The Myositis Association announces the appointment of three new myositis experts to its Medical Advisory Board. TMA’s MAB is now made up of 23 of the world’s most respected myositis researchers, scientists, and clinicians. These medical professionals are nominated and elected to serve on this distinguished board by their medical colleagues, because they are committed to making life better for those who live with myositis diseases.
Members of the MAB donate their time to TMA and serve by, for example, reviewing research funding proposals and drafts of the newly revised Myositis 101: Your Guide to Understanding Myositis. MAB members agree to consult with a patient’s local physician when they need advice on how to treat myositis. They also help raise awareness of this rare disease among their medical colleagues by presenting lectures to medical students and grand rounds talks with medical trainees such as residents and research fellows.
These committed professionals also serve as the foundation of TMA’s Annual Patient Conference, offering a wide variety of informative talks and answering countless questions from attendees about myositis diseases.
This year, TMA sought to broaden the diversity of specialties represented on the MAB. In addition to specialists in neurology, rheumatology, dermatology, and physical therapy, TMA’s MAB now includes a physiatrist, an occupational therapist, and a pulmonologist.
Tae Hwan Chung, MD is a physiatrist, rehabilitation specialist, and an assistant professor of medicine at the Johns Hopkins University. He runs a multidisciplinary rehabilitation clinic associated with the Myositis Center that includes physical, occupational, and speech therapists. In addition to his clinical work with patients, Dr. Chung works collaboratively with colleagues at the Myositis Center, conducting both basic and clinical research on all forms of myositis. Dr. Chung’s addition to TMA’s MAB recognizes the growing awareness of the importance of physical therapy and exercise as a treatment for myositis.
Malin Regardt, PhD, OT is an occupational therapist and head of research and development for occupational and physical therapy at Karolinska University Hospital in Stockholm, Sweden. In 2015, Dr. Regardt received a TMA research fellowship grant to complete an investigation on hand function, activities of daily living, and quality of life in patients with sIBM. She continues her clinical research on all forms of myositis. Dr. Regardt brings additional rehabilitation support to TMA’s MAB.
Sonye Danoff, MD, PhD is a pulmonologist, specialist in pulmonary and critical care, and an associate professor of medicine at the Johns Hopkins University. Dr. Danoff is the world’s leading expert on lung disease associated with myositis. She leads both basic and clinical research that has been fundamental to the understanding interstitial lung disease and other pulmonary complications of myositis. Dr. Danoff’s addition to TMA’s MAB supports the recognition of ILD as one of the most serious life-altering complications of myositis.