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X-WR-CALDESC:Events for The Myositis Association
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DTSTART;TZID=America/New_York:20260902T110000
DTEND;TZID=America/New_York:20260902T120000
DTSTAMP:20260827T213915Z
CREATED:20260827T213915Z
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UID:10003659-1788346800-1788350400@www.myositis.org
SUMMARY:Dermatomyositis: Can Fish Oil Help? A Special Patient Webinar on the NIH FAST for DM Clinical Trial
DESCRIPTION:MIHRA Foundation is pleased to host the NIH/NIEHS Environmental Autoimmunity Group who are conducting FAST for DM — the Fatty Acid Supplementation Trial for Dermatomyositis. \nFAST for DM is an NIH clinical trial studying whether omega-3 fatty acid (fish oil) supplementation\, together with a healthy study diet\, can reduce dermatomyositis disease activity and improve strength\, function\, and quality of life. \nDuring this webinar\, the study team will explain: \n\nWhy omega-3 fatty acids are being studied in dermatomyositis\nWhat the FAST for DM trial is designed to learn\nWho may be eligible to participate\nWhat participants can expect during the study\nHow to learn more and connect with the NIH study team\n\nThe study is enrolling adults ages 18–60 with adult or juvenile dermatomyositis who meet eligibility criteria. \nRegister Here \nHosted by MIHRA Foundation \nwith the Environmental Autoimmunity Group\, National Institute of Environmental Health Sciences (NIEHS)\, NIH Clinical Center \n 
URL:https://www.myositis.org/event/dermatomyositis-can-fish-oil-help-a-special-patient-webinar-on-the-nih-fast-for-dm-clinical-trial/
CATEGORIES:Webinar
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LOCATION:https://zoom.us/webinar/register/5217866875725/WN_bQNA5crxRnKtDyj6cTLhTw
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DTSTART;TZID=America/New_York:20260902T120000
DTEND;TZID=America/New_York:20260902T130000
DTSTAMP:20260827T163342Z
CREATED:20260827T163204Z
LAST-MODIFIED:20260827T163342Z
UID:10003658-1788350400-1788354000@www.myositis.org
SUMMARY:MyoCon Virtual Session - Before You Dial 911: The 411 on Myositis in the ER
DESCRIPTION:The emergency department can be overwhelming—especially when you’re living with a rare disease like myositis. From missed infusions and infections to disease flares and unrelated emergencies\, patients often face unique challenges that aren’t always well understood by ER staff. In this session\, an Emergency Medicine PA living with dermatomyositis shares both clinical expertise and personal experience to help you take control before and during an emergency. You’ll learn how to recognize red flags\, prepare for common ER scenarios\, communicate effectively with triage teams\, and advocate for timely\, appropriate care—even when myositis isn’t the focus of your visit. \nTo join this session\, register for MyoCon 2026 in person or order the recordings and you will receive the invitation to join all virtual pre-and post-conference content!
URL:https://www.myositis.org/event/myocon-virtual-session-before-you-dial-911-the-411-on-myositis-in-the-er-2/
CATEGORIES:Webinar
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260902T180000
DTEND;TZID=America/New_York:20260902T190000
DTSTAMP:20260810T181136Z
CREATED:20260810T181136Z
LAST-MODIFIED:20260810T181136Z
UID:10003565-1788372000-1788375600@www.myositis.org
SUMMARY:MyoCon Virtual Session - Care Partner Empowerment: Thriving Together Through Care
DESCRIPTION:Being a care partner is a journey of love\, commitment\, and resilience. Join Christina Keys\, CEO and Founder of Keys for Caregiving\, for this virtual session focused on creating balance\, practicing kindness toward ourselves\, and building the connections that help us thrive. Christina will offer encouragement and practical insights to support care partners’ own well-being while they continue providing meaningful care for those they love. Whether you’re new to this role or have been caring for a loved one for years\, this session is a reminder that caring for yourself is part of caring well for others. \nTo join this session\, register for MyoCon 2026 in person or order the recordings and you will receive the invitation to join all virtual pre-and post-conference content!
URL:https://www.myositis.org/event/myocon-virtual-session-care-partner-empowerment-thriving-together-through-care/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/08/Care-Partner-Empowerment-1.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260909T120000
DTEND;TZID=America/New_York:20260909T130000
DTSTAMP:20260810T183402Z
CREATED:20260810T183040Z
LAST-MODIFIED:20260810T183402Z
UID:10003566-1788955200-1788958800@www.myositis.org
SUMMARY:MyoCon Virtual Session - Conference Orientation & Getting Acquainted
DESCRIPTION:New to MyoCon or just want a refresher? Join us for this virtual “Know Before You Go” session designed to help you feel confident and connected before you arrive in St. Louis. \nWe’ll start with a short presentation covering what you need to know before conference: what to expect onsite\, how to navigate the schedule\, tips for making the most of your sessions\, and answers to the questions we hear most. \nThen\, we’ll break into small group rooms by diagnosis type — giving you a chance to meet other attendees who share your specific myositis subtype before the conference even begins. Whether you’re living with DM\, PM\, IBM\, IMNM\, or ASyS\, this is a great way to find a familiar face in the crowd once you’re onsite. \nCome with your questions\, and leave with a few new friends and a lot more confidence heading into MyoCon 2026! \nTo join this session\, register for MyoCon 2026 in person or order the recordings and you will receive the invitation to join all virtual pre-and post-conference content!
URL:https://www.myositis.org/event/myocon-virtual-session-conference-orientation-getting-acquainted/
CATEGORIES:Webinar
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DTSTART;TZID=America/New_York:20260909T190000
DTEND;TZID=America/New_York:20260909T200000
DTSTAMP:20260630T214535Z
CREATED:20260630T211026Z
LAST-MODIFIED:20260630T214535Z
UID:10003543-1788980400-1788984000@www.myositis.org
SUMMARY:Ask the Expert featuring Tahseen Mozaffar\, MD\, FAAN
DESCRIPTION:Join us for a live Ask the Expert webinar with Dr. Tahseen Mozaffar\, a globally recognized leader in neuromuscular disease and one of the foremost authorities on myositis. Dr. Mozaffar will field your questions on all forms of myositis — including dermatomyositis\, polymyositis\, inclusion body myositis\, immmune-mediated necrotizing myopathy\, and antisynthetase syndrome — drawing on decades of clinical and research experience. Whether you’re newly diagnosed or have lived with myositis for years\, this is your chance to get expert answers on diagnosis\, treatment options\, clinical trials\, and what’s on the horizon in myositis research and care. Bring your questions — no topic is off-limits. \nRegister Here
URL:https://www.myositis.org/event/ask-the-expert-featuring-tahseen-mozaffar-md-faan/
CATEGORIES:Webinar
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LOCATION:https://us02web.zoom.us/webinar/register/WN_41mc5yoFSN2mapOQCVoDiQ
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260910T160000
DTEND;TZID=America/New_York:20260910T170000
DTSTAMP:20260831T162829Z
CREATED:20260630T220010Z
LAST-MODIFIED:20260831T162829Z
UID:10003544-1789056000-1789059600@www.myositis.org
SUMMARY:Educational Event about LISRAYA (brepocitinib) sponsored by Priovant Therapeutics
DESCRIPTION:This webinar is sponsored by Priovant Therapeutics. \nRegister Here
URL:https://www.myositis.org/event/dm-treatment-webinar-priovant/
CATEGORIES:Webinar
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LOCATION:https://us02web.zoom.us/webinar/register/WN_Z_ogmAMzRDOR_NT_qagV9A
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