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| A.C.C.E.S.S. |
| Advocating for Chronic Conditions, Entitlements and Social Services (A.C.C.E.S.S.) is dedicated to helping find solutions to many of the social and economic problems that confront families facing chronic conditions. |
| American Academy of Dermatology |
| The American Academy of Dermatology is the largest, most influential and most representative of all dermatologic associations. With a membership of more than 13,700, it represents virtually all practicing dermatologists in the United States. Find a dermatologist on this site. |
| American Academy of Neurology |
| The American Academy of Neurology (AAN), established in 1948, is an international professional association of more than 18,000 neurologists and neuroscience professionals dedicated to providing the best possible care for patients with neurological disorders. |
| American Autoimmune Related Diseases Association |
| The American Autoimmune Related Diseases Association is dedicated to the eradication of autoimmune diseases and the alleviation of suffering and the socioeconomic impact of autoimmunity through fostering and facilitating collaboration in the areas of education, research, and patient services in an effective, ethical and efficient manner. |
| American College of Rheumatology |
| The American College of Rheumatology (ACR) is the professional organization of rheumatologists and associated health professionals. Members include practicing physicians, research scientists, nurses, physical and occupational therapists, psychologists, and social workers. Find a rheumatologist. |
| American Disabilities Act/Justice Department |
| The Department of Justice ADA Home Page. The ADA prohibits discrimination on the basis of disability in employment, programs and services provided by state and local governments, goods and services provided by private companies, and in commercial facilities. |
| Arthritis Foundation |
| The Arthritis Foundation site includes health information about types of arthritis and arthritis-related diseases, news and research updates, as well as practical tips for managing arthritis symptoms. |
| Assistivetech.net |
| The primary mission of assistivetech.net is to provide increased access to information on assistive technology devices, services and other disability-related resources for people with disabilities and the general public. |
| Clinical Trials |
| Search for current clinical trials. The National Institutes of Health, through its National Library of Medicine, has developed ClinicalTrials.gov to provide the public with current information about clinical research studies. |
| Congress.org |
| Identify and contact your elected officials. |
| Cure JM |
| Cure JM Foundation is a volunteer organization founded and managed by families of children dealing with juvenile myositis. Cure JM assists volunteers in raising awareness and funds for research, as well as providing a Family Support Network. |
| Dermatlas |
| The Dermatlas is an international collaborative project that enables health care professionals, parents, and patients to access high quality dermatology images on the World Wide Web. The Dermatlas is compiled, reviewed, scored and updated by physicians of the Johns Hopkins University. |
| Guidestar |
| Guidestar is the national database of nonprofit organizations. Find information about the operations and finances of over 800,000 charities. |
| Helping Patients.org |
| Helping Patients brings together America’s pharmaceutical companies, doctors, patient advocacy organizations and civic groups to help low-income, uninsured patients get free or lower-cost brand-name medicines. Through this site, Helping Patients offers a single point of access to more than 275 public and private patient assistance programs, including more than 150 programs offered by pharmaceutical companies. |
| Hospital for Special Surgery, Rheumatology Division |
| Find informative lectures on myositis and a range of topics: myositis overview, physical therapy, medications and a neurologists' perspective. |
| iGive |
| Shop online through iGive and a percentage of your bill will be donated to TMA. Register and choose TMA as the cause you would like to support. |
| Independent Living USA |
| Independent Living Centers are typically non-profit, community-based organizations providing services and advocacy for persons with all types of disabilities. Their goal is to assist individuals with disabilities to achieve their maximum potential within their families and communities. They work to assure access to housing, employment, transportation, communities, recreational facilities, and health and social services. |
| International Society for Stem Cell Research (ISSCR) |
| ISSCR is a nonprofit professional membership society open to scientists, clinicians, researchers, advocates, public and private institutions and others with an interest in stem cell research. The organization is dedicated to advancing stem cell research, providing public and professional education, and serving as a forum for discussion of associated ethical issues. |
| Johns Hopkins Myositis Center |
| The Johns Hopkins Myositis Center is one of the first multidisciplinary centers of its kind that focuses on the diagnosis and management of myositis. Combining the medical expertise of specialists in the fields of rheumatology, neurology and pulmonology, the Center creates a profound benefit for myositis patients. |
| Myositis Support Group, United Kingdom |
| Free to UK residents, the UK Support Group distributes a newsletter via email and provides support services for all types of myositis. |
| National Family Caregivers Association (NFCA) |
| The National Family Caregivers Association (NFCA) exists to support family caregivers and to speak out publicly for caregivers' needs. |
| National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) |
| The mission of the National Institute of Arthritis and Musculoskeletal and Skin Diseases is to support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training of basic and clinical scientists to carry out this research, and the dissemination of information on research progress in these diseases. |
| National Institute of Environmental Health Sciences (NIEHS) |
| Human health and human disease result from three interactive elements: environmental factors, individual susceptibility and age. The mission of the National Institute of Environmental Health Sciences (NIEHS) is to reduce the burden of human illness and dysfunction from environmental causes by understanding each of these elements and how they interrelate. |
| National Institute of Neurological Disorders and Stroke (NINDS) |
| The mission of NINDS is to reduce the burden of neurological disease—a burden borne by every age group, by every segment of society, by people all over the world. |
| National Institutes of Health (NIH) |
| Begun as a one-room Laboratory of Hygiene in 1887, the National Institutes of Health today is one of the world's foremost medical research centers, and the Federal focal point for medical research in the U.S. Simply described, the goal of NIH research is to acquire new knowledge to help prevent, detect, diagnose, and treat disease and disability, from the rarest genetic disorder to the common cold. |
| National Organization for Rare Disorders |
| The National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. |
| PubMed |
| PubMed is a service of the National Library of Medicine. This service allows a keyword search of the 9 million citations in MEDLINE and Pre-MEDLINE (with links to participating on-line journals), and other related databases. |
| PubMed Central |
| A service of the National Institutes of Health and National Library of Medicine, PubMed Central provides free, open access to full-text scientific research and review articles. |
| Technical Assistance Project, State Contacts |
| The Technical Assistance Project is a federally funded program that works to reduce barriers and increase access to assistive technology (AT) devices and services for consumers with disabilities of all ages. This project also provides technical assistance in the areas related to universal design, state procurement actions, and funding for assistive technology. |
| The Brain Matters |
| A resource from the American Academy of Neurology Foundation, this site will help you better understand common disorders of the brain, as well as learn about people living with the disorders. The information was prepared by neurologists-doctors with specialized training in diagnosing, treating, and managing disorders of the brain and nervous system. Find a neurologist near you by clicking on "Working with your neurologist." |
| The Job Accommodation Network (JAN) |
| The Job Accommodation Network (JAN) is not a job placement service, but an international toll-free consulting service that provides information about job accommodations and the employability of people with disabilities. JAN also provides information regarding the Americans with Disabilities Act (ADA). |
| The Juvenile Dermatomyositis Registry |
| A diagnosis-based national registry of juvenile dermatomyositis (JDM) patients has been established and collecting data since 1994. The registry is at Children's Memorial Hospital, Chicago, IL through funding from NIAMS (NIH). The purpose of the registry is to determine prevalence, incidence, the circumstances surrounding the onset of JM, the influences that ethnic background may have on the disease course, and to facilitate JM research by physicians and scientists across the US. |
| The Muscular Dystrophy Association |
| The Muscular Dystrophy Association (MDA) is a voluntary health agency—a dedicated partnership between scientists and concerned citizens aimed at conquering 40 neuromuscular diseases that affect more than one million Americans. |
| The NeurologyChannel |
| NeurologyChannel™ is developed and monitored by leading neurologists. Some of their main features include NeurologyForum, MDLocator, NeurologyWorld, Neurology Videos, Live Chats, etc. |