The Myositis Association offers a range of programs to help children and families living with juvenile myositis (JM) through research, outreach, advocacy and education:
Research funding of $3 million in grants and fellowships awarded in the past seven years, with approximately $500,000 awarded for research specific to juvenile myositis
JM Annual Conference, presenting the latest information in myositis research, treatment and management
Regional JM family events to allow JM families in the same geographic area to meet and learn from each other as well as to hear from specialists about the disease
Quarterly newsletter, the JM Companion, dedicated exclusively to the diverse challenges and inspiring triumphs of children with juvenile myositis
Myositis and You: A Guide to Juvenile Myositis for Patients, Families, and Healthcare Providers, a 460-page comprehensive book on juvenile myositis and all related issues
Summer camp scholarships for JM children to experience the fun and camaraderie of summer camps
Online message board exclusively for JM parents and children from around the globe
JM section of the TMA web site dedicated to juvenile myositis, with pages specifically for parents, teenagers and younger children
E-pals program for children, with parents’ permission, to communicate with someone close to their own age and situation
Birthday cards and other holiday greetings to JM members of TMA
Physician outreach through several pediatric rheumatology conferences to inform them of TMA and invite their participation in the organization
JM Family Volunteers with current TMA members reaching out to JM families new to TMA