BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//The Myositis Association - ECPv6.17.5.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:The Myositis Association
X-ORIGINAL-URL:https://www.myositis.org
X-WR-CALDESC:Events for The Myositis Association
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Chicago
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20240310T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20241103T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20250309T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20251102T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20260308T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20261101T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20270314T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20271107T070000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Denver
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20240310T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20241103T080000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20250309T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20251102T080000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20260308T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20261101T080000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20270314T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20271107T080000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Los_Angeles
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20240310T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20241103T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20250309T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20251102T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20260308T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20261101T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20270314T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20271107T090000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Europe/Athens
BEGIN:DAYLIGHT
TZOFFSETFROM:+0200
TZOFFSETTO:+0300
TZNAME:EEST
DTSTART:20250330T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0300
TZOFFSETTO:+0200
TZNAME:EET
DTSTART:20251026T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0200
TZOFFSETTO:+0300
TZNAME:EEST
DTSTART:20260329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0300
TZOFFSETTO:+0200
TZNAME:EET
DTSTART:20261025T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0200
TZOFFSETTO:+0300
TZNAME:EEST
DTSTART:20270328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0300
TZOFFSETTO:+0200
TZNAME:EET
DTSTART:20271031T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Africa/Lagos
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0100
TZNAME:WAT
DTSTART:20250101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251206T130000
DTEND;TZID=America/New_York:20251206T143000
DTSTAMP:20260413T162341Z
CREATED:20250801T201217Z
LAST-MODIFIED:20260413T162341Z
UID:10001691-1765026000-1765031400@www.myositis.org
SUMMARY:TMA Worldwide Myositis Support by Diagnosis
DESCRIPTION:TMA’s Worldwide Myositis Support by Diagnosis Group is open to all\, especially those without an active support group in their local area. Formally known as Nationwide\, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis\, and the TMA Care Partner Affinity Group meets in its own room. TMA Worldwide meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT.  \nRegister here
URL:https://www.myositis.org/event/tma-worldwide-myositis-support-by-diagnosis/2025-12-06/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/08/New-Worldwide-2.png
ORGANIZER;CN="Dave Volk":MAILTO:Volk@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMuc-mtqTktHNH_sskpoHflne4zPRAkfS9y
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251209T120000
DTEND;TZID=America/New_York:20251209T130000
DTSTAMP:20251203T154435Z
CREATED:20251120T180929Z
LAST-MODIFIED:20251203T154435Z
UID:10002060-1765281600-1765285200@www.myositis.org
SUMMARY:The JASMINE Clinical Study: An Overview for the Myositis Community
DESCRIPTION:Register Here \nJoin us for a special webinar featuring Dr. Andrew Beaton as he provides a clear and accessible overview of the JASMINE Clinical Study. This session will help members of the myositis community better understand the study’s goals\, design\, and potential impact\, as well as what participation may entail. Whether you’re a patient\, care partner\, or advocate\, this webinar offers an opportunity to learn directly from an expert. Special thanks to AstraZeneca for sponsoring this webinar. \n 
URL:https://www.myositis.org/event/the-jasmine-clinical-study-an-overview-for-the-myositis-community/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/11/AstraZeneca-Dec-9-2025-Webinar.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_3JwYkb4BQAOM29q5SbSlMQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251209T160000
DTEND;TZID=America/New_York:20251209T180000
DTSTAMP:20251228T231147Z
CREATED:20251105T195356Z
LAST-MODIFIED:20251228T231147Z
UID:10001910-1765296000-1765303200@www.myositis.org
SUMMARY:Hospital of Special Surgery (HSS) New York City Myositis Support Group
DESCRIPTION:The HSS Myositis Support Group is open to people living with myositis\, their families\, and friends. \nIf this is your first time attending the HSS group meeting\, please be sure to contact the group coordinator before the meeting date in order to receive the join link. \nPLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: \nSuzan Fischbein\, LCSW \nSr. Social Work Coordinator II \nemail: fischbeins@hss.edu \nSPONSORED BY \nDepartment of Social Work Programs and The Division of Rheumatology at Hospital for Special Surgery | 535 East 70th Street New York\, NY 10021
URL:https://www.myositis.org/event/hospital-of-special-surgery-hss-new-york-city-myositis-support-group/2025-12-09/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Suzan Fischbein":MAILTO:FischbeinS@HSS.edu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251210T130000
DTEND;TZID=America/Chicago:20251210T143000
DTSTAMP:20251202T003029Z
CREATED:20250605T143720Z
LAST-MODIFIED:20251202T003029Z
UID:10001105-1765371600-1765377000@www.myositis.org
SUMMARY:TMA Kansas & Western Missouri Myositis Support Group Meeting
DESCRIPTION:Register Here \nJoin the TMA Kansas & Western Missouri Myositis Support Group: A Community for Myositis Warriors \nThe TMA Kansas & Western Missouri Myositis Support Group is a welcoming space for individuals living with myositis. Meeting 3-4 times per year\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-kansas-western-missouri-myositis-support-group-meeting-4/
CATEGORIES:Support or Affinity Group Meeting
LOCATION:https://www.myositis.org/event/tma-kansas-western-missouri-myositis-support-group-meeting-4/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251211T120000
DTEND;TZID=America/New_York:20251211T130000
DTSTAMP:20251030T231059Z
CREATED:20251012T044452Z
LAST-MODIFIED:20251030T231059Z
UID:10001897-1765454400-1765458000@www.myositis.org
SUMMARY:Ask the Expert Speech-Language Pathology Edition
DESCRIPTION:Register Here \nJoin TMA for an interactive\, Ask the Expert Q&A with Dr. Kendrea Garand\, a board-certified specialist in swallowing and speech-language pathology.\nThis session will focus entirely on your questions about speech\, voice\, and swallowing challenges in myositis—how to recognize them\, when to ask for an evaluation\, and practical tips that help you eat\, drink\, and communicate more safely and confidently.\nBring your questions live or submit them in advance when you register.
URL:https://www.myositis.org/event/ask-the-expert-speech-language-pathology-edition/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/10/Kendrea-Garand-Dec-2025.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20251213T120000
DTEND;TZID=America/Denver:20251213T133000
DTSTAMP:20251212T162838Z
CREATED:20250605T143707Z
LAST-MODIFIED:20251212T162838Z
UID:10001048-1765627200-1765632600@www.myositis.org
SUMMARY:TMA Colorado Myositis Support Group Meeting
DESCRIPTION:On December 13\, TMA Colorado Support Group call will feature Dr. Richard Nash and Dr. David Korman from the Colorado Blood Cancer Institute.  Their team is now involved in new studies using CAR-T therapy for rheumatologic conditions\, including myositis (IIM). \nDr. Korman\, MD is a rheumatologist in Denver\, Colorado\, and an Associate Clinical Professor of Medicine–Rheumatology at the University of Colorado. His clinical work centers on complex autoimmune and inflammatory diseases\, including myositis and other systemic rheumatologic conditions. He collaborates with the Colorado Blood Cancer Institute on emerging cell-therapy approaches and serves as an investigator for clinical trials evaluating CAR-T cell therapy for autoimmune diseases. \nDr. Nash\, MD is a hematologist / transplant physician at the Colorado Blood Cancer Institute with extensive experience using autologous hematopoietic stem cell transplant (AHSCT) to treat autoimmune neurologic and rheumatologic diseases. He and his team have developed standard-of-care AHSCT treatment guidelines for multiple sclerosis (MS) and systemic sclerosis (SSc). \nHe is also an investigator for clinical trials evaluating CAR-T cell therapy for autoimmune conditions including myositis\, systemic lupus erythematosus (SLE)\, systemic sclerosis\, and rheumatoid arthritis\, and is actively working to expand cell-therapy research for rare autoimmune diseases. \nDuring the call\, they will share recent data on IIM and CAR-T\, provide general education on cell therapy for autoimmune diseases\, and answer any questions we may have. \n  \n \nTMA Colorado Myositis Support Group has reactivated and meets on the second Saturday of each month at noon Mountain Time! \nMeet Jim Milani\, a TMA member who was moved by the efforts of the late Marianne Moyer and the TMA Southwest Florida’s success in organizing a Myositis Symposium for Physical and Occupational Therapists for  Myositis Awareness Month. He called Rachel Bromley\, TMA’s Senior Manager of Patient Education\, Support and Advocacy to offer to organize one in his home state of Colorado. Rachel was ecstatic\, as Marianne’s vision had always been for this event to branch out to other TMA groups! One catch though – TMA Colorado had been dormant for quite some time. So she swung for the fences and said “How about reactivating the Colorado group at the same time? You can connect more PTs and OTs that way\, find a few volunteers to possibly help your efforts\, and provide and receive support for myositis along the way!” \nJim replied with one word “SURE!” And so this journey began. \nFor the past 20 years\, Jim has been a Physical Therapist and is Board Certified as a Geriatric Specialist. After several years of misdiagnoses\, he was correctly diagnosed with IBM in late 2023. Despite this\, Jim continues to pursue his love for activity and sports. He is passionate about sharing his personal and professional “fitness forward” philosophy\, helping people understand how to modify and adapt exercises to their functional level. Jim resides in Colorado with his wife\, Laura. He is a proud father of six adult children and has two grandchildren. Jim says his family and faith help him get through each day. While there is much about IBM that he cannot control\, he focuses on what he can: his attitude and effort. #justkeepswimming \nAnyone can join his meetings\, Colorado resident or not. You can register here! \n 
URL:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting-15/
LOCATION:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting-15/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251213T130000
DTEND;TZID=America/New_York:20251213T143000
DTSTAMP:20251119T180316Z
CREATED:20250605T143718Z
LAST-MODIFIED:20251119T180316Z
UID:10001096-1765630800-1765636200@www.myositis.org
SUMMARY:TMA MD\, DE\, DC\, and Northern Virginia Myositis Support Group Meeting
DESCRIPTION:Register Here \nJoin the TMA MD\, DE\, DC\, and Northern Virginia Myositis Support Group: A Community for Myositis Warriors \nThe TMA MD\, DE\, DC\, and Northern Virginia Myositis Support Group is a welcoming space for individuals living with myositis in the Maryland\, Delaware\, District of Columbia\, and Northern Virginia regions. Meeting every two months on the third Saturday at 1:00 PM ET\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nWhen?\nThird Saturday of every other month at:\n1:00 PM ET \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-md-de-dc-and-northern-virginia-myositis-support-group-meeting-7/
CATEGORIES:Support or Affinity Group Meeting
LOCATION:https://www.myositis.org/event/tma-md-de-dc-and-northern-virginia-myositis-support-group-meeting-7/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251218T183000
DTEND;TZID=America/Chicago:20251218T200000
DTSTAMP:20251217T201019Z
CREATED:20250605T143655Z
LAST-MODIFIED:20251217T201019Z
UID:10000998-1766082600-1766088000@www.myositis.org
SUMMARY:TMA Missouri and Illinois Group Meeting
DESCRIPTION:Register Today \nJoin the TMA Missouri & Illinois Myositis Support Group: A Community for Myositis Warriors \nThe TMA Missouri & Illinois Myositis Support Group is a welcoming space for individuals living with myositis. Meeting every three months on the third Thursday at 6:30 PM CT\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nWhen?\nEvery 3 months on the third Thursday at:\n6:30 PM CT \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-missouri-and-illinois-group-meeting-5/
LOCATION:https://www.myositis.org/event/tma-missouri-and-illinois-group-meeting-5/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251219T170000
DTEND;TZID=America/Los_Angeles:20251219T183000
DTSTAMP:20250731T182943Z
CREATED:20250605T143747Z
LAST-MODIFIED:20250731T182943Z
UID:10001568-1766163600-1766169000@www.myositis.org
SUMMARY:TMA Northern California\, Oregon & Washington IBM Support Group Meeting
DESCRIPTION:Register here! \n\n \nJoin the TMA Northern California\, Oregon & Washington IBM Support Group: Connect\, Learn\, and Find Support\n\nThis group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Northern California\, Oregon & Washington\, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT\, this group offers a supportive space to connect with others who understand the unique challenges of living with IBM. \nWhether you’re newly diagnosed or have been living with IBM for some time\, this group is here to help reduce feelings of isolation\, provide valuable resources\, and foster a sense of belonging. Join us to share experiences\, learn about available support services\, and build connections with others in your community who are navigating the same journey. \nWhen?Third Friday of every month at:5:00 PM PT \nAll are welcome to attend—no matter where you are on your myositis journey. This group is a chance to decrease loneliness\, access important resources\, and find strength in the support of others who truly understand what you’re going through. \n\n \n\n 
URL:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2025-12-19/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas-1.jpg
ORGANIZER;CN="Malati Shinazy":MAILTO:Shinazy@myositis.org
LOCATION:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2025-12-19/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260103T130000
DTEND;TZID=America/New_York:20260103T143000
DTSTAMP:20250801T204659Z
CREATED:20250605T143744Z
LAST-MODIFIED:20250801T204659Z
UID:10001752-1767445200-1767450600@www.myositis.org
SUMMARY:TMA Care Partner Affinity Group Meeting
DESCRIPTION:Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families.\nJoin the TMA Care Partner Affinity Group: A Space Just for You \nBeing a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress\, anxiety\, or the weight of daily caregiving tasks\, it’s easy to feel overwhelmed and burnt out. That’s why the TMA Care Partner Affinity Group\, founded in 2022\, provides a supportive environment specifically for those who care for someone living with myositis. \nThis group meets in its own dedicated breakout room within TMA’s Worldwide Support Group Meeting on the first Saturday of each month. It’s a safe space where you\, the care partner\, are the focus—not the patient. Here\, you can connect with others who understand your unique challenges\, share coping strategies\, and discuss how to navigate the complex healthcare system. Whether it’s accessing resources like home health aides\, meal delivery\, or transportation assistance—or finding the right words to communicate with your loved one or healthcare team—this group is here to help you through it all. \nTo learn more about accessing breakout rooms\, see ACCESSING ZOOM BREAKOUT ROOMS \nWhen?\nFirst Saturday of every month at:\n1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT \nThe emotional demands of caregiving are real\, and sometimes\, you just need a place to express frustrations\, share victories\, and lean on others who truly understand. The TMA Care Partner Affinity Group is here to provide the support\, resources\, and community you need to continue on your journey. Join us and find the strength to take care of yourself\, too. \nRegister Here \n 
URL:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2026-01-03/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/webp:https://www.myositis.org/wp-content/uploads/2025/06/Care-Partner.webp
ORGANIZER;CN="Rachel Bromley":MAILTO:Rachel@myositis.org
LOCATION:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2026-01-03/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260103T130000
DTEND;TZID=America/New_York:20260103T143000
DTSTAMP:20260413T162341Z
CREATED:20250801T201217Z
LAST-MODIFIED:20260413T162341Z
UID:10001692-1767445200-1767450600@www.myositis.org
SUMMARY:TMA Worldwide Myositis Support by Diagnosis
DESCRIPTION:TMA’s Worldwide Myositis Support by Diagnosis Group is open to all\, especially those without an active support group in their local area. Formally known as Nationwide\, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis\, and the TMA Care Partner Affinity Group meets in its own room. TMA Worldwide meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT.  \nRegister here
URL:https://www.myositis.org/event/tma-worldwide-myositis-support-by-diagnosis/2026-01-03/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/08/New-Worldwide-2.png
ORGANIZER;CN="Dave Volk":MAILTO:Volk@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMuc-mtqTktHNH_sskpoHflne4zPRAkfS9y
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260105T183000
DTEND;TZID=America/New_York:20260105T200000
DTSTAMP:20251228T211316Z
CREATED:20251228T211316Z
LAST-MODIFIED:20251228T211316Z
UID:10002358-1767637800-1767643200@www.myositis.org
SUMMARY:TMA New Jersey Support Group Meeting
DESCRIPTION:This group for all myositis diagnoses meets every other month on the first Monday at 6:30 PM ET | 5:30 PM CT | 4:30 PM MT | 3:30 PM PT. Register here. \nTMA support groups are a place to connect\, be understood\, and feel less alone — whether you’re seeking support\, offering encouragement\, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being for most participants. Just as powerful\, many people who support others report improvements in their own mental and emotional health. \nEvery voice matters. Sharing experiences\, listening\, and learning from one another strengthens the myositis community and reminds us that none of us has to navigate this journey alone. \nCome for support. Come for connection. Come for community. \n 
URL:https://www.myositis.org/event/tma-new-jersey-support-group-meeting/2026-01-05/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Colleen Layton":MAILTO:Layton@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMlceivqz8pEtMGZujZNPuwTKALAAmw3pSr
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Athens:20260105T190000
DTEND;TZID=Europe/Athens:20260105T203000
DTSTAMP:20251229T000714Z
CREATED:20251229T000714Z
LAST-MODIFIED:20251229T000714Z
UID:10002564-1767639600-1767645000@www.myositis.org
SUMMARY:Ομάδα Στήριξης Μυοσίτιδας TMA Greece
DESCRIPTION:Γνωρίστε άλλους σαν εσάς\, μάθετε\, μοιραστείτε και συνδεθείτε! Συναντιόμαστε κάθε μήνα την πρώτη Δευτέρα. Εγγραφείτε εδώ
URL:https://www.myositis.org/event/%ce%bf%ce%bc%ce%ac%ce%b4%ce%b1-%cf%83%cf%84%ce%ae%cf%81%ce%b9%ce%be%ce%b7%cf%82-%ce%bc%cf%85%ce%bf%cf%83%ce%af%cf%84%ce%b9%ce%b4%ce%b1%cf%82-tma-greece/2026-01-05/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Maria Dourida":MAILTO:Dourida@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/fBivzMouRQyswoJWjr6tmg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260107T190000
DTEND;TZID=America/New_York:20260107T203000
DTSTAMP:20260119T093855Z
CREATED:20251202T005024Z
LAST-MODIFIED:20260119T093855Z
UID:10002092-1767812400-1767817800@www.myositis.org
SUMMARY:TMA Men of Color Affinity Group Meeting
DESCRIPTION:Register Here \nThanks to the initiative of TMA’s Women of Color Affinity Group and group founders Sherrod Bundage and Mustafa Shameem in getting this off the ground\, this new group now meets quarterly on the first Wednesday as a way for men of color who are living with myositis to connect\, share their stories\, and learn more about myositis and how they can navigate the challenges of chronic disease. We appreciate new leader Ricky Marks for keeping this initiative going! \nAbout the Leader \n \nRicky Marks was diagnosed with IBM in 2016.  He is a member of TMA and is currently Chairman of the Board of Directors Governance Committee.  Ricky retired after thirty-six years with the Pharmaceutical Company Bristol Myers Squibb. Ricky has a Bachelor of Pharmaceutical Science degree and received his RPh in 1978.  Ricky resides in Powder Springs Georgia\, married to Cynthia Marks\, and has two adult children\, Christopher and Kamron. He is a lifetime member of Kappa Alpha Psi and loves all kinds of sports in particular professional football.
URL:https://www.myositis.org/event/tma-men-of-color-affinity-group-meeting/2026-01-07/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/12/Updated-MOC-Graphic.png
ORGANIZER;CN="Ricky Marks":MAILTO:Marks@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/N285SdQMSFqt36msDdOAGg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260107T200000
DTEND;TZID=America/New_York:20260107T213000
DTSTAMP:20260310T185113Z
CREATED:20250605T143731Z
LAST-MODIFIED:20260310T185113Z
UID:10001331-1767816000-1767821400@www.myositis.org
SUMMARY:TMA Flying Solo Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner \nThe TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone\, are married but your spouse is unable to provide care\, or even find yourself as the caregiver for your spouse\, this group is here to offer understanding and support. \nLiving with myositis can be particularly challenging without a live-in care partner\, but Flying Solo offers a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. \nWhen?\nFirst Wednesday of each month at:\n8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others who “fly solo” like you! \nRegister Here \n\n \nAbout the Leader | Rhonda Rogers \nRhonda Rogers\, diagnosed with Inclusion Body Myositis (IBM)\, is a passionate myositis advocate\, also known as “Myositis Warrior”\, who brings connection\, humor\, and heart to everything she does. She co-leads TMA’s Southern California Support Group and facilitates the TMA Flying Solo Affinity Group for people living with myositis who do not have a live-in care partner. Rhonda also administers the popular Myositis Warrior Facebook public group\, known for its upbeat\, candid\, and often humorous take on the unbelievable realities of life with myositis. Whether leading community groups or raising awareness in her signature Myositis Warrior cape at events like Comic-Con\, Rhonda inspires others to meet life with resilience and a smile. \nIn recognition of her outstanding leadership and support for the myositis community\, Rhonda received the Marianne Moyer Myositis Leader Award at MyoCon 2025\, along with her TMA Southern California co-leader\, Nancy Harber. This award honors TMA volunteers who lead the way by helping others and making a lasting impact.
URL:https://www.myositis.org/event/tma-flying-solo-affinity-group-meeting-23/2026-01-07/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/flyingsolo-169.jpg
ORGANIZER;CN="Rhonda Rogers":MAILTO:Rogers@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqc-GsrTksGt3aRRRGipKTWPzy7-n18ME4#/registration
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260108T190000
DTEND;TZID=America/New_York:20260108T200000
DTSTAMP:20260105T173644Z
CREATED:20260105T173644Z
LAST-MODIFIED:20260105T173644Z
UID:10002757-1767898800-1767902400@www.myositis.org
SUMMARY:Proclamation50 Information Session
DESCRIPTION:TMA has launched Proclamation50 for 2026\, our aspiration to spur proclamations in all 50 states in the US for Myositis Awareness Month in May! You can use this handy guide to drafting and requesting this official designation of Myositis Awareness Month from your city\, county\, or state. This is a small-time commitment for a very vital cause! Please sign up to be one of our Proclamation50 participants! \nTake the TMA Volunteer Information Form 2026 Survey! \nAdditionally\, we are going to be hosting a Proclamation50 informational Zoom session on Thursday\, January 8\, at 4 pm PT/7 pm ET\, where Jamie will share more about this opportunity and be able to answer any questions. \nRegister Here \n 
URL:https://www.myositis.org/event/proclamation50-information-session/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/01/Screenshot-2026-01-05-123541.png
ORGANIZER;CN="Proclamations":MAILTO:Proclamations@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/0syqguLQQpS36YDwNRcoug#/registration
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260110T120000
DTEND;TZID=America/New_York:20260110T133000
DTSTAMP:20251228T205017Z
CREATED:20251228T205017Z
LAST-MODIFIED:20251228T205017Z
UID:10002238-1768046400-1768051800@www.myositis.org
SUMMARY:TMA Military Veterans with Myositis Affinity Group Meeting
DESCRIPTION:Founded in 2022\, the TMA Military Veterans with Myositis Affinity Group is a dedicated space for veterans living with myositis to find support\, share experiences\, and engage in advocacy efforts. This group is particularly focused on working towards making Inclusion Body Myositis (IBM) a presumptive condition within the VA\, and provides invaluable resources for navigating disability claims and appeals. \nEvery month\, veterans from all branches of service come together to discuss the unique challenges of living with myositis and to support each other in their journeys. Care partners are also warmly welcomed to participate. Whether you’re seeking help with your claim\, want to get involved in advocacy\, or simply need a place to connect with others who truly understand\, this group is here to support you. For all myositis diagnoses. \nRegister Here \nFor more information on IBM and VA disability\, click here.
URL:https://www.myositis.org/event/tma-military-veterans-with-myositis-affinity-group-meeting/2026-01-10/
CATEGORIES:Support or Affinity Group Meeting
LOCATION:https://us02web.zoom.us/meeting/register/tZItceiurjkuHtKWAxCsms6EtTZ65P-m4NiZ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20260110T120000
DTEND;TZID=America/Denver:20260110T170000
DTSTAMP:20260401T203833Z
CREATED:20251228T233428Z
LAST-MODIFIED:20260401T203833Z
UID:10002470-1768046400-1768064400@www.myositis.org
SUMMARY:TMA Colorado Myositis Support Group Meeting
DESCRIPTION:This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect\, be understood\, and feel less alone — whether you’re seeking support\, offering encouragement\, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being for most participants. Just as powerful\, many people who support others report improvements in their own mental and emotional health. \nEvery voice matters. Sharing experiences\, listening\, and learning from one another strengthens the myositis community and reminds us that none of us has to navigate this journey alone. \nCome for support. Come for connection. Come for community. \nRegister Here \nAbout the Leader \n \nMeet Jim Milani\, a TMA member who was moved by the efforts of the late Marianne Moyer and the TMA Southwest Florida’s success in organizing a Myositis Symposium for Physical and Occupational Therapists for  Myositis Awareness Month. He called Rachel Bromley\, TMA’s Senior Manager of Patient Education\, Support and Advocacy to offer to organize one in his home state of Colorado. Rachel was ecstatic\, as Marianne’s vision had always been for this event to branch out to other TMA groups! One catch though – TMA Colorado had been dormant for quite some time. So she swung for the fences and said “How about reactivating the Colorado group at the same time? You can connect more PTs and OTs that way\, find a few volunteers to possibly help your efforts\, and provide and receive support for myositis along the way!” \nJim replied with one word “SURE!” And so this journey began. \nFor the past 20 years\, Jim has been a Physical Therapist and is Board Certified as a Geriatric Specialist. After several years of misdiagnoses\, he was correctly diagnosed with IBM in late 2023. Despite this\, Jim continues to pursue his love for activity and sports. He is passionate about sharing his personal and professional “fitness forward” philosophy\, helping people understand how to modify and adapt exercises to their functional level. Jim resides in Colorado with his wife\, Laura. He is a proud father of six adult children and has two grandchildren. Jim says his family and faith help him get through each day. While there is much about IBM that he cannot control\, he focuses on what he can: his attitude and effort. #justkeepswimming
URL:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting/2026-01-10/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Jim Milani":MAILTO:Milani@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMpde2pqjsrGNfydYipCNiyzhwXceHDv1jH
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260110T130000
DTEND;TZID=America/Chicago:20260110T150000
DTSTAMP:20250805T185747Z
CREATED:20250605T143739Z
LAST-MODIFIED:20250805T185747Z
UID:10001837-1768050000-1768057200@www.myositis.org
SUMMARY:TMA Nebraska Myositis Support Group Meeting (In-person)
DESCRIPTION:TMA Nebraska Myositis Support Group meets quarterly in-person on the second Saturday from 1-3 pm CT (January\, April\, July\, October) at Zion Lutheran Church\, 14205 Ida St\, Omaha\, NE 68142.
URL:https://www.myositis.org/event/tma-nebraska-myositis-support-group-meeting-in-person-10/2026-01-10/
LOCATION:Zion Lutheran Church\, 14205 Ida St\, Omaha\, 68142\, United States
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Nebraska.jpg
ORGANIZER;CN="Laura Deardoff":MAILTO:Deardoff@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260113T160000
DTEND;TZID=America/New_York:20260113T180000
DTSTAMP:20260106T234345Z
CREATED:20260106T231708Z
LAST-MODIFIED:20260106T234345Z
UID:10001911-1768320000-1768327200@www.myositis.org
SUMMARY:Minding your Mental Health - Hospital of Special Surgery (HSS) New York City Myositis Support Group
DESCRIPTION:Living with a chronic illness can lead to increased stress\, anxiety\, and depression.  Myositis can pose additional and unique challenges. This presentation can help in recognizing symptoms and provide evidence-based strategies for coping and managing these issues. \nThe HSS Myositis Support Group is open to people living with myositis\, their families\, and friends. \nIf this is your first time attending the HSS group meeting\, please be sure to contact the group coordinator before the meeting date in order to receive the join link. \nPLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: \nSuzan Fischbein\, LCSW \nSr. Social Work Coordinator II \nemail: fischbeins@hss.edu \nSPONSORED BY \nDepartment of Social Work Programs and The Division of Rheumatology at Hospital for Special Surgery
URL:https://www.myositis.org/event/hospital-of-special-surgery-hss-new-york-city-myositis-support-group-3/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Suzan Fischbein":MAILTO:FischbeinS@HSS.edu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Lagos:20260113T190000
DTEND;TZID=Africa/Lagos:20260113T203000
DTSTAMP:20251228T230743Z
CREATED:20251228T230743Z
LAST-MODIFIED:20251228T230743Z
UID:10002408-1768330800-1768336200@www.myositis.org
SUMMARY:TMA Africa Myositis Support Group Meeting
DESCRIPTION:This group meets monthly on the second Tuesday and is a virtual support network dedicated to individuals living with myositis in Africa and beyond. Founded in 2024 with the help of the TMA Women of Color Affinity Group\, this monthly meeting is designed to provide support\, share resources\, and create meaningful connections among English-speaking members worldwide. \nRegister Here \nWhether you’re newly diagnosed or managing myositis\, the TMA Africa Myositis Support Group offers a safe space to connect with others who truly understand the challenges of living with this rare condition. By sharing experiences and learning from each other\, we can work together to raise awareness\, provide encouragement\, and empower individuals across the continent and around the world.
URL:https://www.myositis.org/event/tma-africa-myositis-support-group-meeting/2026-01-13/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Cynthia Ikediashi":MAILTO:Ikediashi@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZAvd-Chrj0oG9Fs7P7ZNXjq80N1mvnPiA_E
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260114T133000
DTEND;TZID=America/New_York:20260114T153000
DTSTAMP:20251229T004129Z
CREATED:20251229T004129Z
LAST-MODIFIED:20251229T004129Z
UID:10002714-1768397400-1768404600@www.myositis.org
SUMMARY:TMA Michigan Myositis Support Group Meeting
DESCRIPTION:This group is for those with dermatomyositis\, polymyositis\, immune-mediated necrotizing myopathy\, (any non-IBM diagnosis). It meets every 3 months on the second Wednesday at 1:30pm ET. Everyone from Michigan and close areas without a support group are welcome to attend\, however\, there is also a TMA Michigan IBM group you can join as well if your diagnosis is Inclusion Body Myositis. That group meets in person three times a year with one virtual meeting in the winter. Watch our website calendar for the next TMA Michigan IBM meeting. \nRegister Here
URL:https://www.myositis.org/event/tma-michigan-myositis-support-group-meeting/2026-01-14/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Veronica Fatura":MAILTO:Fatura@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZUuc-Cvpj4jHdLcATjkSMCHGcw5JZHTHt_G
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260115T183000
DTEND;TZID=America/Chicago:20260115T200000
DTSTAMP:20251229T003130Z
CREATED:20251229T003130Z
LAST-MODIFIED:20251229T003130Z
UID:10002654-1768501800-1768507200@www.myositis.org
SUMMARY:TMA Missouri and Illinois Myositis Support Group Meeting
DESCRIPTION:The TMA Missouri & Illinois Myositis Support Group is a welcoming space for individuals living with myositis. Meeting every month on the third Thursday at 6:30 PM CT\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nRegister Here \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nSecure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-missouri-and-illinois-myositis-support-group-meeting/2026-01-15/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="David Volk":MAILTO:Volk@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqdu6prjMvG9bNPn3hYm193xtHoyRYT2nI
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260116T120000
DTEND;TZID=America/New_York:20260116T130000
DTSTAMP:20251229T002240Z
CREATED:20250605T143735Z
LAST-MODIFIED:20251229T002240Z
UID:10002018-1768564800-1768568400@www.myositis.org
SUMMARY:TMA New Member Orientation
DESCRIPTION:Open to all regardless how long ago you joined TMA! Living with myositis can be challenging\, but you are not alone. Please join us virtually to learn more about education and resources to help you on your myositis journey and make new friends who know\, understand\, and share your new normal. Connect with people like you\, connect with resources you need\, connect with global myositis experts – connect with TMA!\nRegister Here
URL:https://www.myositis.org/event/new-member-orientation-8/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/06/Generic-NMO-.png
LOCATION:https://www.myositis.org/event/new-member-orientation-8/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260116T170000
DTEND;TZID=America/Los_Angeles:20260116T183000
DTSTAMP:20250731T182943Z
CREATED:20250605T143747Z
LAST-MODIFIED:20250731T182943Z
UID:10001569-1768582800-1768588200@www.myositis.org
SUMMARY:TMA Northern California\, Oregon & Washington IBM Support Group Meeting
DESCRIPTION:Register here! \n\n \nJoin the TMA Northern California\, Oregon & Washington IBM Support Group: Connect\, Learn\, and Find Support\n\nThis group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Northern California\, Oregon & Washington\, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT\, this group offers a supportive space to connect with others who understand the unique challenges of living with IBM. \nWhether you’re newly diagnosed or have been living with IBM for some time\, this group is here to help reduce feelings of isolation\, provide valuable resources\, and foster a sense of belonging. Join us to share experiences\, learn about available support services\, and build connections with others in your community who are navigating the same journey. \nWhen?Third Friday of every month at:5:00 PM PT \nAll are welcome to attend—no matter where you are on your myositis journey. This group is a chance to decrease loneliness\, access important resources\, and find strength in the support of others who truly understand what you’re going through. \n\n \n\n 
URL:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2026-01-16/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas-1.jpg
ORGANIZER;CN="Malati Shinazy":MAILTO:Shinazy@myositis.org
LOCATION:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2026-01-16/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20260117T130000
DTEND;TZID=America/Denver:20260117T143000
DTSTAMP:20251229T001853Z
CREATED:20251229T001853Z
LAST-MODIFIED:20251229T001853Z
UID:10002624-1768654800-1768660200@www.myositis.org
SUMMARY:TMA Idaho\, Wyoming and Utah Myositis Support Group Meeting
DESCRIPTION:The TMA ID\, WY & UT Myositis Support Group is a welcoming space for individuals living with myositis in Idaho\, Wyoming and Utah. Meeting every two months on the third Saturday at 1:00 PM ET\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nRegister Here \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nWhen?\nEvery three months at:\n1:00 PM MT \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-idaho-wyoming-and-utah-myositis-support-group-meeting/2026-01-17/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Angie Mendenhall":MAILTO:Mendenhall@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqceGtpjsuGNXJ4vCg7GxB1zYE-MH55KCe
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260120T120000
DTEND;TZID=America/New_York:20260120T133000
DTSTAMP:20260106T204849Z
CREATED:20260106T204849Z
LAST-MODIFIED:20260106T204849Z
UID:10001629-1768910400-1768915800@www.myositis.org
SUMMARY:TMA WomenwithIBM Affinity Group Meeting
DESCRIPTION:Created in 2020\, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. \n\nJanuary’s meeting will include conversation with Helene Alexanderson\, PhD on exercise and IBM. \n\nRegister here.
URL:https://www.myositis.org/event/tma-womenwithibm-affinity-group-meeting-2/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/07/Women-with-IBM-General-Flyer-2023.png
ORGANIZER;CN="Nancy Marx Erickson":MAILTO:WomenwithIBM@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuduyvqz4pEtIqImIBaRa8ourzIqJaF0A2
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260122T120000
DTEND;TZID=America/New_York:20260122T130000
DTSTAMP:20251209T234535Z
CREATED:20251120T180137Z
LAST-MODIFIED:20251209T234535Z
UID:10002059-1769083200-1769086800@www.myositis.org
SUMMARY:Mindfulness and Self-Compassion for Chronic Illness and Pain
DESCRIPTION:Register Here \n\n\n\nIn this 60-minute session\, we will define and explore what Mindfulness and Self-Compassion are and how they can reduce pain and discomfort\, reduce stress\, and enhance our ability to live a life beyond simply struggling with our illness and pain.  The workshop will include an overview of the subject matter\, guided meditation\, and time for Q&A.\nBy the end of the time\, participants will be able to:\n1. Define what Mindfulness is and what Self-Compassion is\n2. Describe and engage in practices to grow these qualities\n3. Be able to apply these skills to daily life\n\n\n\nThis event is in Zoom meeting style format\, but camera is optional.
URL:https://www.myositis.org/event/mindfulness-and-compassion-for-chronic-illness-and-pain/
CATEGORIES:Community Meetups,Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/11/Mindfullness-Jan-2026.png
LOCATION:https://us02web.zoom.us/meeting/register/AKTZ9pMyRWaI4oxbdnyDHw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260122T180000
DTEND;TZID=America/New_York:20260122T190000
DTSTAMP:20251228T194546Z
CREATED:20251228T194546Z
LAST-MODIFIED:20251228T194546Z
UID:10002118-1769104800-1769108400@www.myositis.org
SUMMARY:TMA Virginia\, West Virginia\, Northeast North Carolina Myositis Support Group Meeting
DESCRIPTION:This group meets monthly on the fourth Thursday at 6:00 PM ET. For all myositis diagnoses. \nRegister here \nWhy Attend a TMA Support Group \nTMA support groups are a place to connect\, be understood\, and feel less alone — whether you’re seeking support\, offering encouragement\, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being for most participants. Just as powerful\, many people who support others report improvements in their own mental and emotional health. \nEvery voice matters. Sharing experiences\, listening\, and learning from one another strengthens the myositis community and reminds us that none of us has to navigate this journey alone. \nCome for support. Come for connection. Come for community.
URL:https://www.myositis.org/event/tma-virginia-west-virginia-northeast-north-carolina-myositis-support-group-meeting/2026-01-22/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Kaniah Gunter":MAILTO:Gunter@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMkcu-rrz8tH9ILBN0VXGWdBWpTTWWdgRyF
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260124T100000
DTEND;TZID=America/Chicago:20260124T113000
DTSTAMP:20250725T234234Z
CREATED:20250605T143746Z
LAST-MODIFIED:20250725T234234Z
UID:10001449-1769248800-1769254200@www.myositis.org
SUMMARY:TMA Northeast Texas Myositis Support Group Meeting
DESCRIPTION:Register Here \nAttend TMA Northeast Texas Myositis Support Group: Support for Those Living with Myositis and their Care Partners \nLiving with myositis is easier with friends. TMA’s support and affinity groups offer a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. These sessions are never recorded and camera is optional.  \nWhen?Fourth Saturday of each month (no meeting in December) at:10:00 AM – 11:30 AM CT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others like you! \n\nMessage from the Leader | Melissa Rumpf \n\n\n\n\n\n \nHello\, my name is Melissa Rumpf and I was diagnosed with IBM in 2017.  I feel very fortunate to have found TMA early in my diagnosis as they have been instrumental in helping me navigate this disease.   \n\n\n\nI have attended three (3) in-person TMA International Patient Conferences and many zoom conferences and meetings throughout the years (can’t wait for Dallas this year)!  Meeting other myositis patients and being able to share information\, our struggles and our positives with each other has been life changing for me.  I have learned so much from TMA and others weathering the ups and downs of myositis.  \n\n\n\nPrior to medically retiring in 2019\, I was a Communications Supervisor with the Las Vegas Police Department where I spent 28 years helping others.  So being part of TMA and helping others is a strong passion of mine.   \n\n\n\nMy husband is my “Rock” who helps keep me going.  We exercise 3 times weekly to keep my mobility.  My passion is traveling so we take vacations as often as we can – it keeps me going mentally and physically! \n\n\n\n“The question isn’t who is going to let me; it’s who is going to stop me”.  We all must keep up the fight! \n\n\n\nI’m looking forward to meeting you at our TMA Northeast Texas meetings! \n\n\n\nSincerely\, Melissa \nRegister Here \n\n\n\n\n\nConnect with TMA!         \n\n\n\n\n\n 
URL:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4/2026-01-24/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas.jpg
ORGANIZER;CN="Melissa Rumpf":MAILTO:Rumpf@myositis.org
LOCATION:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4/2026-01-24/
END:VEVENT
END:VCALENDAR