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DTSTART;TZID=America/New_York:20260513T160000
DTEND;TZID=America/New_York:20260513T170000
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UID:10003030-1778688000-1778691600@www.myositis.org
SUMMARY:Diagnosis Day: Ask the Expert Dermatomyositis (DM) Edition
DESCRIPTION:In recognition of Myositis Awareness Month and DM Diagnosis Day\, The Myositis Association (TMA) invites you to a special Ask the Expert webinar focused on dermatomyositis (DM). This program will feature Dr. Julie Paik\, Associate Professor of Medicine; Co-Director of the Myositis Center; Director of Clinical Trials at Johns Hopkins\, who will share expert insights on DM\, including diagnosis\, current research\, and treatment considerations. \nThe webinar will be hosted by Kaniah Gunter\, a dedicated TMA volunteer living with DM\, who will guide the discussion and represent the lived experience of patients navigating this rare disease. A special thank you to our Myositis Awareness Month sponsors argenx and Priovant! \nRegister Here \nWhy Diagnosis Days Matter\nTMA created Diagnosis Days during Myositis Awareness Month to honor the often long\, complex\, and emotionally challenging journey to a myositis diagnosis. These days recognize both the resilience of patients and care partners and the critical importance of timely\, accurate diagnosis in improving outcomes and quality of life. We encourage TMA members to invite their family\, friends\, and broader networks to attend\, helping raise awareness of myositis within the wider community. \nThis program is designed for patients\, care partners\, healthcare professionals\, and anyone interested in learning more about DM and the myositis experience.
URL:https://www.myositis.org/event/29385/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/Ask-the-Expert-DM-5.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_7oT8PXpDQwO1F5VBOsbzYg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260515T170000
DTEND;TZID=America/Los_Angeles:20260515T183000
DTSTAMP:20250731T182943Z
CREATED:20250605T143747Z
LAST-MODIFIED:20250731T182943Z
UID:10001573-1778864400-1778869800@www.myositis.org
SUMMARY:TMA Northern California\, Oregon & Washington IBM Support Group Meeting
DESCRIPTION:Register here! \n\n \nJoin the TMA Northern California\, Oregon & Washington IBM Support Group: Connect\, Learn\, and Find Support\n\nThis group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Northern California\, Oregon & Washington\, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT\, this group offers a supportive space to connect with others who understand the unique challenges of living with IBM. \nWhether you’re newly diagnosed or have been living with IBM for some time\, this group is here to help reduce feelings of isolation\, provide valuable resources\, and foster a sense of belonging. Join us to share experiences\, learn about available support services\, and build connections with others in your community who are navigating the same journey. \nWhen?Third Friday of every month at:5:00 PM PT \nAll are welcome to attend—no matter where you are on your myositis journey. This group is a chance to decrease loneliness\, access important resources\, and find strength in the support of others who truly understand what you’re going through. \n\n \n\n 
URL:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2026-05-15/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas-1.jpg
ORGANIZER;CN="Malati Shinazy":MAILTO:Shinazy@myositis.org
LOCATION:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2026-05-15/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260517T150000
DTEND;TZID=America/New_York:20260517T200000
DTSTAMP:20260420T165618Z
CREATED:20260420T165618Z
LAST-MODIFIED:20260420T165618Z
UID:10003428-1779030000-1779048000@www.myositis.org
SUMMARY:C. Potter Memorial Classic In-person Event (Alexandria\, VA)
DESCRIPTION:Please join us for the third annual C Potter Classic with kids and adults softball game\, stadium food/pizza\, tailgating\, beers\, and fun. All in honor of our lovely Carolyn. All proceeds to The Myositis Association.
URL:https://www.myositis.org/event/c-potter-memorial-classic-in-person-event-alexandria-va/
LOCATION:McNaughton Fields\, 5300 Pole Rd\, Alexandra\, 22309\, United States
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/04/Image-12.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260519T120000
DTEND;TZID=America/New_York:20260519T133000
DTSTAMP:20260420T191436Z
CREATED:20260303T174050Z
LAST-MODIFIED:20260420T191436Z
UID:10001633-1779192000-1779197400@www.myositis.org
SUMMARY:Speech & Swallowing in IBM: A Two-Part Symposium Hosted by TMA WomenWithIBM Affinity Group
DESCRIPTION:For many living with Inclusion Body Myositis\, changes in speech and swallowing can be among the most isolating — and least talked about — challenges of the disease. \nJoin us for the second part of this two-part symposium this May (Part 1 will be available on our YouTube Channel by first week in May)\, bringing together leading experts from Johns Hopkins to shed light on the speech and swallowing issues that affect so many in the IBM community. From understanding what’s happening in your body to practical strategies for daily life\, this series is designed to inform\, support\, and connect. \nThis symposium is open to everyone — all are welcome! \nCreated in 2020\, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. \nRegister here.
URL:https://www.myositis.org/event/tma-womenwithibm-affinity-group-meeting-5/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2026/03/WomenWithIBM-May-19-Meeting.jpg
ORGANIZER;CN="Nancy Marx Erickson":MAILTO:WomenwithIBM@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuduyvqz4pEtIqImIBaRa8ourzIqJaF0A2
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T120000
DTEND;TZID=America/New_York:20260520T130000
DTSTAMP:20260506T172654Z
CREATED:20260227T004240Z
LAST-MODIFIED:20260506T172654Z
UID:10003179-1779278400-1779282000@www.myositis.org
SUMMARY:Diagnosis Day: Ask the Expert Polymyositis (PM) and Overlap Myositis (OM)
DESCRIPTION:  \nAs part of Myositis Awareness Month\, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Polymyositis (PM) and Overlap Myositis (OM). This program will feature Chet Oddis\, MD\, a leading myositis specialist\, who will provide expert insights into diagnosis\, disease management\, current treatment approaches\, and emerging research. \nDiagnosis Days were created by TMA to honor the patient journey — recognizing that for many living with myositis\, the path to diagnosis is often complex\, delayed\, and emotionally challenging. These dedicated days shine a light on the importance of awareness\, timely diagnosis\, and continued research to improve outcomes. \nPatients\, care partners\, healthcare professionals\, and community members are encouraged to attend. We also invite you to share this program with family\, friends\, and colleagues to help broaden understanding of PM\, OM\, and the impact of myositis. A special than you to our Myositis Awareness Month sponsor argenx for support Diagnosis Day: PM & OM! \nRegister Here
URL:https://www.myositis.org/event/diagnosis-day-ask-the-expert-polymyositis-pm-and-overlap-myositis-om/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/Ask-the-Expert-PM-OM-1.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_ClCsiGvPQo2ebDdzia7Gqw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T133000
DTEND;TZID=America/New_York:20260520T143000
DTSTAMP:20260506T175027Z
CREATED:20260227T010411Z
LAST-MODIFIED:20260506T175027Z
UID:10003181-1779283800-1779287400@www.myositis.org
SUMMARY:Diagnosis Day: Cafe Chat PM & OM
DESCRIPTION:In honor of Diagnosis Days during Myositis Awareness Month this May\, join us for a special Café Chat focused on Polymyositis & Overlap Myositis (OM). This relaxed\, informal gathering is a space to connect with others who truly understand your myositis journey. \nWe’ll be sharing stories of the day we were diagnosed—the moments\, emotions\, and experiences that shaped our paths—and reflecting on how far we’ve come since then. Family members\, friends\, and loved ones are warmly encouraged to attend\, especially those you wish understood your illness a little better. \nGrab a cup of coffee\, settle in\, and join a supportive conversation rooted in connection\, understanding\, and community. You don’t have to explain IMNM here—we get it. This program will be hosted by TMA Board member Holly Jones. A special thanks to Myositis Awareness Month sponsor argenx for supporting Diagnosis Day IMNM! \nRegister Here
URL:https://www.myositis.org/event/diagnosis-day-cafe-chat-pm-om/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/Cafe-Chat-PM-OM-argenx.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/lT7MKBctS0CBOyKEfJtmFA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260521T183000
DTEND;TZID=America/Chicago:20260521T200000
DTSTAMP:20251229T003130Z
CREATED:20251229T003130Z
LAST-MODIFIED:20251229T003130Z
UID:10002658-1779388200-1779393600@www.myositis.org
SUMMARY:TMA Missouri and Illinois Myositis Support Group Meeting
DESCRIPTION:The TMA Missouri & Illinois Myositis Support Group is a welcoming space for individuals living with myositis. Meeting every month on the third Thursday at 6:30 PM CT\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nRegister Here \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nSecure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-missouri-and-illinois-myositis-support-group-meeting/2026-05-21/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="David Volk":MAILTO:Volk@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqdu6prjMvG9bNPn3hYm193xtHoyRYT2nI
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260521T190000
DTEND;TZID=America/New_York:20260521T203000
DTSTAMP:20260213T144653Z
CREATED:20250605T143754Z
LAST-MODIFIED:20260213T144653Z
UID:10003038-1779390000-1779395400@www.myositis.org
SUMMARY:TMA Upstate New York Myositis Support Group Meeting
DESCRIPTION:All are welcome. Register today! \nIt’s not unusual to feel isolated and alone with a disease that no one has ever heard of and doesn’t understand. Being part of a myositis support group is an important way to share these feelings with people who know exactly what you’re going through. Research shows that this sort of social connection can also improve both physical and mental well-being. Even if you are currently in a good place managing your myositis\, consider joining. You can be an inspiration and source of strength for others! \n\n\n\n\n\n\n  \n\n\n\n\n\n 
URL:https://www.myositis.org/event/tma-upstate-new-york-myositis-support-group-meeting-3/2026-05-21/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/04/TMA-Upstate-New-York.png
ORGANIZER;CN="Peter Winkelstein":MAILTO:Winkelstein@myositis.org
LOCATION:https://www.myositis.org/event/tma-upstate-new-york-myositis-support-group-meeting-3/2026-05-21/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260523T103000
DTEND;TZID=America/New_York:20260523T113000
DTSTAMP:20250821T191502Z
CREATED:20250725T165340Z
LAST-MODIFIED:20250821T191502Z
UID:10001394-1779532200-1779535800@www.myositis.org
SUMMARY:TMA Georgia Myositis Support Group Meeting
DESCRIPTION:👉 Register here \nTMA Georgia Myositis Support Group meets every fourth Saturday from 10:30–11:30 AM ET\, except December. \nPeer-led support groups matter at every stage of the journey. Even if you’re currently thriving\, your presence and story can bring hope and reassurance to others who may be facing challenges. At TMA\, we pride ourselves on inspiring hope while walking alongside one another with understanding and compassion. Support groups are also a wonderful place to exchange local resources\, practical tips\, and connections that make daily life a little easier. \n\nMeet Your Co-Leaders \n\nTerri Lockhart\, MD – A retired\, Board-Certified Internal Medicine physician with over 30 years of clinical and administrative experience. Diagnosed with inclusion body myositis in 2020\, she brings a unique perspective as both clinician and patient\, and is passionate about sharing knowledge with others.\nCynthia Marks\, EdD – A former school administrator of 23 years and a Doctor of Education graduate from National Louis University. Cynthia is the primary care partner to her husband Ricky\, who was diagnosed with inclusion body myositis in 2016. She looks forward to supporting other care partners in understanding their roles while also prioritizing self-care.\n\nWe’re deeply grateful to Dr. Lockhart and Dr. Marks for stepping up to serve fellow community members in Georgia with their time\, care\, and leadership. Dr. Lockhart will be the primary contact person for the group\, feel free to reach out to her directly at Lockhart@myositis.org.
URL:https://www.myositis.org/event/tma-georgia-myositis-support-group/2026-05-23/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/07/TMA-Georgia-220-x-220.png
ORGANIZER;CN="Terri Lockhart":MAILTO:Lockhart@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/7M00c-iHRHOrHP6z96d5fQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260524T170000
DTEND;TZID=America/New_York:20260524T183000
DTSTAMP:20260109T001953Z
CREATED:20251228T210016Z
LAST-MODIFIED:20260109T001953Z
UID:10002934-1779642000-1779647400@www.myositis.org
SUMMARY:TMA Rainbow Affinity Group Meeting
DESCRIPTION:TMA is proud to host the Rainbow Affinity Group\, a vital support community designed specifically for LGBTQIA+ individuals living with myositis. Founded in 2022\, this group offers a unique space to connect with others who share both a myositis diagnosis and a commitment to fostering inclusivity and respect within healthcare and beyond. \nRegister Here \nIn each monthly meeting\, you’ll find solidarity\, understanding\, and valuable resources\, all while creating connections within the broader LGBTQIA+ community. Our mission is to ensure that every LGBTQIA+ myositis patient is supported in an environment that is not only affirmative but also empowering. \nWhen?\nFourth Sunday of each month at:\n5pm ET | 4pm CT | 3pm MT | 2pm PT \nWhether you’re looking for guidance on navigating healthcare\, seeking a sense of community\, or simply wanting to connect with others who understand\, TMA’s Rainbow Affinity Group is here for you. Join us and become part of a supportive\, inclusive network where you can truly thrive.
URL:https://www.myositis.org/event/tma-rainbow-affinity-group-meeting/2026-05-24/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Barbara Shaw":MAILTO:Shaw@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuc-ugqT0uH9eg4G3WjxGOC2jccy7kV4wj
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260526T160000
DTEND;TZID=America/New_York:20260526T164500
DTSTAMP:20260526T112301Z
CREATED:20260519T211614Z
LAST-MODIFIED:20260526T112301Z
UID:10003440-1779811200-1779813900@www.myositis.org
SUMMARY:Diagnosis Denied - Community Screening: What Veterans with IBM Want You to Know
DESCRIPTION:Join us for a special community screening of Diagnosis Denied\, a powerful investigative documentary series from 11Alive Investigates and NBC affiliates across the country\, examining why U.S. veterans diagnosed with inclusion body myositis (IBM) are so often denied VA disability benefits. Through reporting from coast to coast\, the series uncovers patterns in claim denials\, gaps in disease recognition\, and the real human cost borne by veterans fighting for the care and support they’ve earned. \nThis event is open to everyone — patients\, caregivers\, advocates\, and community members — not just veterans or those living with IBM. After the screening\, join us for a community conversation and Q&A with reporters including Jennifer Titus\, Rebecca Lindstrom\, Heather Crawford and Ciara Bríd Frisbie\, who will share insight into the reporting process and what they hope this series will change. \nWe are deeply grateful to the entire Diagnosis Denied news team for the heart\, rigor\, and dedication they brought to shining a light on this issue — including producers Ciara Bríd Frisbie and Elizabeth Hendren\, and reporters Jennifer Titus\, Rebecca Lindstrom\, Chris Vanderveen\, Heather Crawford\, and Kyle Iboshi. \nCome watch. Come learn. Come be part of the conversation. \nRegister Here
URL:https://www.myositis.org/event/diagnosis-denied-diagnosis-denied-community-screening-what-veterans-with-ibm-want-you-to-know/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/05/Diagnosis-Denied-Screening-Banner1920-x-608-px.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_k_5QhlpRTlWmjthZ-i1W4w
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260526T190000
DTEND;TZID=America/New_York:20260526T203000
DTSTAMP:20251228T203259Z
CREATED:20251228T203259Z
LAST-MODIFIED:20251228T203259Z
UID:10002182-1779822000-1779827400@www.myositis.org
SUMMARY:TMA Men Managing Myositis Affinity Group Meeting
DESCRIPTION:The TMA Men Managing Myositis Affinity Group is a supportive space for men with any form of myositis to connect\, share experiences\, and find solidarity. Founded in 2022 and led by Eric Rocheleau\, this group offers a unique opportunity to engage in meaningful discussions about the challenges specific to men living with myositis. Each month\, the group meets in breakout rooms tailored to different diagnoses\, allowing for focused conversations and peer support. \nRegister Here
URL:https://www.myositis.org/event/tma-men-managing-myositis-affinity-group-meeting/2026-05-26/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Eric Rocheleau":MAILTO:Rocheleau@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZUrf-6hqDMjEtW5ZdBV4gM4DI7ELYDARp2y
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260527
DTEND;VALUE=DATE:20260528
DTSTAMP:20260309T073320Z
CREATED:20260227T005949Z
LAST-MODIFIED:20260309T073320Z
UID:10003180-1779840000-1779926399@www.myositis.org
SUMMARY:Diagnosis Day: Inclusion Body Myositis (IBM
DESCRIPTION:As part of Myositis Awareness Month\, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Inclusion Body Myositis (IBM). This program will feature a leading myositis specialist\, who will provide expert insights into diagnosis\, disease management\, current treatment approaches\, and emerging research. Next\, we will come together for Cafe Chat IBM Edition to socialize as a community. \nDiagnosis Days were created by TMA to honor the patient journey — recognizing that for many living with myositis\, the path to diagnosis is often complex\, delayed\, and emotionally challenging. These dedicated days shine a light on the importance of awareness\, timely diagnosis\, and continued research to improve outcomes. \nPatients\, care partners\, healthcare professionals\, and community members are encouraged to attend. We also invite you to share this program with family\, friends\, and colleagues to help broaden understanding of IBM and the impact of myositis. \n 
URL:https://www.myositis.org/event/diagnosis-day-ask-the-expert-inclusion-body-myositis-ibm-edition/
CATEGORIES:Webinar
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260527T120000
DTEND;TZID=America/New_York:20260527T130000
DTSTAMP:20260527T003833Z
CREATED:20260309T073615Z
LAST-MODIFIED:20260527T003833Z
UID:10003253-1779883200-1779886800@www.myositis.org
SUMMARY:Diagnosis Day: Ask the Expert Inclusion Body Myositis (IBM) Edition
DESCRIPTION:As part of Myositis Awareness Month\, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Inclusion Body Myositis (IBM). This program will feature a leading myositis specialist\, Dr. Jens Schmidt\, who will provide expert insights into diagnosis\, disease management\, current treatment approaches\, and emerging research. This webinar will be hosted by past TMA Board of Directors member Nita Sharma. Thank you to our sponsor Abcuro for their support of IBM Diagnosis Day. \nRegister Here
URL:https://www.myositis.org/event/diagnosis-day-ask-the-expert-inclusion-body-myositis-ibm-edition-2/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/03/Ask-the-Expert-IBM-7.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_SkMRa_oTQ1itlJ6hqWAlLw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260527T133000
DTEND;TZID=America/New_York:20260527T143000
DTSTAMP:20260527T004047Z
CREATED:20260326T135822Z
LAST-MODIFIED:20260527T004047Z
UID:10003184-1779888600-1779892200@www.myositis.org
SUMMARY:Diagnosis Day: Cafe Chat IBM
DESCRIPTION:In honor of Diagnosis Days during Myositis Awareness Month this May\, join us for a special Café Chat focused on Inclusion Body Myositis (IBM). This relaxed\, informal gathering is a space to connect with others who truly understand the IMNM journey. \nWe’ll be sharing stories of the day we were diagnosed—the moments\, emotions\, and experiences that shaped our paths—and reflecting on how far we’ve come since then. Family members\, friends\, and loved ones are warmly encouraged to attend\, especially those you wish understood your illness a little better. \nGrab a cup of coffee\, settle in\, and join a supportive conversation rooted in connection\, understanding\, and community. You don’t have to explain IBM here—we get it. This program will be hosted by TMA board member Alicia Polak. Many thanks to our sponsor Abcuro for supporting IBM Diagnosis Day. \nRegister Here
URL:https://www.myositis.org/event/diagnosis-day-cafe-chat-ibm/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/03/Cafe-Chat-IBM-2.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/SXvOv9fPSTCxpjgciKj0Cw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260528T120000
DTEND;TZID=America/New_York:20260528T130000
DTSTAMP:20260527T004316Z
CREATED:20260227T011101Z
LAST-MODIFIED:20260527T004316Z
UID:10003183-1779969600-1779973200@www.myositis.org
SUMMARY:Enriching your Life with Assistive Technology
DESCRIPTION:As we close out Myositis Awareness Month\, join us for a special webinar focused on empowering individuals living with myositis to explore the world of assistive technology — and how it can help you live more independently\, comfortably\, and fully. \nWe are thrilled to welcome Monique Chabot\, PhD\, OTD\, OTR/L\, FAOTA\, SCEM\, CLIPP\, CAPS\, Associate Director of Assistive Technology at the Institute on Disabilities at Temple University\, as our featured speaker. Monique is a licensed Occupational Therapist and design researcher with deep expertise in assistive technology\, aging in place\, smart home technology\, and inclusive design. She earned a PhD in Architecture and Design Research at Thomas Jefferson University\, where her work focuses on integrating smart technology to support independent living. An accomplished clinician and researcher\, Monique was recently honored with induction into the AOTA Roster of Fellows in recognition of her outstanding contributions to the field of occupational therapy. \nMonique represents TechOWL (Technology for Our Whole Lives)\, Pennsylvania’s designated Assistive Technology Act Program\, housed within the Institute on Disabilities at Temple University’s College of Education and Human Development. As one of 56 AT Act programs across the United States\, TechOWL connects people of all ages and abilities across Pennsylvania with the tools and technology they need to live\, work\, learn\, and communicate more independently — at no cost. \nDuring this webinar\, we’ll explore how assistive technology can address the unique challenges faced by those living with myositis\, including tools that support mobility\, communication\, daily living\, and more. We’ll also take a closer look at TechOWL’s Assistive Technology Lending Library — a free resource of assistive devices to borrow and trial before making any purchasing decisions. Whether you’re newly diagnosed or have been navigating myositis for years\, this is a valuable opportunity to discover resources that could make a meaningful difference in your everyday life. \nThis webinar will be hosted by Immediate Past Board Chair Laurie Boyer. \nDon’t miss this inspiring conversation to close out Myositis Awareness Month! \nRegister Here
URL:https://www.myositis.org/event/enriching-your-life-with-assistive-technology/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/2-Assistive-Technology-1.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_UTVhbKV5Q6GgjKp5whFp_A
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260528T180000
DTEND;TZID=America/New_York:20260528T190000
DTSTAMP:20251228T194546Z
CREATED:20251228T194546Z
LAST-MODIFIED:20251228T194546Z
UID:10002122-1779991200-1779994800@www.myositis.org
SUMMARY:TMA Virginia\, West Virginia\, Northeast North Carolina Myositis Support Group Meeting
DESCRIPTION:This group meets monthly on the fourth Thursday at 6:00 PM ET. For all myositis diagnoses. \nRegister here \nWhy Attend a TMA Support Group \nTMA support groups are a place to connect\, be understood\, and feel less alone — whether you’re seeking support\, offering encouragement\, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being for most participants. Just as powerful\, many people who support others report improvements in their own mental and emotional health. \nEvery voice matters. Sharing experiences\, listening\, and learning from one another strengthens the myositis community and reminds us that none of us has to navigate this journey alone. \nCome for support. Come for connection. Come for community.
URL:https://www.myositis.org/event/tma-virginia-west-virginia-northeast-north-carolina-myositis-support-group-meeting/2026-05-28/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Kaniah Gunter":MAILTO:Gunter@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMkcu-rrz8tH9ILBN0VXGWdBWpTTWWdgRyF
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260529T190000
DTEND;TZID=America/New_York:20260529T210000
DTSTAMP:20260519T220736Z
CREATED:20260314T221340Z
LAST-MODIFIED:20260519T220736Z
UID:10003292-1780081200-1780088400@www.myositis.org
SUMMARY:MiLB First Pitch for Myositis Awareness (Columbia\, SC)
DESCRIPTION:Join Us at the Ballpark! ⚾ \nGrab your peanuts and rally cap — we’re heading to a Minor League Baseball game! Join fellow myositis community members for a fun night out at Segra Park in Columbia\, SC as the Columbia Fireflies take on the Charleston RiverDogs on Thursday\, May 29 at 7:00 PM ET. \nThis in-person meetup is a great chance to connect with others who truly understand the myositis journey — no agenda\, just good company and great baseball. \nOrganized by TMA Board Treasurer Chip Galloway — if you’d like to show your appreciation for Chip’s efforts in making this happen\, consider making a donation in his honor. \nWe hope to see you there!
URL:https://www.myositis.org/event/milb-first-pitch-for-myositis-awareness-columbia-sc/
LOCATION:Segra Park\, 1640 Freed St\, Columbia\, SC\, 29201\, United States
CATEGORIES:Community Meetups,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/03/Fireflies-2026.png
ORGANIZER;CN="Chip Galloway":MAILTO:Galloway@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Athens:20260601T190000
DTEND;TZID=Europe/Athens:20260601T203000
DTSTAMP:20251229T000714Z
CREATED:20251229T000714Z
LAST-MODIFIED:20251229T000714Z
UID:10002569-1780340400-1780345800@www.myositis.org
SUMMARY:Ομάδα Στήριξης Μυοσίτιδας TMA Greece
DESCRIPTION:Γνωρίστε άλλους σαν εσάς\, μάθετε\, μοιραστείτε και συνδεθείτε! Συναντιόμαστε κάθε μήνα την πρώτη Δευτέρα. Εγγραφείτε εδώ
URL:https://www.myositis.org/event/%ce%bf%ce%bc%ce%ac%ce%b4%ce%b1-%cf%83%cf%84%ce%ae%cf%81%ce%b9%ce%be%ce%b7%cf%82-%ce%bc%cf%85%ce%bf%cf%83%ce%af%cf%84%ce%b9%ce%b4%ce%b1%cf%82-tma-greece/2026-06-01/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Maria Dourida":MAILTO:Dourida@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/fBivzMouRQyswoJWjr6tmg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260602T180000
DTEND;TZID=America/New_York:20260602T190000
DTSTAMP:20260519T164055Z
CREATED:20260228T135426Z
LAST-MODIFIED:20260519T164055Z
UID:10003185-1780423200-1780426800@www.myositis.org
SUMMARY:Natural Killer (NK) Cells in Myositis: Emerging Science and Therapeutic Potential
DESCRIPTION:What if a powerful part of your immune system could hold new clues to understanding — and potentially treating — myositis? \n  \nNatural Killer (NK) cells are a specialized type of immune cell designed to recognize and eliminate harmful or abnormal cells in the body. Researchers are now studying how NK cells behave in myositis — whether they contribute to muscle inflammation\, help regulate immune responses\, or could become a target for future therapies. \nJoin us for an in-depth look at the latest research on NK cells in myositis\, what scientists are discovering\, and what these findings may mean for people living with myositis. Whether you are newly diagnosed or have been navigating myositis for years\, speakers Lisa Christopher-Stine\, MD\, MHS and Shawn Rose\, MD\, PhD will help you better understand this emerging area of science and where it may lead. Thank you to webinar sponsor Nkarta. \nRegister Here
URL:https://www.myositis.org/event/natural-killer-nk-cells-in-myositis-emerging-science-and-therapeutic-potential/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/Nkarta-June-2026.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_iEihf20wRkmNSaXhk58kxg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260602T180000
DTEND;TZID=America/Chicago:20260602T200000
DTSTAMP:20250805T180202Z
CREATED:20250605T143721Z
LAST-MODIFIED:20250805T180202Z
UID:10001811-1780423200-1780430400@www.myositis.org
SUMMARY:TMA Minnesota Myositis Support Group Meeting
DESCRIPTION:Register Here \nJoin the TMA Minnesota Myositis Support Group: Connect\, Share\, and Find Support \nThe TMA Minnesota Myositis Support Group offers a welcoming space for individuals living with myositis to connect\, share experiences\, and support one another. Meeting every two months on the first Tuesday at 6:00 PM CT\, this group provides a valuable opportunity to engage with others who truly understand the challenges of living with myositis. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help reduce isolation\, offer resources\, and build a sense of community. By sharing stories and learning from each other\, you’ll gain valuable insights and feel empowered to navigate your myositis journey with support from others who understand. \nWhen?\nFirst Tuesday of every two months at:\n6:00 PM CT \nJoin us to decrease loneliness\, access helpful resources\, and find strength in the power of community. We look forward to connecting with you! \nRegister Here
URL:https://www.myositis.org/event/tma-minnesota-myositis-support-group-4/2026-06-02/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Minnesota.jpg
ORGANIZER;CN="Lindsay Guentzel":MAILTO:Guentzel@myositis.org
LOCATION:https://www.myositis.org/event/tma-minnesota-myositis-support-group-4/2026-06-02/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260603T200000
DTEND;TZID=America/New_York:20260603T213000
DTSTAMP:20260310T185113Z
CREATED:20250605T143731Z
LAST-MODIFIED:20260310T185113Z
UID:10001336-1780516800-1780522200@www.myositis.org
SUMMARY:TMA Flying Solo Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner \nThe TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone\, are married but your spouse is unable to provide care\, or even find yourself as the caregiver for your spouse\, this group is here to offer understanding and support. \nLiving with myositis can be particularly challenging without a live-in care partner\, but Flying Solo offers a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. \nWhen?\nFirst Wednesday of each month at:\n8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others who “fly solo” like you! \nRegister Here \n\n \nAbout the Leader | Rhonda Rogers \nRhonda Rogers\, diagnosed with Inclusion Body Myositis (IBM)\, is a passionate myositis advocate\, also known as “Myositis Warrior”\, who brings connection\, humor\, and heart to everything she does. She co-leads TMA’s Southern California Support Group and facilitates the TMA Flying Solo Affinity Group for people living with myositis who do not have a live-in care partner. Rhonda also administers the popular Myositis Warrior Facebook public group\, known for its upbeat\, candid\, and often humorous take on the unbelievable realities of life with myositis. Whether leading community groups or raising awareness in her signature Myositis Warrior cape at events like Comic-Con\, Rhonda inspires others to meet life with resilience and a smile. \nIn recognition of her outstanding leadership and support for the myositis community\, Rhonda received the Marianne Moyer Myositis Leader Award at MyoCon 2025\, along with her TMA Southern California co-leader\, Nancy Harber. This award honors TMA volunteers who lead the way by helping others and making a lasting impact.
URL:https://www.myositis.org/event/tma-flying-solo-affinity-group-meeting-23/2026-06-03/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/flyingsolo-169.jpg
ORGANIZER;CN="Rhonda Rogers":MAILTO:Rogers@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqc-GsrTksGt3aRRRGipKTWPzy7-n18ME4#/registration
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260604T183000
DTEND;TZID=America/New_York:20260604T203000
DTSTAMP:20260105T181121Z
CREATED:20251228T235730Z
LAST-MODIFIED:20260105T181121Z
UID:10001513-1780597800-1780605000@www.myositis.org
SUMMARY:TMA Women Of Color Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy \nFounded in 2019 by Holly Jones and Kaniah Gunter\, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement\, Education\, and Empowerment—our mission is to unite and empower women of color affected by myositis and to advocate for their health and well-being. By providing education\, support\, resources\, and the backing of TMA’s expertise\, we are determined to reduce the disparity gap in myositis outcomes for people of color. As we foster a community of strength\, resiliency\, and inspiration; together\, we will break barriers\, challenge inequalities\, and create a future where every woman\, caregiver\, and loved one affected by myositis\, regardless of their race\, can thrive. \nEach month\, WOC come together for impactful workshops and support meetings\, empowering participants to take what they’ve learned and share awareness about myositis within their communities. Whether you’re looking for guidance\, solidarity\, or the opportunity to advocate for others\, this group offers a space for connection\, education\, and positive change. \nWhen?\nFirst Thursday of each month at:\n6:30pm ET | 5:30pm CT | 4:30pm MT | 3:30pm PT \nJoin us and become part of a movement to raise awareness\, educate others\, and empower women of color to take charge of their myositis journey. Visit our group page for more information. \nRegister Here \n\n       \nAbout the Leaders | Holly Jones & Kaniah Gunter \nIn 2003\, at the age of 19 years old Holly Jones was diagnosed with Polymyositis with Interstitial Lung Disease at a CPK level over 20\,000. In 2014\, her lung disease progressed causing her to develop Pulmonary Hypertension that required her to be on oxygen daily. After six years of being in clinical remission\, the Pulmonary Hypertension progressed into Congestive Heart Failure in October 2020. Living with diseases that attack her muscles\, lungs\, and heart; it has not stopped Holly from accomplishing her life goals. A social media entrepreneur\, Holly also serves on TMA’s Board of Directors\, as well as co-leader for TMA’s Women of Color Affinity Group\, and Support Group Leader for the Houston\, Tx regional support group.  Holly lives in Porter\, TX with her husband and children. \nKaniah Gunter\, a Nutrition Health Coach owner of Unique Guidance Nutritional Health Coaching\, LLC\, was diagnosed with dermatomyositis with NXP-2 positive (anti-MJ) and scleroderma in 2007. Kaniah graduated from The Institute for Integrative Nutrition\, one of the largest nutrition schools in the world. \nRecently she completed her certification as a Community Health Worker. She is a strong advocate for the myositis community. At TMA\, she is a regional support group leader for TMA Virginia\, West Virginia and Northwest Carolina as well as co-leader for TMA’s Women of Color affinity group. She has shared her story in many healthcare publications and social media. She serves as an inspiration for others as she demonstrates healing begins within mind\, body and spirit. Kaniah and her two beautiful children live in Norfolk\, Virginia.
URL:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17-2/2026-06-04/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/12/Updated-WOC-Graphic.png
LOCATION:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17-2/2026-06-04/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260606T130000
DTEND;TZID=America/New_York:20260606T143000
DTSTAMP:20250801T204659Z
CREATED:20250605T143744Z
LAST-MODIFIED:20250801T204659Z
UID:10001757-1780750800-1780756200@www.myositis.org
SUMMARY:TMA Care Partner Affinity Group Meeting
DESCRIPTION:Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families.\nJoin the TMA Care Partner Affinity Group: A Space Just for You \nBeing a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress\, anxiety\, or the weight of daily caregiving tasks\, it’s easy to feel overwhelmed and burnt out. That’s why the TMA Care Partner Affinity Group\, founded in 2022\, provides a supportive environment specifically for those who care for someone living with myositis. \nThis group meets in its own dedicated breakout room within TMA’s Worldwide Support Group Meeting on the first Saturday of each month. It’s a safe space where you\, the care partner\, are the focus—not the patient. Here\, you can connect with others who understand your unique challenges\, share coping strategies\, and discuss how to navigate the complex healthcare system. Whether it’s accessing resources like home health aides\, meal delivery\, or transportation assistance—or finding the right words to communicate with your loved one or healthcare team—this group is here to help you through it all. \nTo learn more about accessing breakout rooms\, see ACCESSING ZOOM BREAKOUT ROOMS \nWhen?\nFirst Saturday of every month at:\n1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT \nThe emotional demands of caregiving are real\, and sometimes\, you just need a place to express frustrations\, share victories\, and lean on others who truly understand. The TMA Care Partner Affinity Group is here to provide the support\, resources\, and community you need to continue on your journey. Join us and find the strength to take care of yourself\, too. \nRegister Here \n 
URL:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2026-06-06/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/webp:https://www.myositis.org/wp-content/uploads/2025/06/Care-Partner.webp
ORGANIZER;CN="Rachel Bromley":MAILTO:Rachel@myositis.org
LOCATION:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2026-06-06/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260606T130000
DTEND;TZID=America/New_York:20260606T143000
DTSTAMP:20260413T162341Z
CREATED:20250801T201217Z
LAST-MODIFIED:20260413T162341Z
UID:10001697-1780750800-1780756200@www.myositis.org
SUMMARY:TMA Worldwide Myositis Support by Diagnosis
DESCRIPTION:TMA’s Worldwide Myositis Support by Diagnosis Group is open to all\, especially those without an active support group in their local area. Formally known as Nationwide\, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis\, and the TMA Care Partner Affinity Group meets in its own room. TMA Worldwide meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT.  \nRegister here
URL:https://www.myositis.org/event/tma-worldwide-myositis-support-by-diagnosis/2026-06-06/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/08/New-Worldwide-2.png
ORGANIZER;CN="Dave Volk":MAILTO:Volk@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMuc-mtqTktHNH_sskpoHflne4zPRAkfS9y
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260609T160000
DTEND;TZID=America/New_York:20260609T180000
DTSTAMP:20260602T150551Z
CREATED:20260602T150551Z
LAST-MODIFIED:20260602T150551Z
UID:10001916-1781020800-1781028000@www.myositis.org
SUMMARY:Hospital of Special Surgery (HSS) New York City Myositis Support Group
DESCRIPTION:This meeting’s theme is “Sharing Our Talents”. It is an opportunity for our members to share their talents\, as well as thoughts and ideas. Examples could be: reading something you’ve written\, offering favorite recipes\, displaying crafts and artwork\, and any other things that you would consider appropriate. An open forum also gives us the opportunity to discuss and share things that may be on your mind in greater depth and to offer the support and help to one another that is the pillar of our group. \nThe HSS Myositis Support Group is open to people living with myositis\, their families\, and friends. \nIf this is your first time attending the HSS group meeting\, please be sure to contact the group coordinator before the meeting date in order to receive the join link. \nPLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: \nSuzan Fischbein\, LCSW \nSr. Social Work Coordinator II \nemail: fischbeins@hss.edu \nSPONSORED BY \nDepartment of Social Work Programs and The Division of Rheumatology at Hospital for Special Surgery | 535 East 70th Street New York\, NY 10021
URL:https://www.myositis.org/event/hospital-of-special-surgery-hss-new-york-city-myositis-support-group-6/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Suzan Fischbein":MAILTO:FischbeinS@HSS.edu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260609T180000
DTEND;TZID=America/New_York:20260609T190000
DTSTAMP:20260203T210620Z
CREATED:20260203T204439Z
LAST-MODIFIED:20260203T210620Z
UID:10003029-1781028000-1781031600@www.myositis.org
SUMMARY:Myositis Research Insights featuring Dr. Iago Pinal-Fernandez
DESCRIPTION:Join us for Myositis Research Insights\, a special webinar on June 9 at 6:00 PM\, featuring internationally recognized myositis researcher Dr. Iago Pinal Fernandez. Dr. Pinal Fernandez will share key findings from his work\, highlighting advances in understanding myositis subtypes\, disease mechanisms\, and implications for diagnosis and treatment. This webinar offers a valuable opportunity to learn directly from cutting‑edge research and engage in discussion about what these insights mean for the myositis community. \nRegister Here \nTMA’s Myositis Research Insight Series  is the community’s chance to hear directly from the scientists who are hard at work trying to unravel the biology behind myositis and searching for new therapies. Researchers discuss one of their latest projects and answer questions about their work.
URL:https://www.myositis.org/event/myositis-research-insights-featuring-dr-iago-pinal-fernandez/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2026/02/June-2026-Iago-MRI.jpg
LOCATION:https://us02web.zoom.us/webinar/register/WN_gy0rskKeR7SUc9jYCczk4w
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260609T180000
DTEND;TZID=America/Chicago:20260609T200000
DTSTAMP:20260120T210902Z
CREATED:20260120T210902Z
LAST-MODIFIED:20260120T210902Z
UID:10002993-1781028000-1781035200@www.myositis.org
SUMMARY:TMA Minnesota & Wisconsin Myositis Support Group Meeting
DESCRIPTION:Register Here \nJoin the TMA Minnesota & Wisconsin Myositis Support Group: Connect\, Share\, and Find Support \nThe TMA Minnesota & Wisconsin Myositis Support Group offers a welcoming space for individuals living with myositis to connect\, share experiences\, and support one another. Meeting every two months on the first Tuesday at 6:00 PM CT\, this group provides a valuable opportunity to engage with others who truly understand the challenges of living with myositis. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help reduce isolation\, offer resources\, and build a sense of community. By sharing stories and learning from each other\, you’ll gain valuable insights and feel empowered to navigate your myositis journey with support from others who understand. \nWhen?\nFirst Tuesday of every two months from:\n6:00 – 8:00 PM CT \nJoin us to decrease loneliness\, access helpful resources\, and find strength in the power of community. We look forward to connecting with you! \nAbout the Leaders \n \nLindsay Guentzel is an award-winning journalist\, writer\, producer\, and podcast host whose work has been featured in The New York Times\, CBS Radio\, NPR\, ESPN\, and more. After being diagnosed with ADHD in 2021—an experience she calls the best thing to ever happen to her—she spent two years learning how to navigate life with a neurodivergent brain. Then\, in 2023\, her world shifted again with a diagnosis of Dermatomyositis associated with Anti-Synthetase Syndrome\, a collection of rare\, incurable diseases that drastically changed her daily life. \nJim “Sudz” Szudzik \n \nJames “Sudz” Szudzik  served in the U.S. Army as a Chaplain’s Assistant during the Vietnam conflict. Following his service\, Sudz earned a Bachelor of Arts in Communications from Michigan State University. Over the course of his career\, he held roles with Lansing Probate Court\, Service Beer & Wine\, Miller Brewing Company\, Philip Morris U.S.A.\, Bonanza Beverage\, New Mexico Beverage\, and the Madrigano family. He married Nancy Ann Wygert in August 1985. \nSudz was diagnosed with Inclusion Body Myositis in 2004 and has since dedicated himself to advocating for veterans with IBM and educating others about myositis. His daily life centers on faith\, family\, and friends\, embracing life’s challenges with gratitude and resilience. He also enjoys movies\, reading\, televised sports\, and collecting baseball cards. He lives in Menomonee Falls\, Wisconsin with Nancy and their dog Bodie.
URL:https://www.myositis.org/event/tma-minnesota-wisconsin-myositis-support-group-6-2/2026-06-09/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Minnesota-Wisconsin.jpg
ORGANIZER;CN="Lindsay Guentzel":MAILTO:Guentzel@myositis.org
LOCATION:https://www.myositis.org/event/tma-minnesota-wisconsin-myositis-support-group-6-2/2026-06-09/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Lagos:20260609T190000
DTEND;TZID=Africa/Lagos:20260609T203000
DTSTAMP:20251228T230743Z
CREATED:20251228T230743Z
LAST-MODIFIED:20251228T230743Z
UID:10002413-1781031600-1781037000@www.myositis.org
SUMMARY:TMA Africa Myositis Support Group Meeting
DESCRIPTION:This group meets monthly on the second Tuesday and is a virtual support network dedicated to individuals living with myositis in Africa and beyond. Founded in 2024 with the help of the TMA Women of Color Affinity Group\, this monthly meeting is designed to provide support\, share resources\, and create meaningful connections among English-speaking members worldwide. \nRegister Here \nWhether you’re newly diagnosed or managing myositis\, the TMA Africa Myositis Support Group offers a safe space to connect with others who truly understand the challenges of living with this rare condition. By sharing experiences and learning from each other\, we can work together to raise awareness\, provide encouragement\, and empower individuals across the continent and around the world.
URL:https://www.myositis.org/event/tma-africa-myositis-support-group-meeting/2026-06-09/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Cynthia Ikediashi":MAILTO:Ikediashi@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZAvd-Chrj0oG9Fs7P7ZNXjq80N1mvnPiA_E
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260612T120000
DTEND;TZID=America/New_York:20260612T130000
DTSTAMP:20260611T162659Z
CREATED:20260519T153109Z
LAST-MODIFIED:20260611T162659Z
UID:10003437-1781265600-1781269200@www.myositis.org
SUMMARY:Meet & Greet Leadership Series: MyoCon 2026 Edition
DESCRIPTION:Get ready for something special! Join us for an exciting edition of The Myositis Association’s Meet & Greet Leadership Series — this time\, we’re turning the spotlight on MyoCon 2026! \nHosted by TMA Executive Director Paula Eichenbrenner\, this can’t-miss event goes beyond your typical Q&A. We’re bringing in special guests who will share their unique perspectives on what makes MyoCon the most anticipated gathering in the myositis community — from the programming that informs to the moments that inspire. \nHave questions about the conference? Bring them! We’re committed to answering every single one\, and we want you to leave this session more excited than ever about what’s ahead in St. Louis this September. \nWhether you’re a first-time attendee or a MyoCon veteran\, this is your chance to connect with TMA leadership\, hear directly from our guests\, and get a front-row preview of what promises to be our best conference yet. The energy is building — and we want you to be part of it! \nWe can’t wait to see you there. 🎉 \nRegister Here
URL:https://www.myositis.org/event/meet-greet-leadership-series-myocon-2026-edition/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/05/MyoCon-MG-June-2026.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/CqWkosk9QPedWdUi1ZiD4A
END:VEVENT
END:VCALENDAR