Z
LAST-MODIFIED:20260305T152231Z
UID:10003190-1867017600-1867103999@www.myositis.org
SUMMARY:Shine a Light this Autoimmune Awareness Month!
DESCRIPTION:Every March\, the Autoimmune Association leads the charge with Autoimmune Awareness Month — a powerful campaign dedicated to bringing visibility\, understanding\, and hope to communities across the country. TMA is honored to be a proud supporter of this important movement. \nAutoimmune diseases are too often misunderstood\, misdiagnosed\, and overlooked. That ends with awareness. Join TMA\, the Autoimmune Association\, and advocates everywhere as we shine a light\, spark conversations\, and drive real progress toward a better future for all.
URL:https://www.myositis.org/event/shine-a-light-this-autoimmune-awareness-month/2029-03-01/
CATEGORIES:Commemorative
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/Image-11.png
LOCATION:https://autoimmune.org/autoimmune-awareness-month/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290301T183000
DTEND;TZID=America/New_York:20290301T203000
DTSTAMP:20260105T181121Z
CREATED:20251228T235730Z
LAST-MODIFIED:20260105T181121Z
UID:10001546-1867084200-1867091400@www.myositis.org
SUMMARY:TMA Women Of Color Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy \nFounded in 2019 by Holly Jones and Kaniah Gunter\, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement\, Education\, and Empowerment—our mission is to unite and empower women of color affected by myositis and to advocate for their health and well-being. By providing education\, support\, resources\, and the backing of TMA’s expertise\, we are determined to reduce the disparity gap in myositis outcomes for people of color. As we foster a community of strength\, resiliency\, and inspiration; together\, we will break barriers\, challenge inequalities\, and create a future where every woman\, caregiver\, and loved one affected by myositis\, regardless of their race\, can thrive. \nEach month\, WOC come together for impactful workshops and support meetings\, empowering participants to take what they’ve learned and share awareness about myositis within their communities. Whether you’re looking for guidance\, solidarity\, or the opportunity to advocate for others\, this group offers a space for connection\, education\, and positive change. \nWhen?\nFirst Thursday of each month at:\n6:30pm ET | 5:30pm CT | 4:30pm MT | 3:30pm PT \nJoin us and become part of a movement to raise awareness\, educate others\, and empower women of color to take charge of their myositis journey. Visit our group page for more information. \nRegister Here \n\n       \nAbout the Leaders | Holly Jones & Kaniah Gunter \nIn 2003\, at the age of 19 years old Holly Jones was diagnosed with Polymyositis with Interstitial Lung Disease at a CPK level over 20\,000. In 2014\, her lung disease progressed causing her to develop Pulmonary Hypertension that required her to be on oxygen daily. After six years of being in clinical remission\, the Pulmonary Hypertension progressed into Congestive Heart Failure in October 2020. Living with diseases that attack her muscles\, lungs\, and heart; it has not stopped Holly from accomplishing her life goals. A social media entrepreneur\, Holly also serves on TMA’s Board of Directors\, as well as co-leader for TMA’s Women of Color Affinity Group\, and Support Group Leader for the Houston\, Tx regional support group.  Holly lives in Porter\, TX with her husband and children. \nKaniah Gunter\, a Nutrition Health Coach owner of Unique Guidance Nutritional Health Coaching\, LLC\, was diagnosed with dermatomyositis with NXP-2 positive (anti-MJ) and scleroderma in 2007. Kaniah graduated from The Institute for Integrative Nutrition\, one of the largest nutrition schools in the world. \nRecently she completed her certification as a Community Health Worker. She is a strong advocate for the myositis community. At TMA\, she is a regional support group leader for TMA Virginia\, West Virginia and Northwest Carolina as well as co-leader for TMA’s Women of Color affinity group. She has shared her story in many healthcare publications and social media. She serves as an inspiration for others as she demonstrates healing begins within mind\, body and spirit. Kaniah and her two beautiful children live in Norfolk\, Virginia.
URL:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17-2/2029-03-01/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/12/Updated-WOC-Graphic.png
LOCATION:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17-2/2029-03-01/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290303T130000
DTEND;TZID=America/New_York:20290303T143000
DTSTAMP:20250801T204659Z
CREATED:20250605T143744Z
LAST-MODIFIED:20250801T204659Z
UID:10001790-1867237200-1867242600@www.myositis.org
SUMMARY:TMA Care Partner Affinity Group Meeting
DESCRIPTION:Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families.\nJoin the TMA Care Partner Affinity Group: A Space Just for You \nBeing a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress\, anxiety\, or the weight of daily caregiving tasks\, it’s easy to feel overwhelmed and burnt out. That’s why the TMA Care Partner Affinity Group\, founded in 2022\, provides a supportive environment specifically for those who care for someone living with myositis. \nThis group meets in its own dedicated breakout room within TMA’s Worldwide Support Group Meeting on the first Saturday of each month. It’s a safe space where you\, the care partner\, are the focus—not the patient. Here\, you can connect with others who understand your unique challenges\, share coping strategies\, and discuss how to navigate the complex healthcare system. Whether it’s accessing resources like home health aides\, meal delivery\, or transportation assistance—or finding the right words to communicate with your loved one or healthcare team—this group is here to help you through it all. \nTo learn more about accessing breakout rooms\, see ACCESSING ZOOM BREAKOUT ROOMS \nWhen?\nFirst Saturday of every month at:\n1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT \nThe emotional demands of caregiving are real\, and sometimes\, you just need a place to express frustrations\, share victories\, and lean on others who truly understand. The TMA Care Partner Affinity Group is here to provide the support\, resources\, and community you need to continue on your journey. Join us and find the strength to take care of yourself\, too. \nRegister Here \n 
URL:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2029-03-03/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/webp:https://www.myositis.org/wp-content/uploads/2025/06/Care-Partner.webp
ORGANIZER;CN="Rachel Bromley":MAILTO:Rachel@myositis.org
LOCATION:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2029-03-03/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290303T130000
DTEND;TZID=America/New_York:20290303T143000
DTSTAMP:20260413T162341Z
CREATED:20250801T201217Z
LAST-MODIFIED:20260413T162341Z
UID:10001729-1867237200-1867242600@www.myositis.org
SUMMARY:TMA Worldwide Myositis Support by Diagnosis
DESCRIPTION:TMA’s Worldwide Myositis Support by Diagnosis Group is open to all\, especially those without an active support group in their local area. Formally known as Nationwide\, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis\, and the TMA Care Partner Affinity Group meets in its own room. TMA Worldwide meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT.  \nRegister here
URL:https://www.myositis.org/event/tma-worldwide-myositis-support-by-diagnosis/2029-03-03/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/08/New-Worldwide-2.png
ORGANIZER;CN="Dave Volk":MAILTO:Volk@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMuc-mtqTktHNH_sskpoHflne4zPRAkfS9y
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290305T183000
DTEND;TZID=America/New_York:20290305T200000
DTSTAMP:20251228T211316Z
CREATED:20251228T211316Z
LAST-MODIFIED:20251228T211316Z
UID:10002377-1867429800-1867435200@www.myositis.org
SUMMARY:TMA New Jersey Support Group Meeting
DESCRIPTION:This group for all myositis diagnoses meets every other month on the first Monday at 6:30 PM ET | 5:30 PM CT | 4:30 PM MT | 3:30 PM PT. Register here. \nTMA support groups are a place to connect\, be understood\, and feel less alone — whether you’re seeking support\, offering encouragement\, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being for most participants. Just as powerful\, many people who support others report improvements in their own mental and emotional health. \nEvery voice matters. Sharing experiences\, listening\, and learning from one another strengthens the myositis community and reminds us that none of us has to navigate this journey alone. \nCome for support. Come for connection. Come for community. \n 
URL:https://www.myositis.org/event/tma-new-jersey-support-group-meeting/2029-03-05/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Colleen Layton":MAILTO:Layton@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMlceivqz8pEtMGZujZNPuwTKALAAmw3pSr
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Athens:20290305T190000
DTEND;TZID=Europe/Athens:20290305T203000
DTSTAMP:20251229T000714Z
CREATED:20251229T000714Z
LAST-MODIFIED:20251229T000714Z
UID:10002602-1867431600-1867437000@www.myositis.org
SUMMARY:Ομάδα Στήριξης Μυοσίτιδας TMA Greece
DESCRIPTION:Γνωρίστε άλλους σαν εσάς\, μάθετε\, μοιραστείτε και συνδεθείτε! Συναντιόμαστε κάθε μήνα την πρώτη Δευτέρα. Εγγραφείτε εδώ
URL:https://www.myositis.org/event/%ce%bf%ce%bc%ce%ac%ce%b4%ce%b1-%cf%83%cf%84%ce%ae%cf%81%ce%b9%ce%be%ce%b7%cf%82-%ce%bc%cf%85%ce%bf%cf%83%ce%af%cf%84%ce%b9%ce%b4%ce%b1%cf%82-tma-greece/2029-03-05/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Maria Dourida":MAILTO:Dourida@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/fBivzMouRQyswoJWjr6tmg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290307T200000
DTEND;TZID=America/New_York:20290307T213000
DTSTAMP:20260310T185113Z
CREATED:20250605T143731Z
LAST-MODIFIED:20260310T185113Z
UID:10001369-1867608000-1867613400@www.myositis.org
SUMMARY:TMA Flying Solo Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner \nThe TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone\, are married but your spouse is unable to provide care\, or even find yourself as the caregiver for your spouse\, this group is here to offer understanding and support. \nLiving with myositis can be particularly challenging without a live-in care partner\, but Flying Solo offers a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. \nWhen?\nFirst Wednesday of each month at:\n8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others who “fly solo” like you! \nRegister Here \n\n \nAbout the Leader | Rhonda Rogers \nRhonda Rogers\, diagnosed with Inclusion Body Myositis (IBM)\, is a passionate myositis advocate\, also known as “Myositis Warrior”\, who brings connection\, humor\, and heart to everything she does. She co-leads TMA’s Southern California Support Group and facilitates the TMA Flying Solo Affinity Group for people living with myositis who do not have a live-in care partner. Rhonda also administers the popular Myositis Warrior Facebook public group\, known for its upbeat\, candid\, and often humorous take on the unbelievable realities of life with myositis. Whether leading community groups or raising awareness in her signature Myositis Warrior cape at events like Comic-Con\, Rhonda inspires others to meet life with resilience and a smile. \nIn recognition of her outstanding leadership and support for the myositis community\, Rhonda received the Marianne Moyer Myositis Leader Award at MyoCon 2025\, along with her TMA Southern California co-leader\, Nancy Harber. This award honors TMA volunteers who lead the way by helping others and making a lasting impact.
URL:https://www.myositis.org/event/tma-flying-solo-affinity-group-meeting-23/2029-03-07/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/flyingsolo-169.jpg
ORGANIZER;CN="Rhonda Rogers":MAILTO:Rogers@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqc-GsrTksGt3aRRRGipKTWPzy7-n18ME4#/registration
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20290310T120000
DTEND;TZID=America/Denver:20290310T133000
DTSTAMP:20260409T132410Z
CREATED:20260409T132410Z
LAST-MODIFIED:20260409T132410Z
UID:10003390-1867838400-1867843800@www.myositis.org
SUMMARY:TMA Colorado Myositis Support Group Meeting
DESCRIPTION:This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect\, be understood\, and feel less alone — whether you’re seeking support\, offering encouragement\, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being for most participants. Just as powerful\, many people who support others report improvements in their own mental and emotional health. \nEvery voice matters. Sharing experiences\, listening\, and learning from one another strengthens the myositis community and reminds us that none of us has to navigate this journey alone. \nCome for support. Come for connection. Come for community. \nRegister Here \nAbout the Leader \n \nMeet Jim Milani\, a TMA member who was moved by the efforts of the late Marianne Moyer and the TMA Southwest Florida’s success in organizing a Myositis Symposium for Physical and Occupational Therapists for  Myositis Awareness Month. He called Rachel Bromley\, TMA’s Senior Manager of Patient Education\, Support and Advocacy to offer to organize one in his home state of Colorado. Rachel was ecstatic\, as Marianne’s vision had always been for this event to branch out to other TMA groups! One catch though – TMA Colorado had been dormant for quite some time. So she swung for the fences and said “How about reactivating the Colorado group at the same time? You can connect more PTs and OTs that way\, find a few volunteers to possibly help your efforts\, and provide and receive support for myositis along the way!” \nJim replied with one word “SURE!” And so this journey began. \nFor the past 20 years\, Jim has been a Physical Therapist and is Board Certified as a Geriatric Specialist. After several years of misdiagnoses\, he was correctly diagnosed with IBM in late 2023. Despite this\, Jim continues to pursue his love for activity and sports. He is passionate about sharing his personal and professional “fitness forward” philosophy\, helping people understand how to modify and adapt exercises to their functional level. Jim resides in Colorado with his wife\, Laura. He is a proud father of six adult children and has two grandchildren. Jim says his family and faith help him get through each day. While there is much about IBM that he cannot control\, he focuses on what he can: his attitude and effort. #justkeepswimming
URL:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting-2-2/2029-03-10/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Jim Milani":MAILTO:Milani@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMpde2pqjsrGNfydYipCNiyzhwXceHDv1jH
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290310T120000
DTEND;TZID=America/New_York:20290310T133000
DTSTAMP:20260410T170928Z
CREATED:20260410T170900Z
LAST-MODIFIED:20260410T170928Z
UID:10002276-1867838400-1867843800@www.myositis.org
SUMMARY:TMA Military Veterans with Myositis Affinity Group Meeting
DESCRIPTION:Founded in 2022\, the TMA Military Veterans with Myositis Affinity Group is a dedicated space for veterans living with myositis to find support\, share experiences\, and engage in advocacy efforts. This group is particularly focused on working towards making Inclusion Body Myositis (IBM) a presumptive condition within the VA\, and provides invaluable resources for navigating disability claims and appeals. \nEvery month\, veterans from all branches of service come together to discuss the unique challenges of living with myositis and to support each other in their journeys. Care partners are also warmly welcomed to participate. Whether you’re seeking help with your claim\, want to get involved in advocacy\, or simply need a place to connect with others who truly understand\, this group is here to support you. For all myositis diagnoses. \nRegister Here \nVisit www.myositis.org/TMAVeterans to learn more!
URL:https://www.myositis.org/event/tma-military-veterans-with-myositis-affinity-group-meeting-2/2029-03-10/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/12/Screenshot-2026-04-10-130534.png
LOCATION:https://us02web.zoom.us/meeting/register/tZItceiurjkuHtKWAxCsms6EtTZ65P-m4NiZ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290310T120000
DTEND;TZID=America/New_York:20290310T140000
DTSTAMP:20260410T202256Z
CREATED:20251228T212338Z
LAST-MODIFIED:20260410T202256Z
UID:10003107-1867838400-1867845600@www.myositis.org
SUMMARY:TMA North & South Carolina Myositis Support Group Meeting
DESCRIPTION:The TMA North & South Carolina Myositis Support Group offers a hybrid meeting format\, combining both in-person and virtual options\, for individuals living with myositis in the Carolinas. Meeting every three months (March\, June\, September and December) on the second Saturday at 12:00 PM ET\, this group provides a supportive environment to connect with others\, share experiences\, and access valuable resources. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help reduce isolation\, foster a sense of community\, and offer guidance for navigating the challenges of living with autoimmune diseases like Inclusion Body Myositis (IBM)\, Polymyositis (PM)\, Dermatomyositis (DM)\, Necrotizing Myopathy (NM)\, and more. \nWhen?\nEvery three months on the second Saturday at 12:00 PM ET \nWhere?\nIn-person: TBD\nVirtual: Register Here \nJoin us to connect with others\, gain support\, and empower yourself in your myositis journey. We look forward to seeing you there!
URL:https://www.myositis.org/event/tma-north-south-carolina-myositis-support-group-meeting-hybrid/2029-03-10/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/12/TMA-North-South-Carolina-Flier-QR-Code.jpg
ORGANIZER;CN="Steve Slice":MAILTO:Slice@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMrdOGtrzojH9W3KZi_Scyryy-_WDwVUoSf
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20290311T150000
DTEND;TZID=America/Chicago:20290311T160000
DTSTAMP:20260709T222550Z
CREATED:20260107T035656Z
LAST-MODIFIED:20260709T222550Z
UID:10002908-1867935600-1867939200@www.myositis.org
SUMMARY:TMA Tennessee Myositis Support Group Meeting
DESCRIPTION:Living with myositis in Tennessee? You don’t have to navigate it alone. TMA’s Tennessee Support Group brings together patients\, caregivers\, and families who understand exactly what you’re going through — because they’re going through it too. Come share your story\, ask questions\, learn from others’ experiences\, and build real connections with people close to home. Whether you’re newly diagnosed or years into your journey\, there’s a seat for you at the table. We’d love to see you there! \nTMA Tennessee meets on the second Sunday of each month at 3:00 PM CT | 4:00 PM ET. Email leader Sharon Hinton at Hinton@myositis.org. \nRegister here. \nAbout the Leader \n \nSharon Hinton has been living with dermatomyositis for about five years. She grew up in the mountains of east Tennessee\, went to school in middle Tennessee\, and after 25 years in Texas\, now lives in West Tennessee. \nShe has retired from her work as a nurse educator and international speaker. She now works from home for PepTalk Productions LLC as a writer and mentor encouraging others to write and share their stories. She says that leading the TMA Tennessee myositis support group online provides a way for her to give back and help others to discover how to live with the challenges a chronic illness presents.
URL:https://www.myositis.org/event/tma-tennessee-myositis-support-group-meeting-2-2/2029-03-11/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/01/Tennessee.png
ORGANIZER;CN="Sharon Hinton":MAILTO:Hinton@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/hf7d579LRD2BQRXNhVrVDA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290313T160000
DTEND;TZID=America/New_York:20290313T180000
DTSTAMP:20251228T231147Z
CREATED:20251105T195356Z
LAST-MODIFIED:20251228T231147Z
UID:10001949-1868112000-1868119200@www.myositis.org
SUMMARY:Hospital of Special Surgery (HSS) New York City Myositis Support Group
DESCRIPTION:The HSS Myositis Support Group is open to people living with myositis\, their families\, and friends. \nIf this is your first time attending the HSS group meeting\, please be sure to contact the group coordinator before the meeting date in order to receive the join link. \nPLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: \nSuzan Fischbein\, LCSW \nSr. Social Work Coordinator II \nemail: fischbeins@hss.edu \nSPONSORED BY \nDepartment of Social Work Programs and The Division of Rheumatology at Hospital for Special Surgery | 535 East 70th Street New York\, NY 10021
URL:https://www.myositis.org/event/hospital-of-special-surgery-hss-new-york-city-myositis-support-group/2029-03-13/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Suzan Fischbein":MAILTO:FischbeinS@HSS.edu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Lagos:20290313T190000
DTEND;TZID=Africa/Lagos:20290313T203000
DTSTAMP:20251228T230743Z
CREATED:20251228T230743Z
LAST-MODIFIED:20251228T230743Z
UID:10002446-1868122800-1868128200@www.myositis.org
SUMMARY:TMA Africa Myositis Support Group Meeting
DESCRIPTION:This group meets monthly on the second Tuesday and is a virtual support network dedicated to individuals living with myositis in Africa and beyond. Founded in 2024 with the help of the TMA Women of Color Affinity Group\, this monthly meeting is designed to provide support\, share resources\, and create meaningful connections among English-speaking members worldwide. \nRegister Here \nWhether you’re newly diagnosed or managing myositis\, the TMA Africa Myositis Support Group offers a safe space to connect with others who truly understand the challenges of living with this rare condition. By sharing experiences and learning from each other\, we can work together to raise awareness\, provide encouragement\, and empower individuals across the continent and around the world.
URL:https://www.myositis.org/event/tma-africa-myositis-support-group-meeting/2029-03-13/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Cynthia Ikediashi":MAILTO:Ikediashi@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZAvd-Chrj0oG9Fs7P7ZNXjq80N1mvnPiA_E
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20290315T183000
DTEND;TZID=America/Chicago:20290315T200000
DTSTAMP:20251229T003130Z
CREATED:20251229T003130Z
LAST-MODIFIED:20251229T003130Z
UID:10002692-1868293800-1868299200@www.myositis.org
SUMMARY:TMA Missouri and Illinois Myositis Support Group Meeting
DESCRIPTION:The TMA Missouri & Illinois Myositis Support Group is a welcoming space for individuals living with myositis. Meeting every month on the third Thursday at 6:30 PM CT\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nRegister Here \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nSecure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-missouri-and-illinois-myositis-support-group-meeting/2029-03-15/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="David Volk":MAILTO:Volk@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqdu6prjMvG9bNPn3hYm193xtHoyRYT2nI
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290315T190000
DTEND;TZID=America/New_York:20290315T203000
DTSTAMP:20260213T144653Z
CREATED:20250605T143754Z
LAST-MODIFIED:20260213T144653Z
UID:10003072-1868295600-1868301000@www.myositis.org
SUMMARY:TMA Upstate New York Myositis Support Group Meeting
DESCRIPTION:All are welcome. Register today! \nIt’s not unusual to feel isolated and alone with a disease that no one has ever heard of and doesn’t understand. Being part of a myositis support group is an important way to share these feelings with people who know exactly what you’re going through. Research shows that this sort of social connection can also improve both physical and mental well-being. Even if you are currently in a good place managing your myositis\, consider joining. You can be an inspiration and source of strength for others! \n\n\n\n\n\n\n  \n\n\n\n\n\n 
URL:https://www.myositis.org/event/tma-upstate-new-york-myositis-support-group-meeting-3/2029-03-15/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/04/TMA-Upstate-New-York.png
ORGANIZER;CN="Peter Winkelstein":MAILTO:Winkelstein@myositis.org
LOCATION:https://www.myositis.org/event/tma-upstate-new-york-myositis-support-group-meeting-3/2029-03-15/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20290316T170000
DTEND;TZID=America/Los_Angeles:20290316T183000
DTSTAMP:20260713T172806Z
CREATED:20260713T172126Z
LAST-MODIFIED:20260713T172806Z
UID:10001607-1868374800-1868380200@www.myositis.org
SUMMARY:TMA Hawai'i\, Northern California\, Oregon & Washington IBM Support Group Meeting
DESCRIPTION:Register here! \n\n \nJoin the TMA Hawai’i\, Northern California\, Oregon & Washington IBM Support Group: Connect\, Learn\, and Find Support\n\nThis group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Hawai’i\, Northern California\, Oregon & Washington\, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT\, this group offers a supportive space to connect with others who understand the unique challenges of living with IBM. \nWhether you’re newly diagnosed or have been living with IBM for some time\, this group is here to help reduce feelings of isolation\, provide valuable resources\, and foster a sense of belonging. Join us to share experiences\, learn about available support services\, and build connections with others in your community who are navigating the same journey. \nWhen?Third Friday of every month at:5:00 PM PT \nAll are welcome to attend—no matter where you are on your myositis journey. This group is a chance to decrease loneliness\, access important resources\, and find strength in the support of others who truly understand what you’re going through. \n\n \n\n 
URL:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31-2/2029-03-16/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/07/HI-NORCAL-OR-WA.png
ORGANIZER;CN="Malati Shinazy":MAILTO:Shinazy@myositis.org
LOCATION:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31-2/2029-03-16/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20290317T130000
DTEND;TZID=America/Denver:20290317T143000
DTSTAMP:20251229T001853Z
CREATED:20251229T001853Z
LAST-MODIFIED:20251229T001853Z
UID:10002643-1868446800-1868452200@www.myositis.org
SUMMARY:TMA Idaho\, Wyoming and Utah Myositis Support Group Meeting
DESCRIPTION:The TMA ID\, WY & UT Myositis Support Group is a welcoming space for individuals living with myositis in Idaho\, Wyoming and Utah. Meeting every two months on the third Saturday at 1:00 PM ET\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nRegister Here \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nWhen?\nEvery three months at:\n1:00 PM MT \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-idaho-wyoming-and-utah-myositis-support-group-meeting/2029-03-17/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Angie Mendenhall":MAILTO:Mendenhall@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqceGtpjsuGNXJ4vCg7GxB1zYE-MH55KCe
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290320T120000
DTEND;TZID=America/New_York:20290320T133000
DTSTAMP:20260601T155911Z
CREATED:20260601T155911Z
LAST-MODIFIED:20260601T155911Z
UID:10003478-1868702400-1868707800@www.myositis.org
SUMMARY:TMA WomenWithIBM Affinity Group Meeting
DESCRIPTION:Created in 2020\, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. \nRegister here.
URL:https://www.myositis.org/event/tma-womenwithibm-affinity-group/2029-03-20/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/06/Women-with-IBM-Instagram-Post-1.png
ORGANIZER;CN="Nancy Marx Erickson":MAILTO:WomenwithIBM@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuduyvqz4pEtIqImIBaRa8ourzIqJaF0A2
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290322T180000
DTEND;TZID=America/New_York:20290322T190000
DTSTAMP:20251228T194546Z
CREATED:20251228T194546Z
LAST-MODIFIED:20251228T194546Z
UID:10002156-1868896800-1868900400@www.myositis.org
SUMMARY:TMA Virginia\, West Virginia\, Northeast North Carolina Myositis Support Group Meeting
DESCRIPTION:This group meets monthly on the fourth Thursday at 6:00 PM ET. For all myositis diagnoses. \nRegister here \nWhy Attend a TMA Support Group \nTMA support groups are a place to connect\, be understood\, and feel less alone — whether you’re seeking support\, offering encouragement\, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being for most participants. Just as powerful\, many people who support others report improvements in their own mental and emotional health. \nEvery voice matters. Sharing experiences\, listening\, and learning from one another strengthens the myositis community and reminds us that none of us has to navigate this journey alone. \nCome for support. Come for connection. Come for community.
URL:https://www.myositis.org/event/tma-virginia-west-virginia-northeast-north-carolina-myositis-support-group-meeting/2029-03-22/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Kaniah Gunter":MAILTO:Gunter@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMkcu-rrz8tH9ILBN0VXGWdBWpTTWWdgRyF
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20290324T100000
DTEND;TZID=America/Chicago:20290324T113000
DTSTAMP:20260523T153959Z
CREATED:20260523T153934Z
LAST-MODIFIED:20260523T153959Z
UID:10001487-1869040800-1869046200@www.myositis.org
SUMMARY:TMA Northeast Texas Myositis Support Group Meeting
DESCRIPTION:Register Here \nAttend TMA Northeast Texas Myositis Support Group: Support for Those Living with Myositis and their Care Partners \nLiving with myositis is easier with friends. TMA’s support and affinity groups offer a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. These sessions are never recorded and camera is optional.  \nWhen?Fourth Saturday of each month (no meeting in December) at:10:00 AM – 11:30 AM CT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others like you! \n\nMessage from the Leader | Mike Fortner \n\n\n\n\n\n\n\n\n\n\n\n\n\n \nRegister Here \n\n\n\n\n\nConnect with TMA!         \n\n\n\n\n\n 
URL:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4-2/2029-03-24/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas.jpg
ORGANIZER;CN="Melissa Rumpf":MAILTO:Rumpf@myositis.org
LOCATION:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4-2/2029-03-24/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290324T103000
DTEND;TZID=America/New_York:20290324T113000
DTSTAMP:20250821T191502Z
CREATED:20250725T165340Z
LAST-MODIFIED:20250821T191502Z
UID:10001428-1869042600-1869046200@www.myositis.org
SUMMARY:TMA Georgia Myositis Support Group Meeting
DESCRIPTION:👉 Register here \nTMA Georgia Myositis Support Group meets every fourth Saturday from 10:30–11:30 AM ET\, except December. \nPeer-led support groups matter at every stage of the journey. Even if you’re currently thriving\, your presence and story can bring hope and reassurance to others who may be facing challenges. At TMA\, we pride ourselves on inspiring hope while walking alongside one another with understanding and compassion. Support groups are also a wonderful place to exchange local resources\, practical tips\, and connections that make daily life a little easier. \n\nMeet Your Co-Leaders \n\nTerri Lockhart\, MD – A retired\, Board-Certified Internal Medicine physician with over 30 years of clinical and administrative experience. Diagnosed with inclusion body myositis in 2020\, she brings a unique perspective as both clinician and patient\, and is passionate about sharing knowledge with others.\nCynthia Marks\, EdD – A former school administrator of 23 years and a Doctor of Education graduate from National Louis University. Cynthia is the primary care partner to her husband Ricky\, who was diagnosed with inclusion body myositis in 2016. She looks forward to supporting other care partners in understanding their roles while also prioritizing self-care.\n\nWe’re deeply grateful to Dr. Lockhart and Dr. Marks for stepping up to serve fellow community members in Georgia with their time\, care\, and leadership. Dr. Lockhart will be the primary contact person for the group\, feel free to reach out to her directly at Lockhart@myositis.org.
URL:https://www.myositis.org/event/tma-georgia-myositis-support-group/2029-03-24/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/07/TMA-Georgia-220-x-220.png
ORGANIZER;CN="Terri Lockhart":MAILTO:Lockhart@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/7M00c-iHRHOrHP6z96d5fQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290325T170000
DTEND;TZID=America/New_York:20290325T183000
DTSTAMP:20260109T001953Z
CREATED:20251228T210016Z
LAST-MODIFIED:20260109T001953Z
UID:10002967-1869152400-1869157800@www.myositis.org
SUMMARY:TMA Rainbow Affinity Group Meeting
DESCRIPTION:TMA is proud to host the Rainbow Affinity Group\, a vital support community designed specifically for LGBTQIA+ individuals living with myositis. Founded in 2022\, this group offers a unique space to connect with others who share both a myositis diagnosis and a commitment to fostering inclusivity and respect within healthcare and beyond. \nRegister Here \nIn each monthly meeting\, you’ll find solidarity\, understanding\, and valuable resources\, all while creating connections within the broader LGBTQIA+ community. Our mission is to ensure that every LGBTQIA+ myositis patient is supported in an environment that is not only affirmative but also empowering. \nWhen?\nFourth Sunday of each month at:\n5pm ET | 4pm CT | 3pm MT | 2pm PT \nWhether you’re looking for guidance on navigating healthcare\, seeking a sense of community\, or simply wanting to connect with others who understand\, TMA’s Rainbow Affinity Group is here for you. Join us and become part of a supportive\, inclusive network where you can truly thrive.
URL:https://www.myositis.org/event/tma-rainbow-affinity-group-meeting/2029-03-25/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Barbara Shaw":MAILTO:Shaw@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuc-ugqT0uH9eg4G3WjxGOC2jccy7kV4wj
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290327T190000
DTEND;TZID=America/New_York:20290327T203000
DTSTAMP:20251228T203259Z
CREATED:20251228T203259Z
LAST-MODIFIED:20251228T203259Z
UID:10002216-1869332400-1869337800@www.myositis.org
SUMMARY:TMA Men Managing Myositis Affinity Group Meeting
DESCRIPTION:The TMA Men Managing Myositis Affinity Group is a supportive space for men with any form of myositis to connect\, share experiences\, and find solidarity. Founded in 2022 and led by Eric Rocheleau\, this group offers a unique opportunity to engage in meaningful discussions about the challenges specific to men living with myositis. Each month\, the group meets in breakout rooms tailored to different diagnoses\, allowing for focused conversations and peer support. \nRegister Here
URL:https://www.myositis.org/event/tma-men-managing-myositis-affinity-group-meeting/2029-03-27/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Eric Rocheleau":MAILTO:Rocheleau@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZUrf-6hqDMjEtW5ZdBV4gM4DI7ELYDARp2y
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Athens:20290402T190000
DTEND;TZID=Europe/Athens:20290402T203000
DTSTAMP:20251229T000714Z
CREATED:20251229T000714Z
LAST-MODIFIED:20251229T000714Z
UID:10002603-1869850800-1869856200@www.myositis.org
SUMMARY:Ομάδα Στήριξης Μυοσίτιδας TMA Greece
DESCRIPTION:Γνωρίστε άλλους σαν εσάς\, μάθετε\, μοιραστείτε και συνδεθείτε! Συναντιόμαστε κάθε μήνα την πρώτη Δευτέρα. Εγγραφείτε εδώ
URL:https://www.myositis.org/event/%ce%bf%ce%bc%ce%ac%ce%b4%ce%b1-%cf%83%cf%84%ce%ae%cf%81%ce%b9%ce%be%ce%b7%cf%82-%ce%bc%cf%85%ce%bf%cf%83%ce%af%cf%84%ce%b9%ce%b4%ce%b1%cf%82-tma-greece/2029-04-02/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Maria Dourida":MAILTO:Dourida@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/fBivzMouRQyswoJWjr6tmg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20290403T180000
DTEND;TZID=America/Chicago:20290403T200000
DTSTAMP:20250805T180202Z
CREATED:20250605T143721Z
LAST-MODIFIED:20250805T180202Z
UID:10001828-1869933600-1869940800@www.myositis.org
SUMMARY:TMA Minnesota Myositis Support Group Meeting
DESCRIPTION:Register Here \nJoin the TMA Minnesota Myositis Support Group: Connect\, Share\, and Find Support \nThe TMA Minnesota Myositis Support Group offers a welcoming space for individuals living with myositis to connect\, share experiences\, and support one another. Meeting every two months on the first Tuesday at 6:00 PM CT\, this group provides a valuable opportunity to engage with others who truly understand the challenges of living with myositis. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help reduce isolation\, offer resources\, and build a sense of community. By sharing stories and learning from each other\, you’ll gain valuable insights and feel empowered to navigate your myositis journey with support from others who understand. \nWhen?\nFirst Tuesday of every two months at:\n6:00 PM CT \nJoin us to decrease loneliness\, access helpful resources\, and find strength in the power of community. We look forward to connecting with you! \nRegister Here
URL:https://www.myositis.org/event/tma-minnesota-myositis-support-group-4/2029-04-03/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Minnesota.jpg
ORGANIZER;CN="Lindsay Guentzel":MAILTO:Guentzel@myositis.org
LOCATION:https://www.myositis.org/event/tma-minnesota-myositis-support-group-4/2029-04-03/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290404T190000
DTEND;TZID=America/New_York:20290404T203000
DTSTAMP:20260119T093855Z
CREATED:20251202T005024Z
LAST-MODIFIED:20260119T093855Z
UID:10002105-1870023600-1870029000@www.myositis.org
SUMMARY:TMA Men of Color Affinity Group Meeting
DESCRIPTION:Register Here \nThanks to the initiative of TMA’s Women of Color Affinity Group and group founders Sherrod Bundage and Mustafa Shameem in getting this off the ground\, this new group now meets quarterly on the first Wednesday as a way for men of color who are living with myositis to connect\, share their stories\, and learn more about myositis and how they can navigate the challenges of chronic disease. We appreciate new leader Ricky Marks for keeping this initiative going! \nAbout the Leader \n \nRicky Marks was diagnosed with IBM in 2016.  He is a member of TMA and is currently Chairman of the Board of Directors Governance Committee.  Ricky retired after thirty-six years with the Pharmaceutical Company Bristol Myers Squibb. Ricky has a Bachelor of Pharmaceutical Science degree and received his RPh in 1978.  Ricky resides in Powder Springs Georgia\, married to Cynthia Marks\, and has two adult children\, Christopher and Kamron. He is a lifetime member of Kappa Alpha Psi and loves all kinds of sports in particular professional football.
URL:https://www.myositis.org/event/tma-men-of-color-affinity-group-meeting/2029-04-04/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/12/Updated-MOC-Graphic.png
ORGANIZER;CN="Ricky Marks":MAILTO:Marks@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/N285SdQMSFqt36msDdOAGg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290404T200000
DTEND;TZID=America/New_York:20290404T213000
DTSTAMP:20260310T185113Z
CREATED:20250605T143731Z
LAST-MODIFIED:20260310T185113Z
UID:10001370-1870027200-1870032600@www.myositis.org
SUMMARY:TMA Flying Solo Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner \nThe TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone\, are married but your spouse is unable to provide care\, or even find yourself as the caregiver for your spouse\, this group is here to offer understanding and support. \nLiving with myositis can be particularly challenging without a live-in care partner\, but Flying Solo offers a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. \nWhen?\nFirst Wednesday of each month at:\n8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others who “fly solo” like you! \nRegister Here \n\n \nAbout the Leader | Rhonda Rogers \nRhonda Rogers\, diagnosed with Inclusion Body Myositis (IBM)\, is a passionate myositis advocate\, also known as “Myositis Warrior”\, who brings connection\, humor\, and heart to everything she does. She co-leads TMA’s Southern California Support Group and facilitates the TMA Flying Solo Affinity Group for people living with myositis who do not have a live-in care partner. Rhonda also administers the popular Myositis Warrior Facebook public group\, known for its upbeat\, candid\, and often humorous take on the unbelievable realities of life with myositis. Whether leading community groups or raising awareness in her signature Myositis Warrior cape at events like Comic-Con\, Rhonda inspires others to meet life with resilience and a smile. \nIn recognition of her outstanding leadership and support for the myositis community\, Rhonda received the Marianne Moyer Myositis Leader Award at MyoCon 2025\, along with her TMA Southern California co-leader\, Nancy Harber. This award honors TMA volunteers who lead the way by helping others and making a lasting impact.
URL:https://www.myositis.org/event/tma-flying-solo-affinity-group-meeting-23/2029-04-04/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/flyingsolo-169.jpg
ORGANIZER;CN="Rhonda Rogers":MAILTO:Rogers@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqc-GsrTksGt3aRRRGipKTWPzy7-n18ME4#/registration
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290405T183000
DTEND;TZID=America/New_York:20290405T203000
DTSTAMP:20260105T181121Z
CREATED:20251228T235730Z
LAST-MODIFIED:20260105T181121Z
UID:10001547-1870108200-1870115400@www.myositis.org
SUMMARY:TMA Women Of Color Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy \nFounded in 2019 by Holly Jones and Kaniah Gunter\, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement\, Education\, and Empowerment—our mission is to unite and empower women of color affected by myositis and to advocate for their health and well-being. By providing education\, support\, resources\, and the backing of TMA’s expertise\, we are determined to reduce the disparity gap in myositis outcomes for people of color. As we foster a community of strength\, resiliency\, and inspiration; together\, we will break barriers\, challenge inequalities\, and create a future where every woman\, caregiver\, and loved one affected by myositis\, regardless of their race\, can thrive. \nEach month\, WOC come together for impactful workshops and support meetings\, empowering participants to take what they’ve learned and share awareness about myositis within their communities. Whether you’re looking for guidance\, solidarity\, or the opportunity to advocate for others\, this group offers a space for connection\, education\, and positive change. \nWhen?\nFirst Thursday of each month at:\n6:30pm ET | 5:30pm CT | 4:30pm MT | 3:30pm PT \nJoin us and become part of a movement to raise awareness\, educate others\, and empower women of color to take charge of their myositis journey. Visit our group page for more information. \nRegister Here \n\n       \nAbout the Leaders | Holly Jones & Kaniah Gunter \nIn 2003\, at the age of 19 years old Holly Jones was diagnosed with Polymyositis with Interstitial Lung Disease at a CPK level over 20\,000. In 2014\, her lung disease progressed causing her to develop Pulmonary Hypertension that required her to be on oxygen daily. After six years of being in clinical remission\, the Pulmonary Hypertension progressed into Congestive Heart Failure in October 2020. Living with diseases that attack her muscles\, lungs\, and heart; it has not stopped Holly from accomplishing her life goals. A social media entrepreneur\, Holly also serves on TMA’s Board of Directors\, as well as co-leader for TMA’s Women of Color Affinity Group\, and Support Group Leader for the Houston\, Tx regional support group.  Holly lives in Porter\, TX with her husband and children. \nKaniah Gunter\, a Nutrition Health Coach owner of Unique Guidance Nutritional Health Coaching\, LLC\, was diagnosed with dermatomyositis with NXP-2 positive (anti-MJ) and scleroderma in 2007. Kaniah graduated from The Institute for Integrative Nutrition\, one of the largest nutrition schools in the world. \nRecently she completed her certification as a Community Health Worker. She is a strong advocate for the myositis community. At TMA\, she is a regional support group leader for TMA Virginia\, West Virginia and Northwest Carolina as well as co-leader for TMA’s Women of Color affinity group. She has shared her story in many healthcare publications and social media. She serves as an inspiration for others as she demonstrates healing begins within mind\, body and spirit. Kaniah and her two beautiful children live in Norfolk\, Virginia.
URL:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17-2/2029-04-05/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/12/Updated-WOC-Graphic.png
LOCATION:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17-2/2029-04-05/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290407T130000
DTEND;TZID=America/New_York:20290407T143000
DTSTAMP:20250801T204659Z
CREATED:20250605T143744Z
LAST-MODIFIED:20250801T204659Z
UID:10001791-1870261200-1870266600@www.myositis.org
SUMMARY:TMA Care Partner Affinity Group Meeting
DESCRIPTION:Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families.\nJoin the TMA Care Partner Affinity Group: A Space Just for You \nBeing a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress\, anxiety\, or the weight of daily caregiving tasks\, it’s easy to feel overwhelmed and burnt out. That’s why the TMA Care Partner Affinity Group\, founded in 2022\, provides a supportive environment specifically for those who care for someone living with myositis. \nThis group meets in its own dedicated breakout room within TMA’s Worldwide Support Group Meeting on the first Saturday of each month. It’s a safe space where you\, the care partner\, are the focus—not the patient. Here\, you can connect with others who understand your unique challenges\, share coping strategies\, and discuss how to navigate the complex healthcare system. Whether it’s accessing resources like home health aides\, meal delivery\, or transportation assistance—or finding the right words to communicate with your loved one or healthcare team—this group is here to help you through it all. \nTo learn more about accessing breakout rooms\, see ACCESSING ZOOM BREAKOUT ROOMS \nWhen?\nFirst Saturday of every month at:\n1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT \nThe emotional demands of caregiving are real\, and sometimes\, you just need a place to express frustrations\, share victories\, and lean on others who truly understand. The TMA Care Partner Affinity Group is here to provide the support\, resources\, and community you need to continue on your journey. Join us and find the strength to take care of yourself\, too. \nRegister Here \n 
URL:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2029-04-07/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/webp:https://www.myositis.org/wp-content/uploads/2025/06/Care-Partner.webp
ORGANIZER;CN="Rachel Bromley":MAILTO:Rachel@myositis.org
LOCATION:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2029-04-07/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20290407T130000
DTEND;TZID=America/New_York:20290407T143000
DTSTAMP:20260413T162341Z
CREATED:20250801T201217Z
LAST-MODIFIED:20260413T162341Z
UID:10001730-1870261200-1870266600@www.myositis.org
SUMMARY:TMA Worldwide Myositis Support by Diagnosis
DESCRIPTION:TMA’s Worldwide Myositis Support by Diagnosis Group is open to all\, especially those without an active support group in their local area. Formally known as Nationwide\, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis\, and the TMA Care Partner Affinity Group meets in its own room. TMA Worldwide meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT.  \nRegister here
URL:https://www.myositis.org/event/tma-worldwide-myositis-support-by-diagnosis/2029-04-07/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/08/New-Worldwide-2.png
ORGANIZER;CN="Dave Volk":MAILTO:Volk@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMuc-mtqTktHNH_sskpoHflne4zPRAkfS9y
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