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DTSTART;TZID=America/New_York:20260916T173000
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UID:10003633-1789579800-1789588800@www.myositis.org
SUMMARY:Myositis-ILD: Bridging Specialties on ILD Awareness Day
DESCRIPTION:​Join us for an intimate and meaningful evening hosted by Nori’s Fight and The Myositis Association. This event will bring together physicians\, researchers\, patients\, and community members for a thoughtful discussion focused on myositis\, with an emphasis on Dermatomyositis and associated interstitial lung disease (ILD).​Through expert insights and shared experiences\, we aim to deepen awareness\, foster collaboration\, and highlight the urgent need for continued research and earlier diagnosis. \n\nRegister Now\nFeatured Speakers\n \nRohit Aggarwal\, MD          Chester Oddis\, MD             Anuradha Bishnoi\, MD     Daniel I. Sullivan MD ​ \n  \n\nWhat to Expect!\n\n\nPanel discussion featuring leading physicians and experts \nPerspectives on MDA-5 Dermatomyositis and ILD \nOpportunity for Q&A and open dialogue \nConnection with others in the myositis community \nDinner and drinks in a relaxed environment \n\nLimited Seats – Register Now
URL:https://www.myositis.org/event/myositis-ild-bridging-specialties-on-ild-awareness-day/
LOCATION:Eddie Merlot’s\, 444 Liberty Avenue\, Pittsburgh\, PA\, 15222\, United States
CATEGORIES:Clinician Education
ATTACH;FMTTYPE=image/avif:https://www.myositis.org/wp-content/uploads/2026/08/norisfight_myositis_combined_logo3.avif
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DTSTART;TZID=America/Chicago:20251024T130000
DTEND;TZID=America/Chicago:20251024T170000
DTSTAMP:20250825T214928Z
CREATED:20250825T195225Z
LAST-MODIFIED:20250825T214928Z
UID:10001885-1761310800-1761325200@www.myositis.org
SUMMARY:Myositis Collaborative Groups Summit (in-person)
DESCRIPTION:Please join TMA and Cure JM for the in-person Myositis Collaborative Groups Summit to learn about recent initiatives of IMACS\, iMyoS\, MCTC\, CARRA\, PReS JDM\, and MIHRA. Our aim is to allow members to share information\, learn more about research opportunities\, and enhance national and international collaborations.  \nView details\, agenda\, posters\, and registration.
URL:https://www.myositis.org/event/myositis-collaborative-groups-summit/
LOCATION:The Platform Conference Center\, 320 South Canal Street\, Chicago\, 60606\, United States
CATEGORIES:Clinician Education
ORGANIZER;CN="The Myositis Association":MAILTO:TMA@myositis.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250909T143000
DTEND;TZID=America/New_York:20250909T150000
DTSTAMP:20250825T213227Z
CREATED:20250825T212609Z
LAST-MODIFIED:20250825T213227Z
UID:10001886-1757428200-1757430000@www.myositis.org
SUMMARY:Inclusion Body Myositis: What Your Patients May Not Tell You
DESCRIPTION:This 15-minute non-accredited educational activity is designed to provide clinicians with a concise yet impactful overview of how inclusion body myositis (IBM) affects patients’ quality of life. The session explores how the progressive physical limitations\, such as difficulty with mobility\, hand function\, and swallowing lead to loss of independence and increased risk of falls and malnutrition for the patients. The emotional toll—including depression\, frustration\, and social isolation—will also be discussed\, along with the burden experienced by caregivers. By highlighting real-world experiences\, this activity emphasizes the importance of functional assessments\, communication strategies\, and supportive care planning in IBM management. Clinicians will gain insights into recognizing the broader implications of this slowly progressive disease\, equipping them to better address patients’ needs\, promote shared decision-making\, and support long-term quality of life in this underserved neuromuscular population. Ideal for neurologists seeking a quick\, practical update. \nFaculty:\nRohit Aggarwal\, MD\, MS\nProfessor of Medicine\nCo-Director\, UPMC Myositis Center\nProgram Director\, UPMC Myositis Fellowship Program\nUniversity of Pittsburgh School of Medicine\nPittsburgh\, Pennyslvania \nElie Naddaf\, MD\nAssociate Professor of Neurology\nMayo Clinic\,\nRochester\, Minnesota \nSupported by an independent educational grant from Abcuro\, Inc. \nClick the link to view the Activity and Disclosure details before participating: https://lnkd.in/eksNyUsU \n\n\n\n\n\n\n\nClick on any of these platforms on September 9 to view presentation: \nFacebook \nLinkedIn \nYouTube \nTwitter \n 
URL:https://www.myositis.org/event/inclusion-body-myositis-what-your-patients-may-not-tell-you/
CATEGORIES:Clinician Education
ATTACH;FMTTYPE=image/jpeg:https://www.myositis.org/wp-content/uploads/2025/08/Medscape.jpg
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