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DTSTART;TZID=America/New_York:20250927T103000
DTEND;TZID=America/New_York:20250927T113000
DTSTAMP:20250821T191502Z
CREATED:20250725T165340Z
LAST-MODIFIED:20250821T191502Z
UID:10001387-1758969000-1758972600@www.myositis.org
SUMMARY:TMA Georgia Myositis Support Group Meeting
DESCRIPTION:👉 Register here \nTMA Georgia Myositis Support Group meets every fourth Saturday from 10:30–11:30 AM ET\, except December. \nPeer-led support groups matter at every stage of the journey. Even if you’re currently thriving\, your presence and story can bring hope and reassurance to others who may be facing challenges. At TMA\, we pride ourselves on inspiring hope while walking alongside one another with understanding and compassion. Support groups are also a wonderful place to exchange local resources\, practical tips\, and connections that make daily life a little easier. \n\nMeet Your Co-Leaders \n\nTerri Lockhart\, MD – A retired\, Board-Certified Internal Medicine physician with over 30 years of clinical and administrative experience. Diagnosed with inclusion body myositis in 2020\, she brings a unique perspective as both clinician and patient\, and is passionate about sharing knowledge with others.\nCynthia Marks\, EdD – A former school administrator of 23 years and a Doctor of Education graduate from National Louis University. Cynthia is the primary care partner to her husband Ricky\, who was diagnosed with inclusion body myositis in 2016. She looks forward to supporting other care partners in understanding their roles while also prioritizing self-care.\n\nWe’re deeply grateful to Dr. Lockhart and Dr. Marks for stepping up to serve fellow community members in Georgia with their time\, care\, and leadership. Dr. Lockhart will be the primary contact person for the group\, feel free to reach out to her directly at Lockhart@myositis.org.
URL:https://www.myositis.org/event/tma-georgia-myositis-support-group/2025-09-27/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/07/TMA-Georgia-220-x-220.png
ORGANIZER;CN="Terri Lockhart":MAILTO:Lockhart@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/7M00c-iHRHOrHP6z96d5fQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250927T100000
DTEND;TZID=America/Chicago:20250927T113000
DTSTAMP:20250725T234234Z
CREATED:20250605T143746Z
LAST-MODIFIED:20250725T234234Z
UID:10001446-1758967200-1758972600@www.myositis.org
SUMMARY:TMA Northeast Texas Myositis Support Group Meeting
DESCRIPTION:Register Here \nAttend TMA Northeast Texas Myositis Support Group: Support for Those Living with Myositis and their Care Partners \nLiving with myositis is easier with friends. TMA’s support and affinity groups offer a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. These sessions are never recorded and camera is optional.  \nWhen?Fourth Saturday of each month (no meeting in December) at:10:00 AM – 11:30 AM CT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others like you! \n\nMessage from the Leader | Melissa Rumpf \n\n\n\n\n\n \nHello\, my name is Melissa Rumpf and I was diagnosed with IBM in 2017.  I feel very fortunate to have found TMA early in my diagnosis as they have been instrumental in helping me navigate this disease.   \n\n\n\nI have attended three (3) in-person TMA International Patient Conferences and many zoom conferences and meetings throughout the years (can’t wait for Dallas this year)!  Meeting other myositis patients and being able to share information\, our struggles and our positives with each other has been life changing for me.  I have learned so much from TMA and others weathering the ups and downs of myositis.  \n\n\n\nPrior to medically retiring in 2019\, I was a Communications Supervisor with the Las Vegas Police Department where I spent 28 years helping others.  So being part of TMA and helping others is a strong passion of mine.   \n\n\n\nMy husband is my “Rock” who helps keep me going.  We exercise 3 times weekly to keep my mobility.  My passion is traveling so we take vacations as often as we can – it keeps me going mentally and physically! \n\n\n\n“The question isn’t who is going to let me; it’s who is going to stop me”.  We all must keep up the fight! \n\n\n\nI’m looking forward to meeting you at our TMA Northeast Texas meetings! \n\n\n\nSincerely\, Melissa \nRegister Here \n\n\n\n\n\nConnect with TMA!         \n\n\n\n\n\n 
URL:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4/2025-09-27/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas.jpg
ORGANIZER;CN="Melissa Rumpf":MAILTO:Rumpf@myositis.org
LOCATION:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4/2025-09-27/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250925T183000
DTEND;TZID=America/Chicago:20250925T200000
DTSTAMP:20250829T215349Z
CREATED:20250605T143655Z
LAST-MODIFIED:20250829T215349Z
UID:10000997-1758825000-1758830400@www.myositis.org
SUMMARY:TMA Missouri and Illinois Group Meeting
DESCRIPTION:Register Today \nJoin the TMA Missouri & Illinois Myositis Support Group: A Community for Myositis Warriors \nThe TMA Missouri & Illinois Myositis Support Group is a welcoming space for individuals living with myositis. Meeting every three months on the third Thursday at 6:30 PM CT\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nWhen?\nEvery 3 months on the third Thursday at:\n6:30 PM CT \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://www.myositis.org/event/tma-missouri-and-illinois-group-meeting-4/
CATEGORIES:Support or Affinity Group Meeting
LOCATION:https://www.myositis.org/event/tma-missouri-and-illinois-group-meeting-4/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250925T180000
DTEND;TZID=America/New_York:20250925T190000
DTSTAMP:20250605T200640Z
CREATED:20250605T143727Z
LAST-MODIFIED:20250605T200640Z
UID:10001135-1758823200-1758826800@www.myositis.org
SUMMARY:TMA VA\, WV\, NC Northeast Myositis Support Group Meeting
DESCRIPTION:Join the TMA VA\, WV\, NC Northeast Myositis Support Group: Connect\, Share\, and Find Strength \nIt’s not unusual to feel isolated and alone with a disease that many people have never heard of or truly understand. Being part of a myositis support group is an important way to share these feelings with others who truly know what you’re going through. Research shows that social connection can not only reduce feelings of isolation but also improve both physical and mental well-being. \nThe TMA VA\, WV\, NC Northeast Myositis Support Group meets on the fourth Thursday of each month at 6:00 PM ET\, offering a space for individuals living with myositis to connect\, share their experiences\, and find support. Whether you’re newly diagnosed or have been managing myositis for years\, this group provides a supportive community where you can learn from others\, gain helpful resources\, and offer encouragement. \nEven if you’re currently managing your myositis well\, consider joining. You can be an inspiration and a source of strength for others who are still navigating the challenges of living with myositis. This group is a reminder that you are not alone. \nWhen?Fourth Thursday of every month at:6:00 PM ET \nWhere?Virtual meeting details provided upon registration \nJoin us to connect\, learn\, and empower yourself and others on the myositis journey. We look forward to welcoming you! \n\nRegister Here
URL:https://www.myositis.org/event/tma-va-wv-nc-northeast-myositis-support-group-meeting-28/
LOCATION:https://www.myositis.org/event/tma-va-wv-nc-northeast-myositis-support-group-meeting-28/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250921T200000
DTEND;TZID=America/New_York:20250922T080000
DTSTAMP:20250807T180155Z
CREATED:20250807T174003Z
LAST-MODIFIED:20250807T180155Z
UID:10001877-1758484800-1758528000@www.myositis.org
SUMMARY:World Myositis Day: Illuminations
DESCRIPTION:In recognition of World Myositis Day on September 21\, Myositis Canada has arranged to have Niagara Falls (American and Canadian sides) illuminated in the 4 primary colors of the WMD logo (red\, blue\, yellow\, green). You can view the showing on the falls webcam from 10:00-10:15pm ET: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str \n\n\n\nThe CN Tower in Toronto will also be illuminated that night. You can view the showing on the CN Tower webcam from sunset to sunrise: https://www.cntower.ca/live-views
URL:https://www.myositis.org/event/world-myositis-day-illuminations/
CATEGORIES:Commemorative
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2024/04/World-Myositis-Day.png
ORGANIZER;CN="Myositis Canada":MAILTO:president@myositis.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250921T101500
DTEND;TZID=America/New_York:20250921T113000
DTSTAMP:20250909T140019Z
CREATED:20250826T144500Z
LAST-MODIFIED:20250909T140019Z
UID:10001889-1758449700-1758454200@www.myositis.org
SUMMARY:World Myositis Day Closing Keynote Speaker
DESCRIPTION:10:15 – 11:30am ET (9:15am CT in Dallas) \n“Living Well With Autoimmune Diseases: A Rheumatologist’s Guide for Taking Charge of your Health” Live from MyoCon in Dallas! \nAnyone across the globe can connect at no cost\, thanks to our sponsors AstraZeneca and Cabaletta Bio. \nPresented by: Julius Birnbaum\, MD\, MHS\, Associate Professor\, Division of Rheumatology\, University of Pittsburgh Medical Center; Division Chief of Rheumatology\, UPMC Mercy Hospital \n  Join Closing Keynote on Sept. 21 at 10:15 AM ET (9:15 AM CT)
URL:https://www.myositis.org/event/world-myositis-day-closing-keynote-speaker/
CATEGORIES:Conferences & Summits
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/08/Closing-Keynote-Speaker.jpg
LOCATION:https://www.facebook.com/Myositis/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250921
DTEND;VALUE=DATE:20250922
DTSTAMP:20250605T200544Z
CREATED:20250605T143729Z
LAST-MODIFIED:20250605T200544Z
UID:10001145-1758412800-1758499199@www.myositis.org
SUMMARY:Observing World Myositis Day
DESCRIPTION:How will you observe World Myositis Day? Let us know at TMA@myositis.org!\n\n\n\n\n\n\n\nTMA proudly partners with worldwide patient advocacy organizations to drive myositis awareness on World Myositis Day. The next World Myositis Day is Saturday\, September 21\, 2024. \nWorld Myositis Day was adopted in 2023\, building upon TMA’s efforts to create a National Myositis Awareness Day in the US. \n\n\n\n\nSeptember is an important month for TMA\, which has hosted the International Annual Patient Conference annually in September since 1995. On September 25\, 2006\, the US House of Representatives approved the goals and ideals of a “National Myositis Awareness Day” to be observed on September 21. The proclamation endorsing National Myositis Awareness Day capped a years-long effort by TMA. \nLearn more here. \n\n\n 
URL:https://www.myositis.org/event/observing-world-myositis-day-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250919T170000
DTEND;TZID=America/Los_Angeles:20250919T183000
DTSTAMP:20250731T182943Z
CREATED:20250605T143747Z
LAST-MODIFIED:20250731T182943Z
UID:10001565-1758301200-1758306600@www.myositis.org
SUMMARY:TMA Northern California\, Oregon & Washington IBM Support Group Meeting
DESCRIPTION:Register here! \n\n \nJoin the TMA Northern California\, Oregon & Washington IBM Support Group: Connect\, Learn\, and Find Support\n\nThis group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Northern California\, Oregon & Washington\, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT\, this group offers a supportive space to connect with others who understand the unique challenges of living with IBM. \nWhether you’re newly diagnosed or have been living with IBM for some time\, this group is here to help reduce feelings of isolation\, provide valuable resources\, and foster a sense of belonging. Join us to share experiences\, learn about available support services\, and build connections with others in your community who are navigating the same journey. \nWhen?Third Friday of every month at:5:00 PM PT \nAll are welcome to attend—no matter where you are on your myositis journey. This group is a chance to decrease loneliness\, access important resources\, and find strength in the support of others who truly understand what you’re going through. \n\n \n\n 
URL:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2025-09-19/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas-1.jpg
ORGANIZER;CN="Malati Shinazy":MAILTO:Shinazy@myositis.org
LOCATION:https://www.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31/2025-09-19/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250918T170000
DTEND;TZID=America/New_York:20250918T183000
DTSTAMP:20260106T210540Z
CREATED:20250605T143730Z
LAST-MODIFIED:20260106T210540Z
UID:10001267-1758214800-1758220200@www.myositis.org
SUMMARY:TMA Adelante! Un grupo de apoyo sobre miositis para hispanohablantes
DESCRIPTION:Registrese\n\n \n\nÚnete a TMA Adelante! – Una Comunidad de Habla Hispana Avanzando Juntos \n¡Adelante! es el primer grupo de afinidad de TMA diseñado para personas de habla hispana que viven con miositis y sus cuidadores. Fundado bajo la creencia de que\, a pesar de los desafíos de la enfermedad crónica\, todos podemos seguir avanzando\, este grupo ofrece un espacio de apoyo para hispanohablantes de todo el mundo para conectarse\, compartir experiencias y encontrar fortaleza en la comunidad. \nYa sea que busques orientación\, apoyo o simplemente un lugar para conectarte con otros que entienden tu camino\, TMA Adelante! está aquí para ayudarte. Las reuniones se realizan cada dos meses\, brindando una oportunidad constante para interactuar con otros que comparten el mismo idioma y experiencia. \n¿Cuándo?El tercer jueves de cada dos meses a las:5:00 PM ET | 4:00 PM CT | 3:00 PM MT | 2:00 PM PT \nÚnete a nosotros y sé parte de esta red dinámica y solidaria mientras avanzamos juntos. Esperamos darte la bienvenida a TMA Adelante! Grupo de Afinidad. \n\n \n 
URL:https://www.myositis.org/event/tma-adelante-un-grupo-de-apoyo-sobre-miositis-para-hispanohablantes-20/2025-09-18/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/12/TMA-Adelante-Blue.png
ORGANIZER;CN="Veronica Fatura":MAILTO:Fatura@myositis.org
LOCATION:https://www.myositis.org/event/tma-adelante-un-grupo-de-apoyo-sobre-miositis-para-hispanohablantes-20/2025-09-18/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250918
DTEND;VALUE=DATE:20250922
DTSTAMP:20250917T125844Z
CREATED:20250605T143729Z
LAST-MODIFIED:20250917T125844Z
UID:10001144-1758153600-1758499199@www.myositis.org
SUMMARY:2025 International Annual Patient Conference in Dallas\, TX
DESCRIPTION:Save the Date for TMA’s 2025 International Annual Patient Conference in Dallas\, TX! \nWe’re thrilled to announce that TMA’s 2025 International Annual Patient Conference will take place in Dallas\, Texas\, from September 18-21\, 2025 at the Sheraton Dallas Hotel. Mark your calendars – you won’t want to miss this incredible event\, which will conclude on World Myositis Day\, a celebration you’ll definitely want to be part of! \nRegistration opens April 1\, 2025\, so start planning your trip today! Keep an eye on our monthly newsletter for emerging details\, including the opening of scholarship applications. \nAbout TMA’s Conference:\nSince 1995\, TMA has hosted our International Annual Patient Conference\, bringing together myositis specialists\, expert presenters\, and the myositis community for an unforgettable experience. The conference offers dozens of educational workshops\, research presentations\, content for care partners\, clinical trial information\, and much more – all aimed at empowering you with the knowledge to manage myositis and live your best life. \nBut the conference isn’t just about learning – it’s also about connecting. For many\, the opportunity to meet others who understand what it’s like to live with myositis is life-changing. The chance to share stories\, form lasting friendships\, and find community is one of the key reasons attendees return year after year. \nThe conference will also feature the Heroes In The Fight Awards and Gala\, a special highlight that honors those making a difference in the myositis community. \nOfficial conference hashtag: #IAPC2025 \nThank you to all who attended our 2024 International Annual Patient Conference in Baltimore! If you weren’t able to join us\, recordings of the event are available for purchase here. \nDon’t miss out on this invaluable opportunity to learn\, connect\, and celebrate! Stay tuned for more details and register starting April 1\, 2025. We look forward to seeing you in Dallas!
URL:https://www.myositis.org/event/2025-international-annual-patient-conference-in-dallas-tx/
LOCATION:Sheraton Dallas\, 400 Olive St\, Dallas\, TX\, 75201\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/09/2025-MyoCon-See-You-There-940.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250913T120000
DTEND;TZID=America/Denver:20250913T133000
DTSTAMP:20250605T195949Z
CREATED:20250605T143706Z
LAST-MODIFIED:20250605T195949Z
UID:10001045-1757764800-1757770200@www.myositis.org
SUMMARY:TMA Colorado Myositis Support Group Meeting
DESCRIPTION:TMA Colorado Myositis Support Group has reactivated and meets on the second Saturday of each month at noon Mountain Time! \nMeet Jim Milani\, a TMA member who was moved by the efforts of the late Marianne Moyer and the TMA Southwest Florida’s success in organizing a Myositis Symposium for Physical and Occupational Therapists for  Myositis Awareness Month. He called Rachel Bromley\, TMA’s Senior Manager of Patient Education\, Support and Advocacy to offer to organize one in his home state of Colorado. Rachel was ecstatic\, as Marianne’s vision had always been for this event to branch out to other TMA groups! One catch though – TMA Colorado had been dormant for quite some time. So she swung for the fences and said “How about reactivating the Colorado group at the same time? You can connect more PTs and OTs that way\, find a few volunteers to possibly help your efforts\, and provide and receive support for myositis along the way!” \nJim replied with one word “SURE!” And so this journey began. \nFor the past 20 years\, Jim has been a Physical Therapist and is Board Certified as a Geriatric Specialist. After several years of misdiagnoses\, he was correctly diagnosed with IBM in late 2023. Despite this\, Jim continues to pursue his love for activity and sports. He is passionate about sharing his personal and professional “fitness forward” philosophy\, helping people understand how to modify and adapt exercises to their functional level. Jim resides in Colorado with his wife\, Laura. He is a proud father of six adult children and has two grandchildren. Jim says his family and faith help him get through each day. While there is much about IBM that he cannot control\, he focuses on what he can: his attitude and effort. #justkeepswimming \nAnyone can join his meetings\, Colorado resident or not. The first meeting will be October 12 at noon MT and you can register here! \n 
URL:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting-12/
LOCATION:https://www.myositis.org/event/tma-colorado-myositis-support-group-meeting-12/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250910
DTEND;VALUE=DATE:20250911
DTSTAMP:20250819T154520Z
CREATED:20250605T143730Z
LAST-MODIFIED:20250819T154520Z
UID:10001147-1757462400-1757548799@www.myositis.org
SUMMARY:Interstitial Lung Disease (ILD Day)
DESCRIPTION:TMA is partnering with eleven leading health advocacy organizations to present the fifth annual ILD Day\, taking place on Wednesday\, Sept. 10. The national awareness day aims to educate the public about interstitial lung disease (ILD)\, a group of over 200 debilitating and progressive lung conditions that affect more than 250\,000 people across the United States. \nThe centerpiece of ILD Day is a free\, live webinar\, “Genetics and Beyond: Exploring Interstitial Lung Disease in Families and Individuals.” \nThis interactive event will bring together medical experts\, patients\, and advocates to explore the genetic and familial aspects of ILD. Attendees will gain insight into current research\, diagnostic advances and how ILD affects individuals and their loved ones.’ \nRegister \n  \n  \n  \n  \n  \n 
URL:https://www.myositis.org/event/interstitial-lung-disease-ild-day-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250910
DTEND;VALUE=DATE:20250911
DTSTAMP:20250807T180338Z
CREATED:20250605T143729Z
LAST-MODIFIED:20250807T180338Z
UID:10001146-1757462400-1757548799@www.myositis.org
SUMMARY:Interstitial Lung Disease (ILD Day)
DESCRIPTION:TMA Supports ILD Day: Raise Awareness and Learn More About Interstitial Lung Disease \nMark your calendars for ILD Day on Wednesday\, September 10! Hosted annually during Pulmonary Fibrosis Awareness Month in September\, ILD Day is a crucial opportunity to raise awareness about Interstitial Lung Disease (ILD)\, a condition that significantly impacts many within the myositis community. \nILD is a condition where inflammation and scarring damage the tiny air sacs in the lungs\, making it increasingly difficult to breathe and get enough oxygen into the bloodstream. Common symptoms include shortness of breath\, persistent dry cough\, fatigue\, weakness\, chest discomfort\, “clubbing” of the fingertips\, loss of appetite\, and unexplained weight loss. \nBy participating in ILD Day\, you can help bring attention to this devastating condition and support efforts to improve diagnosis\, treatment\, and overall awareness of ILD in the myositis community. \nFor more information and resources\, visit ILD Day. \nTMA proudly supports ILD Day and stands with those affected by Interstitial Lung Disease. Let’s raise awareness together! \n  \n  \n  \n  \n 
URL:https://www.myositis.org/event/interstitial-lung-disease-ild-day-2/
CATEGORIES:Commemorative
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250909T143000
DTEND;TZID=America/New_York:20250909T150000
DTSTAMP:20250825T213227Z
CREATED:20250825T212609Z
LAST-MODIFIED:20250825T213227Z
UID:10001886-1757428200-1757430000@www.myositis.org
SUMMARY:Inclusion Body Myositis: What Your Patients May Not Tell You
DESCRIPTION:This 15-minute non-accredited educational activity is designed to provide clinicians with a concise yet impactful overview of how inclusion body myositis (IBM) affects patients’ quality of life. The session explores how the progressive physical limitations\, such as difficulty with mobility\, hand function\, and swallowing lead to loss of independence and increased risk of falls and malnutrition for the patients. The emotional toll—including depression\, frustration\, and social isolation—will also be discussed\, along with the burden experienced by caregivers. By highlighting real-world experiences\, this activity emphasizes the importance of functional assessments\, communication strategies\, and supportive care planning in IBM management. Clinicians will gain insights into recognizing the broader implications of this slowly progressive disease\, equipping them to better address patients’ needs\, promote shared decision-making\, and support long-term quality of life in this underserved neuromuscular population. Ideal for neurologists seeking a quick\, practical update. \nFaculty:\nRohit Aggarwal\, MD\, MS\nProfessor of Medicine\nCo-Director\, UPMC Myositis Center\nProgram Director\, UPMC Myositis Fellowship Program\nUniversity of Pittsburgh School of Medicine\nPittsburgh\, Pennyslvania \nElie Naddaf\, MD\nAssociate Professor of Neurology\nMayo Clinic\,\nRochester\, Minnesota \nSupported by an independent educational grant from Abcuro\, Inc. \nClick the link to view the Activity and Disclosure details before participating: https://lnkd.in/eksNyUsU \n\n\n\n\n\n\n\nClick on any of these platforms on September 9 to view presentation: \nFacebook \nLinkedIn \nYouTube \nTwitter \n 
URL:https://www.myositis.org/event/inclusion-body-myositis-what-your-patients-may-not-tell-you/
CATEGORIES:Clinician Education
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/08/Medscape.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250908T120000
DTEND;TZID=America/New_York:20250908T120000
DTSTAMP:20250819T164930Z
CREATED:20250808T190505Z
LAST-MODIFIED:20250819T164930Z
UID:10001878-1757332800-1757332800@www.myositis.org
SUMMARY:Ask the Expert featuring Astia Allenzara\, MD\, MCSR
DESCRIPTION:Register Here \n💬 Your questions\, answered by a myositis expert! \nAsk the Expert with Dr. Astia AllenzaraJoin us on Monday\, September 8 at 12:00 PM ET / 6:00 PM CEST for a special Ask the Expert session featuring Astia Allenzara\, MD\, MSCR\, an internist and rheumatologist at UNC Chapel Hill. Dr. Allenzara’s work focuses on improving care for people living with rare autoimmune diseases\, including myositis\, and advancing equitable access to treatment. \nAbout Ask the Expert:TMA’s Ask the Expert webinar series gives myositis patients and care partners direct access to world-renowned clinicians\, researchers\, and other specialists. Each session offers the latest information on myositis diagnosis\, treatment\, and day-to-day management\, followed by a Q&A where you can submit your questions in advance.
URL:https://www.myositis.org/event/ask-the-expert-featuring-astia-allenzara-md-mcsr/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/08/ATE-SEPT-2025.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_3QHq1saUTgeahqX0tTG4iQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250906T130000
DTEND;TZID=America/New_York:20250906T143000
DTSTAMP:20260413T162341Z
CREATED:20250801T201217Z
LAST-MODIFIED:20260413T162341Z
UID:10001688-1757163600-1757169000@www.myositis.org
SUMMARY:TMA Worldwide Myositis Support by Diagnosis
DESCRIPTION:TMA’s Worldwide Myositis Support by Diagnosis Group is open to all\, especially those without an active support group in their local area. Formally known as Nationwide\, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis\, and the TMA Care Partner Affinity Group meets in its own room. TMA Worldwide meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT.  \nRegister here
URL:https://www.myositis.org/event/tma-worldwide-myositis-support-by-diagnosis/2025-09-06/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/08/New-Worldwide-2.png
ORGANIZER;CN="Dave Volk":MAILTO:Volk@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMuc-mtqTktHNH_sskpoHflne4zPRAkfS9y
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250906T130000
DTEND;TZID=America/New_York:20250906T143000
DTSTAMP:20250801T204659Z
CREATED:20250605T143744Z
LAST-MODIFIED:20250801T204659Z
UID:10001748-1757163600-1757169000@www.myositis.org
SUMMARY:TMA Care Partner Affinity Group Meeting
DESCRIPTION:Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families.\nJoin the TMA Care Partner Affinity Group: A Space Just for You \nBeing a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress\, anxiety\, or the weight of daily caregiving tasks\, it’s easy to feel overwhelmed and burnt out. That’s why the TMA Care Partner Affinity Group\, founded in 2022\, provides a supportive environment specifically for those who care for someone living with myositis. \nThis group meets in its own dedicated breakout room within TMA’s Worldwide Support Group Meeting on the first Saturday of each month. It’s a safe space where you\, the care partner\, are the focus—not the patient. Here\, you can connect with others who understand your unique challenges\, share coping strategies\, and discuss how to navigate the complex healthcare system. Whether it’s accessing resources like home health aides\, meal delivery\, or transportation assistance—or finding the right words to communicate with your loved one or healthcare team—this group is here to help you through it all. \nTo learn more about accessing breakout rooms\, see ACCESSING ZOOM BREAKOUT ROOMS \nWhen?\nFirst Saturday of every month at:\n1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT \nThe emotional demands of caregiving are real\, and sometimes\, you just need a place to express frustrations\, share victories\, and lean on others who truly understand. The TMA Care Partner Affinity Group is here to provide the support\, resources\, and community you need to continue on your journey. Join us and find the strength to take care of yourself\, too. \nRegister Here \n 
URL:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2025-09-06/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/webp:https://www.myositis.org/wp-content/uploads/2025/06/Care-Partner.webp
ORGANIZER;CN="Rachel Bromley":MAILTO:Rachel@myositis.org
LOCATION:https://www.myositis.org/event/tma-care-partner-affinity-group-meeting-13/2025-09-06/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250905T130000
DTEND;TZID=America/New_York:20250905T140000
DTSTAMP:20250826T143022Z
CREATED:20250826T143022Z
LAST-MODIFIED:20250826T143022Z
UID:10001888-1757077200-1757080800@www.myositis.org
SUMMARY:Cook Along with White House Chef Tom
DESCRIPTION:Come together with your myositis family for a fun culinary experience! You can join in from any home kitchen as we make two delicious\, anti-inflammatory\, and dysphagia-friendly recipes: Golden Turmeric Carrot & Coconut Velouté and Chai-Spiced Almond Milk Panna Cotta. You can cook along or just watch! \nSpecial guest TMA Board Treasurer Chip Galloway will kick things off with a show-and-tell of adaptive kitchen gadgets that make cooking easier. And who knows—we might even convince Chef Tom to share a few behind-the-scenes stories from his time in The White House! \n Download your ingredient shopping list here! \n Join Cook Along on Sept. 5 at 1:00 PM ET
URL:https://www.myositis.org/event/cook-along-with-white-house-chef-tom/
CATEGORIES:Conferences & Summits
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/08/Cook-Along-with-White-House-Chef-Tom.jpg
LOCATION:https://us02web.zoom.us/j/86194138565
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250905T110000
DTEND;TZID=America/New_York:20250905T120000
DTSTAMP:20250826T140421Z
CREATED:20250826T140155Z
LAST-MODIFIED:20250826T140421Z
UID:10001887-1757070000-1757073600@www.myositis.org
SUMMARY:Stronger with Support: The Role of Protein in Muscle Disease
DESCRIPTION:Getting the right amount and type of protein can help preserve muscle\, improve energy\, and support overall well-being for those with myositis. \nIn this session\, you’ll learn: \n\nWhy protein matters for people with muscle disease\nHow much protein you really need\nThe best sources of protein for strength and healing\nSimple ways to add more protein into your daily meals\n\n\nPresented by: Julie Sanfilippo\, RDN\, Diabetes Prevention Program Health Coach\, Elmhurst Memorial Healthcare \n Join Stronger with Support: The Role of Protein on Sept. 5 at 11:00 AM ET
URL:https://www.myositis.org/event/stronger-with-support-the-role-of-protein-in-muscle-disease/
CATEGORIES:Conferences & Summits
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/08/The-Role-of-Protein-in-Muscle-Disease.jpg
LOCATION:https://us02web.zoom.us/j/81174051352
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250904T183000
DTEND;TZID=America/New_York:20250904T203000
DTSTAMP:20250904T194239Z
CREATED:20250605T143743Z
LAST-MODIFIED:20250904T194239Z
UID:10001504-1757010600-1757017800@www.myositis.org
SUMMARY:TMA Women Of Color Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy \nFounded in 2019 by Holly Jones and Kaniah Gunter\, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement\, Education\, and Empowerment—our mission is to unite and empower women of color affected by myositis and to advocate for their health and well-being. By providing education\, support\, resources\, and the backing of TMA’s expertise\, we are determined to reduce the disparity gap in myositis outcomes for people of color. As we foster a community of strength\, resiliency\, and inspiration; together\, we will break barriers\, challenge inequalities\, and create a future where every woman\, caregiver\, and loved one affected by myositis\, regardless of their race\, can thrive. \nEach month\, WOC come together for impactful workshops and support meetings\, empowering participants to take what they’ve learned and share awareness about myositis within their communities. Whether you’re looking for guidance\, solidarity\, or the opportunity to advocate for others\, this group offers a space for connection\, education\, and positive change. \nWhen?\nFirst Thursday of each month at:\n6:30pm ET | 5:30pm CT | 4:30pm MT | 3:30pm PT \nJoin us and become part of a movement to raise awareness\, educate others\, and empower women of color to take charge of their myositis journey. Visit our group page for more information. \nRegister Here \n\n       \nAbout the Leaders | Holly Jones & Kaniah Gunter \nIn 2003\, at the age of 19 years old Holly Jones was diagnosed with Polymyositis with Interstitial Lung Disease at a CPK level over 20\,000. In 2014\, her lung disease progressed causing her to develop Pulmonary Hypertension that required her to be on oxygen daily. After six years of being in clinical remission\, the Pulmonary Hypertension progressed into Congestive Heart Failure in October 2020. Living with diseases that attack her muscles\, lungs\, and heart; it has not stopped Holly from accomplishing her life goals. A social media entrepreneur\, Holly also serves on TMA’s Board of Directors\, as well as co-leader for TMA’s Women of Color Affinity Group\, and Support Group Leader for the Houston\, Tx regional support group.  Holly lives in Porter\, TX with her husband and children. \nKaniah Gunter\, a Nutrition Health Coach owner of Unique Guidance Nutritional Health Coaching\, LLC\, was diagnosed with dermatomyositis with NXP-2 positive (anti-MJ) and scleroderma in 2007. Kaniah graduated from The Institute for Integrative Nutrition\, one of the largest nutrition schools in the world. \nRecently she completed her certification as a Community Health Worker. She is a strong advocate for the myositis community. At TMA\, she is a regional support group leader for TMA Virginia\, West Virginia and Northwest Carolina as well as co-leader for TMA’s Women of Color affinity group. She has shared her story in many healthcare publications and social media. She serves as an inspiration for others as she demonstrates healing begins within mind\, body and spirit. Kaniah and her two beautiful children live in Norfolk\, Virginia.
URL:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17/2025-09-04/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/TMA-WOCAG-WEBSITE-BANNER.jpg
LOCATION:https://www.myositis.org/event/tma-women-of-color-affinity-group-meeting-17/2025-09-04/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250903T200000
DTEND;TZID=America/New_York:20250903T213000
DTSTAMP:20260310T185113Z
CREATED:20250605T143731Z
LAST-MODIFIED:20260310T185113Z
UID:10001327-1756929600-1756935000@www.myositis.org
SUMMARY:TMA Flying Solo Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner \nThe TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone\, are married but your spouse is unable to provide care\, or even find yourself as the caregiver for your spouse\, this group is here to offer understanding and support. \nLiving with myositis can be particularly challenging without a live-in care partner\, but Flying Solo offers a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. \nWhen?\nFirst Wednesday of each month at:\n8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others who “fly solo” like you! \nRegister Here \n\n \nAbout the Leader | Rhonda Rogers \nRhonda Rogers\, diagnosed with Inclusion Body Myositis (IBM)\, is a passionate myositis advocate\, also known as “Myositis Warrior”\, who brings connection\, humor\, and heart to everything she does. She co-leads TMA’s Southern California Support Group and facilitates the TMA Flying Solo Affinity Group for people living with myositis who do not have a live-in care partner. Rhonda also administers the popular Myositis Warrior Facebook public group\, known for its upbeat\, candid\, and often humorous take on the unbelievable realities of life with myositis. Whether leading community groups or raising awareness in her signature Myositis Warrior cape at events like Comic-Con\, Rhonda inspires others to meet life with resilience and a smile. \nIn recognition of her outstanding leadership and support for the myositis community\, Rhonda received the Marianne Moyer Myositis Leader Award at MyoCon 2025\, along with her TMA Southern California co-leader\, Nancy Harber. This award honors TMA volunteers who lead the way by helping others and making a lasting impact.
URL:https://www.myositis.org/event/tma-flying-solo-affinity-group-meeting-23/2025-09-03/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/flyingsolo-169.jpg
ORGANIZER;CN="Rhonda Rogers":MAILTO:Rogers@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqc-GsrTksGt3aRRRGipKTWPzy7-n18ME4#/registration
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250901T183000
DTEND;TZID=America/New_York:20250901T200000
DTSTAMP:20250605T195326Z
CREATED:20250605T143723Z
LAST-MODIFIED:20250605T195326Z
UID:10001121-1756751400-1756756800@www.myositis.org
SUMMARY:TMA New Jersey Myositis Support Group Meeting
DESCRIPTION:Register Here \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nJoin the TMA New Jersey Myositis Support Group: Connect\, Learn\, and Find Support \nThe TMA New Jersey Myositis Support Group provides a welcoming and supportive environment for individuals living with myositis. Meeting every other month at 6:30 PM ET\, this group offers a chance to connect with others who understand the challenges of living with conditions like Inclusion Body Myositis (IBM)\, Polymyositis (PM)\, Dermatomyositis (DM)\, Necrotizing Myopathy (NM)\, and more. Whether you’re newly diagnosed or have been managing myositis for years\, this group is a great place to share experiences\, learn from others\, and access helpful resources. \nThe support group is a place to reduce feelings of isolation\, find strength through shared experiences\, and gain insights into managing daily challenges. Together\, we can build a community that understands and supports each other. \nWhen?\nThe third Monday of every other month at:\n6:30 PM ET \nWhere?\nTMA New Jersey Myositis Support Group (virtual meeting details provided upon registration) \n\n\nAbout the Leader: Colleen Layton\nYou may have seen Colleen Layton on TMA webinars or at our International Annual Patient Conference. A retired nurse who was diagnosed with necrotizing myopathy ten years ago\, Colleen has been a dedicated volunteer for many years. Despite the challenges of her disease\, she remains deeply involved in her passion for horse racing and is excited to share how she has adapted this hobby to her illness. \nColleen and her husband John have two sons and live in New Jersey. With her extensive background in healthcare and personal experience with myositis\, Colleen brings both knowledge and compassion to her leadership of the New Jersey Myositis Support Group. She is thrilled to serve those living with myositis in her community and help others navigate their own journeys with strength and resilience. \nThank you\, Colleen\, for your ongoing commitment to supporting others living with myositis! \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n  \n 
URL:https://www.myositis.org/event/tma-new-jersey-myositis-support-group-meeting-9/
LOCATION:https://www.myositis.org/event/tma-new-jersey-myositis-support-group-meeting-9/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250828T180000
DTEND;TZID=America/New_York:20250828T190000
DTSTAMP:20250605T195159Z
CREATED:20250605T143727Z
LAST-MODIFIED:20250605T195159Z
UID:10001134-1756404000-1756407600@www.myositis.org
SUMMARY:TMA VA\, WV\, NC Northeast Myositis Support Group Meeting
DESCRIPTION:Join the TMA VA\, WV\, NC Northeast Myositis Support Group: Connect\, Share\, and Find Strength \nIt’s not unusual to feel isolated and alone with a disease that many people have never heard of or truly understand. Being part of a myositis support group is an important way to share these feelings with others who truly know what you’re going through. Research shows that social connection can not only reduce feelings of isolation but also improve both physical and mental well-being. \nThe TMA VA\, WV\, NC Northeast Myositis Support Group meets on the fourth Thursday of each month at 6:00 PM ET\, offering a space for individuals living with myositis to connect\, share their experiences\, and find support. Whether you’re newly diagnosed or have been managing myositis for years\, this group provides a supportive community where you can learn from others\, gain helpful resources\, and offer encouragement. \nEven if you’re currently managing your myositis well\, consider joining. You can be an inspiration and a source of strength for others who are still navigating the challenges of living with myositis. This group is a reminder that you are not alone. \nWhen?Fourth Thursday of every month at:6:00 PM ET \nWhere?Virtual meeting details provided upon registration \nJoin us to connect\, learn\, and empower yourself and others on the myositis journey. We look forward to welcoming you! \n\nRegister Here
URL:https://www.myositis.org/event/tma-va-wv-nc-northeast-myositis-support-group-meeting-27/
LOCATION:https://www.myositis.org/event/tma-va-wv-nc-northeast-myositis-support-group-meeting-27/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250827T180000
DTEND;TZID=America/New_York:20250827T190000
DTSTAMP:20250825T175557Z
CREATED:20250825T175449Z
LAST-MODIFIED:20250825T175557Z
UID:10001884-1756317600-1756321200@www.myositis.org
SUMMARY:Media Pitching 101: The Who/What/Where/When/Why of Landing TV\, Radio & Print Interviews
DESCRIPTION:Want to raise awareness for myositis or share your story with a wider audience? \nThis session will walk you through the basics of media pitching—from identifying the right outlets and contacts to crafting compelling pitches that grab attention. You’ll learn what journalists look for in a story\, how to shape your message for different audiences\, and practical tips for following up to maximize your chances of getting covered. \nPresented by: Lindsay Guentzel\, award-winning journalist and producer\, storyteller\, advocate; Leader\, TMA Minnesota Support Group \nJoin Media Pitching 101 on Aug. 27 at 6 PM ET
URL:https://www.myositis.org/event/media-pitching-101-the-who-what-where-when-why-of-landing-tv-radio-print-interviews/
CATEGORIES:Conferences & Summits
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/08/Media-Pitching-101.jpg
LOCATION:https://us02web.zoom.us/j/86039940195
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250827T120000
DTEND;TZID=America/New_York:20250827T133000
DTSTAMP:20250825T174413Z
CREATED:20250825T174413Z
LAST-MODIFIED:20250825T174413Z
UID:10001883-1756296000-1756301400@www.myositis.org
SUMMARY:Conference Orientation and Getting Acquainted
DESCRIPTION:Never attended a TMA conference before or just want to connect with TMA staff\, special guests and fellow attendees beforehand? \nPlease join this orientation session that will help you get the most out of your MyoCon experience! \nThis 30-minute session will be followed by an hour-long opportunity to get to know fellow conference attendees in breakout rooms by diagnosis. Breakout rooms will last for an hour and are available for IBM\, DM\, IMNM\, ASyS\, PM\, and Care Partners. \nJoin Orientation & Getting Acquainted on Aug 27 at 12 PM ET
URL:https://www.myositis.org/event/conference-orientation-and-getting-acquainted/
CATEGORIES:Conferences & Summits
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/08/Virtual-Conference-Orientation-Getting-Acquainted.jpg
LOCATION:https://us02web.zoom.us/j/87614892578
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250823T110000
DTEND;TZID=America/Chicago:20250823T133000
DTSTAMP:20250605T195107Z
CREATED:20250605T143728Z
LAST-MODIFIED:20250605T195107Z
UID:10001141-1755946800-1755955800@www.myositis.org
SUMMARY:TMA Wisconsin Myositis Support Group Meeting
DESCRIPTION:It’s not unusual to feel isolated and alone with a disease that no one has ever heard of and doesn’t understand. Being part of a myositis support group is an important way to share these feelings with people who know exactly what you’re going through. Research shows that this sort of social connection can also improve both physical and mental well-being. Even if you are currently in a good place managing your myositis\, consider joining. You can be an inspiration and source of strength for others! TMA Wisconsin meets on the last Saturday of every month starting in February of each year. \nPlease register here
URL:https://www.myositis.org/event/tma-wisconsin-myositis-support-group-meeting-16/
LOCATION:https://www.myositis.org/event/tma-wisconsin-myositis-support-group-meeting-16/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250823T110000
DTEND;TZID=America/New_York:20250823T130000
DTSTAMP:20250805T214513Z
CREATED:20250805T214403Z
LAST-MODIFIED:20250805T214513Z
UID:10001876-1755946800-1755954000@www.myositis.org
SUMMARY:TMA Michigan IBM Support Group Meeting (in-person)
DESCRIPTION:You’re invited to connect with others living with Inclusion Body Myositis at our in-person TMA Michigan IBM Support Group meeting. Whether you’re newly diagnosed\, a long-time member\, a caregiver\, or simply interested in learning more—all are welcome. Come for support\, conversation\, and community.
URL:https://www.myositis.org/event/tma-michigan-ibm-support-group-meeting-in-person/
LOCATION:Grandville Public Library\, 4055 Maple Street SW\, Grandville\, MI\, 49418\, United States
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Deb Grutter":MAILTO:Grutter@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250823T103000
DTEND;TZID=America/New_York:20250823T113000
DTSTAMP:20250821T191502Z
CREATED:20250725T165340Z
LAST-MODIFIED:20250821T191502Z
UID:10001386-1755945000-1755948600@www.myositis.org
SUMMARY:TMA Georgia Myositis Support Group Meeting
DESCRIPTION:👉 Register here \nTMA Georgia Myositis Support Group meets every fourth Saturday from 10:30–11:30 AM ET\, except December. \nPeer-led support groups matter at every stage of the journey. Even if you’re currently thriving\, your presence and story can bring hope and reassurance to others who may be facing challenges. At TMA\, we pride ourselves on inspiring hope while walking alongside one another with understanding and compassion. Support groups are also a wonderful place to exchange local resources\, practical tips\, and connections that make daily life a little easier. \n\nMeet Your Co-Leaders \n\nTerri Lockhart\, MD – A retired\, Board-Certified Internal Medicine physician with over 30 years of clinical and administrative experience. Diagnosed with inclusion body myositis in 2020\, she brings a unique perspective as both clinician and patient\, and is passionate about sharing knowledge with others.\nCynthia Marks\, EdD – A former school administrator of 23 years and a Doctor of Education graduate from National Louis University. Cynthia is the primary care partner to her husband Ricky\, who was diagnosed with inclusion body myositis in 2016. She looks forward to supporting other care partners in understanding their roles while also prioritizing self-care.\n\nWe’re deeply grateful to Dr. Lockhart and Dr. Marks for stepping up to serve fellow community members in Georgia with their time\, care\, and leadership. Dr. Lockhart will be the primary contact person for the group\, feel free to reach out to her directly at Lockhart@myositis.org.
URL:https://www.myositis.org/event/tma-georgia-myositis-support-group/2025-08-23/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/07/TMA-Georgia-220-x-220.png
ORGANIZER;CN="Terri Lockhart":MAILTO:Lockhart@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/7M00c-iHRHOrHP6z96d5fQ
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250823T100000
DTEND;TZID=America/Chicago:20250823T113000
DTSTAMP:20250725T234234Z
CREATED:20250605T143746Z
LAST-MODIFIED:20250725T234234Z
UID:10001445-1755943200-1755948600@www.myositis.org
SUMMARY:TMA Northeast Texas Myositis Support Group Meeting
DESCRIPTION:Register Here \nAttend TMA Northeast Texas Myositis Support Group: Support for Those Living with Myositis and their Care Partners \nLiving with myositis is easier with friends. TMA’s support and affinity groups offer a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. These sessions are never recorded and camera is optional.  \nWhen?Fourth Saturday of each month (no meeting in December) at:10:00 AM – 11:30 AM CT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others like you! \n\nMessage from the Leader | Melissa Rumpf \n\n\n\n\n\n \nHello\, my name is Melissa Rumpf and I was diagnosed with IBM in 2017.  I feel very fortunate to have found TMA early in my diagnosis as they have been instrumental in helping me navigate this disease.   \n\n\n\nI have attended three (3) in-person TMA International Patient Conferences and many zoom conferences and meetings throughout the years (can’t wait for Dallas this year)!  Meeting other myositis patients and being able to share information\, our struggles and our positives with each other has been life changing for me.  I have learned so much from TMA and others weathering the ups and downs of myositis.  \n\n\n\nPrior to medically retiring in 2019\, I was a Communications Supervisor with the Las Vegas Police Department where I spent 28 years helping others.  So being part of TMA and helping others is a strong passion of mine.   \n\n\n\nMy husband is my “Rock” who helps keep me going.  We exercise 3 times weekly to keep my mobility.  My passion is traveling so we take vacations as often as we can – it keeps me going mentally and physically! \n\n\n\n“The question isn’t who is going to let me; it’s who is going to stop me”.  We all must keep up the fight! \n\n\n\nI’m looking forward to meeting you at our TMA Northeast Texas meetings! \n\n\n\nSincerely\, Melissa \nRegister Here \n\n\n\n\n\nConnect with TMA!         \n\n\n\n\n\n 
URL:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4/2025-08-23/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/06/Northeast-Texas.jpg
ORGANIZER;CN="Melissa Rumpf":MAILTO:Rumpf@myositis.org
LOCATION:https://www.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4/2025-08-23/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250819T120000
DTEND;TZID=America/New_York:20250819T130000
DTSTAMP:20250819T022413Z
CREATED:20250801T003944Z
LAST-MODIFIED:20250819T022413Z
UID:10001686-1755604800-1755608400@www.myositis.org
SUMMARY:TMA Ask the Expert: Cell Therapy Edition
DESCRIPTION:TMA’s Ask the Expert webinar series gives members of the myositis community direct access to leading experts in the field. Each session features a trusted medical professional who answers your questions about specific types of myositis\, treatment options\, research developments\, and disease management. August’s Ask the Expert webinar features Iazsmin Bauer Ventura\, MD\, a clinician and researcher specializing in neuromuscular disorders and regenerative medicine. In addition to her academic and clinical expertise\, Dr. Ventura is currently leading CAR-T clinical trials at the University of Chicago. Her work is helping to pave the way for new\, innovative treatment options for those living with myositis. Joining her is Satyajit Kosuri\, MD\, a medical oncologist specializing in hematology. Join us on Tuesday\, August 19 at 12:00 PM ET for an in-depth conversation on cell therapy for myositis\, including current clinical trials\, therapeutic potential\, and what patients should know about emerging treatments. Don’t miss this opportunity to ask your questions and learn from two experts at the forefront of innovative care. \nSponsored by TMA Corporate Advisory Council member Bristol Myers Squibb. \nRegister Here \n 
URL:https://www.myositis.org/event/tma-ask-the-expert-cell-therapy-edition/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/07/Ventura-Aug-2025-2.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_QWdjl8iQSNWt4GcC3XALkw
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