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X-WR-CALNAME:The Myositis Association
X-ORIGINAL-URL:https://www.myositis.org
X-WR-CALDESC:Events for The Myositis Association
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DTSTART;VALUE=DATE:20260201
DTEND;VALUE=DATE:20260301
DTSTAMP:20260217T162312Z
CREATED:20260217T162312Z
LAST-MODIFIED:20260217T162312Z
UID:10003164-1769904000-1772323199@www.myositis.org
SUMMARY:Rare Disease Awareness Events for February
DESCRIPTION:Celebrate Rare Disease Day all month with rare disease events from TMA\, FDA\, and NIH! Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. To see the list of events\, visit our Rare Disease Awareness page:  Rare Disease Awareness – The Myositis Association \n\nRare Medical Journeys in Myositis Survey (closes 2/28)\nMyoCon Scholarship Fundraiser\n2/17: State Policy and Advocacy for RDD Webinar hosted by TMA’s WomenWithIBM Affinity Group\n2/23: FDA Rare Disease Day 2026 Public Meeting\n2/24-2/27: EveryLife Foundation for Rare Diseases Rare Disease Week\n2/27: NIH Rare Disease Day 2026
URL:https://www.myositis.org/event/rare-disease-awareness-events-for-february/
CATEGORIES:Commemorative
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-17-105453.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
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DTSTART;VALUE=DATE:20260221
DTEND;VALUE=DATE:20260301
DTSTAMP:20260219T173456Z
CREATED:20260217T161945Z
LAST-MODIFIED:20260219T173456Z
UID:10003163-1771632000-1772323199@www.myositis.org
SUMMARY:Rare Disease Week MyoCon 2026 Scholarship Fundraiser
DESCRIPTION:Help Us Raise $5\,000 for TMA’s Patient Conference Scholarship Fund \nAttending MyoCon: TMA’s Global Myositis Patient Conference is a life-changing experience for those living with myositis and their families\, providing education\, support\, and a sense of community. This year\, for Rare Disease Week\, February 23-27\, 2026\, our goal is to bring together 50 donors and raise $5\,000 to provide conference scholarships. Your donation\, no matter the size\, helps bring hope and connection to patients who need it most. Give today and help us reach our goal.
URL:https://www.myositis.org/event/rare-disease-week-myocon-2026-scholarship-fundraiser/
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-17-111652.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://www.myositis.org/scholarships/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260223T090000
DTEND;TZID=America/New_York:20260223T160000
DTSTAMP:20260217T205642Z
CREATED:20260217T160500Z
LAST-MODIFIED:20260217T205642Z
UID:10003161-1771837200-1771862400@www.myositis.org
SUMMARY:Moving Forward. Looking Ahead. An Event for Patients hosted by FDA
DESCRIPTION:The FDA will host “Moving Forward. Looking Ahead. An Event for Patients” for Rare Disease Day. Join this virtual public meeting on Monday\, February 23\, 2026\, in global observance of Rare Disease Week. Learn More. \nAre you participating in a Rare Disease Day event? Please email tma@myositis.org to let us know where you are participating. \nVisit TMA’s website for more events honoring rare disease awareness!
URL:https://www.myositis.org/event/moving-forward-looking-ahead-an-event-for-patients-hosted-by-fda/
CATEGORIES:Commemorative
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-17-110213.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260224T080000
DTEND;TZID=America/New_York:20260226T170000
DTSTAMP:20260217T160708Z
CREATED:20260217T154746Z
LAST-MODIFIED:20260217T160708Z
UID:10003158-1771920000-1772125200@www.myositis.org
SUMMARY:Rare Disease Week at Capitol Hill
DESCRIPTION:This free multi-day event\, hosted by the Rare Disease Legislative Advocates\, a program of the EveryLife Foundation for Rare Diseases\, brings together rare disease advocates from across the country to make their voices heard with their Members of Congress. Participants are educated on policy proposals impacting the rare disease community and provided opportunities to advocate directly for policy change with their Members of Congress. \nLearn More \nAre you participating in a Rare Disease Day event? Please email tma@myositis.org to let us know where you are participating. \nVisit TMA’s website for more events honoring rare disease awareness!
URL:https://www.myositis.org/event/rare-disease-week-at-capitol-hill/
CATEGORIES:Commemorative
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-17-104538.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260227T090000
DTEND;TZID=America/New_York:20260227T170000
DTSTAMP:20260217T160602Z
CREATED:20260217T155956Z
LAST-MODIFIED:20260217T160602Z
UID:10003160-1772182800-1772211600@www.myositis.org
SUMMARY:Rare ase Day at NIH
DESCRIPTION:On Friday\, February 27\, 2026\, from 9 AM to 5 PM ET\, the NIH will host Rare Disease Day 2026\, both in-person at the NIH main campus (Natcher Conference Center) and virtually via NIH VideoCast. Be sure to stop by and say hello to the TMA team at our myositis exhibit table at the NIH.  \nFor more information and to register: Rare Disease Day at NIH | National Center for Advancing Translational Sciences. \nAre you participating in a Rare Disease Day event? Please email tma@myositis.org to let us know where you are participating. \nVisit TMA’s website for more events honoring rare disease awareness!
URL:https://www.myositis.org/event/rare-ase-day-at-nih/
CATEGORIES:Commemorative
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-17-105918.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260228
DTEND;VALUE=DATE:20260301
DTSTAMP:20260225T161450Z
CREATED:20260217T161053Z
LAST-MODIFIED:20260225T161450Z
UID:10003162-1772236800-1772323199@www.myositis.org
SUMMARY:Share Your Rare in Honor of Rare Disease Day 2026
DESCRIPTION:Rare Disease Journeys Community Survey  \nFor Rare Disease Day on February 28th\, 2026\, TMA wants to hear from you! Share your tips for navigating a rare medical journey in myositis and what you and your family do to overcome isolation\, connect with others\, and make your rare experience easier. \nShare your story here. \nAre you participating in a Rare Disease Day event? Please email tma@myositis.org to let us know where you are participating. \nVisit TMA’s website for more events honoring rare disease awareness!
URL:https://www.myositis.org/event/share-your-rare-in-honor-of-rare-disease-day-2026/
CATEGORIES:Commemorative
ATTACH;FMTTYPE=image/png:https://www.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-17-110743.png
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