TMA executive director Mary McGowan, TMA member and patient advisor Darlene Shelton, and pulmonologist Dr. Cheilonda Johnson were interviewed for an informative article by Ty Fenwick in the Indianapolis Recorder, an African American weekly newspaper in Indiana.
The article, “Don’t confuse it with old age: Myositis diseases can be deadly,” highlights the disparity of risk for women of color and myositis diseases. It includes Darlene’s story of the challenges she has faced in finding an accurate diagnosis and adequate treatment.
Despite weakness severe enough to require a wheelchair, Darlene refuses to let polymyositis define her. She said, “I don’t accept this is who I am. I feel like I will beat this. I’m a strong woman, and I will fight this, and I won’t give into it.”