BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//The Myositis Association - ECPv6.17.5.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:The Myositis Association
X-ORIGINAL-URL:https://www.myositis.org
X-WR-CALDESC:Events for The Myositis Association
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Los_Angeles
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20250309T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20251102T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20260308T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20261101T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20270314T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20271107T090000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Africa/Lagos
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0100
TZNAME:WAT
DTSTART:20250101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Denver
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20250309T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20251102T080000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20260308T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20261101T080000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20270314T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20271107T080000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Chicago
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20250309T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20251102T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20260308T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20261101T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20270314T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20271107T070000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:Europe/Athens
BEGIN:DAYLIGHT
TZOFFSETFROM:+0200
TZOFFSETTO:+0300
TZNAME:EEST
DTSTART:20250330T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0300
TZOFFSETTO:+0200
TZNAME:EET
DTSTART:20251026T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0200
TZOFFSETTO:+0300
TZNAME:EEST
DTSTART:20260329T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0300
TZOFFSETTO:+0200
TZNAME:EET
DTSTART:20261025T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0200
TZOFFSETTO:+0300
TZNAME:EEST
DTSTART:20270328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0300
TZOFFSETTO:+0200
TZNAME:EET
DTSTART:20271031T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Phoenix
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20250101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T133000
DTEND;TZID=America/New_York:20260520T143000
DTSTAMP:20260506T175027Z
CREATED:20260227T010411Z
LAST-MODIFIED:20260506T175027Z
UID:10003181-1779283800-1779287400@www.myositis.org
SUMMARY:Diagnosis Day: Cafe Chat PM & OM
DESCRIPTION:In honor of Diagnosis Days during Myositis Awareness Month this May\, join us for a special Café Chat focused on Polymyositis & Overlap Myositis (OM). This relaxed\, informal gathering is a space to connect with others who truly understand your myositis journey. \nWe’ll be sharing stories of the day we were diagnosed—the moments\, emotions\, and experiences that shaped our paths—and reflecting on how far we’ve come since then. Family members\, friends\, and loved ones are warmly encouraged to attend\, especially those you wish understood your illness a little better. \nGrab a cup of coffee\, settle in\, and join a supportive conversation rooted in connection\, understanding\, and community. You don’t have to explain IMNM here—we get it. This program will be hosted by TMA Board member Holly Jones. A special thanks to Myositis Awareness Month sponsor argenx for supporting Diagnosis Day IMNM! \nRegister Here
URL:https://www.myositis.org/event/diagnosis-day-cafe-chat-pm-om/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/Cafe-Chat-PM-OM-argenx.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/lT7MKBctS0CBOyKEfJtmFA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T120000
DTEND;TZID=America/New_York:20260520T130000
DTSTAMP:20260506T172654Z
CREATED:20260227T004240Z
LAST-MODIFIED:20260506T172654Z
UID:10003179-1779278400-1779282000@www.myositis.org
SUMMARY:Diagnosis Day: Ask the Expert Polymyositis (PM) and Overlap Myositis (OM)
DESCRIPTION:  \nAs part of Myositis Awareness Month\, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Polymyositis (PM) and Overlap Myositis (OM). This program will feature Chet Oddis\, MD\, a leading myositis specialist\, who will provide expert insights into diagnosis\, disease management\, current treatment approaches\, and emerging research. \nDiagnosis Days were created by TMA to honor the patient journey — recognizing that for many living with myositis\, the path to diagnosis is often complex\, delayed\, and emotionally challenging. These dedicated days shine a light on the importance of awareness\, timely diagnosis\, and continued research to improve outcomes. \nPatients\, care partners\, healthcare professionals\, and community members are encouraged to attend. We also invite you to share this program with family\, friends\, and colleagues to help broaden understanding of PM\, OM\, and the impact of myositis. A special than you to our Myositis Awareness Month sponsor argenx for support Diagnosis Day: PM & OM! \nRegister Here
URL:https://www.myositis.org/event/diagnosis-day-ask-the-expert-polymyositis-pm-and-overlap-myositis-om/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/Ask-the-Expert-PM-OM-1.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_ClCsiGvPQo2ebDdzia7Gqw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260519T120000
DTEND;TZID=America/New_York:20260519T133000
DTSTAMP:20260420T191436Z
CREATED:20260303T174050Z
LAST-MODIFIED:20260420T191436Z
UID:10001633-1779192000-1779197400@www.myositis.org
SUMMARY:Speech & Swallowing in IBM: A Two-Part Symposium Hosted by TMA WomenWithIBM Affinity Group
DESCRIPTION:For many living with Inclusion Body Myositis\, changes in speech and swallowing can be among the most isolating — and least talked about — challenges of the disease. \nJoin us for the second part of this two-part symposium this May (Part 1 will be available on our YouTube Channel by first week in May)\, bringing together leading experts from Johns Hopkins to shed light on the speech and swallowing issues that affect so many in the IBM community. From understanding what’s happening in your body to practical strategies for daily life\, this series is designed to inform\, support\, and connect. \nThis symposium is open to everyone — all are welcome! \nCreated in 2020\, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. \nRegister here.
URL:https://www.myositis.org/event/tma-womenwithibm-affinity-group-meeting-5/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2026/03/WomenWithIBM-May-19-Meeting.jpg
ORGANIZER;CN="Nancy Marx Erickson":MAILTO:WomenwithIBM@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuduyvqz4pEtIqImIBaRa8ourzIqJaF0A2
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260517T150000
DTEND;TZID=America/New_York:20260517T200000
DTSTAMP:20260420T165618Z
CREATED:20260420T165618Z
LAST-MODIFIED:20260420T165618Z
UID:10003428-1779030000-1779048000@www.myositis.org
SUMMARY:C. Potter Memorial Classic In-person Event (Alexandria\, VA)
DESCRIPTION:Please join us for the third annual C Potter Classic with kids and adults softball game\, stadium food/pizza\, tailgating\, beers\, and fun. All in honor of our lovely Carolyn. All proceeds to The Myositis Association.
URL:https://www.myositis.org/event/c-potter-memorial-classic-in-person-event-alexandria-va/
LOCATION:McNaughton Fields\, 5300 Pole Rd\, Alexandra\, 22309\, United States
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/04/Image-12.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260515T170000
DTEND;TZID=America/Los_Angeles:20260515T183000
DTSTAMP:20250731T182943Z
CREATED:20250605T143747Z
LAST-MODIFIED:20250731T182943Z
UID:10001573-1778864400-1778869800@www.myositis.org
SUMMARY:TMA Northern California\, Oregon & Washington IBM Support Group Meeting
DESCRIPTION:Register here! \n\n \nJoin the TMA Northern California\, Oregon & Washington IBM Support Group: Connect\, Learn\, and Find Support\n\nThis group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Northern California\, Oregon & Washington\, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT\, this group offers a supportive space to connect with others who understand the unique challenges of living with IBM. \nWhether you’re newly diagnosed or have been living with IBM for some time\, this group is here to help reduce feelings of isolation\, provide valuable resources\, and foster a sense of belonging. Join us to share experiences\, learn about available support services\, and build connections with others in your community who are navigating the same journey. \nWhen?Third Friday of every month at:5:00 PM PT \nAll are welcome to attend—no matter where you are on your myositis journey. This group is a chance to decrease loneliness\, access important resources\, and find strength in the support of others who truly understand what you’re going through. \n\n \n\n 
URL:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2026-05-15/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas-1.jpg
ORGANIZER;CN="Malati Shinazy":MAILTO:Shinazy@myositis.org
LOCATION:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2026-05-15/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260513T160000
DTEND;TZID=America/New_York:20260513T170000
DTSTAMP:20260505T194928Z
CREATED:20260203T214905Z
LAST-MODIFIED:20260505T194928Z
UID:10003030-1778688000-1778691600@www.myositis.org
SUMMARY:Diagnosis Day: Ask the Expert Dermatomyositis (DM) Edition
DESCRIPTION:In recognition of Myositis Awareness Month and DM Diagnosis Day\, The Myositis Association (TMA) invites you to a special Ask the Expert webinar focused on dermatomyositis (DM). This program will feature Dr. Julie Paik\, Associate Professor of Medicine; Co-Director of the Myositis Center; Director of Clinical Trials at Johns Hopkins\, who will share expert insights on DM\, including diagnosis\, current research\, and treatment considerations. \nThe webinar will be hosted by Kaniah Gunter\, a dedicated TMA volunteer living with DM\, who will guide the discussion and represent the lived experience of patients navigating this rare disease. A special thank you to our Myositis Awareness Month sponsors argenx and Priovant! \nRegister Here \nWhy Diagnosis Days Matter\nTMA created Diagnosis Days during Myositis Awareness Month to honor the often long\, complex\, and emotionally challenging journey to a myositis diagnosis. These days recognize both the resilience of patients and care partners and the critical importance of timely\, accurate diagnosis in improving outcomes and quality of life. We encourage TMA members to invite their family\, friends\, and broader networks to attend\, helping raise awareness of myositis within the wider community. \nThis program is designed for patients\, care partners\, healthcare professionals\, and anyone interested in learning more about DM and the myositis experience.
URL:https://www.myositis.org/event/29385/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/Ask-the-Expert-DM-5.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_7oT8PXpDQwO1F5VBOsbzYg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260513T133000
DTEND;TZID=America/New_York:20260513T143000
DTSTAMP:20260505T194825Z
CREATED:20260203T222701Z
LAST-MODIFIED:20260505T194825Z
UID:10003032-1778679000-1778682600@www.myositis.org
SUMMARY:Diagnosis Day: Cafe Chat Dermatomyositis (DM) Edition
DESCRIPTION:In honor of Diagnosis Days during Myositis Awareness Month this May\, join us for a special Café Chat focused on Dermatomyositis (DM). This relaxed\, informal gathering is a space to connect with others who truly understand the DM journey. \nWe’ll be sharing stories of the day we were diagnosed—the moments\, emotions\, and experiences that shaped our paths—and reflecting on how far we’ve come since then. Family members\, friends\, and loved ones are warmly encouraged to attend\, especially those you wish understood your illness a little better. \nGrab a cup of coffee\, settle in\, and join a supportive conversation rooted in connection\, understanding\, and community. You don’t have to explain DM here—we get it. This program will be hosted by TMA volunteer Krystal Harris. A special thank you to our Myositis Awareness Month sponsors argenx and Priovant! \nRegister Here
URL:https://www.myositis.org/event/diagnosis-day-cafe-chat-dermatomyositis-dm-edition/
CATEGORIES:Commemorative,Community Meetups
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/Cafe-Chat-DM-2.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/zPb9VnJQSOK4TGRMLakgcQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Lagos:20260512T190000
DTEND;TZID=Africa/Lagos:20260512T203000
DTSTAMP:20251228T230743Z
CREATED:20251228T230743Z
LAST-MODIFIED:20251228T230743Z
UID:10002412-1778612400-1778617800@www.myositis.org
SUMMARY:TMA Africa Myositis Support Group Meeting
DESCRIPTION:This group meets monthly on the second Tuesday and is a virtual support network dedicated to individuals living with myositis in Africa and beyond. Founded in 2024 with the help of the TMA Women of Color Affinity Group\, this monthly meeting is designed to provide support\, share resources\, and create meaningful connections among English-speaking members worldwide. \nRegister Here \nWhether you’re newly diagnosed or managing myositis\, the TMA Africa Myositis Support Group offers a safe space to connect with others who truly understand the challenges of living with this rare condition. By sharing experiences and learning from each other\, we can work together to raise awareness\, provide encouragement\, and empower individuals across the continent and around the world.
URL:https://www.myositis.org/event/tma-africa-myositis-support-group-meeting/2026-05-12/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Cynthia Ikediashi":MAILTO:Ikediashi@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZAvd-Chrj0oG9Fs7P7ZNXjq80N1mvnPiA_E
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260512T160000
DTEND;TZID=America/New_York:20260512T180000
DTSTAMP:20251228T231147Z
CREATED:20251105T195356Z
LAST-MODIFIED:20251228T231147Z
UID:10001915-1778601600-1778608800@www.myositis.org
SUMMARY:Hospital of Special Surgery (HSS) New York City Myositis Support Group
DESCRIPTION:The HSS Myositis Support Group is open to people living with myositis\, their families\, and friends. \nIf this is your first time attending the HSS group meeting\, please be sure to contact the group coordinator before the meeting date in order to receive the join link. \nPLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: \nSuzan Fischbein\, LCSW \nSr. Social Work Coordinator II \nemail: fischbeins@hss.edu \nSPONSORED BY \nDepartment of Social Work Programs and The Division of Rheumatology at Hospital for Special Surgery | 535 East 70th Street New York\, NY 10021
URL:https://www.myositis.org/event/hospital-of-special-surgery-hss-new-york-city-myositis-support-group/2026-05-12/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Suzan Fischbein":MAILTO:FischbeinS@HSS.edu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260509T120000
DTEND;TZID=America/New_York:20260509T133000
DTSTAMP:20260410T170928Z
CREATED:20260410T170900Z
LAST-MODIFIED:20260410T170928Z
UID:10002242-1778328000-1778333400@www.myositis.org
SUMMARY:TMA Military Veterans with Myositis Affinity Group Meeting
DESCRIPTION:Founded in 2022\, the TMA Military Veterans with Myositis Affinity Group is a dedicated space for veterans living with myositis to find support\, share experiences\, and engage in advocacy efforts. This group is particularly focused on working towards making Inclusion Body Myositis (IBM) a presumptive condition within the VA\, and provides invaluable resources for navigating disability claims and appeals. \nEvery month\, veterans from all branches of service come together to discuss the unique challenges of living with myositis and to support each other in their journeys. Care partners are also warmly welcomed to participate. Whether you’re seeking help with your claim\, want to get involved in advocacy\, or simply need a place to connect with others who truly understand\, this group is here to support you. For all myositis diagnoses. \nRegister Here \nVisit www.myositis.org/TMAVeterans to learn more!
URL:https://www.myositis.org/event/tma-military-veterans-with-myositis-affinity-group-meeting-2/2026-05-09/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/12/Screenshot-2026-04-10-130534.png
LOCATION:https://us02web.zoom.us/meeting/register/tZItceiurjkuHtKWAxCsms6EtTZ65P-m4NiZ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20260509T120000
DTEND;TZID=America/Denver:20260509T133000
DTSTAMP:20260409T132410Z
CREATED:20260409T132410Z
LAST-MODIFIED:20260409T132410Z
UID:10003298-1778328000-1778333400@www.myositis.org
SUMMARY:TMA Colorado Myositis Support Group Meeting
DESCRIPTION:This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect\, be understood\, and feel less alone — whether you’re seeking support\, offering encouragement\, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being for most participants. Just as powerful\, many people who support others report improvements in their own mental and emotional health. \nEvery voice matters. Sharing experiences\, listening\, and learning from one another strengthens the myositis community and reminds us that none of us has to navigate this journey alone. \nCome for support. Come for connection. Come for community. \nRegister Here \nAbout the Leader \n \nMeet Jim Milani\, a TMA member who was moved by the efforts of the late Marianne Moyer and the TMA Southwest Florida’s success in organizing a Myositis Symposium for Physical and Occupational Therapists for  Myositis Awareness Month. He called Rachel Bromley\, TMA’s Senior Manager of Patient Education\, Support and Advocacy to offer to organize one in his home state of Colorado. Rachel was ecstatic\, as Marianne’s vision had always been for this event to branch out to other TMA groups! One catch though – TMA Colorado had been dormant for quite some time. So she swung for the fences and said “How about reactivating the Colorado group at the same time? You can connect more PTs and OTs that way\, find a few volunteers to possibly help your efforts\, and provide and receive support for myositis along the way!” \nJim replied with one word “SURE!” And so this journey began. \nFor the past 20 years\, Jim has been a Physical Therapist and is Board Certified as a Geriatric Specialist. After several years of misdiagnoses\, he was correctly diagnosed with IBM in late 2023. Despite this\, Jim continues to pursue his love for activity and sports. He is passionate about sharing his personal and professional “fitness forward” philosophy\, helping people understand how to modify and adapt exercises to their functional level. Jim resides in Colorado with his wife\, Laura. He is a proud father of six adult children and has two grandchildren. Jim says his family and faith help him get through each day. While there is much about IBM that he cannot control\, he focuses on what he can: his attitude and effort. #justkeepswimming
URL:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting-2-2/2026-05-09/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Jim Milani":MAILTO:Milani@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMpde2pqjsrGNfydYipCNiyzhwXceHDv1jH
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260509T090000
DTEND;TZID=America/Chicago:20260509T130000
DTSTAMP:20260410T132438Z
CREATED:20260309T074906Z
LAST-MODIFIED:20260410T132438Z
UID:10003254-1778317200-1778331600@www.myositis.org
SUMMARY:Jumpin' Joe's Myositis Marathon (In-person & Virtual Disc Golf Fundraiser)
DESCRIPTION:Join us in supporting a true legend of the disc (Frisbee) golf world — Jumpin’ Joe Feidt — as he leads a fundraiser for The Myositis Association (TMA) on May 9 in Inver Grove Heights\, Minnesota. Whether you register to play the Innova-sponsored PDGA-sanctioned tournament or support virtually through Joe’s fundraising campaign\, your contribution makes a real difference. \nWho is Joe Feidt? Since 1977\, Joe has been Minnesota’s first disc golf mover and shaker\, the founder of major state tournaments and the longtime editor of DiscGolfer magazine. He was honored to be inducted into the World Disc Golf Hall of Fame in 2011 and Minnesota Disc Sports Hall of Fame in 2006. \nBut Joe’s story goes beyond the sport. In 2014\, he was diagnosed with inclusion body myositis (IBM)\, a rare neuromuscular disease that causes progressive muscle weakness. Rather than step away\, Joe has continued playing\, advocating\, and raising awareness for disc golf and IBM. Now living with IBM for over a decade\, he credits staying active — walking\, strength training\, daily movement\, and keeping a positive outlook as keys to maintaining his quality of life. \nWhy support TMA? IBM currently has no approved treatment or cure\, and research funding is critical. By participating or donating through Joe’s campaign\, you’re backing the organization working hardest to change that. \nPlay a round on May 9 or support Joe from wherever you are. Help him reach his goal of $5\,000. Every dollar counts\, and Joe plans to match dollar for dollar up to $500! Thank you!🥏 \nRegistration open!
URL:https://www.myositis.org/event/jjs-myositis-marathon-in-person-virtual-disc-golf-fundraiser/
LOCATION:First Calvary Baptist Church\, 5495 S Robert Trail\, Inver Grove Heights\, MN\, 55077\, United States
CATEGORIES:TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/03/Jumpin-Joe-Fundraiser-QR-Code-2.png
ORGANIZER;CN="Joe Feidt":MAILTO:jfeidt1@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260508T110000
DTEND;TZID=America/New_York:20260508T140000
DTSTAMP:20260504T192628Z
CREATED:20260203T215922Z
LAST-MODIFIED:20260504T192628Z
UID:10003031-1778238000-1778248800@www.myositis.org
SUMMARY:MyoLive! TMA Open House (in-person event & FB livestream)
DESCRIPTION:In celebration of Myositis Awareness Month\, TMA is opening our doors to the myositis community for a special line-up of programs. The day will feature an “Ask the Expert” session along with an informal luncheon and open networking in TMA’s office. Don’t miss your chance to view TMA history\, mingle with other families affected by myositis\, and increase public awareness of myositis!   \nIf you are in the DC/Baltimore area\, please join us for this in-person event. RSVPs are requested by Wednesday\, May 6. \nRegister Now! \nOur guest speaker is Iago Pinal-Fernandez\, MD\, PhD\, a Staff Clinician in the Muscle Disease Unit of the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the National Institutes of Health\, and an Adjunct Assistant Professor in the Department of Neurology at Johns Hopkins University School of Medicine. Dr. Pinal-Fernandez focuses on understanding the pathogenesis of inflammatory muscle diseases and on improving the diagnosis\, prognosis\, and treatment of patients with these conditions. \nSchedule \n\n11:00 Check-in\n11:30 Luncheon\n12:00 Program: Ask the Expert with Dr. Iago Pinal-Fernandez\n1:00 Open House: Special Myositis Awareness Swag\n\nThe educational portion of the Open House will be streamed on a live video broadcast. Advance registration is not necessary for the Facebook livestream. Simply tune in online on May 8 at TMA’s Facebook page. \nThank you to TMA Corporate Advisory Council member Abcuro and to Pharma Fusion for sponsoring our Ask the Expert\, Luncheon\, and Open House. \n \n 
URL:https://www.myositis.org/event/save-the-date-tma-open-house-in-person-event-fb-livestream/
LOCATION:TMA Office\, 6950 Columbia Gateway Drive Suite 370\, Columbia\, MD\, 21046\, United States
CATEGORIES:Community Meetups,Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/Open-House-May-8-2026-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260507T183000
DTEND;TZID=America/New_York:20260507T203000
DTSTAMP:20260105T181121Z
CREATED:20251228T235730Z
LAST-MODIFIED:20260105T181121Z
UID:10001512-1778178600-1778185800@www.myositis.org
SUMMARY:TMA Women Of Color Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy \nFounded in 2019 by Holly Jones and Kaniah Gunter\, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement\, Education\, and Empowerment—our mission is to unite and empower women of color affected by myositis and to advocate for their health and well-being. By providing education\, support\, resources\, and the backing of TMA’s expertise\, we are determined to reduce the disparity gap in myositis outcomes for people of color. As we foster a community of strength\, resiliency\, and inspiration; together\, we will break barriers\, challenge inequalities\, and create a future where every woman\, caregiver\, and loved one affected by myositis\, regardless of their race\, can thrive. \nEach month\, WOC come together for impactful workshops and support meetings\, empowering participants to take what they’ve learned and share awareness about myositis within their communities. Whether you’re looking for guidance\, solidarity\, or the opportunity to advocate for others\, this group offers a space for connection\, education\, and positive change. \nWhen?\nFirst Thursday of each month at:\n6:30pm ET | 5:30pm CT | 4:30pm MT | 3:30pm PT \nJoin us and become part of a movement to raise awareness\, educate others\, and empower women of color to take charge of their myositis journey. Visit our group page for more information. \nRegister Here \n\n       \nAbout the Leaders | Holly Jones & Kaniah Gunter \nIn 2003\, at the age of 19 years old Holly Jones was diagnosed with Polymyositis with Interstitial Lung Disease at a CPK level over 20\,000. In 2014\, her lung disease progressed causing her to develop Pulmonary Hypertension that required her to be on oxygen daily. After six years of being in clinical remission\, the Pulmonary Hypertension progressed into Congestive Heart Failure in October 2020. Living with diseases that attack her muscles\, lungs\, and heart; it has not stopped Holly from accomplishing her life goals. A social media entrepreneur\, Holly also serves on TMA’s Board of Directors\, as well as co-leader for TMA’s Women of Color Affinity Group\, and Support Group Leader for the Houston\, Tx regional support group.  Holly lives in Porter\, TX with her husband and children. \nKaniah Gunter\, a Nutrition Health Coach owner of Unique Guidance Nutritional Health Coaching\, LLC\, was diagnosed with dermatomyositis with NXP-2 positive (anti-MJ) and scleroderma in 2007. Kaniah graduated from The Institute for Integrative Nutrition\, one of the largest nutrition schools in the world. \nRecently she completed her certification as a Community Health Worker. She is a strong advocate for the myositis community. At TMA\, she is a regional support group leader for TMA Virginia\, West Virginia and Northwest Carolina as well as co-leader for TMA’s Women of Color affinity group. She has shared her story in many healthcare publications and social media. She serves as an inspiration for others as she demonstrates healing begins within mind\, body and spirit. Kaniah and her two beautiful children live in Norfolk\, Virginia.
URL:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17-2/2026-05-07/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/12/Updated-WOC-Graphic.png
LOCATION:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17-2/2026-05-07/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260506T200000
DTEND;TZID=America/New_York:20260506T213000
DTSTAMP:20260310T185113Z
CREATED:20250605T143731Z
LAST-MODIFIED:20260310T185113Z
UID:10001335-1778097600-1778103000@www.myositis.org
SUMMARY:TMA Flying Solo Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner \nThe TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone\, are married but your spouse is unable to provide care\, or even find yourself as the caregiver for your spouse\, this group is here to offer understanding and support. \nLiving with myositis can be particularly challenging without a live-in care partner\, but Flying Solo offers a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. \nWhen?\nFirst Wednesday of each month at:\n8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others who “fly solo” like you! \nRegister Here \n\n \nAbout the Leader | Rhonda Rogers \nRhonda Rogers\, diagnosed with Inclusion Body Myositis (IBM)\, is a passionate myositis advocate\, also known as “Myositis Warrior”\, who brings connection\, humor\, and heart to everything she does. She co-leads TMA’s Southern California Support Group and facilitates the TMA Flying Solo Affinity Group for people living with myositis who do not have a live-in care partner. Rhonda also administers the popular Myositis Warrior Facebook public group\, known for its upbeat\, candid\, and often humorous take on the unbelievable realities of life with myositis. Whether leading community groups or raising awareness in her signature Myositis Warrior cape at events like Comic-Con\, Rhonda inspires others to meet life with resilience and a smile. \nIn recognition of her outstanding leadership and support for the myositis community\, Rhonda received the Marianne Moyer Myositis Leader Award at MyoCon 2025\, along with her TMA Southern California co-leader\, Nancy Harber. This award honors TMA volunteers who lead the way by helping others and making a lasting impact.
URL:https://www.myositis.org/event/tma-flying-solo-affinity-group-meeting-23/2026-05-06/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/flyingsolo-169.jpg
ORGANIZER;CN="Rhonda Rogers":MAILTO:Rogers@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqc-GsrTksGt3aRRRGipKTWPzy7-n18ME4#/registration
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260506T133000
DTEND;TZID=America/New_York:20260506T143000
DTSTAMP:20260506T173737Z
CREATED:20260203T223456Z
LAST-MODIFIED:20260506T173737Z
UID:10003033-1778074200-1778077800@www.myositis.org
SUMMARY:Diagnosis Day: Cafe Chat Immune-mediated Necrotizing Myopathy (IMNM) Edition
DESCRIPTION:In honor of Diagnosis Days during Myositis Awareness Month this May\, join us for a special Café Chat focused on immune-mediated necrotizing myopathy (IMNM). This relaxed\, informal gathering is a space to connect with others who truly understand the IMNM journey. \nWe’ll be sharing stories of the day we were diagnosed—the moments\, emotions\, and experiences that shaped our paths—and reflecting on how far we’ve come since then. Family members\, friends\, and loved ones are warmly encouraged to attend\, especially those you wish understood your illness a little better. \nGrab a cup of coffee\, settle in\, and join a supportive conversation rooted in connection\, understanding\, and community. You don’t have to explain IMNM here—we get it. This program will be hosted by TMA Board member Debbie Armstrong. A special thanks to Myositis Awareness Month sponsor argenx. \nRegister Here
URL:https://www.myositis.org/event/diagnosis-day-cafe-chat-immune-mediated-necrotizing-myopathy-imnm-edition/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/01/Cafe-Chat-IMNM-1.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/Pn_OnOBEQSqqTSgR8amFiQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260506T110000
DTEND;TZID=America/New_York:20260506T120000
DTSTAMP:20260504T141427Z
CREATED:20260126T223517Z
LAST-MODIFIED:20260504T141427Z
UID:10003022-1778065200-1778068800@www.myositis.org
SUMMARY:Diagnosis Day: Ask the Expert Immune-Mediated Necrotizing Myopathy (IMNM)
DESCRIPTION:In recognition of Myositis Awareness Month and IMNM Diagnosis Day\, The Myositis Association (TMA) invites you to a special Ask the Expert webinar focused on Immune-Mediated Necrotizing Myopathy (IMNM). This program will feature Dr. Andy Mammen\, Chief of the Muscle Disease Unit at the National Institutes of Health (NIH)\, who will share expert insights on IMNM\, including diagnosis\, current research\, and treatment considerations. \nThe webinar will be hosted by Jim Shea\, a dedicated TMA volunteer living with IMNM\, who will guide the discussion and represent the lived experience of patients navigating this rare disease. Thank you to our Myositis Awareness Month sponsor Argenx. \nRegister Here \nWhy Diagnosis Days Matter\nTMA created Diagnosis Days during Myositis Awareness Month to honor the often long\, complex\, and emotionally challenging journey to a myositis diagnosis. These days recognize both the resilience of patients and care partners and the critical importance of timely\, accurate diagnosis in improving outcomes and quality of life. We encourage TMA members to invite their family\, friends\, and broader networks to attend\, helping raise awareness of myositis within the wider community. \nThis program is designed for patients\, care partners\, healthcare professionals\, and anyone interested in learning more about IMNM and the myositis experience.
URL:https://www.myositis.org/event/diagnosis-day-ask-the-expert-immune-mediated-necrotizing-myopathy-imnm/
CATEGORIES:Commemorative,Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/01/Ask-the-Expert-IMNM.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_wuzeL_SxT8ikcGJeWIgUow
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Athens:20260504T190000
DTEND;TZID=Europe/Athens:20260504T203000
DTSTAMP:20251229T000714Z
CREATED:20251229T000714Z
LAST-MODIFIED:20251229T000714Z
UID:10002568-1777921200-1777926600@www.myositis.org
SUMMARY:Ομάδα Στήριξης Μυοσίτιδας TMA Greece
DESCRIPTION:Γνωρίστε άλλους σαν εσάς\, μάθετε\, μοιραστείτε και συνδεθείτε! Συναντιόμαστε κάθε μήνα την πρώτη Δευτέρα. Εγγραφείτε εδώ
URL:https://www.myositis.org/event/%ce%bf%ce%bc%ce%ac%ce%b4%ce%b1-%cf%83%cf%84%ce%ae%cf%81%ce%b9%ce%be%ce%b7%cf%82-%ce%bc%cf%85%ce%bf%cf%83%ce%af%cf%84%ce%b9%ce%b4%ce%b1%cf%82-tma-greece/2026-05-04/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Maria Dourida":MAILTO:Dourida@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/fBivzMouRQyswoJWjr6tmg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260504T183000
DTEND;TZID=America/New_York:20260504T200000
DTSTAMP:20251228T211316Z
CREATED:20251228T211316Z
LAST-MODIFIED:20251228T211316Z
UID:10002360-1777919400-1777924800@www.myositis.org
SUMMARY:TMA New Jersey Support Group Meeting
DESCRIPTION:This group for all myositis diagnoses meets every other month on the first Monday at 6:30 PM ET | 5:30 PM CT | 4:30 PM MT | 3:30 PM PT. Register here. \nTMA support groups are a place to connect\, be understood\, and feel less alone — whether you’re seeking support\, offering encouragement\, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being for most participants. Just as powerful\, many people who support others report improvements in their own mental and emotional health. \nEvery voice matters. Sharing experiences\, listening\, and learning from one another strengthens the myositis community and reminds us that none of us has to navigate this journey alone. \nCome for support. Come for connection. Come for community. \n 
URL:https://www.myositis.org/event/tma-new-jersey-support-group-meeting/2026-05-04/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Colleen Layton":MAILTO:Layton@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMlceivqz8pEtMGZujZNPuwTKALAAmw3pSr
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260504T120000
DTEND;TZID=America/New_York:20260504T130000
DTSTAMP:20260504T113107Z
CREATED:20260223T160256Z
LAST-MODIFIED:20260504T113107Z
UID:10003177-1777896000-1777899600@www.myositis.org
SUMMARY:Research Briefing from the Global Conference on Myositis (GCOM)
DESCRIPTION:What’s next in myositis treatment—and what are the latest clinical trials revealing? \nTo kick off Myositis Awareness Month\, The Myositis Association (TMA) and the Myositis Clinical Trials Consortium (MCTC) are partnering together to present this special webinar called Research Briefing from the Global Conference on Myositis (GCOM). This leading scientific conference\, held every two years\, convenes March of 2026 in Lisbon\, Portugal\, bringing together experts from around the world to share the newest advances in myositis research and care. \nIn this exclusive briefing hosted by TMA Executive Director Paula Eichenbrenner\, four distinguished physicians will present key takeaways from the conference: \nEdoardo Conticini\, MD\, PhD – Specialist in rheumatology\, PhD in “Translational and Precision Medicine” at the University of Siena. \nIazsmin Bauer Ventura\, MD\, MSc –  Associate Professor of Medicine\, director of the Myositis Program at University of Chicago Medicine  \, presenting on “Novel Treatments in Myositis.” \nJisna Paul\, MBBS\, RhMSUS\, FACR – Clinical Associate Professor of Internal Medicine and Rheumatology and Co-Director of the Myositis Clinic at The Ohio State University Wexner Medical Center (USA)\, co-presenting on “Updates from Recent Clinical Trials in Inflammatory Myopathies.” \nMatthew Burford\, MD – Clinical Assistant Professor of Neurology at The Ohio State University College of Medicine\, co-presenting on “Updates from Recent Clinical Trials in Inflammatory Myopathies.” \nRegister Here
URL:https://www.myositis.org/event/research-briefing-from-the-global-conference-on-myositis-gcom/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/MCTC-4.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_q5WytbIQTjigWp0OenGBVw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260503T150000
DTEND;TZID=America/Chicago:20260503T160000
DTSTAMP:20260107T035206Z
CREATED:20260107T035206Z
LAST-MODIFIED:20260107T035206Z
UID:10002768-1777820400-1777824000@www.myositis.org
SUMMARY:TMA Tennessee Myositis Support Group Meeting
DESCRIPTION:TMA Tennessee meets on the second Sunday of each month at 3:00 PM CT | 4:00 PM ET. Email leader Sharon Hinton at Hinton@myositis.org. Register here.
URL:https://www.myositis.org/event/tma-tennessee-myositis-support-group-meeting-2/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Sharon Hinton":MAILTO:Hinton@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/hf7d579LRD2BQRXNhVrVDA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Phoenix:20260502T130000
DTEND;TZID=America/Phoenix:20260502T150000
DTSTAMP:20250805T195330Z
CREATED:20250805T194445Z
LAST-MODIFIED:20250805T195330Z
UID:10001858-1777726800-1777734000@www.myositis.org
SUMMARY:TMA Arizona & Nevada Myositis Support Group Meeting
DESCRIPTION:Register here. \nJoin us for connection\, support\, and shared experiences with others living with myositis in Arizona and Nevada. This welcoming group meets quarterly—on the first Saturday of February\, May\, August\, and November—via Zoom. Whether you’re newly diagnosed or have been living with myositis for years\, you’re invited to be part of a caring community that understands.
URL:https://www.myositis.org/event/tma-arizona-nevada-myositis-support-group-meeting/2026-05-02/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/08/Nebraska-1.jpg
ORGANIZER;CN="Linda Thomas":MAILTO:Thomas@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZEvce2rqjsjGtWAVyB3D7S3ph9M8SsEzma4
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260502T130000
DTEND;TZID=America/New_York:20260502T143000
DTSTAMP:20260413T162341Z
CREATED:20250801T201217Z
LAST-MODIFIED:20260413T162341Z
UID:10001696-1777726800-1777732200@www.myositis.org
SUMMARY:TMA Worldwide Myositis Support by Diagnosis
DESCRIPTION:TMA’s Worldwide Myositis Support by Diagnosis Group is open to all\, especially those without an active support group in their local area. Formally known as Nationwide\, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis\, and the TMA Care Partner Affinity Group meets in its own room. TMA Worldwide meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT.  \nRegister here
URL:https://www.myositis.org/event/tma-worldwide-myositis-support-by-diagnosis/2026-05-02/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/08/New-Worldwide-2.png
ORGANIZER;CN="Dave Volk":MAILTO:Volk@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMuc-mtqTktHNH_sskpoHflne4zPRAkfS9y
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260502T130000
DTEND;TZID=America/New_York:20260502T143000
DTSTAMP:20250801T204659Z
CREATED:20250605T143744Z
LAST-MODIFIED:20250801T204659Z
UID:10001756-1777726800-1777732200@www.myositis.org
SUMMARY:TMA Care Partner Affinity Group Meeting
DESCRIPTION:Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families.\nJoin the TMA Care Partner Affinity Group: A Space Just for You \nBeing a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress\, anxiety\, or the weight of daily caregiving tasks\, it’s easy to feel overwhelmed and burnt out. That’s why the TMA Care Partner Affinity Group\, founded in 2022\, provides a supportive environment specifically for those who care for someone living with myositis. \nThis group meets in its own dedicated breakout room within TMA’s Worldwide Support Group Meeting on the first Saturday of each month. It’s a safe space where you\, the care partner\, are the focus—not the patient. Here\, you can connect with others who understand your unique challenges\, share coping strategies\, and discuss how to navigate the complex healthcare system. Whether it’s accessing resources like home health aides\, meal delivery\, or transportation assistance—or finding the right words to communicate with your loved one or healthcare team—this group is here to help you through it all. \nTo learn more about accessing breakout rooms\, see ACCESSING ZOOM BREAKOUT ROOMS \nWhen?\nFirst Saturday of every month at:\n1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT \nThe emotional demands of caregiving are real\, and sometimes\, you just need a place to express frustrations\, share victories\, and lean on others who truly understand. The TMA Care Partner Affinity Group is here to provide the support\, resources\, and community you need to continue on your journey. Join us and find the strength to take care of yourself\, too. \nRegister Here \n 
URL:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2026-05-02/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/webp:https://www.myositis.org/wp-content/uploads/2025/06/Care-Partner.webp
ORGANIZER;CN="Rachel Bromley":MAILTO:Rachel@myositis.org
LOCATION:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2026-05-02/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260502T110000
DTEND;TZID=America/New_York:20260502T153000
DTSTAMP:20251229T011527Z
CREATED:20251229T011527Z
LAST-MODIFIED:20251229T011527Z
UID:10002738-1777719600-1777735800@www.myositis.org
SUMMARY:TMA Southwest Florida Myositis Meeting (HYBRID)
DESCRIPTION:This group welcomes all Florida residents (and snowbirds) with myositis and their care partners to attend. This group meets four times a year in hybrid format (in-person and on zoom) every three months on the first Saturday from 11 AM-3 PM ET. \nRegister Here \nTMA support groups are a place to connect\, be understood\, and feel less alone — whether you’re seeking support\, offering encouragement\, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being for most participants. Just as powerful\, many people who support others report improvements in their own mental and emotional health. \nEvery voice matters. Sharing experiences\, listening\, and learning from one another strengthens the myositis community and reminds us that none of us has to navigate this journey alone. \nCome for support. Come for connection. Come for community.
URL:https://www.myositis.org/event/tma-southwest-florida-myositis-meeting-hybrid/2026-05-02/
LOCATION:HealthFit\, 5880 Rand Blvd\, Sarasota\, FL\, 34238\, United States
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Donna DeFant":MAILTO:DeFant@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260501T080000
DTEND;TZID=America/New_York:20260501T150000
DTSTAMP:20260421T193948Z
CREATED:20251021T194332Z
LAST-MODIFIED:20260421T193948Z
UID:10001899-1777622400-1777647600@www.myositis.org
SUMMARY:TMA Open - Tee it up during Myositis Awareness Month\, supporting myositis research and patient well-being!
DESCRIPTION:Chip in for a great cause during Myositis Awareness Month at our TMA Open!\nRegister Now! \nSupport myositis research and patient well-being on Friday\, May 1 at 9:00 AM (check-in 8:00 AM) at Blue Ridge Shadows Golf Course in Front Royal\, VA. \n\nFormat: Captain’s Choice\nPrice: Teams $500 | Individual $150 | Virtual golfers welcome!\nAwards: 1st\, 2nd\, and 3rd Place Teams; Longest Drive; Closest to the Pin\nAll golfers eligible to win high-value prizes: Golf prizes include brand-new Titleist Vokey wedge with 60-degree loft\, Callaway Micro Pro laser rangefinder\, and Shadows Club membership! Additional prizes include a special Avon gift basket\, plus ticket packages from the Washington Wizards (NBA)\, Washington Nationals (MLB)\, DC United (MLS)\, and more.\nSponsorships: Hole Sponsorship with tee box signage for $500 or Tournament Sponsorship including foursome with premium tee box signage\, club house signage\, and digital ad for $1\,500\nRegistrations due: By 4/25/2026 and payments due: By 4/30/2026\nRemit: Register and donate securely online with credit card or PayPal payment\, or via Venmo: @themyositisassociation.\n\nIncludes golf\, cart\, range balls\, lunch plus team and individual prizes. On course games\, 50/50\, and mulligans for sale! \nJoin Us! \n \n \nThank you to our sponsor\, Peake Technologies. Questions? Contact Ike Eichenbrenner: eichenbren@gmail.com | 703-599-4345 \n“Golfweek Magazine” ranked #3 Best Public Course in Virginia!
URL:https://www.myositis.org/event/tma-open-2026/
LOCATION:Blue Ridge Shadows Golf Club\, 456 Shadows Drive\, Front Royal\, VA\, 22630\, United States
CATEGORIES:Commemorative,Community Meetups,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/10/Tee-off-for-TMA-2026-220-x-220-px.png
ORGANIZER;CN="Ike Eichenbrenner":MAILTO:eichenbren@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260501
DTEND;VALUE=DATE:20260601
DTSTAMP:20260508T005750Z
CREATED:20260420T171242Z
LAST-MODIFIED:20260508T005750Z
UID:10003429-1777593600-1780271999@www.myositis.org
SUMMARY:CartoonGems Myositis Awareness Month Fundraiser
DESCRIPTION:Honey Dee – May is “Myositis Awareness” Month and I am here to help get the word out for all of those affected by this rare disease.\n\n\nWatch for merchandise available in the CartoonGems online store to show your support for those affected. During the month of May ALL proceeds from “Myositis Awareness” merchandise will be split between The Myositis Association and Myositis Support and Understanding.\n\n\n\n\n\n\n#cartoongems #HoneyDee #myositis #myositisawareness #raredisease #merchandise #themyositisassociation
URL:https://www.myositis.org/event/cartoongems-myositis-fundraiser/
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2026/04/Rumpf-Fundraising-image.jpg
LOCATION:https://cartoongems-shop.fourthwall.com/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260501
DTEND;VALUE=DATE:20260601
DTSTAMP:20260222T162237Z
CREATED:20260219T182521Z
LAST-MODIFIED:20260222T162237Z
UID:10003166-1777593600-1780271999@www.myositis.org
SUMMARY:Myositis Awareness Month 2026
DESCRIPTION:May is Myositis Awareness Month! It’s a time for the myositis community to raise our collective voices and let the world know what this rare disease is all about. It’s TMA’s mission to support those who live with myositis and their care partners by bringing awareness\, sharing resources and education\, sharing strategies for advocacy\, and building a stronger and more connected myositis community. \nTMA’s special programming is centered on Diagnosis Days for learning and connecting by sub-type of myositis\, plus incredible community-wide events. Plus! Powerful resources to help you tell your story\, support each other\, and expand the public’s understanding of myositis. In doing so\, you can shorten the wait between symptoms and diagnosis. Ultimately\, your efforts will speed up the search for better treatments and a cure. \nWith your help\, we can educate your community…and the world! \nLearn more and donate here.
URL:https://www.myositis.org/event/myositis-awareness-month-2026/2026-05-01/
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-19-132352.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://www.myositis.org/about-myositis/myositis-awareness-month/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260428T190000
DTEND;TZID=America/New_York:20260428T203000
DTSTAMP:20251228T203259Z
CREATED:20251228T203259Z
LAST-MODIFIED:20251228T203259Z
UID:10002181-1777402800-1777408200@www.myositis.org
SUMMARY:TMA Men Managing Myositis Affinity Group Meeting
DESCRIPTION:The TMA Men Managing Myositis Affinity Group is a supportive space for men with any form of myositis to connect\, share experiences\, and find solidarity. Founded in 2022 and led by Eric Rocheleau\, this group offers a unique opportunity to engage in meaningful discussions about the challenges specific to men living with myositis. Each month\, the group meets in breakout rooms tailored to different diagnoses\, allowing for focused conversations and peer support. \nRegister Here
URL:https://www.myositis.org/event/tma-men-managing-myositis-affinity-group-meeting/2026-04-28/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Eric Rocheleau":MAILTO:Rocheleau@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZUrf-6hqDMjEtW5ZdBV4gM4DI7ELYDARp2y
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260426T170000
DTEND;TZID=America/New_York:20260426T183000
DTSTAMP:20260109T001953Z
CREATED:20251228T210016Z
LAST-MODIFIED:20260109T001953Z
UID:10002933-1777222800-1777228200@www.myositis.org
SUMMARY:TMA Rainbow Affinity Group Meeting
DESCRIPTION:TMA is proud to host the Rainbow Affinity Group\, a vital support community designed specifically for LGBTQIA+ individuals living with myositis. Founded in 2022\, this group offers a unique space to connect with others who share both a myositis diagnosis and a commitment to fostering inclusivity and respect within healthcare and beyond. \nRegister Here \nIn each monthly meeting\, you’ll find solidarity\, understanding\, and valuable resources\, all while creating connections within the broader LGBTQIA+ community. Our mission is to ensure that every LGBTQIA+ myositis patient is supported in an environment that is not only affirmative but also empowering. \nWhen?\nFourth Sunday of each month at:\n5pm ET | 4pm CT | 3pm MT | 2pm PT \nWhether you’re looking for guidance on navigating healthcare\, seeking a sense of community\, or simply wanting to connect with others who understand\, TMA’s Rainbow Affinity Group is here for you. Join us and become part of a supportive\, inclusive network where you can truly thrive.
URL:https://www.myositis.org/event/tma-rainbow-affinity-group-meeting/2026-04-26/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Barbara Shaw":MAILTO:Shaw@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuc-ugqT0uH9eg4G3WjxGOC2jccy7kV4wj
END:VEVENT
END:VCALENDAR