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DTSTART;VALUE=DATE:20260201
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UID:10003164-1769904000-1772323199@www.myositis.org
SUMMARY:Rare Disease Awareness Events for February
DESCRIPTION:Celebrate Rare Disease Day all month with rare disease events from TMA\, FDA\, and NIH! Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. To see the list of events\, visit our Rare Disease Awareness page:  Rare Disease Awareness – The Myositis Association \n\nRare Medical Journeys in Myositis Survey (closes 2/28)\nMyoCon Scholarship Fundraiser\n2/17: State Policy and Advocacy for RDD Webinar hosted by TMA’s WomenWithIBM Affinity Group\n2/23: FDA Rare Disease Day 2026 Public Meeting\n2/24-2/27: EveryLife Foundation for Rare Diseases Rare Disease Week\n2/27: NIH Rare Disease Day 2026
URL:https://www.myositis.org/event/rare-disease-awareness-events-for-february/
CATEGORIES:Commemorative
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-17-105453.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
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DTSTART;TZID=America/New_York:20250921T200000
DTEND;TZID=America/New_York:20250922T080000
DTSTAMP:20250807T180155Z
CREATED:20250807T174003Z
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UID:10001877-1758484800-1758528000@www.myositis.org
SUMMARY:World Myositis Day: Illuminations
DESCRIPTION:In recognition of World Myositis Day on September 21\, Myositis Canada has arranged to have Niagara Falls (American and Canadian sides) illuminated in the 4 primary colors of the WMD logo (red\, blue\, yellow\, green). You can view the showing on the falls webcam from 10:00-10:15pm ET: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str \n\n\n\nThe CN Tower in Toronto will also be illuminated that night. You can view the showing on the CN Tower webcam from sunset to sunrise: https://www.cntower.ca/live-views
URL:https://www.myositis.org/event/world-myositis-day-illuminations/
CATEGORIES:Commemorative
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2024/04/World-Myositis-Day.png
ORGANIZER;CN="Myositis Canada":MAILTO:president@myositis.ca
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DTSTART;VALUE=DATE:20250910
DTEND;VALUE=DATE:20250911
DTSTAMP:20250807T180338Z
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UID:10001146-1757462400-1757548799@www.myositis.org
SUMMARY:Interstitial Lung Disease (ILD Day)
DESCRIPTION:TMA Supports ILD Day: Raise Awareness and Learn More About Interstitial Lung Disease \nMark your calendars for ILD Day on Wednesday\, September 10! Hosted annually during Pulmonary Fibrosis Awareness Month in September\, ILD Day is a crucial opportunity to raise awareness about Interstitial Lung Disease (ILD)\, a condition that significantly impacts many within the myositis community. \nILD is a condition where inflammation and scarring damage the tiny air sacs in the lungs\, making it increasingly difficult to breathe and get enough oxygen into the bloodstream. Common symptoms include shortness of breath\, persistent dry cough\, fatigue\, weakness\, chest discomfort\, “clubbing” of the fingertips\, loss of appetite\, and unexplained weight loss. \nBy participating in ILD Day\, you can help bring attention to this devastating condition and support efforts to improve diagnosis\, treatment\, and overall awareness of ILD in the myositis community. \nFor more information and resources\, visit ILD Day. \nTMA proudly supports ILD Day and stands with those affected by Interstitial Lung Disease. Let’s raise awareness together! \n  \n  \n  \n  \n 
URL:https://www.myositis.org/event/interstitial-lung-disease-ild-day-2/
CATEGORIES:Commemorative
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