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DTSTART;TZID=America/Denver:20310111T120000
DTEND;TZID=America/Denver:20310111T133000
DTSTAMP:20260409T132410Z
CREATED:20260409T132410Z
LAST-MODIFIED:20260409T132410Z
UID:10003412-1925899200-1925904600@www.myositis.org
SUMMARY:TMA Colorado Myositis Support Group Meeting
DESCRIPTION:This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect\, be understood\, and feel less alone — whether you’re seeking support\, offering encouragement\, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being for most participants. Just as powerful\, many people who support others report improvements in their own mental and emotional health. \nEvery voice matters. Sharing experiences\, listening\, and learning from one another strengthens the myositis community and reminds us that none of us has to navigate this journey alone. \nCome for support. Come for connection. Come for community. \nRegister Here \nAbout the Leader \n \nMeet Jim Milani\, a TMA member who was moved by the efforts of the late Marianne Moyer and the TMA Southwest Florida’s success in organizing a Myositis Symposium for Physical and Occupational Therapists for  Myositis Awareness Month. He called Rachel Bromley\, TMA’s Senior Manager of Patient Education\, Support and Advocacy to offer to organize one in his home state of Colorado. Rachel was ecstatic\, as Marianne’s vision had always been for this event to branch out to other TMA groups! One catch though – TMA Colorado had been dormant for quite some time. So she swung for the fences and said “How about reactivating the Colorado group at the same time? You can connect more PTs and OTs that way\, find a few volunteers to possibly help your efforts\, and provide and receive support for myositis along the way!” \nJim replied with one word “SURE!” And so this journey began. \nFor the past 20 years\, Jim has been a Physical Therapist and is Board Certified as a Geriatric Specialist. After several years of misdiagnoses\, he was correctly diagnosed with IBM in late 2023. Despite this\, Jim continues to pursue his love for activity and sports. He is passionate about sharing his personal and professional “fitness forward” philosophy\, helping people understand how to modify and adapt exercises to their functional level. Jim resides in Colorado with his wife\, Laura. He is a proud father of six adult children and has two grandchildren. Jim says his family and faith help him get through each day. While there is much about IBM that he cannot control\, he focuses on what he can: his attitude and effort. #justkeepswimming
URL:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting-2-2/2031-01-11/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Jim Milani":MAILTO:Milani@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMpde2pqjsrGNfydYipCNiyzhwXceHDv1jH
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310111T120000
DTEND;TZID=America/New_York:20310111T133000
DTSTAMP:20260410T170928Z
CREATED:20260410T170900Z
LAST-MODIFIED:20260410T170928Z
UID:10003418-1925899200-1925904600@www.myositis.org
SUMMARY:TMA Military Veterans with Myositis Affinity Group Meeting
DESCRIPTION:Founded in 2022\, the TMA Military Veterans with Myositis Affinity Group is a dedicated space for veterans living with myositis to find support\, share experiences\, and engage in advocacy efforts. This group is particularly focused on working towards making Inclusion Body Myositis (IBM) a presumptive condition within the VA\, and provides invaluable resources for navigating disability claims and appeals. \nEvery month\, veterans from all branches of service come together to discuss the unique challenges of living with myositis and to support each other in their journeys. Care partners are also warmly welcomed to participate. Whether you’re seeking help with your claim\, want to get involved in advocacy\, or simply need a place to connect with others who truly understand\, this group is here to support you. For all myositis diagnoses. \nRegister Here \nVisit www.myositis.org/TMAVeterans to learn more!
URL:https://www.myositis.org/event/tma-military-veterans-with-myositis-affinity-group-meeting-2/2031-01-11/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/12/Screenshot-2026-04-10-130534.png
LOCATION:https://us02web.zoom.us/meeting/register/tZItceiurjkuHtKWAxCsms6EtTZ65P-m4NiZ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20310111T130000
DTEND;TZID=America/Chicago:20310111T150000
DTSTAMP:20260427T181157Z
CREATED:20260410T193203Z
LAST-MODIFIED:20260427T181157Z
UID:10003422-1925902800-1925910000@www.myositis.org
SUMMARY:TMA Nebraska Myositis Support Group Meeting (Hybrid)
DESCRIPTION:TMA Nebraska Myositis Support Group meets quarterly in-person and virtually on the second Saturday from 1-3 pm CT (January\, April\, July\, October) at Zion Lutheran Church\, 14205 Ida St\, Omaha\, NE 68142. \nTo connect virtually\, register here!
URL:https://www.myositis.org/event/tma-nebraska-myositis-support-group-meeting-in-person-10-2/2031-01-11/
LOCATION:Zion Lutheran Church\, 14205 Ida St\, Omaha\, 68142\, United States
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Nebraska.jpg
ORGANIZER;CN="Laura Deardoff":MAILTO:Deardoff@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20310112T150000
DTEND;TZID=America/Chicago:20310112T160000
DTSTAMP:20260709T222550Z
CREATED:20260107T035656Z
LAST-MODIFIED:20260709T222550Z
UID:10003546-1925996400-1926000000@www.myositis.org
SUMMARY:TMA Tennessee Myositis Support Group Meeting
DESCRIPTION:Living with myositis in Tennessee? You don’t have to navigate it alone. TMA’s Tennessee Support Group brings together patients\, caregivers\, and families who understand exactly what you’re going through — because they’re going through it too. Come share your story\, ask questions\, learn from others’ experiences\, and build real connections with people close to home. Whether you’re newly diagnosed or years into your journey\, there’s a seat for you at the table. We’d love to see you there! \nTMA Tennessee meets on the second Sunday of each month at 3:00 PM CT | 4:00 PM ET. Email leader Sharon Hinton at Hinton@myositis.org. \nRegister here. \nAbout the Leader \n \nSharon Hinton has been living with dermatomyositis for about five years. She grew up in the mountains of east Tennessee\, went to school in middle Tennessee\, and after 25 years in Texas\, now lives in West Tennessee. \nShe has retired from her work as a nurse educator and international speaker. She now works from home for PepTalk Productions LLC as a writer and mentor encouraging others to write and share their stories. She says that leading the TMA Tennessee myositis support group online provides a way for her to give back and help others to discover how to live with the challenges a chronic illness presents.
URL:https://www.myositis.org/event/tma-tennessee-myositis-support-group-meeting-2-2/2031-01-12/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/01/Tennessee.png
ORGANIZER;CN="Sharon Hinton":MAILTO:Hinton@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/hf7d579LRD2BQRXNhVrVDA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310114T160000
DTEND;TZID=America/New_York:20310114T180000
DTSTAMP:20251228T231147Z
CREATED:20251105T195356Z
LAST-MODIFIED:20251228T231147Z
UID:10003024-1926172800-1926180000@www.myositis.org
SUMMARY:Hospital of Special Surgery (HSS) New York City Myositis Support Group
DESCRIPTION:The HSS Myositis Support Group is open to people living with myositis\, their families\, and friends. \nIf this is your first time attending the HSS group meeting\, please be sure to contact the group coordinator before the meeting date in order to receive the join link. \nPLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: \nSuzan Fischbein\, LCSW \nSr. Social Work Coordinator II \nemail: fischbeins@hss.edu \nSPONSORED BY \nDepartment of Social Work Programs and The Division of Rheumatology at Hospital for Special Surgery | 535 East 70th Street New York\, NY 10021
URL:https://www.myositis.org/event/hospital-of-special-surgery-hss-new-york-city-myositis-support-group/2031-01-14/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Suzan Fischbein":MAILTO:FischbeinS@HSS.edu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310116T190000
DTEND;TZID=America/New_York:20310116T203000
DTSTAMP:20260213T144653Z
CREATED:20250605T143754Z
LAST-MODIFIED:20260213T144653Z
UID:10003094-1926356400-1926361800@www.myositis.org
SUMMARY:TMA Upstate New York Myositis Support Group Meeting
DESCRIPTION:All are welcome. Register today! \nIt’s not unusual to feel isolated and alone with a disease that no one has ever heard of and doesn’t understand. Being part of a myositis support group is an important way to share these feelings with people who know exactly what you’re going through. Research shows that this sort of social connection can also improve both physical and mental well-being. Even if you are currently in a good place managing your myositis\, consider joining. You can be an inspiration and source of strength for others! \n\n\n\n\n\n\n  \n\n\n\n\n\n 
URL:https://www.myositis.org/event/tma-upstate-new-york-myositis-support-group-meeting-3/2031-01-16/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/04/TMA-Upstate-New-York.png
ORGANIZER;CN="Peter Winkelstein":MAILTO:Winkelstein@myositis.org
LOCATION:https://www.myositis.org/event/tma-upstate-new-york-myositis-support-group-meeting-3/2031-01-16/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310117T170000
DTEND;TZID=America/Los_Angeles:20310117T183000
DTSTAMP:20260713T172806Z
CREATED:20260713T172126Z
LAST-MODIFIED:20260713T172806Z
UID:10003558-1926435600-1926441000@www.myositis.org
SUMMARY:TMA Hawai'i\, Northern California\, Oregon & Washington IBM Support Group Meeting
DESCRIPTION:Register here! \n\n \nJoin the TMA Hawai’i\, Northern California\, Oregon & Washington IBM Support Group: Connect\, Learn\, and Find Support\n\nThis group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Hawai’i\, Northern California\, Oregon & Washington\, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT\, this group offers a supportive space to connect with others who understand the unique challenges of living with IBM. \nWhether you’re newly diagnosed or have been living with IBM for some time\, this group is here to help reduce feelings of isolation\, provide valuable resources\, and foster a sense of belonging. Join us to share experiences\, learn about available support services\, and build connections with others in your community who are navigating the same journey. \nWhen?Third Friday of every month at:5:00 PM PT \nAll are welcome to attend—no matter where you are on your myositis journey. This group is a chance to decrease loneliness\, access important resources\, and find strength in the support of others who truly understand what you’re going through. \n\n \n\n 
URL:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31-2/2031-01-17/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/07/HI-NORCAL-OR-WA.png
ORGANIZER;CN="Malati Shinazy":MAILTO:Shinazy@myositis.org
LOCATION:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31-2/2031-01-17/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20310118T130000
DTEND;TZID=America/Denver:20310118T143000
DTSTAMP:20251229T001853Z
CREATED:20251229T001853Z
LAST-MODIFIED:20251229T001853Z
UID:10003424-1926507600-1926513000@www.myositis.org
SUMMARY:TMA Idaho\, Wyoming and Utah Myositis Support Group Meeting
DESCRIPTION:The TMA ID\, WY & UT Myositis Support Group is a welcoming space for individuals living with myositis in Idaho\, Wyoming and Utah. Meeting every two months on the third Saturday at 1:00 PM ET\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nRegister Here \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nWhen?\nEvery three months at:\n1:00 PM MT \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-idaho-wyoming-and-utah-myositis-support-group-meeting/2031-01-18/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Angie Mendenhall":MAILTO:Mendenhall@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqceGtpjsuGNXJ4vCg7GxB1zYE-MH55KCe
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310121T120000
DTEND;TZID=America/New_York:20310121T133000
DTSTAMP:20260601T155911Z
CREATED:20260601T155911Z
LAST-MODIFIED:20260601T155911Z
UID:10003500-1926763200-1926768600@www.myositis.org
SUMMARY:TMA WomenWithIBM Affinity Group Meeting
DESCRIPTION:Created in 2020\, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. \nRegister here.
URL:https://www.myositis.org/event/tma-womenwithibm-affinity-group/2031-01-21/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/06/Women-with-IBM-Instagram-Post-1.png
ORGANIZER;CN="Nancy Marx Erickson":MAILTO:WomenwithIBM@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuduyvqz4pEtIqImIBaRa8ourzIqJaF0A2
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20310125T100000
DTEND;TZID=America/Chicago:20310125T113000
DTSTAMP:20260523T153959Z
CREATED:20260523T153934Z
LAST-MODIFIED:20260523T153959Z
UID:10003290-1927101600-1927107000@www.myositis.org
SUMMARY:TMA Northeast Texas Myositis Support Group Meeting
DESCRIPTION:Register Here \nAttend TMA Northeast Texas Myositis Support Group: Support for Those Living with Myositis and their Care Partners \nLiving with myositis is easier with friends. TMA’s support and affinity groups offer a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. These sessions are never recorded and camera is optional.  \nWhen?Fourth Saturday of each month (no meeting in December) at:10:00 AM – 11:30 AM CT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others like you! \n\nMessage from the Leader | Mike Fortner \n\n\n\n\n\n\n\n\n\n\n\n\n\n \nRegister Here \n\n\n\n\n\nConnect with TMA!         \n\n\n\n\n\n 
URL:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4-2/2031-01-25/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas.jpg
ORGANIZER;CN="Melissa Rumpf":MAILTO:Rumpf@myositis.org
LOCATION:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4-2/2031-01-25/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310125T103000
DTEND;TZID=America/New_York:20310125T113000
DTSTAMP:20250821T191502Z
CREATED:20250725T165340Z
LAST-MODIFIED:20250821T191502Z
UID:10003667-1927103400-1927107000@www.myositis.org
SUMMARY:TMA Georgia Myositis Support Group Meeting
DESCRIPTION:👉 Register here \nTMA Georgia Myositis Support Group meets every fourth Saturday from 10:30–11:30 AM ET\, except December. \nPeer-led support groups matter at every stage of the journey. Even if you’re currently thriving\, your presence and story can bring hope and reassurance to others who may be facing challenges. At TMA\, we pride ourselves on inspiring hope while walking alongside one another with understanding and compassion. Support groups are also a wonderful place to exchange local resources\, practical tips\, and connections that make daily life a little easier. \n\nMeet Your Co-Leaders \n\nTerri Lockhart\, MD – A retired\, Board-Certified Internal Medicine physician with over 30 years of clinical and administrative experience. Diagnosed with inclusion body myositis in 2020\, she brings a unique perspective as both clinician and patient\, and is passionate about sharing knowledge with others.\nCynthia Marks\, EdD – A former school administrator of 23 years and a Doctor of Education graduate from National Louis University. Cynthia is the primary care partner to her husband Ricky\, who was diagnosed with inclusion body myositis in 2016. She looks forward to supporting other care partners in understanding their roles while also prioritizing self-care.\n\nWe’re deeply grateful to Dr. Lockhart and Dr. Marks for stepping up to serve fellow community members in Georgia with their time\, care\, and leadership. Dr. Lockhart will be the primary contact person for the group\, feel free to reach out to her directly at Lockhart@myositis.org.
URL:https://www.myositis.org/event/tma-georgia-myositis-support-group/2031-01-25/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/07/TMA-Georgia-220-x-220.png
ORGANIZER;CN="Terri Lockhart":MAILTO:Lockhart@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/7M00c-iHRHOrHP6z96d5fQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310201T113000
DTEND;TZID=America/New_York:20310201T150000
DTSTAMP:20260820T174322Z
CREATED:20260820T174257Z
LAST-MODIFIED:20260820T174322Z
UID:10003654-1927711800-1927724400@www.myositis.org
SUMMARY:TMA Southwest Florida Myositis Meeting (HYBRID)
DESCRIPTION:This group welcomes all Florida residents (and snowbirds) with myositis and their care partners to attend. This group meets four times a year in hybrid format (in-person and on zoom) every three months on the first Saturday from 11:30 AM-3 PM ET. \nRegister Here \nTMA support groups are a place to connect\, be understood\, and feel less alone — whether you’re seeking support\, offering encouragement\, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being for most participants. Just as powerful\, many people who support others report improvements in their own mental and emotional health. \nEvery voice matters. Sharing experiences\, listening\, and learning from one another strengthens the myositis community and reminds us that none of us has to navigate this journey alone. \nCome for support. Come for connection. Come for community.
URL:https://www.myositis.org/event/tma-southwest-florida-myositis-meeting-hybrid-3/2031-02-01/
LOCATION:Stonewood Grill & Tavern – North Sarasota\, 5415 University Pkwy\, Sarasota\, 34201\, United States
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Donna DeFant":MAILTO:DeFant@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310201T130000
DTEND;TZID=America/New_York:20310201T143000
DTSTAMP:20250801T204659Z
CREATED:20250605T143744Z
LAST-MODIFIED:20250801T204659Z
UID:10003128-1927717200-1927722600@www.myositis.org
SUMMARY:TMA Care Partner Affinity Group Meeting
DESCRIPTION:Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families.\nJoin the TMA Care Partner Affinity Group: A Space Just for You \nBeing a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress\, anxiety\, or the weight of daily caregiving tasks\, it’s easy to feel overwhelmed and burnt out. That’s why the TMA Care Partner Affinity Group\, founded in 2022\, provides a supportive environment specifically for those who care for someone living with myositis. \nThis group meets in its own dedicated breakout room within TMA’s Worldwide Support Group Meeting on the first Saturday of each month. It’s a safe space where you\, the care partner\, are the focus—not the patient. Here\, you can connect with others who understand your unique challenges\, share coping strategies\, and discuss how to navigate the complex healthcare system. Whether it’s accessing resources like home health aides\, meal delivery\, or transportation assistance—or finding the right words to communicate with your loved one or healthcare team—this group is here to help you through it all. \nTo learn more about accessing breakout rooms\, see ACCESSING ZOOM BREAKOUT ROOMS \nWhen?\nFirst Saturday of every month at:\n1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT \nThe emotional demands of caregiving are real\, and sometimes\, you just need a place to express frustrations\, share victories\, and lean on others who truly understand. The TMA Care Partner Affinity Group is here to provide the support\, resources\, and community you need to continue on your journey. Join us and find the strength to take care of yourself\, too. \nRegister Here \n 
URL:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2031-02-01/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/webp:https://www.myositis.org/wp-content/uploads/2025/06/Care-Partner.webp
ORGANIZER;CN="Rachel Bromley":MAILTO:Rachel@myositis.org
LOCATION:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2031-02-01/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310201T130000
DTEND;TZID=America/New_York:20310201T143000
DTSTAMP:20260413T162341Z
CREATED:20250801T201217Z
LAST-MODIFIED:20260413T162341Z
UID:10003121-1927717200-1927722600@www.myositis.org
SUMMARY:TMA Worldwide Myositis Support by Diagnosis
DESCRIPTION:TMA’s Worldwide Myositis Support by Diagnosis Group is open to all\, especially those without an active support group in their local area. Formally known as Nationwide\, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis\, and the TMA Care Partner Affinity Group meets in its own room. TMA Worldwide meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT.  \nRegister here
URL:https://www.myositis.org/event/tma-worldwide-myositis-support-by-diagnosis/2031-02-01/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/08/New-Worldwide-2.png
ORGANIZER;CN="Dave Volk":MAILTO:Volk@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMuc-mtqTktHNH_sskpoHflne4zPRAkfS9y
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310205T200000
DTEND;TZID=America/New_York:20310205T213000
DTSTAMP:20260310T185113Z
CREATED:20250605T143731Z
LAST-MODIFIED:20260310T185113Z
UID:10003282-1928088000-1928093400@www.myositis.org
SUMMARY:TMA Flying Solo Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner \nThe TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone\, are married but your spouse is unable to provide care\, or even find yourself as the caregiver for your spouse\, this group is here to offer understanding and support. \nLiving with myositis can be particularly challenging without a live-in care partner\, but Flying Solo offers a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. \nWhen?\nFirst Wednesday of each month at:\n8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others who “fly solo” like you! \nRegister Here \n\n \nAbout the Leader | Rhonda Rogers \nRhonda Rogers\, diagnosed with Inclusion Body Myositis (IBM)\, is a passionate myositis advocate\, also known as “Myositis Warrior”\, who brings connection\, humor\, and heart to everything she does. She co-leads TMA’s Southern California Support Group and facilitates the TMA Flying Solo Affinity Group for people living with myositis who do not have a live-in care partner. Rhonda also administers the popular Myositis Warrior Facebook public group\, known for its upbeat\, candid\, and often humorous take on the unbelievable realities of life with myositis. Whether leading community groups or raising awareness in her signature Myositis Warrior cape at events like Comic-Con\, Rhonda inspires others to meet life with resilience and a smile. \nIn recognition of her outstanding leadership and support for the myositis community\, Rhonda received the Marianne Moyer Myositis Leader Award at MyoCon 2025\, along with her TMA Southern California co-leader\, Nancy Harber. This award honors TMA volunteers who lead the way by helping others and making a lasting impact.
URL:https://www.myositis.org/event/tma-flying-solo-affinity-group-meeting-23/2031-02-05/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/flyingsolo-169.jpg
ORGANIZER;CN="Rhonda Rogers":MAILTO:Rogers@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqc-GsrTksGt3aRRRGipKTWPzy7-n18ME4#/registration
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20310208T120000
DTEND;TZID=America/Denver:20310208T133000
DTSTAMP:20260409T132410Z
CREATED:20260409T132410Z
LAST-MODIFIED:20260409T132410Z
UID:10003413-1928318400-1928323800@www.myositis.org
SUMMARY:TMA Colorado Myositis Support Group Meeting
DESCRIPTION:This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect\, be understood\, and feel less alone — whether you’re seeking support\, offering encouragement\, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being for most participants. Just as powerful\, many people who support others report improvements in their own mental and emotional health. \nEvery voice matters. Sharing experiences\, listening\, and learning from one another strengthens the myositis community and reminds us that none of us has to navigate this journey alone. \nCome for support. Come for connection. Come for community. \nRegister Here \nAbout the Leader \n \nMeet Jim Milani\, a TMA member who was moved by the efforts of the late Marianne Moyer and the TMA Southwest Florida’s success in organizing a Myositis Symposium for Physical and Occupational Therapists for  Myositis Awareness Month. He called Rachel Bromley\, TMA’s Senior Manager of Patient Education\, Support and Advocacy to offer to organize one in his home state of Colorado. Rachel was ecstatic\, as Marianne’s vision had always been for this event to branch out to other TMA groups! One catch though – TMA Colorado had been dormant for quite some time. So she swung for the fences and said “How about reactivating the Colorado group at the same time? You can connect more PTs and OTs that way\, find a few volunteers to possibly help your efforts\, and provide and receive support for myositis along the way!” \nJim replied with one word “SURE!” And so this journey began. \nFor the past 20 years\, Jim has been a Physical Therapist and is Board Certified as a Geriatric Specialist. After several years of misdiagnoses\, he was correctly diagnosed with IBM in late 2023. Despite this\, Jim continues to pursue his love for activity and sports. He is passionate about sharing his personal and professional “fitness forward” philosophy\, helping people understand how to modify and adapt exercises to their functional level. Jim resides in Colorado with his wife\, Laura. He is a proud father of six adult children and has two grandchildren. Jim says his family and faith help him get through each day. While there is much about IBM that he cannot control\, he focuses on what he can: his attitude and effort. #justkeepswimming
URL:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting-2-2/2031-02-08/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Jim Milani":MAILTO:Milani@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMpde2pqjsrGNfydYipCNiyzhwXceHDv1jH
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310208T120000
DTEND;TZID=America/New_York:20310208T133000
DTSTAMP:20260410T170928Z
CREATED:20260410T170900Z
LAST-MODIFIED:20260410T170928Z
UID:10003419-1928318400-1928323800@www.myositis.org
SUMMARY:TMA Military Veterans with Myositis Affinity Group Meeting
DESCRIPTION:Founded in 2022\, the TMA Military Veterans with Myositis Affinity Group is a dedicated space for veterans living with myositis to find support\, share experiences\, and engage in advocacy efforts. This group is particularly focused on working towards making Inclusion Body Myositis (IBM) a presumptive condition within the VA\, and provides invaluable resources for navigating disability claims and appeals. \nEvery month\, veterans from all branches of service come together to discuss the unique challenges of living with myositis and to support each other in their journeys. Care partners are also warmly welcomed to participate. Whether you’re seeking help with your claim\, want to get involved in advocacy\, or simply need a place to connect with others who truly understand\, this group is here to support you. For all myositis diagnoses. \nRegister Here \nVisit www.myositis.org/TMAVeterans to learn more!
URL:https://www.myositis.org/event/tma-military-veterans-with-myositis-affinity-group-meeting-2/2031-02-08/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/12/Screenshot-2026-04-10-130534.png
LOCATION:https://us02web.zoom.us/meeting/register/tZItceiurjkuHtKWAxCsms6EtTZ65P-m4NiZ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20310209T150000
DTEND;TZID=America/Chicago:20310209T160000
DTSTAMP:20260709T222550Z
CREATED:20260107T035656Z
LAST-MODIFIED:20260709T222550Z
UID:10003547-1928415600-1928419200@www.myositis.org
SUMMARY:TMA Tennessee Myositis Support Group Meeting
DESCRIPTION:Living with myositis in Tennessee? You don’t have to navigate it alone. TMA’s Tennessee Support Group brings together patients\, caregivers\, and families who understand exactly what you’re going through — because they’re going through it too. Come share your story\, ask questions\, learn from others’ experiences\, and build real connections with people close to home. Whether you’re newly diagnosed or years into your journey\, there’s a seat for you at the table. We’d love to see you there! \nTMA Tennessee meets on the second Sunday of each month at 3:00 PM CT | 4:00 PM ET. Email leader Sharon Hinton at Hinton@myositis.org. \nRegister here. \nAbout the Leader \n \nSharon Hinton has been living with dermatomyositis for about five years. She grew up in the mountains of east Tennessee\, went to school in middle Tennessee\, and after 25 years in Texas\, now lives in West Tennessee. \nShe has retired from her work as a nurse educator and international speaker. She now works from home for PepTalk Productions LLC as a writer and mentor encouraging others to write and share their stories. She says that leading the TMA Tennessee myositis support group online provides a way for her to give back and help others to discover how to live with the challenges a chronic illness presents.
URL:https://www.myositis.org/event/tma-tennessee-myositis-support-group-meeting-2-2/2031-02-09/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/01/Tennessee.png
ORGANIZER;CN="Sharon Hinton":MAILTO:Hinton@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/hf7d579LRD2BQRXNhVrVDA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310211T160000
DTEND;TZID=America/New_York:20310211T180000
DTSTAMP:20251228T231147Z
CREATED:20251105T195356Z
LAST-MODIFIED:20251228T231147Z
UID:10003415-1928592000-1928599200@www.myositis.org
SUMMARY:Hospital of Special Surgery (HSS) New York City Myositis Support Group
DESCRIPTION:The HSS Myositis Support Group is open to people living with myositis\, their families\, and friends. \nIf this is your first time attending the HSS group meeting\, please be sure to contact the group coordinator before the meeting date in order to receive the join link. \nPLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: \nSuzan Fischbein\, LCSW \nSr. Social Work Coordinator II \nemail: fischbeins@hss.edu \nSPONSORED BY \nDepartment of Social Work Programs and The Division of Rheumatology at Hospital for Special Surgery | 535 East 70th Street New York\, NY 10021
URL:https://www.myositis.org/event/hospital-of-special-surgery-hss-new-york-city-myositis-support-group/2031-02-11/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Suzan Fischbein":MAILTO:FischbeinS@HSS.edu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310218T120000
DTEND;TZID=America/New_York:20310218T133000
DTSTAMP:20260601T155911Z
CREATED:20260601T155911Z
LAST-MODIFIED:20260601T155911Z
UID:10003501-1929182400-1929187800@www.myositis.org
SUMMARY:TMA WomenWithIBM Affinity Group Meeting
DESCRIPTION:Created in 2020\, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. \nRegister here.
URL:https://www.myositis.org/event/tma-womenwithibm-affinity-group/2031-02-18/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/06/Women-with-IBM-Instagram-Post-1.png
ORGANIZER;CN="Nancy Marx Erickson":MAILTO:WomenwithIBM@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuduyvqz4pEtIqImIBaRa8ourzIqJaF0A2
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310220T173000
DTEND;TZID=America/New_York:20310220T190000
DTSTAMP:20260610T215708Z
CREATED:20260609T191656Z
LAST-MODIFIED:20260610T215708Z
UID:10003533-1929375000-1929380400@www.myositis.org
SUMMARY:TMA Adelante! Un grupo de apoyo sobre miositis para hispanohablantes
DESCRIPTION:Registrese\n\n \n\nÚnete a TMA Adelante! – Una Comunidad de Habla Hispana Avanzando Juntos \n¡Adelante! es el primer grupo de afinidad de TMA diseñado para personas de habla hispana que viven con miositis y sus cuidadores. Fundado bajo la creencia de que\, a pesar de los desafíos de la enfermedad crónica\, todos podemos seguir avanzando\, este grupo ofrece un espacio de apoyo para hispanohablantes de todo el mundo para conectarse\, compartir experiencias y encontrar fortaleza en la comunidad. \nYa sea que busques orientación\, apoyo o simplemente un lugar para conectarte con otros que entienden tu camino\, TMA Adelante! está aquí para ayudarte. Las reuniones se realizan cada dos meses\, brindando una oportunidad constante para interactuar con otros que comparten el mismo idioma y experiencia. \n¿Cuándo?El tercer jueves de cada dos meses a las:5:00 PM ET | 4:00 PM CT | 3:00 PM MT | 2:00 PM PT \nÚnete a nosotros y sé parte de esta red dinámica y solidaria mientras avanzamos juntos. Esperamos darte la bienvenida a TMA Adelante! Grupo de Afinidad. \n\n \n 
URL:https://www.myositis.org/event/tma-adelante-un-grupo-de-apoyo-sobre-miositis-para-hispanohablantes-20-2-2/2031-02-20/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/06/Adelante-New-Time-June-2026.png
ORGANIZER;CN="Veronica Fatura":MAILTO:Fatura@myositis.org
LOCATION:https://www.myositis.org/event/tma-adelante-un-grupo-de-apoyo-sobre-miositis-para-hispanohablantes-20-2-2/2031-02-20/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20310221T170000
DTEND;TZID=America/Los_Angeles:20310221T183000
DTSTAMP:20260713T172806Z
CREATED:20260713T172126Z
LAST-MODIFIED:20260713T172806Z
UID:10003559-1929459600-1929465000@www.myositis.org
SUMMARY:TMA Hawai'i\, Northern California\, Oregon & Washington IBM Support Group Meeting
DESCRIPTION:Register here! \n\n \nJoin the TMA Hawai’i\, Northern California\, Oregon & Washington IBM Support Group: Connect\, Learn\, and Find Support\n\nThis group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Hawai’i\, Northern California\, Oregon & Washington\, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT\, this group offers a supportive space to connect with others who understand the unique challenges of living with IBM. \nWhether you’re newly diagnosed or have been living with IBM for some time\, this group is here to help reduce feelings of isolation\, provide valuable resources\, and foster a sense of belonging. Join us to share experiences\, learn about available support services\, and build connections with others in your community who are navigating the same journey. \nWhen?Third Friday of every month at:5:00 PM PT \nAll are welcome to attend—no matter where you are on your myositis journey. This group is a chance to decrease loneliness\, access important resources\, and find strength in the support of others who truly understand what you’re going through. \n\n \n\n 
URL:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31-2/2031-02-21/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/07/HI-NORCAL-OR-WA.png
ORGANIZER;CN="Malati Shinazy":MAILTO:Shinazy@myositis.org
LOCATION:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31-2/2031-02-21/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20310222T100000
DTEND;TZID=America/Chicago:20310222T113000
DTSTAMP:20260523T153959Z
CREATED:20260523T153934Z
LAST-MODIFIED:20260523T153959Z
UID:10003291-1929520800-1929526200@www.myositis.org
SUMMARY:TMA Northeast Texas Myositis Support Group Meeting
DESCRIPTION:Register Here \nAttend TMA Northeast Texas Myositis Support Group: Support for Those Living with Myositis and their Care Partners \nLiving with myositis is easier with friends. TMA’s support and affinity groups offer a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. These sessions are never recorded and camera is optional.  \nWhen?Fourth Saturday of each month (no meeting in December) at:10:00 AM – 11:30 AM CT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others like you! \n\nMessage from the Leader | Mike Fortner \n\n\n\n\n\n\n\n\n\n\n\n\n\n \nRegister Here \n\n\n\n\n\nConnect with TMA!         \n\n\n\n\n\n 
URL:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4-2/2031-02-22/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas.jpg
ORGANIZER;CN="Melissa Rumpf":MAILTO:Rumpf@myositis.org
LOCATION:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4-2/2031-02-22/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310222T103000
DTEND;TZID=America/New_York:20310222T113000
DTSTAMP:20250821T191502Z
CREATED:20250725T165340Z
LAST-MODIFIED:20250821T191502Z
UID:10003668-1929522600-1929526200@www.myositis.org
SUMMARY:TMA Georgia Myositis Support Group Meeting
DESCRIPTION:👉 Register here \nTMA Georgia Myositis Support Group meets every fourth Saturday from 10:30–11:30 AM ET\, except December. \nPeer-led support groups matter at every stage of the journey. Even if you’re currently thriving\, your presence and story can bring hope and reassurance to others who may be facing challenges. At TMA\, we pride ourselves on inspiring hope while walking alongside one another with understanding and compassion. Support groups are also a wonderful place to exchange local resources\, practical tips\, and connections that make daily life a little easier. \n\nMeet Your Co-Leaders \n\nTerri Lockhart\, MD – A retired\, Board-Certified Internal Medicine physician with over 30 years of clinical and administrative experience. Diagnosed with inclusion body myositis in 2020\, she brings a unique perspective as both clinician and patient\, and is passionate about sharing knowledge with others.\nCynthia Marks\, EdD – A former school administrator of 23 years and a Doctor of Education graduate from National Louis University. Cynthia is the primary care partner to her husband Ricky\, who was diagnosed with inclusion body myositis in 2016. She looks forward to supporting other care partners in understanding their roles while also prioritizing self-care.\n\nWe’re deeply grateful to Dr. Lockhart and Dr. Marks for stepping up to serve fellow community members in Georgia with their time\, care\, and leadership. Dr. Lockhart will be the primary contact person for the group\, feel free to reach out to her directly at Lockhart@myositis.org.
URL:https://www.myositis.org/event/tma-georgia-myositis-support-group/2031-02-22/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/07/TMA-Georgia-220-x-220.png
ORGANIZER;CN="Terri Lockhart":MAILTO:Lockhart@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/7M00c-iHRHOrHP6z96d5fQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310222T130000
DTEND;TZID=America/New_York:20310222T150000
DTSTAMP:20260811T231109Z
CREATED:20260811T231109Z
LAST-MODIFIED:20260811T231109Z
UID:10003630-1929531600-1929538800@www.myositis.org
SUMMARY:TMA Maryland\, Delaware\, District of Columbia\, Northern Virginia Myositis Support Group Meeting
DESCRIPTION:The TMA MD\, DE\, DC\, and Northern Virginia Myositis Support Group is a welcoming space for individuals living with myositis in the Maryland\, Delaware\, District of Columbia\, and Northern Virginia regions. Meeting every two months on the third Saturday at 1:00 PM ET\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-maryland-delaware-district-of-columbia-northern-virginia-myositis-support-group-meeting-2/2031-02-22/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Angela Hopp":MAILTO:Hopp@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqdeiqqTIsGdz4dsX2WHPMKJ3-dNr-G4BA
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20310301
DTEND;VALUE=DATE:20310302
DTSTAMP:20260305T152231Z
CREATED:20260305T152007Z
LAST-MODIFIED:20260305T152231Z
UID:10003192-1930089600-1930175999@www.myositis.org
SUMMARY:Shine a Light this Autoimmune Awareness Month!
DESCRIPTION:Every March\, the Autoimmune Association leads the charge with Autoimmune Awareness Month — a powerful campaign dedicated to bringing visibility\, understanding\, and hope to communities across the country. TMA is honored to be a proud supporter of this important movement. \nAutoimmune diseases are too often misunderstood\, misdiagnosed\, and overlooked. That ends with awareness. Join TMA\, the Autoimmune Association\, and advocates everywhere as we shine a light\, spark conversations\, and drive real progress toward a better future for all.
URL:https://www.myositis.org/event/shine-a-light-this-autoimmune-awareness-month/2031-03-01/
CATEGORIES:Commemorative
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/Image-11.png
LOCATION:https://autoimmune.org/autoimmune-awareness-month/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310301T130000
DTEND;TZID=America/New_York:20310301T143000
DTSTAMP:20250801T204659Z
CREATED:20250605T143744Z
LAST-MODIFIED:20250801T204659Z
UID:10003539-1930136400-1930141800@www.myositis.org
SUMMARY:TMA Care Partner Affinity Group Meeting
DESCRIPTION:Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families.\nJoin the TMA Care Partner Affinity Group: A Space Just for You \nBeing a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress\, anxiety\, or the weight of daily caregiving tasks\, it’s easy to feel overwhelmed and burnt out. That’s why the TMA Care Partner Affinity Group\, founded in 2022\, provides a supportive environment specifically for those who care for someone living with myositis. \nThis group meets in its own dedicated breakout room within TMA’s Worldwide Support Group Meeting on the first Saturday of each month. It’s a safe space where you\, the care partner\, are the focus—not the patient. Here\, you can connect with others who understand your unique challenges\, share coping strategies\, and discuss how to navigate the complex healthcare system. Whether it’s accessing resources like home health aides\, meal delivery\, or transportation assistance—or finding the right words to communicate with your loved one or healthcare team—this group is here to help you through it all. \nTo learn more about accessing breakout rooms\, see ACCESSING ZOOM BREAKOUT ROOMS \nWhen?\nFirst Saturday of every month at:\n1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT \nThe emotional demands of caregiving are real\, and sometimes\, you just need a place to express frustrations\, share victories\, and lean on others who truly understand. The TMA Care Partner Affinity Group is here to provide the support\, resources\, and community you need to continue on your journey. Join us and find the strength to take care of yourself\, too. \nRegister Here \n 
URL:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2031-03-01/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/webp:https://www.myositis.org/wp-content/uploads/2025/06/Care-Partner.webp
ORGANIZER;CN="Rachel Bromley":MAILTO:Rachel@myositis.org
LOCATION:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2031-03-01/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310301T130000
DTEND;TZID=America/New_York:20310301T143000
DTSTAMP:20260413T162341Z
CREATED:20250801T201217Z
LAST-MODIFIED:20260413T162341Z
UID:10003426-1930136400-1930141800@www.myositis.org
SUMMARY:TMA Worldwide Myositis Support by Diagnosis
DESCRIPTION:TMA’s Worldwide Myositis Support by Diagnosis Group is open to all\, especially those without an active support group in their local area. Formally known as Nationwide\, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis\, and the TMA Care Partner Affinity Group meets in its own room. TMA Worldwide meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT.  \nRegister here
URL:https://www.myositis.org/event/tma-worldwide-myositis-support-by-diagnosis/2031-03-01/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/08/New-Worldwide-2.png
ORGANIZER;CN="Dave Volk":MAILTO:Volk@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMuc-mtqTktHNH_sskpoHflne4zPRAkfS9y
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20310305T200000
DTEND;TZID=America/New_York:20310305T213000
DTSTAMP:20260310T185113Z
CREATED:20250605T143731Z
LAST-MODIFIED:20260310T185113Z
UID:10003283-1930507200-1930512600@www.myositis.org
SUMMARY:TMA Flying Solo Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner \nThe TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone\, are married but your spouse is unable to provide care\, or even find yourself as the caregiver for your spouse\, this group is here to offer understanding and support. \nLiving with myositis can be particularly challenging without a live-in care partner\, but Flying Solo offers a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. \nWhen?\nFirst Wednesday of each month at:\n8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others who “fly solo” like you! \nRegister Here \n\n \nAbout the Leader | Rhonda Rogers \nRhonda Rogers\, diagnosed with Inclusion Body Myositis (IBM)\, is a passionate myositis advocate\, also known as “Myositis Warrior”\, who brings connection\, humor\, and heart to everything she does. She co-leads TMA’s Southern California Support Group and facilitates the TMA Flying Solo Affinity Group for people living with myositis who do not have a live-in care partner. Rhonda also administers the popular Myositis Warrior Facebook public group\, known for its upbeat\, candid\, and often humorous take on the unbelievable realities of life with myositis. Whether leading community groups or raising awareness in her signature Myositis Warrior cape at events like Comic-Con\, Rhonda inspires others to meet life with resilience and a smile. \nIn recognition of her outstanding leadership and support for the myositis community\, Rhonda received the Marianne Moyer Myositis Leader Award at MyoCon 2025\, along with her TMA Southern California co-leader\, Nancy Harber. This award honors TMA volunteers who lead the way by helping others and making a lasting impact.
URL:https://www.myositis.org/event/tma-flying-solo-affinity-group-meeting-23/2031-03-05/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/flyingsolo-169.jpg
ORGANIZER;CN="Rhonda Rogers":MAILTO:Rogers@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqc-GsrTksGt3aRRRGipKTWPzy7-n18ME4#/registration
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BEGIN:VEVENT
DTSTART;TZID=America/Denver:20310308T120000
DTEND;TZID=America/Denver:20310308T133000
DTSTAMP:20260409T132410Z
CREATED:20260409T132410Z
LAST-MODIFIED:20260409T132410Z
UID:10003414-1930737600-1930743000@www.myositis.org
SUMMARY:TMA Colorado Myositis Support Group Meeting
DESCRIPTION:This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect\, be understood\, and feel less alone — whether you’re seeking support\, offering encouragement\, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being for most participants. Just as powerful\, many people who support others report improvements in their own mental and emotional health. \nEvery voice matters. Sharing experiences\, listening\, and learning from one another strengthens the myositis community and reminds us that none of us has to navigate this journey alone. \nCome for support. Come for connection. Come for community. \nRegister Here \nAbout the Leader \n \nMeet Jim Milani\, a TMA member who was moved by the efforts of the late Marianne Moyer and the TMA Southwest Florida’s success in organizing a Myositis Symposium for Physical and Occupational Therapists for  Myositis Awareness Month. He called Rachel Bromley\, TMA’s Senior Manager of Patient Education\, Support and Advocacy to offer to organize one in his home state of Colorado. Rachel was ecstatic\, as Marianne’s vision had always been for this event to branch out to other TMA groups! One catch though – TMA Colorado had been dormant for quite some time. So she swung for the fences and said “How about reactivating the Colorado group at the same time? You can connect more PTs and OTs that way\, find a few volunteers to possibly help your efforts\, and provide and receive support for myositis along the way!” \nJim replied with one word “SURE!” And so this journey began. \nFor the past 20 years\, Jim has been a Physical Therapist and is Board Certified as a Geriatric Specialist. After several years of misdiagnoses\, he was correctly diagnosed with IBM in late 2023. Despite this\, Jim continues to pursue his love for activity and sports. He is passionate about sharing his personal and professional “fitness forward” philosophy\, helping people understand how to modify and adapt exercises to their functional level. Jim resides in Colorado with his wife\, Laura. He is a proud father of six adult children and has two grandchildren. Jim says his family and faith help him get through each day. While there is much about IBM that he cannot control\, he focuses on what he can: his attitude and effort. #justkeepswimming
URL:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting-2-2/2031-03-08/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Jim Milani":MAILTO:Milani@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMpde2pqjsrGNfydYipCNiyzhwXceHDv1jH
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