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DTSTART;TZID=America/New_York:20251122T103000
DTEND;TZID=America/New_York:20251122T113000
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UID:10001389-1763807400-1763811000@www.myositis.org
SUMMARY:TMA Georgia Myositis Support Group Meeting
DESCRIPTION:👉 Register here \nTMA Georgia Myositis Support Group meets every fourth Saturday from 10:30–11:30 AM ET\, except December. \nPeer-led support groups matter at every stage of the journey. Even if you’re currently thriving\, your presence and story can bring hope and reassurance to others who may be facing challenges. At TMA\, we pride ourselves on inspiring hope while walking alongside one another with understanding and compassion. Support groups are also a wonderful place to exchange local resources\, practical tips\, and connections that make daily life a little easier. \n\nMeet Your Co-Leaders \n\nTerri Lockhart\, MD – A retired\, Board-Certified Internal Medicine physician with over 30 years of clinical and administrative experience. Diagnosed with inclusion body myositis in 2020\, she brings a unique perspective as both clinician and patient\, and is passionate about sharing knowledge with others.\nCynthia Marks\, EdD – A former school administrator of 23 years and a Doctor of Education graduate from National Louis University. Cynthia is the primary care partner to her husband Ricky\, who was diagnosed with inclusion body myositis in 2016. She looks forward to supporting other care partners in understanding their roles while also prioritizing self-care.\n\nWe’re deeply grateful to Dr. Lockhart and Dr. Marks for stepping up to serve fellow community members in Georgia with their time\, care\, and leadership. Dr. Lockhart will be the primary contact person for the group\, feel free to reach out to her directly at Lockhart@myositis.org.
URL:https://www.myositis.org/event/tma-georgia-myositis-support-group/2025-11-22/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/07/TMA-Georgia-220-x-220.png
ORGANIZER;CN="Terri Lockhart":MAILTO:Lockhart@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/7M00c-iHRHOrHP6z96d5fQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251122T100000
DTEND;TZID=America/Chicago:20251122T113000
DTSTAMP:20250725T234234Z
CREATED:20250605T143746Z
LAST-MODIFIED:20250725T234234Z
UID:10001448-1763805600-1763811000@www.myositis.org
SUMMARY:TMA Northeast Texas Myositis Support Group Meeting
DESCRIPTION:Register Here \nAttend TMA Northeast Texas Myositis Support Group: Support for Those Living with Myositis and their Care Partners \nLiving with myositis is easier with friends. TMA’s support and affinity groups offer a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. These sessions are never recorded and camera is optional.  \nWhen?Fourth Saturday of each month (no meeting in December) at:10:00 AM – 11:30 AM CT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others like you! \n\nMessage from the Leader | Melissa Rumpf \n\n\n\n\n\n \nHello\, my name is Melissa Rumpf and I was diagnosed with IBM in 2017.  I feel very fortunate to have found TMA early in my diagnosis as they have been instrumental in helping me navigate this disease.   \n\n\n\nI have attended three (3) in-person TMA International Patient Conferences and many zoom conferences and meetings throughout the years (can’t wait for Dallas this year)!  Meeting other myositis patients and being able to share information\, our struggles and our positives with each other has been life changing for me.  I have learned so much from TMA and others weathering the ups and downs of myositis.  \n\n\n\nPrior to medically retiring in 2019\, I was a Communications Supervisor with the Las Vegas Police Department where I spent 28 years helping others.  So being part of TMA and helping others is a strong passion of mine.   \n\n\n\nMy husband is my “Rock” who helps keep me going.  We exercise 3 times weekly to keep my mobility.  My passion is traveling so we take vacations as often as we can – it keeps me going mentally and physically! \n\n\n\n“The question isn’t who is going to let me; it’s who is going to stop me”.  We all must keep up the fight! \n\n\n\nI’m looking forward to meeting you at our TMA Northeast Texas meetings! \n\n\n\nSincerely\, Melissa \nRegister Here \n\n\n\n\n\nConnect with TMA!         \n\n\n\n\n\n 
URL:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4/2025-11-22/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas.jpg
ORGANIZER;CN="Melissa Rumpf":MAILTO:Rumpf@myositis.org
LOCATION:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4/2025-11-22/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251121T170000
DTEND;TZID=America/Los_Angeles:20251121T183000
DTSTAMP:20250731T182943Z
CREATED:20250605T143747Z
LAST-MODIFIED:20250731T182943Z
UID:10001567-1763744400-1763749800@www.myositis.org
SUMMARY:TMA Northern California\, Oregon & Washington IBM Support Group Meeting
DESCRIPTION:Register here! \n\n \nJoin the TMA Northern California\, Oregon & Washington IBM Support Group: Connect\, Learn\, and Find Support\n\nThis group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Northern California\, Oregon & Washington\, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT\, this group offers a supportive space to connect with others who understand the unique challenges of living with IBM. \nWhether you’re newly diagnosed or have been living with IBM for some time\, this group is here to help reduce feelings of isolation\, provide valuable resources\, and foster a sense of belonging. Join us to share experiences\, learn about available support services\, and build connections with others in your community who are navigating the same journey. \nWhen?Third Friday of every month at:5:00 PM PT \nAll are welcome to attend—no matter where you are on your myositis journey. This group is a chance to decrease loneliness\, access important resources\, and find strength in the support of others who truly understand what you’re going through. \n\n \n\n 
URL:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2025-11-21/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas-1.jpg
ORGANIZER;CN="Malati Shinazy":MAILTO:Shinazy@myositis.org
LOCATION:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2025-11-21/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251120T180000
DTEND;TZID=America/New_York:20251120T190000
DTSTAMP:20251030T230852Z
CREATED:20251030T225258Z
LAST-MODIFIED:20251030T230852Z
UID:10001906-1763661600-1763665200@www.myositis.org
SUMMARY:Understanding IVIG in Myositis Care: Insights from Clinical Practice and Research
DESCRIPTION:Register Here \nJoin The Myositis Association for an in-depth discussion on the role of intravenous immunoglobulin (IVIG) in the treatment of myositis. Dr. Prateek Gandiga\, Associate Professor of Medicine at Emory University and Senior Physician at Emory Clinic\, will share his clinical experience and research insights on how IVIG can help manage autoimmune muscle diseases. Learn about treatment considerations\, patient response\, and emerging advances in immunotherapy.This webinar is supported by Octapharma.
URL:https://www.myositis.org/event/understanding-ivig-in-myositis-care-insights-from-clinical-practice-and-research/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/10/Octapharma-Gandiga-Webinar.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_AjOU7pjPTi6bl_5yltk4Kg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251118T120000
DTEND;TZID=America/New_York:20251118T133000
DTSTAMP:20260106T154218Z
CREATED:20250731T233534Z
LAST-MODIFIED:20260106T154218Z
UID:10001627-1763467200-1763472600@www.myositis.org
SUMMARY:TMA WomenwithIBM Affinity Group Meeting
DESCRIPTION:Created in 2020\, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. \n\nFebruary’s meeting will include conversation with Carolyn Sheridan\, MPH\, and Jake Saltonstall\, MPA\, from the National Organization of Rare Diseases (NORD) on state policy and the role of state governments in policy making\, as well as advocacy and community engagement opportunities and Rare Disease Day. \n\nRegister here.
URL:https://www.myositis.org/event/tma-womenwithibm-affinity-group-meeting/2025-11-18/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/07/Women-with-IBM-General-Flyer-2023.png
ORGANIZER;CN="Nancy Marx Erickson":MAILTO:WomenwithIBM@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuduyvqz4pEtIqImIBaRa8ourzIqJaF0A2
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251111T160000
DTEND;TZID=America/New_York:20251111T180000
DTSTAMP:20251105T200131Z
CREATED:20251105T195744Z
LAST-MODIFIED:20251105T200131Z
UID:10001909-1762876800-1762884000@www.myositis.org
SUMMARY:Managing the Holidays by Hospital of Special Surgery (HSS) New York City Myositis Support Group
DESCRIPTION:End of the year holidays can be stressful for many. However\, having a chronic illness can bring increased stress and anxiety.  How to manage expectations\, fatigue\, pain\, and the unpredictable nature of myositis will be the topic of discussion for this meeting. Members who are unable to attend but wish to share their experiences and suggestions can email Suzan at: fischbeins@hss.edu. Looking forward to your joining us! \nThe HSS Myositis Support Group is open to people living with myositis\, their families\, and friends. \nIf this is your first time attending the HSS group meeting\, please be sure to contact the group coordinator before the meeting date in order to receive the join link. \nPLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: \nSuzan Fischbein\, LCSW \nSr. Social Work Coordinator II \nemail: fischbeins@hss.edu \nSPONSORED BY \nDepartment of Social Work Programs and The Division of Rheumatology at Hospital for Special Surgery | 535 East 70th Street New York\, NY 10021
URL:https://www.myositis.org/event/hospital-of-special-surgery-hss-new-york-city-myositis-support-group-2/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/11/Screenshot-2025-11-05-145516.png
ORGANIZER;CN="Suzan Fischbein":MAILTO:FischbeinS@HSS.edu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251111T120000
DTEND;TZID=America/New_York:20251111T130000
DTSTAMP:20251030T223646Z
CREATED:20251030T215848Z
LAST-MODIFIED:20251030T223646Z
UID:10001905-1762862400-1762866000@www.myositis.org
SUMMARY:A Potential New Therapy for Dermatomyositis: Learn About the VALOR Study Results from a Leading Physician
DESCRIPTION:Register Here \nJoin us for an informative webinar on the results of the VALOR study\, which tested an investigational\, once-daily oral medication for adults with dermatomyositis (DM) in the largest DM clinical trial ever conducted. In this 30-minute session\, rheumatologist Dr. Iazsmin Ventura (University of Chicago) will review the study findings and what they could mean for patients. Participants are welcome to submit questions in advance. Thank you to Priovant Therapeutics for sponsoring this webinar!
URL:https://www.myositis.org/event/a-potential-new-therapy-for-dermatomyositis-learn-about-the-valor-study-results-from-a-leading-physician/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/10/Priovant-Valor-Study-Webinar.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_CqOSLmFMSuGhrkZ2wBstTg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251108T120000
DTEND;TZID=America/New_York:20251108T140000
DTSTAMP:20250605T204018Z
CREATED:20250605T143724Z
LAST-MODIFIED:20250605T204018Z
UID:10001126-1762603200-1762610400@www.myositis.org
SUMMARY:TMA North & South Carolina Myositis Support Group Meeting (HYBRID)
DESCRIPTION:Register Here \nJoin the TMA North & South Carolina Myositis Support Group: Connect\, Learn\, and Find Support \nThe TMA North & South Carolina Myositis Support Group offers a hybrid meeting format\, combining both in-person and virtual options\, for individuals living with myositis in the Carolinas. Meeting every three months on the second Saturday at 12:00 PM ET\, this group provides a supportive environment to connect with others\, share experiences\, and access valuable resources. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help reduce isolation\, foster a sense of community\, and offer guidance for navigating the challenges of living with autoimmune diseases like Inclusion Body Myositis (IBM)\, Polymyositis (PM)\, Dermatomyositis (DM)\, Necrotizing Myopathy (NM)\, and more. \nWhen?\nEvery three months on the second Saturday at 12:00 PM ET \nWhere?\nIn-person: Lake Wylie Lutheran Church\n2906 Highway 160 W\, Fort Mill\, SC 29708\nVirtual: Meeting details provided upon registration \nJoin us to connect with others\, gain support\, and empower yourself in your myositis journey. We look forward to seeing you there!
URL:https://www.myositis.org/event/tma-north-south-carolina-myositis-support-group-meeting-hybrid-4/
LOCATION:Lake Wylie Lutheran Church\, 2906 Highway 160 W\, Fort Mill\, SC\, 29708\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20251108T120000
DTEND;TZID=America/Denver:20251108T133000
DTSTAMP:20250605T203917Z
CREATED:20250605T143706Z
LAST-MODIFIED:20250605T203917Z
UID:10001047-1762603200-1762608600@www.myositis.org
SUMMARY:TMA Colorado Myositis Support Group Meeting
DESCRIPTION:TMA Colorado Myositis Support Group has reactivated and meets on the second Saturday of each month at noon Mountain Time! \nMeet Jim Milani\, a TMA member who was moved by the efforts of the late Marianne Moyer and the TMA Southwest Florida’s success in organizing a Myositis Symposium for Physical and Occupational Therapists for  Myositis Awareness Month. He called Rachel Bromley\, TMA’s Senior Manager of Patient Education\, Support and Advocacy to offer to organize one in his home state of Colorado. Rachel was ecstatic\, as Marianne’s vision had always been for this event to branch out to other TMA groups! One catch though – TMA Colorado had been dormant for quite some time. So she swung for the fences and said “How about reactivating the Colorado group at the same time? You can connect more PTs and OTs that way\, find a few volunteers to possibly help your efforts\, and provide and receive support for myositis along the way!” \nJim replied with one word “SURE!” And so this journey began. \nFor the past 20 years\, Jim has been a Physical Therapist and is Board Certified as a Geriatric Specialist. After several years of misdiagnoses\, he was correctly diagnosed with IBM in late 2023. Despite this\, Jim continues to pursue his love for activity and sports. He is passionate about sharing his personal and professional “fitness forward” philosophy\, helping people understand how to modify and adapt exercises to their functional level. Jim resides in Colorado with his wife\, Laura. He is a proud father of six adult children and has two grandchildren. Jim says his family and faith help him get through each day. While there is much about IBM that he cannot control\, he focuses on what he can: his attitude and effort. #justkeepswimming \nAnyone can join his meetings\, Colorado resident or not. The first meeting will be October 12 at noon MT and you can register here! \n 
URL:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting-14/
LOCATION:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting-14/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251106T183000
DTEND;TZID=America/New_York:20251106T203000
DTSTAMP:20250904T194239Z
CREATED:20250605T143743Z
LAST-MODIFIED:20250904T194239Z
UID:10001506-1762453800-1762461000@www.myositis.org
SUMMARY:TMA Women Of Color Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy \nFounded in 2019 by Holly Jones and Kaniah Gunter\, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement\, Education\, and Empowerment—our mission is to unite and empower women of color affected by myositis and to advocate for their health and well-being. By providing education\, support\, resources\, and the backing of TMA’s expertise\, we are determined to reduce the disparity gap in myositis outcomes for people of color. As we foster a community of strength\, resiliency\, and inspiration; together\, we will break barriers\, challenge inequalities\, and create a future where every woman\, caregiver\, and loved one affected by myositis\, regardless of their race\, can thrive. \nEach month\, WOC come together for impactful workshops and support meetings\, empowering participants to take what they’ve learned and share awareness about myositis within their communities. Whether you’re looking for guidance\, solidarity\, or the opportunity to advocate for others\, this group offers a space for connection\, education\, and positive change. \nWhen?\nFirst Thursday of each month at:\n6:30pm ET | 5:30pm CT | 4:30pm MT | 3:30pm PT \nJoin us and become part of a movement to raise awareness\, educate others\, and empower women of color to take charge of their myositis journey. Visit our group page for more information. \nRegister Here \n\n       \nAbout the Leaders | Holly Jones & Kaniah Gunter \nIn 2003\, at the age of 19 years old Holly Jones was diagnosed with Polymyositis with Interstitial Lung Disease at a CPK level over 20\,000. In 2014\, her lung disease progressed causing her to develop Pulmonary Hypertension that required her to be on oxygen daily. After six years of being in clinical remission\, the Pulmonary Hypertension progressed into Congestive Heart Failure in October 2020. Living with diseases that attack her muscles\, lungs\, and heart; it has not stopped Holly from accomplishing her life goals. A social media entrepreneur\, Holly also serves on TMA’s Board of Directors\, as well as co-leader for TMA’s Women of Color Affinity Group\, and Support Group Leader for the Houston\, Tx regional support group.  Holly lives in Porter\, TX with her husband and children. \nKaniah Gunter\, a Nutrition Health Coach owner of Unique Guidance Nutritional Health Coaching\, LLC\, was diagnosed with dermatomyositis with NXP-2 positive (anti-MJ) and scleroderma in 2007. Kaniah graduated from The Institute for Integrative Nutrition\, one of the largest nutrition schools in the world. \nRecently she completed her certification as a Community Health Worker. She is a strong advocate for the myositis community. At TMA\, she is a regional support group leader for TMA Virginia\, West Virginia and Northwest Carolina as well as co-leader for TMA’s Women of Color affinity group. She has shared her story in many healthcare publications and social media. She serves as an inspiration for others as she demonstrates healing begins within mind\, body and spirit. Kaniah and her two beautiful children live in Norfolk\, Virginia.
URL:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17/2025-11-06/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/TMA-WOCAG-WEBSITE-BANNER.jpg
LOCATION:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17/2025-11-06/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251105T200000
DTEND;TZID=America/New_York:20251105T213000
DTSTAMP:20260310T185113Z
CREATED:20250605T143731Z
LAST-MODIFIED:20260310T185113Z
UID:10001329-1762372800-1762378200@www.myositis.org
SUMMARY:TMA Flying Solo Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner \nThe TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone\, are married but your spouse is unable to provide care\, or even find yourself as the caregiver for your spouse\, this group is here to offer understanding and support. \nLiving with myositis can be particularly challenging without a live-in care partner\, but Flying Solo offers a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. \nWhen?\nFirst Wednesday of each month at:\n8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others who “fly solo” like you! \nRegister Here \n\n \nAbout the Leader | Rhonda Rogers \nRhonda Rogers\, diagnosed with Inclusion Body Myositis (IBM)\, is a passionate myositis advocate\, also known as “Myositis Warrior”\, who brings connection\, humor\, and heart to everything she does. She co-leads TMA’s Southern California Support Group and facilitates the TMA Flying Solo Affinity Group for people living with myositis who do not have a live-in care partner. Rhonda also administers the popular Myositis Warrior Facebook public group\, known for its upbeat\, candid\, and often humorous take on the unbelievable realities of life with myositis. Whether leading community groups or raising awareness in her signature Myositis Warrior cape at events like Comic-Con\, Rhonda inspires others to meet life with resilience and a smile. \nIn recognition of her outstanding leadership and support for the myositis community\, Rhonda received the Marianne Moyer Myositis Leader Award at MyoCon 2025\, along with her TMA Southern California co-leader\, Nancy Harber. This award honors TMA volunteers who lead the way by helping others and making a lasting impact.
URL:https://www.myositis.org/event/tma-flying-solo-affinity-group-meeting-23/2025-11-05/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/flyingsolo-169.jpg
ORGANIZER;CN="Rhonda Rogers":MAILTO:Rogers@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqc-GsrTksGt3aRRRGipKTWPzy7-n18ME4#/registration
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251105T120000
DTEND;TZID=America/New_York:20251105T130000
DTSTAMP:20251030T215103Z
CREATED:20251012T043623Z
LAST-MODIFIED:20251030T215103Z
UID:10001896-1762344000-1762347600@www.myositis.org
SUMMARY:Ask the Expert featuring Dr. Suur Biliciler
DESCRIPTION:Register Here \nJoin us for an informative and supportive Ask the Expert webinar featuring Dr. Suur Biliciler\, a specialist in neuromuscular disorders and myositis care. This session will explore key aspects of diagnosis\, treatment options\, and symptom management for individuals affected by myositis. Dr. Biliciler will share her clinical insights and answer audience questions in real time making this an excellent opportunity to learn from an expert and engage directly on topics that matter most to you. Registration is free and open to patients\, caregivers\, and clinicians. Register now to reserve your spot!
URL:https://www.myositis.org/event/ask-the-expert-featuring-dr-suur-biliciler/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/10/ATE-Suur-November-2025.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20251104T180000
DTEND;TZID=Europe/Paris:20251104T190000
DTSTAMP:20251030T213013Z
CREATED:20251012T043100Z
LAST-MODIFIED:20251030T213013Z
UID:10001895-1762279200-1762282800@www.myositis.org
SUMMARY:Demandez à l'expert édition française
DESCRIPTION:Inscrivez-vous ici \nLe 4 novembre à 18 h\, heure d’Europe centrale\, joignez-vous à nous pour une séance dynamique et informative destinée aux personnes francophones touchées par la myosite\, aux proches aidants et aux professionnels. Animée par Fiona Ratkoff\, membre de TMA\, notre experte sera Valérie LeClair\, MD. Elle partagera des stratégies pratiques\, répondra à vos questions et discutera des moyens d’accéder aux soins\, au soutien et aux ressources dans les communautés francophones. Que vous veniez d’obtenir un diagnostic ou que vous naviguiez dans un établissement de soins de longue durée\, cette séance offre un espace accueillant pour acquérir des connaissances et établir des liens avec d’autres personnes qui comprennent le parcours. Q&R en direct inclus. L’inscription est gratuite. Inscrivez-vous dès maintenant pour réserver votre place !
URL:https://www.myositis.org/event/demandez-a-lexpert-edition-francaise/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/10/Ventura-Aug-2025-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251103T183000
DTEND;TZID=America/New_York:20251103T200000
DTSTAMP:20250605T203819Z
CREATED:20250605T143723Z
LAST-MODIFIED:20250605T203819Z
UID:10001122-1762194600-1762200000@www.myositis.org
SUMMARY:TMA New Jersey Myositis Support Group Meeting
DESCRIPTION:Register Here \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nJoin the TMA New Jersey Myositis Support Group: Connect\, Learn\, and Find Support \nThe TMA New Jersey Myositis Support Group provides a welcoming and supportive environment for individuals living with myositis. Meeting every other month at 6:30 PM ET\, this group offers a chance to connect with others who understand the challenges of living with conditions like Inclusion Body Myositis (IBM)\, Polymyositis (PM)\, Dermatomyositis (DM)\, Necrotizing Myopathy (NM)\, and more. Whether you’re newly diagnosed or have been managing myositis for years\, this group is a great place to share experiences\, learn from others\, and access helpful resources. \nThe support group is a place to reduce feelings of isolation\, find strength through shared experiences\, and gain insights into managing daily challenges. Together\, we can build a community that understands and supports each other. \nWhen?\nThe third Monday of every other month at:\n6:30 PM ET \nWhere?\nTMA New Jersey Myositis Support Group (virtual meeting details provided upon registration) \n\n\nAbout the Leader: Colleen Layton\nYou may have seen Colleen Layton on TMA webinars or at our International Annual Patient Conference. A retired nurse who was diagnosed with necrotizing myopathy ten years ago\, Colleen has been a dedicated volunteer for many years. Despite the challenges of her disease\, she remains deeply involved in her passion for horse racing and is excited to share how she has adapted this hobby to her illness. \nColleen and her husband John have two sons and live in New Jersey. With her extensive background in healthcare and personal experience with myositis\, Colleen brings both knowledge and compassion to her leadership of the New Jersey Myositis Support Group. She is thrilled to serve those living with myositis in her community and help others navigate their own journeys with strength and resilience. \nThank you\, Colleen\, for your ongoing commitment to supporting others living with myositis! \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n  \n 
URL:https://www.myositis.org/event/tma-new-jersey-myositis-support-group-meeting-10/
LOCATION:https://www.myositis.org/event/tma-new-jersey-myositis-support-group-meeting-10/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Phoenix:20251101T130000
DTEND;TZID=America/Phoenix:20251101T150000
DTSTAMP:20250805T195330Z
CREATED:20250805T194445Z
LAST-MODIFIED:20250805T195330Z
UID:10001856-1762002000-1762009200@www.myositis.org
SUMMARY:TMA Arizona & Nevada Myositis Support Group Meeting
DESCRIPTION:Register here. \nJoin us for connection\, support\, and shared experiences with others living with myositis in Arizona and Nevada. This welcoming group meets quarterly—on the first Saturday of February\, May\, August\, and November—via Zoom. Whether you’re newly diagnosed or have been living with myositis for years\, you’re invited to be part of a caring community that understands.
URL:https://www.myositis.org/event/tma-arizona-nevada-myositis-support-group-meeting/2025-11-01/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/08/Nebraska-1.jpg
ORGANIZER;CN="Linda Thomas":MAILTO:Thomas@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZEvce2rqjsjGtWAVyB3D7S3ph9M8SsEzma4
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251101T130000
DTEND;TZID=America/New_York:20251101T143000
DTSTAMP:20260413T162341Z
CREATED:20250801T201217Z
LAST-MODIFIED:20260413T162341Z
UID:10001690-1762002000-1762007400@www.myositis.org
SUMMARY:TMA Worldwide Myositis Support by Diagnosis
DESCRIPTION:TMA’s Worldwide Myositis Support by Diagnosis Group is open to all\, especially those without an active support group in their local area. Formally known as Nationwide\, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis\, and the TMA Care Partner Affinity Group meets in its own room. TMA Worldwide meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT.  \nRegister here
URL:https://www.myositis.org/event/tma-worldwide-myositis-support-by-diagnosis/2025-11-01/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/08/New-Worldwide-2.png
ORGANIZER;CN="Dave Volk":MAILTO:Volk@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMuc-mtqTktHNH_sskpoHflne4zPRAkfS9y
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251101T130000
DTEND;TZID=America/New_York:20251101T143000
DTSTAMP:20250801T204659Z
CREATED:20250605T143744Z
LAST-MODIFIED:20250801T204659Z
UID:10001750-1762002000-1762007400@www.myositis.org
SUMMARY:TMA Care Partner Affinity Group Meeting
DESCRIPTION:Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families.\nJoin the TMA Care Partner Affinity Group: A Space Just for You \nBeing a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress\, anxiety\, or the weight of daily caregiving tasks\, it’s easy to feel overwhelmed and burnt out. That’s why the TMA Care Partner Affinity Group\, founded in 2022\, provides a supportive environment specifically for those who care for someone living with myositis. \nThis group meets in its own dedicated breakout room within TMA’s Worldwide Support Group Meeting on the first Saturday of each month. It’s a safe space where you\, the care partner\, are the focus—not the patient. Here\, you can connect with others who understand your unique challenges\, share coping strategies\, and discuss how to navigate the complex healthcare system. Whether it’s accessing resources like home health aides\, meal delivery\, or transportation assistance—or finding the right words to communicate with your loved one or healthcare team—this group is here to help you through it all. \nTo learn more about accessing breakout rooms\, see ACCESSING ZOOM BREAKOUT ROOMS \nWhen?\nFirst Saturday of every month at:\n1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT \nThe emotional demands of caregiving are real\, and sometimes\, you just need a place to express frustrations\, share victories\, and lean on others who truly understand. The TMA Care Partner Affinity Group is here to provide the support\, resources\, and community you need to continue on your journey. Join us and find the strength to take care of yourself\, too. \nRegister Here \n 
URL:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2025-11-01/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/webp:https://www.myositis.org/wp-content/uploads/2025/06/Care-Partner.webp
ORGANIZER;CN="Rachel Bromley":MAILTO:Rachel@myositis.org
LOCATION:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2025-11-01/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251101T110000
DTEND;TZID=America/New_York:20251101T153000
DTSTAMP:20250605T203550Z
CREATED:20250605T143736Z
LAST-MODIFIED:20250605T203550Z
UID:10001177-1761994800-1762011000@www.myositis.org
SUMMARY:TMA Southwest Florida Myositis Support Group Meeting (HYBRID)
DESCRIPTION:REGISTER HERE FOR ZOOM \nTO ATTEND IN PERSON\, EMAIL: \nSWFLKIT@YAHOO.COM \nOur fourth quarter meeting is Saturday\, November 1\, 2025 starting at 11 a.m. and ending around 3:15. All members\, their friends and families are welcome to attend. For reasons you will see below\, REGISTRATION PRIOR TO THE MEETING IS A MUST! The location is the Sarasota HealthFit at 5580 Rand Blvd in Sarasota\, right off I-75 Exit 205\, Clark Road. \nThe meeting will be “hybrid” which means we will have a live meeting where our speaker will be present. For those unable to join us in person\, we welcome you to join us via the zoom link (click above to register for zoom). \nWe will\, as usual\, offer light refreshments in the morning and a Chick-fil-a lunch after Maggie’s presentation. To ensure we have the right amount of food and water\, we need to know who is coming. Please email at the link above to attend in person. \nKIT members who receive the invitation email may also RSVP to our KIT email address. PLEASE do not email Linda or Donna. Just reply to the invitation or use this TMA’s event calendar. See you there!
URL:https://www.myositis.org/event/tma-southwest-florida-myositis-support-group-meeting-hybrid-3/
LOCATION:HealthFit\, 5880 Rand Blvd\, Sarasota\, FL\, 34238\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251025T110000
DTEND;TZID=America/New_York:20251025T130000
DTSTAMP:20251021T195732Z
CREATED:20251021T195732Z
LAST-MODIFIED:20251021T195732Z
UID:10001900-1761390000-1761397200@www.myositis.org
SUMMARY:TMA Michigan IBM Support Group Meeting (IN-PERSON)
DESCRIPTION:Join the TMA Michigan Inclusion Body Myositis (IBM) Support Group for an in-person meeting on Saturday\, October 25\, from 11:00 AM to 1:00 PM at the Grandville Public Library\, 4055 Maple St SW\, Grandville\, MI 49418. Connect with others living with IBM\, share experiences\, and find support within your community. \nAfter the meeting\, those who would like to continue the conversation are invited to join the group for lunch nearby (each person covers their own meal). \nFor more information\, contact Jim Mathews at jamathewa47@gmail.com or 616-638-1281.
URL:https://www.myositis.org/event/tma-michigan-ibm-support-group-meeting-in-person-2/
LOCATION:Grandville Public Library\, 4055 Maple Street SW\, Grandville\, MI\, 49418\, United States
ORGANIZER;CN="Deb Grutter":MAILTO:Grutter@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251025T103000
DTEND;TZID=America/New_York:20251025T113000
DTSTAMP:20250821T191502Z
CREATED:20250725T165340Z
LAST-MODIFIED:20250821T191502Z
UID:10001388-1761388200-1761391800@www.myositis.org
SUMMARY:TMA Georgia Myositis Support Group Meeting
DESCRIPTION:👉 Register here \nTMA Georgia Myositis Support Group meets every fourth Saturday from 10:30–11:30 AM ET\, except December. \nPeer-led support groups matter at every stage of the journey. Even if you’re currently thriving\, your presence and story can bring hope and reassurance to others who may be facing challenges. At TMA\, we pride ourselves on inspiring hope while walking alongside one another with understanding and compassion. Support groups are also a wonderful place to exchange local resources\, practical tips\, and connections that make daily life a little easier. \n\nMeet Your Co-Leaders \n\nTerri Lockhart\, MD – A retired\, Board-Certified Internal Medicine physician with over 30 years of clinical and administrative experience. Diagnosed with inclusion body myositis in 2020\, she brings a unique perspective as both clinician and patient\, and is passionate about sharing knowledge with others.\nCynthia Marks\, EdD – A former school administrator of 23 years and a Doctor of Education graduate from National Louis University. Cynthia is the primary care partner to her husband Ricky\, who was diagnosed with inclusion body myositis in 2016. She looks forward to supporting other care partners in understanding their roles while also prioritizing self-care.\n\nWe’re deeply grateful to Dr. Lockhart and Dr. Marks for stepping up to serve fellow community members in Georgia with their time\, care\, and leadership. Dr. Lockhart will be the primary contact person for the group\, feel free to reach out to her directly at Lockhart@myositis.org.
URL:https://www.myositis.org/event/tma-georgia-myositis-support-group/2025-10-25/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/07/TMA-Georgia-220-x-220.png
ORGANIZER;CN="Terri Lockhart":MAILTO:Lockhart@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/7M00c-iHRHOrHP6z96d5fQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251025T100000
DTEND;TZID=America/Los_Angeles:20251025T113000
DTSTAMP:20251013T173254Z
CREATED:20251013T173254Z
LAST-MODIFIED:20251013T173254Z
UID:10001898-1761386400-1761391800@www.myositis.org
SUMMARY:TMA Southern California Myositis Support Group
DESCRIPTION:Register Here
URL:https://www.myositis.org/event/tma-southern-california-myositis-support-group/
CATEGORIES:Support or Affinity Group Meeting
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251025T100000
DTEND;TZID=America/Chicago:20251025T113000
DTSTAMP:20250725T234234Z
CREATED:20250605T143746Z
LAST-MODIFIED:20250725T234234Z
UID:10001447-1761386400-1761391800@www.myositis.org
SUMMARY:TMA Northeast Texas Myositis Support Group Meeting
DESCRIPTION:Register Here \nAttend TMA Northeast Texas Myositis Support Group: Support for Those Living with Myositis and their Care Partners \nLiving with myositis is easier with friends. TMA’s support and affinity groups offer a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. These sessions are never recorded and camera is optional.  \nWhen?Fourth Saturday of each month (no meeting in December) at:10:00 AM – 11:30 AM CT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others like you! \n\nMessage from the Leader | Melissa Rumpf \n\n\n\n\n\n \nHello\, my name is Melissa Rumpf and I was diagnosed with IBM in 2017.  I feel very fortunate to have found TMA early in my diagnosis as they have been instrumental in helping me navigate this disease.   \n\n\n\nI have attended three (3) in-person TMA International Patient Conferences and many zoom conferences and meetings throughout the years (can’t wait for Dallas this year)!  Meeting other myositis patients and being able to share information\, our struggles and our positives with each other has been life changing for me.  I have learned so much from TMA and others weathering the ups and downs of myositis.  \n\n\n\nPrior to medically retiring in 2019\, I was a Communications Supervisor with the Las Vegas Police Department where I spent 28 years helping others.  So being part of TMA and helping others is a strong passion of mine.   \n\n\n\nMy husband is my “Rock” who helps keep me going.  We exercise 3 times weekly to keep my mobility.  My passion is traveling so we take vacations as often as we can – it keeps me going mentally and physically! \n\n\n\n“The question isn’t who is going to let me; it’s who is going to stop me”.  We all must keep up the fight! \n\n\n\nI’m looking forward to meeting you at our TMA Northeast Texas meetings! \n\n\n\nSincerely\, Melissa \nRegister Here \n\n\n\n\n\nConnect with TMA!         \n\n\n\n\n\n 
URL:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4/2025-10-25/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas.jpg
ORGANIZER;CN="Melissa Rumpf":MAILTO:Rumpf@myositis.org
LOCATION:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4/2025-10-25/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251024T130000
DTEND;TZID=America/Chicago:20251024T170000
DTSTAMP:20250825T214928Z
CREATED:20250825T195225Z
LAST-MODIFIED:20250825T214928Z
UID:10001885-1761310800-1761325200@www.myositis.org
SUMMARY:Myositis Collaborative Groups Summit (in-person)
DESCRIPTION:Please join TMA and Cure JM for the in-person Myositis Collaborative Groups Summit to learn about recent initiatives of IMACS\, iMyoS\, MCTC\, CARRA\, PReS JDM\, and MIHRA. Our aim is to allow members to share information\, learn more about research opportunities\, and enhance national and international collaborations.  \nView details\, agenda\, posters\, and registration.
URL:https://www.myositis.org/event/myositis-collaborative-groups-summit/
LOCATION:The Platform Conference Center\, 320 South Canal Street\, Chicago\, 60606\, United States
CATEGORIES:Clinician Education
ORGANIZER;CN="The Myositis Association":MAILTO:TMA@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251023T180000
DTEND;TZID=America/New_York:20251023T190000
DTSTAMP:20250605T203159Z
CREATED:20250605T143727Z
LAST-MODIFIED:20250605T203159Z
UID:10001136-1761242400-1761246000@www.myositis.org
SUMMARY:TMA VA\, WV\, NC Northeast Myositis Support Group Meeting
DESCRIPTION:Join the TMA VA\, WV\, NC Northeast Myositis Support Group: Connect\, Share\, and Find Strength \nIt’s not unusual to feel isolated and alone with a disease that many people have never heard of or truly understand. Being part of a myositis support group is an important way to share these feelings with others who truly know what you’re going through. Research shows that social connection can not only reduce feelings of isolation but also improve both physical and mental well-being. \nThe TMA VA\, WV\, NC Northeast Myositis Support Group meets on the fourth Thursday of each month at 6:00 PM ET\, offering a space for individuals living with myositis to connect\, share their experiences\, and find support. Whether you’re newly diagnosed or have been managing myositis for years\, this group provides a supportive community where you can learn from others\, gain helpful resources\, and offer encouragement. \nEven if you’re currently managing your myositis well\, consider joining. You can be an inspiration and a source of strength for others who are still navigating the challenges of living with myositis. This group is a reminder that you are not alone. \nWhen?Fourth Thursday of every month at:6:00 PM ET \nWhere?Virtual meeting details provided upon registration \nJoin us to connect\, learn\, and empower yourself and others on the myositis journey. We look forward to welcoming you! \n\nRegister Here
URL:https://www.myositis.org/event/tma-va-wv-nc-northeast-myositis-support-group-meeting-29/
LOCATION:https://www.myositis.org/event/tma-va-wv-nc-northeast-myositis-support-group-meeting-29/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251023T120000
DTEND;TZID=America/New_York:20251023T130000
DTSTAMP:20250903T174247Z
CREATED:20250808T232532Z
LAST-MODIFIED:20250903T174247Z
UID:10001879-1761220800-1761224400@www.myositis.org
SUMMARY:Ask the Expert featuring Elie Naddaf\, MD
DESCRIPTION:Register now to reserve your spot! \n\n\n\n\n\n\n\nJoin us for an exclusive\, interactive session with neurologist Elie Naddaf\, MD\, a Mayo Clinic specialist in neuromuscular diseases and current member of TMA’s Medical Advisory Board. In this edition of our Ask the Expert series—designed to give the myositis community direct access to leading voices in diagnosis\, treatment\, research\, and disease management—you’ll get to submit your questions and gain insights straight from a trusted authority in the field. \nWhether you’re newly diagnosed\, managing for years\, caring for a loved one\, or advocating on behalf of others—this webinar empowers you with reliable\, specialist-backed information. Don’t miss out on this unique chance to connect\, clarify\, and learn.
URL:https://www.myositis.org/event/ask-the-expert-featuring-elie-naddaf-md/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/08/OCT-2025.jpg
LOCATION:https://us02web.zoom.us/webinar/register/WN_BeKVNb7PQ4yUxXsnpt7aNQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251021T120000
DTEND;TZID=America/New_York:20251021T133000
DTSTAMP:20260106T154218Z
CREATED:20250731T233534Z
LAST-MODIFIED:20260106T154218Z
UID:10001626-1761048000-1761053400@www.myositis.org
SUMMARY:TMA WomenwithIBM Affinity Group Meeting
DESCRIPTION:Created in 2020\, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. \n\nFebruary’s meeting will include conversation with Carolyn Sheridan\, MPH\, and Jake Saltonstall\, MPA\, from the National Organization of Rare Diseases (NORD) on state policy and the role of state governments in policy making\, as well as advocacy and community engagement opportunities and Rare Disease Day. \n\nRegister here.
URL:https://www.myositis.org/event/tma-womenwithibm-affinity-group-meeting/2025-10-21/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/07/Women-with-IBM-General-Flyer-2023.png
ORGANIZER;CN="Nancy Marx Erickson":MAILTO:WomenwithIBM@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuduyvqz4pEtIqImIBaRa8ourzIqJaF0A2
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20251018T130000
DTEND;TZID=America/Denver:20251018T150000
DTSTAMP:20251022T021331Z
CREATED:20250605T143719Z
LAST-MODIFIED:20251022T021331Z
UID:10001100-1760792400-1760799600@www.myositis.org
SUMMARY:TMA Idaho\, Wyoming & Utah Myositis Support Group Meeting
DESCRIPTION:Register Here \nJoin the TMA ID\, WY & UT Myositis Support Group: A Community for Myositis Warriors \nThe TMA ID\, WY & UT Myositis Support Group is a welcoming space for individuals living with myositis in the Idaho\, Wyoming and Utah states. Meeting every two months on the third Saturday at 1:00 PM ET\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nWhen?\nThird Saturday of every other month at:\n1:00 PM ET \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-idaho-wyoming-utah-myositis-support-group-meeting-4/
LOCATION:https://www.myositis.org/event/tma-idaho-wyoming-utah-myositis-support-group-meeting-4/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251018T130000
DTEND;TZID=America/New_York:20251018T143000
DTSTAMP:20250605T202952Z
CREATED:20250605T143718Z
LAST-MODIFIED:20250605T202952Z
UID:10001095-1760792400-1760797800@www.myositis.org
SUMMARY:TMA MD\, DE\, DC\, and Northern Virginia Myositis Support Group Meeting
DESCRIPTION:Register Here \nJoin the TMA MD\, DE\, DC\, and Northern Virginia Myositis Support Group: A Community for Myositis Warriors \nThe TMA MD\, DE\, DC\, and Northern Virginia Myositis Support Group is a welcoming space for individuals living with myositis in the Maryland\, Delaware\, District of Columbia\, and Northern Virginia regions. Meeting every two months on the third Saturday at 1:00 PM ET\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nWhen?\nThird Saturday of every other month at:\n1:00 PM ET \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-md-de-dc-and-northern-virginia-myositis-support-group-meeting-6/
LOCATION:https://www.myositis.org/event/tma-md-de-dc-and-northern-virginia-myositis-support-group-meeting-6/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251017T180000
DTEND;TZID=America/Chicago:20251017T210000
DTSTAMP:20250605T202843Z
CREATED:20250605T143753Z
LAST-MODIFIED:20250605T202843Z
UID:10001250-1760724000-1760734800@www.myositis.org
SUMMARY:Second Annual Meredith C. Thomas Trivia Night Fundraiser (in person event)
DESCRIPTION:Registration details coming soon!  \n\n\n\nIn partnership with the Thomas family\, TMA is honored to offer the Meredith C. Thomas Memorial Fellowship\, funding grants for early-career researchers and clinicians focused on learning more about how best to treat antisynthetase syndrome and interstitial lung disease. Meredith Thomas was diagnosed with antisynthetase syndrome and interstitial lung disease and passed away at age 33 in November 2023. In her honor\, her family created Meredith’s Legacy. Learn more and donate now!  \n\n\n\n 
URL:https://www.myositis.org/event/second-annual-meredith-c-thomas-trivia-night-fundraiser-in-person-event/
LOCATION:Arrowhead Golf Club\, 26W151 Butterfield Rd.\, Wheaton\, IL\, 60189\, United States
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251017T170000
DTEND;TZID=America/Los_Angeles:20251017T183000
DTSTAMP:20250731T182943Z
CREATED:20250605T143747Z
LAST-MODIFIED:20250731T182943Z
UID:10001566-1760720400-1760725800@www.myositis.org
SUMMARY:TMA Northern California\, Oregon & Washington IBM Support Group Meeting
DESCRIPTION:Register here! \n\n \nJoin the TMA Northern California\, Oregon & Washington IBM Support Group: Connect\, Learn\, and Find Support\n\nThis group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Northern California\, Oregon & Washington\, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT\, this group offers a supportive space to connect with others who understand the unique challenges of living with IBM. \nWhether you’re newly diagnosed or have been living with IBM for some time\, this group is here to help reduce feelings of isolation\, provide valuable resources\, and foster a sense of belonging. Join us to share experiences\, learn about available support services\, and build connections with others in your community who are navigating the same journey. \nWhen?Third Friday of every month at:5:00 PM PT \nAll are welcome to attend—no matter where you are on your myositis journey. This group is a chance to decrease loneliness\, access important resources\, and find strength in the support of others who truly understand what you’re going through. \n\n \n\n 
URL:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2025-10-17/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas-1.jpg
ORGANIZER;CN="Malati Shinazy":MAILTO:Shinazy@myositis.org
LOCATION:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2025-10-17/
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END:VCALENDAR