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DTSTART;TZID=America/New_York:20260707T120000
DTEND;TZID=America/New_York:20260707T130000
DTSTAMP:20260707T145934Z
CREATED:20260609T204440Z
LAST-MODIFIED:20260707T145934Z
UID:10003535-1783425600-1783429200@www.myositis.org
SUMMARY:Diet and Nutrition Challenges in Myositis: Entry Points to the FAST for DM Trial
DESCRIPTION:This webinar will review different nutrients and diets and what is known about their effects on autoimmune diseases. Speakers Kirstin Zambell\, PhD\, RD\, Clinical Research Dietitian at National Institutes of Health (NIH) and Lisa Rider\, MD\, Pediatric Rheumatologist and Head of the Environmental Autoimmunity Group at National Institute of Environmental Health Sciences\, National Institutes of Health (NIH NIEHS) will also introduce a new clinical trial at the NIH\, FAST for DM. This is a study focused on examining the effects of dietary interventions on dermatomyositis\, including omega-3 fatty acids and a general healthy eating pattern diet. \nRegister Here
URL:https://www.myositis.org/event/diet-and-nutrition-challenges-in-myositis-entry-points-to-the-fast-for-dm-trial/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/06/NIH-Nutrition-Webinar-2.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_736wLZkQRDmySU1YynIYgA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260723T120000
DTEND;TZID=America/New_York:20260723T130000
DTSTAMP:20260625T211705Z
CREATED:20251209T231125Z
LAST-MODIFIED:20260625T211705Z
UID:10002117-1784808000-1784811600@www.myositis.org
SUMMARY:Ask the Expert Dermatology Edition featuring Victoria Werth\, MD
DESCRIPTION:Have questions about the skin symptoms of dermatomyositis? This is your chance to get answers straight from one of the world’s leading experts. \nJoin us for a special Ask the Expert session featuring Victoria Werth\, MD\, Professor of Dermatology and Medicine at the Perelman School of Medicine at the University of Pennsylvania and Chief of the Division of Dermatology at the Philadelphia Veterans Administration Hospital. A longtime member of TMA’s Medical Advisory Board\, Dr. Werth has devoted her career to clinical and translational research in cutaneous autoimmune diseases — with a particular focus on dermatomyositis. Her groundbreaking work has helped shape how DM skin disease is understood\, measured\, and treated. \nWhether you’re curious about rashes\, sun sensitivity\, treatment options\, or the latest research developments\, bring your burning questions and get answers from a global expert in DM. \nDon’t miss this opportunity to connect with one of the foremost voices in dermatomyositis care. \nRegister Here \nTMA’s Ask the Expert series is our most popular webinar series. It provides an opportunity for our community to get answers to their burning questions from an expert who likely has more knowledge than their doctor. This is also a chance for the community to meet a member of TMA’s expert Medical Advisory Board or another distinguished member of the myositis medical community.
URL:https://www.myositis.org/event/ask-the-expert-dermatology-edition/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2025/12/Vickie-ATE-Dermatology-1.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_iAVBSkAIQwOaF6gU6UaGqA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260729T150000
DTEND;TZID=America/New_York:20260729T160000
DTSTAMP:20260625T210444Z
CREATED:20260625T210444Z
LAST-MODIFIED:20260625T210444Z
UID:10003537-1785337200-1785340800@www.myositis.org
SUMMARY:The Boundary Blueprint: Keeping Your Sanity in a World Full of Options
DESCRIPTION:Living with myositis means navigating a constant stream of input — from well-meaning family members\, friends\, and co-workers who don’t always know what to say (or when to say it). This webinar tackles the art of setting healthy boundaries with the people closest to you\, and gives you practical language for handling tricky questions and unsolicited advice (“Have you tried yoga?” anyone?). Walk away with real tools to protect your energy\, your peace of mind\, and your relationships. \nAbout the Speaker: Stefanie Remson\, MSN\, APRN\, FNP-BC\, is a family nurse practitioner\, rheumatoid arthritis patient\, and the founder and CEO of Rheumatoid Arthritis Coach\, where she works one-on-one with people living with chronic illness to manage their symptoms\, protect their wellbeing\, and reclaim their lives. Drawing on both her medical background and her own journey with RA\, Stefanie has helped hundreds of people set boundaries\, advocate for themselves\, and build a life that works with their illness — not against it. She has partnered with organizations including the Arthritis Foundation\, the Lupus Foundation of America\, and Healthline\, and is a sought-after speaker and writer on chronic illness\, self-advocacy\, and resilience. \nRegister Here
URL:https://www.myositis.org/event/the-boundary-blueprint-keeping-your-sanity-in-a-world-full-of-options/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/06/Boundaries-July-2026.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_0SDSEKy3SC-APtcQlk1aVQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260804T150000
DTEND;TZID=UTC:20260804T160000
DTSTAMP:20260625T220020Z
CREATED:20260625T220020Z
LAST-MODIFIED:20260625T220020Z
UID:10003538-1785855600-1785859200@www.myositis.org
SUMMARY:Ask the Expert Arabic Edition - as'al alkhabir - alnuskhat alearabia
DESCRIPTION:TMA is excited to bring our beloved Ask the Expert series to our Arabic-speaking community! Join us for a special session with Dr. Elie Naddaf\, a neurologist and myositis specialist\, who will answer your questions in Arabic. \nThis is your chance to get clear\, expert answers to the questions that matter most to you — about diagnosis\, treatment\, symptom management\, and living well with myositis — in your own language\, from someone who understands both the science and the lived experience of this rare disease. \nTMA’s Ask the Expert series is our most popular webinar series. It provides an opportunity for our community to get answers to their burning questions from an expert who likely has more knowledge than their doctor. This is also a chance for the community to meet a member of TMA’s expert Medical Advisory Board or another distinguished member of the myositis medical community. \nالنسخة العربية \nاسأل الخبير: النسخة العربية مع الدكتور إيلي نداف \nتسعد جمعية TMA بتقديم سلسلة “اسأل الخبير” المحبوبة لمجتمعنا الناطق بالعربية! انضموا إلينا في جلسة خاصة مع الدكتور إيلي نداف، اختصاصي أمراض الأعصاب وخبير في التهاب العضلات (Myositis)، الذي سيجيب على أسئلتكم باللغة العربية. \nهذه فرصتكم للحصول على إجابات واضحة ودقيقة من خبير على الأسئلة الأكثر أهمية بالنسبة لكم — حول التشخيص، العلاج، التعامل مع الأعراض، والعيش بشكل أفضل مع هذا المرض — بلغتكم الأم، من شخص يفهم الجانب العلمي والتجربة الحقيقية لهذا المرض النادر. \nتُعد سلسلة “اسأل الخبير” التابعة لـ TMA هي الأكثر شعبية بين ندواتنا الإلكترونية. فهي تتيح لأفراد مجتمعنا فرصة الحصول على إجابات لأسئلتهم الملحّة من خبير قد يكون أكثر معرفة من طبيبهم الخاص. كما تمنحهم هذه الجلسات فرصة للتعرف على أحد أعضاء المجلس الاستشاري الطبي لجمعية TMA أو على شخصية بارزة أخرى في المجتمع الطبي المتخصص في التهاب العضلات. \nsjjl huna
URL:https://www.myositis.org/event/ask-the-expert-arabic-edition-asal-alkhabir-alnuskhat-alearabia/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/06/ATE-Arabic-2026.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_IoCFc1rkRciusbPw2ZA7oQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260820T180000
DTEND;TZID=America/New_York:20260820T190000
DTSTAMP:20260629T200633Z
CREATED:20260519T195443Z
LAST-MODIFIED:20260629T200633Z
UID:10003439-1787248800-1787252400@www.myositis.org
SUMMARY:Ask the Expert featuring Chris Weihl\, MD\, PhD
DESCRIPTION:Have myositis questions for a neurologist? Now’s your chance to ask one of the field’s leading specialists. \nJoin us for a special Ask the Expert session featuring Conrad C. Weihl\, MD\, PhD\, Professor of Neurology at Washington University School of Medicine in St. Louis and a neurologist at Barnes-Jewish Hospital. Dr. Weihl focuses his practice on the mechanisms of weakness and atrophy related to neuromuscular disorders\, including inflammatory myopathy and inclusion body myositis. He has an active clinical and basic science research program focused on genetics\, protein aggregate myopathies\, inclusion body myositis\, and limb-girdle muscular dystrophies. \nWhether you’re navigating a new diagnosis\, wondering about muscle weakness\, or curious about the latest research in IBM and other inflammatory myopathies\, this is your opportunity to get expert insight in a relaxed\, open format. \nBring your questions — Dr. Weihl is here to help you understand what’s happening in your muscles and what it means for your care. \nRegister Here
URL:https://www.myositis.org/event/ask-the-expert-featuring-chris-weihl-md-phd/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/05/ATE-AUG-2026-1.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_JAu8s2m7TheK2HevXkjBkg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260826T160000
DTEND;TZID=America/New_York:20260826T170000
DTSTAMP:20260810T212516Z
CREATED:20260810T212150Z
LAST-MODIFIED:20260810T212516Z
UID:10003569-1787760000-1787763600@www.myositis.org
SUMMARY:Understanding Veteran Directed Care: What Veterans Need to Know
DESCRIPTION:For many veterans living with myositis\, staying independent at home while managing a complex health condition can be a challenge — especially when daily tasks like bathing\, dressing\, meal preparation\, or mobility become harder to manage alone. Veteran Directed Care (VDC) is a VA program designed to help eligible veterans remain safely in their own homes by giving them a flexible budget to hire and direct their own caregivers\, including\, in many cases\, family members or friends. \nJoin us for this informative Ask the Expert webinar as Amanda Icenhower\, LCSW\, Coordinator of the Veteran Directed Care Program at the Southern Oregon Rehabilitation Center and Clinics\, walks us through how the VDC program works\, who qualifies\, and how veterans and their families can access these services. This session is especially relevant for veterans living with myositis who need support with activities of daily living but want to maintain choice and control over their care. \nAmanda will cover: \n\nWhat Veteran Directed Care is and how it differs from other VA home care programs\nEligibility requirements and how to apply\nHow the flexible spending budget works and what it can be used for\nHow veterans can hire family members or trusted individuals as caregivers\nWhere to go for more information and how to get started\n\nWhether you’re a veteran\, a care partner\, or a family member helping navigate care options\, this webinar will provide practical\, actionable information to help you understand this valuable — and often underutilized — VA benefit. \nREGISTER HERE \nSpeaker: Amanda Icenhower\, LCSW\, is the Coordinator of the Veteran Directed Care Program at the Southern Oregon Rehabilitation Center and Clinics (SORCC) in White City\, Oregon\, where she helps veterans access person-centered\, self-directed home care services.
URL:https://www.myositis.org/event/understanding-veteran-directed-care-what-veterans-need-to-know/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2026/08/VDC-Aug-2026.jpg
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_zTttSSv4TpaYvxhVI3GX5w
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260902T110000
DTEND;TZID=America/New_York:20260902T120000
DTSTAMP:20260827T213915Z
CREATED:20260827T213915Z
LAST-MODIFIED:20260827T213915Z
UID:10003659-1788346800-1788350400@www.myositis.org
SUMMARY:Dermatomyositis: Can Fish Oil Help? A Special Patient Webinar on the NIH FAST for DM Clinical Trial
DESCRIPTION:MIHRA Foundation is pleased to host the NIH/NIEHS Environmental Autoimmunity Group who are conducting FAST for DM — the Fatty Acid Supplementation Trial for Dermatomyositis. \nFAST for DM is an NIH clinical trial studying whether omega-3 fatty acid (fish oil) supplementation\, together with a healthy study diet\, can reduce dermatomyositis disease activity and improve strength\, function\, and quality of life. \nDuring this webinar\, the study team will explain: \n\nWhy omega-3 fatty acids are being studied in dermatomyositis\nWhat the FAST for DM trial is designed to learn\nWho may be eligible to participate\nWhat participants can expect during the study\nHow to learn more and connect with the NIH study team\n\nThe study is enrolling adults ages 18–60 with adult or juvenile dermatomyositis who meet eligibility criteria. \nRegister Here \nHosted by MIHRA Foundation \nwith the Environmental Autoimmunity Group\, National Institute of Environmental Health Sciences (NIEHS)\, NIH Clinical Center \n 
URL:https://www.myositis.org/event/dermatomyositis-can-fish-oil-help-a-special-patient-webinar-on-the-nih-fast-for-dm-clinical-trial/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/08/MIHRA-NIEHS-FAST-DIET-SM-_-Newsletter-Uploadable-Image-1.png
LOCATION:https://zoom.us/webinar/register/5217866875725/WN_bQNA5crxRnKtDyj6cTLhTw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260902T120000
DTEND;TZID=America/New_York:20260902T130000
DTSTAMP:20260827T163342Z
CREATED:20260827T163204Z
LAST-MODIFIED:20260827T163342Z
UID:10003658-1788350400-1788354000@www.myositis.org
SUMMARY:MyoCon Virtual Session - Before You Dial 911: The 411 on Myositis in the ER
DESCRIPTION:The emergency department can be overwhelming—especially when you’re living with a rare disease like myositis. From missed infusions and infections to disease flares and unrelated emergencies\, patients often face unique challenges that aren’t always well understood by ER staff. In this session\, an Emergency Medicine PA living with dermatomyositis shares both clinical expertise and personal experience to help you take control before and during an emergency. You’ll learn how to recognize red flags\, prepare for common ER scenarios\, communicate effectively with triage teams\, and advocate for timely\, appropriate care—even when myositis isn’t the focus of your visit. \nTo join this session\, register for MyoCon 2026 in person or order the recordings and you will receive the invitation to join all virtual pre-and post-conference content!
URL:https://www.myositis.org/event/myocon-virtual-session-before-you-dial-911-the-411-on-myositis-in-the-er-2/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/08/Before-Calling-911-2-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260902T180000
DTEND;TZID=America/New_York:20260902T190000
DTSTAMP:20260810T181136Z
CREATED:20260810T181136Z
LAST-MODIFIED:20260810T181136Z
UID:10003565-1788372000-1788375600@www.myositis.org
SUMMARY:MyoCon Virtual Session - Care Partner Empowerment: Thriving Together Through Care
DESCRIPTION:Being a care partner is a journey of love\, commitment\, and resilience. Join Christina Keys\, CEO and Founder of Keys for Caregiving\, for this virtual session focused on creating balance\, practicing kindness toward ourselves\, and building the connections that help us thrive. Christina will offer encouragement and practical insights to support care partners’ own well-being while they continue providing meaningful care for those they love. Whether you’re new to this role or have been caring for a loved one for years\, this session is a reminder that caring for yourself is part of caring well for others. \nTo join this session\, register for MyoCon 2026 in person or order the recordings and you will receive the invitation to join all virtual pre-and post-conference content!
URL:https://www.myositis.org/event/myocon-virtual-session-care-partner-empowerment-thriving-together-through-care/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/08/Care-Partner-Empowerment-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260909T120000
DTEND;TZID=America/New_York:20260909T130000
DTSTAMP:20260810T183402Z
CREATED:20260810T183040Z
LAST-MODIFIED:20260810T183402Z
UID:10003566-1788955200-1788958800@www.myositis.org
SUMMARY:MyoCon Virtual Session - Conference Orientation & Getting Acquainted
DESCRIPTION:New to MyoCon or just want a refresher? Join us for this virtual “Know Before You Go” session designed to help you feel confident and connected before you arrive in St. Louis. \nWe’ll start with a short presentation covering what you need to know before conference: what to expect onsite\, how to navigate the schedule\, tips for making the most of your sessions\, and answers to the questions we hear most. \nThen\, we’ll break into small group rooms by diagnosis type — giving you a chance to meet other attendees who share your specific myositis subtype before the conference even begins. Whether you’re living with DM\, PM\, IBM\, IMNM\, or ASyS\, this is a great way to find a familiar face in the crowd once you’re onsite. \nCome with your questions\, and leave with a few new friends and a lot more confidence heading into MyoCon 2026! \nTo join this session\, register for MyoCon 2026 in person or order the recordings and you will receive the invitation to join all virtual pre-and post-conference content!
URL:https://www.myositis.org/event/myocon-virtual-session-conference-orientation-getting-acquainted/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/08/Virtual-Conference-Orientation-Getting-Acquainted-5.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260909T190000
DTEND;TZID=America/New_York:20260909T200000
DTSTAMP:20260630T214535Z
CREATED:20260630T211026Z
LAST-MODIFIED:20260630T214535Z
UID:10003543-1788980400-1788984000@www.myositis.org
SUMMARY:Ask the Expert featuring Tahseen Mozaffar\, MD\, FAAN
DESCRIPTION:Join us for a live Ask the Expert webinar with Dr. Tahseen Mozaffar\, a globally recognized leader in neuromuscular disease and one of the foremost authorities on myositis. Dr. Mozaffar will field your questions on all forms of myositis — including dermatomyositis\, polymyositis\, inclusion body myositis\, immmune-mediated necrotizing myopathy\, and antisynthetase syndrome — drawing on decades of clinical and research experience. Whether you’re newly diagnosed or have lived with myositis for years\, this is your chance to get expert answers on diagnosis\, treatment options\, clinical trials\, and what’s on the horizon in myositis research and care. Bring your questions — no topic is off-limits. \nRegister Here
URL:https://www.myositis.org/event/ask-the-expert-featuring-tahseen-mozaffar-md-faan/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/06/ATE-SEPT-2026.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_41mc5yoFSN2mapOQCVoDiQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260910T160000
DTEND;TZID=America/New_York:20260910T170000
DTSTAMP:20260831T162829Z
CREATED:20260630T220010Z
LAST-MODIFIED:20260831T162829Z
UID:10003544-1789056000-1789059600@www.myositis.org
SUMMARY:Educational Event about LISRAYA (brepocitinib) sponsored by Priovant Therapeutics
DESCRIPTION:This webinar is sponsored by Priovant Therapeutics. \nRegister Here
URL:https://www.myositis.org/event/dm-treatment-webinar-priovant/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2026/06/Priovant-Webinar-9.10.26.jpg
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_Z_ogmAMzRDOR_NT_qagV9A
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261015T180000
DTEND;TZID=America/New_York:20261015T190000
DTSTAMP:20260630T222247Z
CREATED:20260630T221543Z
LAST-MODIFIED:20260630T222247Z
UID:10003545-1792087200-1792090800@www.myositis.org
SUMMARY:Ask the Expert Speech and Swallowing Edition
DESCRIPTION:Join us for a live Ask the Expert webinar focused on speech and swallowing difficulties (dysphagia) in myositis\, featuring Dr. Georgia Malandraki\, a member of The Myositis Association’s Medical Advisory Board and an expert in swallowing disorders. Dysphagia is one of the most challenging and under-discussed symptoms of myositis\, affecting communication\, nutrition\, and quality of life. Dr. Malandraki will answer your questions on the causes of swallowing difficulty in myositis\, evaluation and treatment approaches\, exercise-based and telehealth rehabilitation options\, and strategies for managing speech and swallowing changes day to day. Bring your questions for one of the field’s leading researchers and clinicians in dysphagia care. \nRegister Here
URL:https://www.myositis.org/event/ask-the-expert-speech-and-swallowing-edition/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/06/ATE-Swallowing-Oct-2026-.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_yVjPOq71SiWy9fFw4uUcSg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261023T120000
DTEND;TZID=America/New_York:20261023T130000
DTSTAMP:20260810T184842Z
CREATED:20260810T184737Z
LAST-MODIFIED:20260810T184842Z
UID:10003568-1792756800-1792760400@www.myositis.org
SUMMARY:MyoCon Reunion & Staying Acquainted (virtual session)
DESCRIPTION:MyoCon may be over\, but the connections don’t have to end there! Join us for this virtual reunion to reflect on the conference and keep the momentum going with the friends you made in St. Louis. \nWe’ll kick off with a 30-minute recap presentation looking back at MyoCon 2026 — highlights\, key takeaways\, and a chance to relive some of the best moments from the conference together. \nThen\, we’ll break into small group rooms by diagnosis type for 30 minutes of “staying acquainted” time. Reconnect with the folks in your diagnosis-specific breakout from Conference Orientation\, share how you’re feeling post-conference\, and keep building the friendships and support networks you started at MyoCon. \nWhether you attended in person\, joined virtually\, or are just looking to stay connected with your myositis community\, come reminisce\, reconnect\, and keep the MyoCon spirit alive! \nTo join this session\, register for MyoCon 2026 in person or order the recordings and you will receive the invitation to join all virtual pre-and post-conference content!
URL:https://www.myositis.org/event/myocon-reunion-staying-acquainted-virtual-session/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/08/Conference-Reunion-Staying-Acquainted-2.png
END:VEVENT
END:VCALENDAR