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X-WR-CALDESC:Events for The Myositis Association
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DTSTART;TZID=America/New_York:20260902T180000
DTEND;TZID=America/New_York:20260902T190000
DTSTAMP:20260810T181136Z
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UID:10003565-1788372000-1788375600@www.myositis.org
SUMMARY:MyoCon Virtual Session - Care Partner Empowerment: Thriving Together Through Care
DESCRIPTION:Being a care partner is a journey of love\, commitment\, and resilience. Join Christina Keys\, CEO and Founder of Keys for Caregiving\, for this virtual session focused on creating balance\, practicing kindness toward ourselves\, and building the connections that help us thrive. Christina will offer encouragement and practical insights to support care partners’ own well-being while they continue providing meaningful care for those they love. Whether you’re new to this role or have been caring for a loved one for years\, this session is a reminder that caring for yourself is part of caring well for others. \nTo join this session\, register for MyoCon 2026 in person or order the recordings and you will receive the invitation to join all virtual pre-and post-conference content!
URL:https://www.myositis.org/event/myocon-virtual-session-care-partner-empowerment-thriving-together-through-care/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/08/Care-Partner-Empowerment-1.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260909T120000
DTEND;TZID=America/New_York:20260909T130000
DTSTAMP:20260810T183402Z
CREATED:20260810T183040Z
LAST-MODIFIED:20260810T183402Z
UID:10003566-1788955200-1788958800@www.myositis.org
SUMMARY:MyoCon Virtual Session - Conference Orientation & Getting Acquainted
DESCRIPTION:New to MyoCon or just want a refresher? Join us for this virtual “Know Before You Go” session designed to help you feel confident and connected before you arrive in St. Louis. \nWe’ll start with a short presentation covering what you need to know before conference: what to expect onsite\, how to navigate the schedule\, tips for making the most of your sessions\, and answers to the questions we hear most. \nThen\, we’ll break into small group rooms by diagnosis type — giving you a chance to meet other attendees who share your specific myositis subtype before the conference even begins. Whether you’re living with DM\, PM\, IBM\, IMNM\, or ASyS\, this is a great way to find a familiar face in the crowd once you’re onsite. \nCome with your questions\, and leave with a few new friends and a lot more confidence heading into MyoCon 2026! \nTo join this session\, register for MyoCon 2026 in person or order the recordings and you will receive the invitation to join all virtual pre-and post-conference content!
URL:https://www.myositis.org/event/myocon-virtual-session-conference-orientation-getting-acquainted/
CATEGORIES:Webinar
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DTSTART;TZID=America/New_York:20260909T190000
DTEND;TZID=America/New_York:20260909T200000
DTSTAMP:20260630T214535Z
CREATED:20260630T211026Z
LAST-MODIFIED:20260630T214535Z
UID:10003543-1788980400-1788984000@www.myositis.org
SUMMARY:Ask the Expert featuring Tahseen Mozaffar\, MD\, FAAN
DESCRIPTION:Join us for a live Ask the Expert webinar with Dr. Tahseen Mozaffar\, a globally recognized leader in neuromuscular disease and one of the foremost authorities on myositis. Dr. Mozaffar will field your questions on all forms of myositis — including dermatomyositis\, polymyositis\, inclusion body myositis\, immmune-mediated necrotizing myopathy\, and antisynthetase syndrome — drawing on decades of clinical and research experience. Whether you’re newly diagnosed or have lived with myositis for years\, this is your chance to get expert answers on diagnosis\, treatment options\, clinical trials\, and what’s on the horizon in myositis research and care. Bring your questions — no topic is off-limits. \nRegister Here
URL:https://www.myositis.org/event/ask-the-expert-featuring-tahseen-mozaffar-md-faan/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/06/ATE-SEPT-2026.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_41mc5yoFSN2mapOQCVoDiQ
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DTSTART;TZID=America/New_York:20260910T160000
DTEND;TZID=America/New_York:20260910T170000
DTSTAMP:20260831T162829Z
CREATED:20260630T220010Z
LAST-MODIFIED:20260831T162829Z
UID:10003544-1789056000-1789059600@www.myositis.org
SUMMARY:Educational Event about LISRAYA (brepocitinib) sponsored by Priovant Therapeutics
DESCRIPTION:This webinar is sponsored by Priovant Therapeutics. \nRegister Here
URL:https://www.myositis.org/event/dm-treatment-webinar-priovant/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2026/06/Priovant-Webinar-9.10.26.jpg
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LOCATION:https://us02web.zoom.us/webinar/register/WN_Z_ogmAMzRDOR_NT_qagV9A
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DTSTART;TZID=America/New_York:20261015T180000
DTEND;TZID=America/New_York:20261015T190000
DTSTAMP:20260630T222247Z
CREATED:20260630T221543Z
LAST-MODIFIED:20260630T222247Z
UID:10003545-1792087200-1792090800@www.myositis.org
SUMMARY:Ask the Expert Speech and Swallowing Edition
DESCRIPTION:Join us for a live Ask the Expert webinar focused on speech and swallowing difficulties (dysphagia) in myositis\, featuring Dr. Georgia Malandraki\, a member of The Myositis Association’s Medical Advisory Board and an expert in swallowing disorders. Dysphagia is one of the most challenging and under-discussed symptoms of myositis\, affecting communication\, nutrition\, and quality of life. Dr. Malandraki will answer your questions on the causes of swallowing difficulty in myositis\, evaluation and treatment approaches\, exercise-based and telehealth rehabilitation options\, and strategies for managing speech and swallowing changes day to day. Bring your questions for one of the field’s leading researchers and clinicians in dysphagia care. \nRegister Here
URL:https://www.myositis.org/event/ask-the-expert-speech-and-swallowing-edition/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/06/ATE-Swallowing-Oct-2026-.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_yVjPOq71SiWy9fFw4uUcSg
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DTSTART;TZID=America/New_York:20261023T120000
DTEND;TZID=America/New_York:20261023T130000
DTSTAMP:20260810T184842Z
CREATED:20260810T184737Z
LAST-MODIFIED:20260810T184842Z
UID:10003568-1792756800-1792760400@www.myositis.org
SUMMARY:MyoCon Reunion & Staying Acquainted (virtual session)
DESCRIPTION:MyoCon may be over\, but the connections don’t have to end there! Join us for this virtual reunion to reflect on the conference and keep the momentum going with the friends you made in St. Louis. \nWe’ll kick off with a 30-minute recap presentation looking back at MyoCon 2026 — highlights\, key takeaways\, and a chance to relive some of the best moments from the conference together. \nThen\, we’ll break into small group rooms by diagnosis type for 30 minutes of “staying acquainted” time. Reconnect with the folks in your diagnosis-specific breakout from Conference Orientation\, share how you’re feeling post-conference\, and keep building the friendships and support networks you started at MyoCon. \nWhether you attended in person\, joined virtually\, or are just looking to stay connected with your myositis community\, come reminisce\, reconnect\, and keep the MyoCon spirit alive! \nTo join this session\, register for MyoCon 2026 in person or order the recordings and you will receive the invitation to join all virtual pre-and post-conference content!
URL:https://www.myositis.org/event/myocon-reunion-staying-acquainted-virtual-session/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/08/Conference-Reunion-Staying-Acquainted-2.png
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